Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Lymphoma (Hodgkin and Non-Hodgkin)

Archives for October 2010

Happy Halloween!
Hi guys... "HAPPY HALLOWEEN" to all of you! We bought two "big" bags of candy at Costco 3 weeks ago and theres only 1/2 of one bag left to hand out...ha! I'll be glad to see the last of it gone tonight...I'm sick of candy...ha!!!!...Love..Sue (FNHL-2-3A-6/10)
back
Hello everyone, we just got back from Marco island, it's a beautiful place, it was so nice not to think of cancer for a week, sure we talked about it, but we did not dwell on it. This Wednesday I see if my count's came back, if not it's a bone marrow biopsy again. Not to get all deep, but I got to tell you, when I was…
Difficult Week - just reaching out
Hi, Friends, This has been a hard week - my dear step mom (of 40 yrs), Ruthe has ovarian cancer - it was found last week and it grew fast aggressively after it was biopsed (due not being able to urinate) so she had to have weekly chemotherapy ASAP which started 2 days ago! Poor dad has been caring for her and is stressed…
Difference between cll and nhl? Anybody know?
Anybody know the difference between chronic lymphocytic leukemia and non hodgkin's lymphoma?
Just diagnosed yesterday with "Marginal Zone" Lymphoma
Just diagnosed yesterday. A year ago I started having a burning sensation in both of my eyes. I was treated for dry eyes and then 5 months into treatment I started having double vision. They did a CT scan and found a 2.8 cm tumor behind my left eye. A biopsy was performed and it was confirmed as lymphoma. Yesterday I was…
Update
Hi All, This is the latest news on mom in law. We are flying her and her daughter out in 2 weeks. MIL(mom in law) Will stay in Ca until her time comes. Sister in law will most likely also remain in Ca. I am now having to scramble to find a short term rental apartment and furnish it. They arrive on the 12th. My rads start…
Unresolved issues question
So, I would like a little information from the members here. I have two questions and looking for a little insight. First, background;I'm male 47 yrs. old. I post on the colorectal boards here as I have stage II rectal cancer. I was diagnosed last November and went through a battery of diagnostic testing through the…
Hodgkins- "The Good Cancer"
Is anyone else tired of hearing people say "oh Hodgkins, that's the good cancer!"? I realize it is one of the better ones to have, it's treatable, blah blah blah. Still cancer. Still scary. Still have to go through chemo. Still have to have radiation. It's not fun and it's in no way shape or form "good". And I don't just…
scan results
Hi All, just a quick update on my mom in law. The scans show mets to her brain. She will attempt to have cyberknife radiation and will be under hospice care. I know many of you have said prayers for her, please continue to pray for Delores. I hope all of you are holding strong. I have had a bunch a difficult days. Some is…
did anyone out there come down with long term effects????
i am 13 years stage 4 hodgkins free and so far the only longterm effect i came down with was an under active thoyroid which the radiation killed...i am at high risk for alot of long term complications like heart disease, breast cancer, thyroid cancer etc..i was just wondering how many people actually did come down with…
POLY MVA
Hi There: Was just wondering if anyone has every used Poly-MVA to treat your Hodgkin Lymphoma. Or used it in combination with chemo. I was diagnosed with Nodular Sclerosing HD back in March 2008. Still dealing with it. Chemo will only put me into remission for a month or two. Then back to more chemo and now they want to do…
How can I get diagnosed?
Beginning Labor Day weekend, I had pain in my lymph nodes under left arm. Within the next couple of days I ended up with a burning sensation under both my arms, and a sunburn feeling on my chest, upper back and upper arms. I then had tingling in upper thighs, and began waking in the night with hot flashes (no sweating).…
ANOTHER IDIOT
I GUESS YOU KNOW BY NOW WE HAVE ANOTHER A$$HOLE ON HERE TRYING TO SELL THE SAME CRAP,PROBABLY THE SAME PERSON WITH A DIFFERENT NAME. I FLAGGED A FEW ALREADY. IT IS REALLY MESSING UP THINGS FOR ME. IT WOULD BE NICE IF THIS SITE HAD SPAM FILTERS.THEN AGAIN HOW WOULD THEY KNOW SPAM FROM JUST REGULAR POST? THEY SHOULD BE ABLE…
congrats
congrats to all you Giants fans out there, we watched the game at a sports bar, it was so hard to watch! hahahaha Weather is nice here, got to watch the sun, no hair on my body,hahahahahaha hope all is well guys! Vinny
Possible Virus
Hi Everyone, Take a look at all the posts (even in other discussion groups) from DorisEKnight. I think we have a virus going on here. Don't open any of those posts!! Don't know what else to do. Anyone else have an opinion? Want to keep my Lymphoma family safe!! :)
13 years HODGKINS FREE!!!
