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Happy New Year!
Hope everyone has a good 2018! Prayers for all of us.
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Stage 4 Bone Mets ( Mom )
Hi all, My Mom was just diagnosed Dec 4th , Stage 4 mets to Spine & lower left rib. She just had spinal surgery to remove the L5 replaced with rods & cement . She’s in rehab and just started having severe pain on the rib / upper back. We are waiting for another MRI. She was scheduled for Cyberknife radiation 1.10, but they…
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NED at 5 1/2 years...
just had my 5 year scans and bloodwork, a few months late. So grateful to report that my oncologist has released me and said I’m cured At 5.5 years. I’m a little uneasy about that given the sneakiness of this disease. Still, I AM very grateful for my NED Report & the support this forum has provided to me the past 6 years.…
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Crazy ride.
I'm a 55 yo male. January 2016 underwent a CT scan, they found a mass had completely engulfed my left kidney. Further scans revealed a large mass laying against my trachea and 2 other directly below my lungs. Had my left kidney removed along with lymph nodes nearby. Went to MD Anderson for treatment, they recommended a…
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No evidence of metastatic disease vs NED ??
I got the call and the nurse said that my scans were back and that there was No Evidence of Metastatic disease. She didnt say No evidence of disease. I trying to understand the difference. Should I be concerned. I didnt think to ask her the difference. I had a partial hysterctomy in 2016 because of heavy bleeding. I still…
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Can't make it through the night without going to the bathroom
I used to be able to hold it now I'm up one or two times a night passing urine and I don't think I'm drinking any more than I did before hopefully this will clear up with time. Also I've had some stomach cramp issues the last few days don't know if it's because of the stomach bug going around or if it's just part of the…
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Swelling
Up until this past week all had been fine. Now I wake up with a swollen face and hands. I have cleaned up my diet very well and try to watch salt intake. Do any of you stay away from restaurants? I only go for sushi or Pho Vietnamese soup. The soup is what did me in lastnight. I feel like my whole body is swollen. What do…
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Surgery scheduled
My surgery is now set for January 26th. Open partial right. I’m relived to have it on the calendar. Nervous about the surgery but excited to get this thing out of my.
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Political correctness
is wathching the Holiday Bowl with your grandson in his Green and White (Christmas Color) Uniforrm as part of the MSU band. Icemantoo
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To all re: profiles
I would like to ask everyone,including me, to update profiles. There is no faster way to offering bad advice if we can't access some member history. It gets very tiresome especially with the one or two hit people who ask for a personal education in surgery and drug therapy. We get a few line introduction which no one can…
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3 months scans
So I go in for my 3 month scan today, since surgery. I had my whole kidney removed, so the doctor is ordering an IV hydration before and after my CT with contrast. I will have a chest and abdominal CT. Is this typical, and I should ask for this everytime I need scans with contrast. Praying and claiming NED result.
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rcc
rcc was diagnosed after severe abdominal pain. Went to er Oct, 2007, where a Ct was done and found that appendix were about to rupture. Also findings on the Ct was a tumor in left kidney. After having appendectomy to remove appendix, I had an open partial nephrectomy Nov, 2017. In returning for 6 mo Ct follow up a tumor…
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Kidney Cancer Newbie
Hi , just had a radical nephrectomy for a 9 cm tumour , T3 NO MO, struggling at the minute as they are monitoring a lung nodule and I’m oanicking it’s rcc! Anyone give me any advice on lung nodules? thanks in advance jo just need a friend right now
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2 cm complex renal cyst- is it cancer?
Is a 2.0 cm complex calcified cyst on the kidney cancer? What happens next? Do I see a urologist or a nephrologist?
