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Treatment done anxiety lingers
Hey all, I hope you all are well and enjoying life. I finished my SBRT on the 8th but since then I cannot seem to shake this anxiety/scared feeling. I scan on May 13th and I find myself so nervous. I am not on any systemic treatment but cant help but wonder what they will find next.... I was stage T2B at diagnosis and even…
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Help
Hi! I need some advice from those who have "been there". In 2017 during a ct scan for something else they found a tumor on my left kidney (on the bottom). At that time is was 0.5 x 0.6 x 0.5 cm. I was placed on active surveillance with alternating u/s and ct scans every six months. My last ct was the end of October 2018…
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Happy Easter
I hope you all have a wonderful Easter and are able to spend time with loved ones. Last year I spent Easter at Mayo while I was waiting for my nephrectomy the next morning. I am so thankful that I am able to celebrate with my family my Savior’s victory over death. He is risen. I do not fear this disease. I will keep…
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Cancerversary - Trip to Hawaii and more good scans
A little over a year ago I was told I have cancer. My life was flipped upside down. It’s been a long and hard year. I’ve been on Cabo since December and the response has been nothing short of miraculous. I had my second staging scans since starting Cabo and have had two amazing results. Tumors shrinking, nothing new and…
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NED for me too!
Happy to report that my scan this week was clear. It was a little scary for awhile as my doctor noticed some nodules in the lung scan. The radiologist confirmed they were calcified and had been there for a couple of years, so that was a huge relief. Now i'm good for another 6 months!!
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Pathology is in...... sort of.
Just got some fantastic news! Thanks to a bad signal, I missed the docs call with the pathology report from my partial neph last week but he did send an accompanying email message. He said the results are good. There were not many details on the message as I’m sure he wants to go over them with me but he said the results…
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One year post diagnosis.
Hi Y'all. I havent posted lately as life have been very busy. I miss you all and always think about you everyday. I had my partial right sided nephrectomy almost a year ago and this forum has supported me as me and my family navigated the world of kidney cancer. I just had my 1 year scan and xray and I'm happy to say that…
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Small t3 hemangioma
so I got my ct scan results in writing. My doc never mentioned this funding and I’ve been having back pain at night as I’ve written about on this board for many months going back to before surgery in this exact location. does anyone have experience with a finding like this. I plan To call my doc. wondering if this could be…
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Relay for life
i am going to be in Blacksburg Virginia this Friday a Relay for Life event at Virginia Tech. Is there anyone close by that may be attending as well?
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Its crazy...
I started acupuncture again on friday. Turns out my acupuncturist is female and is also in her early 30's, clear cell RCC, also on her right kidney! Stage 1, grade 2, 1 year NED as well! I'm told over and over how rare it is to have this cancer soo young. Well, guess its not as uncommon as it used to be. It's nice having…
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Post op question - feelings.
So the recovery is ongoing, and I'm on the up. I wanted to ask something here to my nephed brethren as yo post surgery issues. The scars are healing well. The area where the big incision was made, were my kidney came out, is of course still sensitive. Around and below it. What I've noticed since last weekend was some…
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Showtime!
insurance approved. Waiting on blood work but other than that, I’m next. Surgery to begin in about 20 min. 2.9 cm left kidney. partial neph. Robotic.
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Uncle NED!!
Uncle NED just stopped by. Boy was I glad to see him!!!! I still asked about my pain and the Dr referred me to my PCP as it might be linked to my daily activities. Next scan will be in one year. Now I’ve got to get back on my diet and lose the weight I have gained back since my surgery.
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Surgery scheduled for tomorrow.......maybe
Met with the surgeon today. left with a scheduled surgery on the 29th. Got a call as soon as I got home. The surgeon had a cancellation for tomorrow and wanted to know if I wanted the slot. After several phone calls to parents and work, we are tentative for 4:30 tomorrow at Cleveland Clinic Fairview. Robotic partial neph…
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Waiting for scan results
I am impatiently waiting for my scan results. My EGFR was 79 which is down a bit.
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NED!
3 month Ct scan chest, abdomen, pelvis was NED! My first of hopefully many visits from Uncle Ned who I am throwing out the door quickly so he. Can come to visit all of you! So relieved as they had not done a chest or pelvic ct before my surgery and I was concerned there might have been something hiding from the x rays.…
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Mom's Cancer Diagnosis
At the beginning of this year my mom had an issue with a bulging disc so painful that I had to take her to the ER. We came home that day with more than we bargained for. They did a CT of her spine because she was in so much pain and while in the ER the doctor informed us that she had Cancer of her Kidney and smaller cells…
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Moved up annual scans
All of a sudden a few weeks ago when I would lay on my right side, as I’m a side sleeper I would have a pain. Nothing severe just enough to get my attention. It doesn’t hurt any other time and I can go about my daily routine not feeling a thing. I decided to move up my scans with a different Dr to get a fresh set of eyes.…
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Low Urine Gravity
All i have had 2 recent urine tests about 2 weeks apart. Everything looked good (even my UA which has always been a problem) but one came back flagged with a very low gravity (Below 1.005). The one before that was within the lower but normal regions. It is true that since I have been diagnosed that I am drinking a lot more…
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3.5 cms
Am silent reader of this site. I almost log in every day to read and absorb as much as information as I can. Information on the internet is so overwhelming. Just wondering what is the prognosis for 3.5 cm Rcc? Out of your own experiences.Thank you all!
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My 12 month Kidney Cancer journey
For: Your edification Me: 57 year old male, living in the US, in otherwise good physical condition Feb 2018: First found out I had a possible 2 cm growth on my right kidney from a scan done during an emergency room visit for a kidney stone. April 2018: After having some additional testing (with contrast MRI) done two…
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Newly diagnosed
Hello all, I recently was diagnosed with RCC. My journey started with a severe stomach ache and weight loss. I visted my doctor and they sent me to the hospital for a Cat scan that showed nothing. I was told I had a infection that would be taken care of with antibiotics. I felt a little better for about 2 weeks and the…
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Successful Partial Nephrectomy u
I had a successful partial nephrotomy on March 21, 2019 and I am recovering well. Thanks be to God for His mercies. The pathology report says t1b, clear cell carcinoma, Fuhrman Grade II. I’m grateful!
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3 month Scan
My first post operative appointment with my doctor is on Wednesday morning and I just found out they want me to go for a CT scan of my chest, abdomen and pelvis on Monday. At first I was under the impression that the doc was only doing an ultrasound, but I received this call today. Of course now I am wondering if there is…
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Second Opinion Results
Well........ not so much has changed. Met with a doc doc today that I thought was going to end up being my surgeon. Turns out he doesn’t do Nephs any more. He looked at my scans and agreed that it should come out sooner than later though. This was a bit of a surprise to me. He said that once you get to 3cm, the potential…
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And the results are in.
T2a N0 MX. 10 cm Renal cell carcinoma. Clear cell type. No sarcomatoid features. No rhabdoid features. Tumor necrosis: not identified. Fuhrman grade 2. Tumor extension: limited to kidney. Margins uninvolved by invasive carcinoma Lymphovascular invasion: not identified. Other tumors: none. Negative for metastatic carcinoma.…
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Husband 1 year checking in
Hi All, Well it has been almost a full year since my husband's diagnosis of stage 4 RCC with mets on 3 rib bones. Had Kidney removed in June, and started immunotherapy 7-30-18, checkmate 214 nivolumb and Ipilimumab. About November he had lots of fatigue and bone pain for about 3 months. We got CBD salve for the bone pain…