I WOULD LOVE TO HEAR HODGKINS DISEASE SUCCESS STORIES!! OR IF ANYONE NEEDS TO TALK ABOUT WHAT YOU ARE GOING THROUGH EMOITONALLY IM SURE I CAN RELATE AND SHARE MINE WITH YOU! LETS STAY POSITIVE PEOPLE...BLESS YOU ALL!
Suggestion after a PET scan
I had a PET scan on the 21st of Oct. Praise the Lord the results were great. The person who administered the radio active stuff told me to drink a gallon of African Rooibos Red Tea as soon as I got home. I did. He says it helps to wash the radiation out. I thought I would share this. I drank a gallon in less than an hour…
questions and concerns about lymphoma
So my sysmtoms started another 3 years ago. It was little stuff really, like swallow glands in my neck and the pressure was so bad. I thought maybe it was just a sore throat. This has progressed to them always be slightly swollen now. Sometimes its really bad. Then I started having lots of colds, phenomena, sinus…
CT scan results
Hi all, I got the results of my mid-way CT scan in the mail today..... Radiologists Impression:(reading straight from the report) CT of the Chest, Abdomen, and Pelvis demonstrating a POSITIVE response to therapy with the previously Lymphadenopathy appearing to have decreased in greatness dimensions by 50% or greater as…
Nothing to do with cancer
Hi All, I just wanted to share this with you. It has nothing to do with cancer, tx, recovery etc. My youngest daughter (28)who lives with us, is flying to Boston for the weekend. Her best friend moved back to Boston this summer. So they miss each other a lot. Well her friend has this WONDERFUl boyfriend. He called Kim, my…
Newly Diagnosed, Will it get harder?
Hello - I was recently diagnosed with Hodgkins Lymphoma, Stage 2a. Last Thursday I had my first chemo treatment (ABVD) and have been feeling good. I had a little mouth soreness for one or two days and was more tired than usual the first few days following but I'm back to normal. With the exception of having chemo scheduled…
Husband diagnosed with Mantle Cell Lymphoma
Hello, My husband was recently diagnosed with Mantle Cell Lymphoma. He is 36 and has always been really healthy. We have two autistic children and the whole family is having a hard time dealing with the news and we are scared to death. He actually started chemo on Tuesday. He is having outpatient chemo once every three…
My last chemo is today
Well the day i have been waiting for is today,after a long battle to beat this demon,as i said before in an earlier post i feel like a baby bird being pushed out of the comfort of my nest to finally go out on my own and fly. Its been a long 2 and a half years and i found out alot about myself in that time, i am a strong…
Docs called
Hi All, Well, the Docs did call. The onc said that she thought the pcp had told me since he was the one who had ordered all the scans. My pcp said the same thing, he thought she had told me since she was the onc. I think they both messed up. they both should have told me, instead of thinking only one. It's hard to have…
Radiation Dose Comparison
Hi All, I was able to post a copy on my expression page of a chart that shows the radiation dose comparisons. I know that we have been chatting about ct scans and the amount of radiation we receive. This chart should help you to better understand how much we really do receive. It adds up very fast. Something to think…
Still waiting
Hi All, Well I am still waiting for the phone to ring. It's a little after 4, and no docs have called me yet. I am getting ready to watch the GIANTS beat the Phillies one more time. It will be just my luck, the docs will call during the game... I'll check in with all of you a little later on. Peaceful healing... Go Giants…
Lymphoma Pain
I was wondering what kind of pain lymphoma cancer gives to our bodies? Pain like burning sensation or just throbing pain? I know this might be a dumb question, but in the end what should we expect?
Doc visit
Hi All, Well, I have news, and not so great. I had to stop by my Dr office to pick up an rx, it was the end of his work day. Thought it was a quick in and out. Nope, he wanted to go over stuff with me and just check me out. Spleen is still very enlarged and tender to the touch. Nothing new. Then he tells me that had gone…
Just found out dad's diagnosis
Hi all, I am new to this, so don't know if i am doing this right. My dad was diagnosed with Non hodgkins lymphoma in Oct 1998. He started with Diffuse large B cell that was "big, bad and ugly" as the cancer dr said. He took CHOP and went into remission with it. He had a continual follicular non hodgkins...that he would…
Strange moods
Hi Sue and Tom, When I was doing my RCHOP I found each round different from the last but they all had one thing in common. Each one became more difficult with greater fatigue until I pretty much had zero energy for anything other than day to day serviving. With each additional chemo we get further andd further away from…

Lymphoma (Hodgkin and Non-Hodgkin)

Discussion List