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After Rituxan
Hi all, Went to the onc yesterday for a check-in. Finished Rituxan only therapy at the beginning of October, for Stage 4 Marginal Zone. She said that we are keeping the lymphoma at bay for now. New blood work in a month and more blood and a visit in January. I was hoping for the R word but I need to take what I can get.…
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Hello to all!
I have been AWOL for a bit here but I am back on track now I think. I got hit with a double whammy of an evil cold followed by a stomach virus. Then my laptop decided to act up but its all good now. There were so many posts to catch up on and all I can say is,wow lots going on!! Just allow me to wish all of you well and…
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neuropathy
Hi all, I tend to do lots of research on line and get noticication of all new journal releases and clinical trials in regards to lymphoma. There is a pediatric phase 11 trial on the use of Glutamine for peripheral neuropathy. Actually there are a number of children receiving Vincristine who are taking Glutamine with their…
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Lymph Node Biopsy Questions...
Hi, I've posted once before. I'm not diagnosed but have had swollen lymph nodes, night drenches and random illnesses for over a year now. I finally saw a doctor who would like to do a lymph node biopsy in my neck and am quite relieved. Can anyone share their experience with this procedure? Were you put out, was it just…
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I'm here
I want to say thank you so much for all your thoughts. This has been such a rough weekend for us. Friday afternoon we went to the hospital, Aley met us there and my neighbor and her daughter were there too. My neighbor practically helped raise pogo and potty train while we worked. So she was surrounded with love. She died…
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Non Hodgkins Small Lymphocitic Lymphoma new diagnosis-
Hi I recently was diagnosed with Non H SLL stage 4 30% in my bone marrow. I am 39 years old mommy of three precious boys ages 7,5 and 3. I have been on a roller coaster of feelings since my diagnosis about a week ago. I need to talk to any survivors of this type of lymphoma. I need guidance, support and info. Please if you…
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Good luck Lisha
Hi Lisha, Just wanted to let you know that I will be thinking of you tomorrow when you go in for treatment. You've endured so many obsticles in the past few months that I'm sure your relieved to get this started. One more job to check off your list of things to get done, and heaven knows, your list has been a very long…
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the good and the bad
Hi All, Haven't been on here in some time now. So here goes what has been happening. It is long so please bear with me. As I had mentioned in prior posts my energy level never did come back after my RCHOP chemo finished in February of this year. I think it finally bottomed out when we returned from our anniversary trip in…
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stomach pain with hodgkin's (chemo)
Hi My daughter was diagnoised with Hodgkin's this summer at the age of 22. She is currently taking ABVD treatment and is doing well. Before she was diagnoised she had stomach pain but this seemed to have went away. She is now at treatment 7, she is going to take 12 or 6 cylces. She has hodgkin's in her chest. This past…
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Does anyone have Neuropathy & chronic pain after CHOP R treatments?
I am new to this site and encouraged to find anyone else living with the difficult side effects after chemo treatments. I am 43 years old and was first diagnosed with follicular NHL in 2005. It was only in my neck area so I received rituxin treatments for a year with very little side effects. I also went through radiation…
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Wondering about donald
I am wondering about Donald51, I hope he is doing well. I dont see him on this site any longer. Hope you are still doing well. I go for all my tests December 1st. The 23 of December will be a year since the Zevalin. So will see. I seem to have my problems. I hope you are doing well. Would be nice to hear from you. Hilde
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Word to the wise from the NOT so wise!
Back away from the window folks!!!! Got off the computer earlier and decided to wash the living room windows..(project hubby was to do a month ago). Got the window toppers down and in the wash, screens out and two removeable side windows into the living room....(I'm exhausted by now) and Oh...did I mention that our home is…
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Thinking of you
Hi All, I just want to say that I am thinking of all of you. The weekend is here and its lovely outside. I hope you all have a wonderful weekend and week ahead. I thought I would be a stressed out mess as next week gets closer. But I am feeling pretty good. I didn't think I would be saying that, but I'll take it...…
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Thursday what's on Tap....( little humor)
Hey guy's I have my spinal tap scheduled for Thursday next week, from what I was told when they did the first tap, there was irregular cells found, but not enough to concern my Onc., but at the Univ. of Penn they are not to sure. I guess it's better to be on the side of caution. If all goes well I'm starting back to work…
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My heart is breaking
My baby Pogo is in the hospital today. Woke up at 3am to Pogo really suffering. She hurt her back about 3 weeks ago and seemed to be doing better. I have no clue what happened but I've never felt so helpless. She can't stand on her back legs. She was panting so hard Jim and I just kept trying to support her till we could…
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Posted picture in Expressions
Hi guys, As you know, alot of fishermen tell "Tall Tales" when saying how big their fish are. Well...we believe a picture speaks for itself. This is the 65 pound biggest salmon I have yet to ever catch. Click on my picture(allmost60 in blue box to the left) which will take you to my CSN space...then click on expressions…
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Lymphoma Non Hodgkin low grade Cancer
I'm new at this board, I felt a lump the size of a golf ball under my jaw at the beginning of October. Last week I was operated. They remove 2 lymph node, the first one had cancer but the other one was not. They took a biopsy under my nose but everything was ok. I don't feel no sweat, did not lost any weight or fatigue, or…
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Sue's Fish
Hey Sue, Love the new pic. Not being a fisherman, what kind of fish are they and can they be eaten? All I know about fish is what I can eat, but that is a FABULOUS picture! Love it! How are you doing after your 4th? My grandson is standing next to me with his Woody toy (Toy Story) being cuter than any 3 year old can…
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Mole's growing in radiation area?
Good or bad? I went for a check up yesterday. To see why there is 2 moles growing in the area that was radiated. They told me not to worry unless its a fast growing mole. Say double in size in a week. But they are taking them out, regardless the nature of the barbie twins. Once they take them out and get the results from…
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Hugs needed
Hi All, My MIL arrived last night. She and sis in law are now comfy in their apt. MIL is in poor shape. The change from early Oct to now is dramatic. Hospice came today and set everything up. They are wonderful. I am getting my voice back a little, but the extreme fatigue is doing a real number on me. I feel like I don't…
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Mary (merrywinner) Leslie (YESYES)
Leslie and Mary Where are you? We miss people when they don't post. We miss you. Let us know how you are doing. John(FNHL-1-4A-5/10)
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Hair falling out due to Radiation
So, i'm 12 treatments into radiation, and suddenly my hair is falling out again on the back of my head. I am only getting radiation to the chest area, and was under the impression you would only lose hair at the radiation site. Did anyone else lose their hair during radiation? i am finished with chemo, and already lost my…
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Round 1 Results
First off I wanted to say thanks to all of you who came by my earlier post. Know that all your comments, advise, and friendly words of encouragement are greatly appreciated. I feel all warm and fuzzy inside and not as scared as I was when I came aboard. I just wanted to update on some results that I had mentioned that I…
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Can't get back to 100%
Had last treatment on Sept.28th, but just can't get back to 100%. Its weird because I feel a little stronger everyday, but just not a 100% yet. My body doesn't really feel tired ,its that my eyes feel tired. Its kind of hard to explain. I am not expecting miracles, just wondering if this is normal. Anybody that has…
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Every chemo treatment is different
Hi, Folks, Thanks, Sue for checking me out last week! Been exhausted and busy healing.. I had anxiety going into the infusion room last week because the tx before that my body had 6 days of constant chemo effects - non-stop (I bawled and my hubby actually had to coax me to go to the infusion room.) But this time, no heavy…
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Grasping at Straws
Hello, This is my first post to this discussion group and I thank you all for listening. A member of my family(age 49) was diagnosed last year 2009 with Non-Hogkins Lymphoma (Follicular,Indolent) Lymph nodes in cervical, axillary and mediastinum. Biopsy was done on cervical node confirming this diagnosis. He was offered to…
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Has anyone done Bendamustine - Rituxan Chemo for NHL?
Haven't seen this chemo mentioned on the site - it's one being considered for my stage 4, Follicular, B cell cancer that didn't go into Remission on CVP-R. Just wondering if anyone has used it and was it successful? Fran
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does symptomatic lyphoma mean it is advanced?
Because you show symtoms and have chemotherapy but go into complete remission does this mean that my lymphoma is advanced. ? I cant find any information about this and would appreiate anybody that can help? Richsterr
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COMMENTS ON R EPOCH
ANY COMMENTS ON MEDIASTINUM MASS DIFFUSE LARGE B CELL LYMPHOMA? I AM NEW TO THIS AND IN MY SECOND ROUND OF TREATMENT. MEDIASTINUM GIRL
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lymphoma in oral tongue
Hi, my first time here. I found a lump in my tongue in Dec. 2009, had it removed. Came back as large B cell. Went through six rounds of chemo, no radiation. It has been 4 months since my last chemo and now I have found a new lump in my tongue. Went to my ENT two weeks ago and he wasn't to concern because it was quite…