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Looking for RCC Stage IV survivors past 5 years
I’m new on here. My husband was diagnosed with Stage IV RCC July 2016. Tumor 11 cm, metastasis up IVC into heart and in lung. Total left nephrectomy, open heart surgery with bypass, and removal of part of the lung. No treatment while waiting to see if there was recurrence, which showed in April 2017 in both lungs and…
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Shoulder Pain
Hi question: it could be that a severe pain on my right shoulder could be related to a mass that I have in my left kidney(4.6cm) metastasis Already? The pain is no al the time , if a doing exercise I don’t feel it at all. help
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Taste and appetite
Hi I am 6 days post op and food still doesn't taste right, also appetite not there yet, does this sound familar? Just wondering how long these will last. Thank you Sal
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Repost for newbies
I am repoting this from earlier this year. One of the frustrations of those of us who reply to your questions is not knowing enough about your diagnosis to reply apprporriately. Please fill in your CSN Space and detail your diagnosis with your questions. We would like to be able to assure thise of you who have a routine…
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Sorry boatload of questions!
Any type 2 diabetics here? My sugars have been the worst in my life and I know that is bad for healing. How long will I look and feel 6 months pregnant? Have any of you contemplated the genetic component of your cancer? Is it a fluke/ mutation/ect? In the aftermath I’m now feeling like wow I had cancer, I have to worry…
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Good Health
Season's greetings to all. Now that our big feast day is over, and I hope you all enjoyed it, here is a very good talk on staying healthy in modern times. Hmm... I can't paste the link, so search youtube for:- Ivor Cummins Ketofest 2017 It is potentially life changing. Steve.
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Merry Christmas!
To all who celebrate. And to those that don't celebrate Christmas, respectfully, I wish you Happy Holidays of your choice. For those that don't celebrate any, please disregard this post. Nevertheless, I wish you all well and please know that I keep all of you in my daily prayers. Donna~
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Catheter removal
Hi, I just had my kidney surgery on Wednesday and they took the catheter out on Friday and I'm having a little bit of pain going but the stream is kind of narrow just hoping that this clears up by itself and hoping there's no blockage or anything anybody else having or have had these issues? And oh boy did it hurt when…
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Forgive me if this is a repeat
I have read that many of you had a variable appetite. I’m day 6 post op Partial nephrectomy. No appetite, but I cannot get enough water! I am so thirsty all the time and then Extra bloated from drinking. Did anyone have this? I know kidneys work on fluid balance. Are they freaking out? Sorry if this is repeat, I looked and…
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Very scared
as many of you, I found a mass in my left kidney (4.6 cm) during a rutine checkup for my liver. Waiting for a CT scan but am I very scared already. No symptons , just occasionally pain in my right shoulder and right shoulder plate . Not sure is this is related help
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Severe loss of weight
Hello. I am on here because I am desperately trying to find a way to help my Dad. He was diagnosed with stage 4 kidney cancer in June and it has metastasized to every organ. He has loss a significant amount of weight. In April he weighed 210; currently he is at 132 with clothes and shoes on. He has no appetite. The doctors…
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New. Waiting. Worried
I just received ultrasound results that show a 3.3cm mass on my left kidney. I go in for a CT soon (it's trying to be scheduled now). Of course, I'm anxious. I know that my mass (as of now) appears to be one of the smaller ones. Does that mean it's less likely to have spread? Do they look ALL over your organs in a CT scan…
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just diagnosed
Hi, I am new to this forum. I was just diagnosed with a "renal mass" I see the Urologist on the 5th of January. What words of wisdom do you have for me. Thank you.
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Urologist - Finally
Well, I finally got to meet with a urologist yesterday. I hand picked him based on some homework. Super nice guy. He showed me my scans, said it has not spread (despite some minorly swollen nodes in the area of my liver) and said he can remove it. I have fatty liver and he thought the nodes are from that or something else.…
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Concerning Results
So I had bloodwork today and here are the results.. Blood Creatinine High at 130 (norm 50-100) Urine Creatinine Low at 2.0 (norm 2.5-20.0) eGFR Low at 45 Gamma Glutamyl Transferase Low at 8 (norm 12-37) As you may have read I have had horrible nausea for 6 wks since surgery. I read this is a symptom of high creatinine.…
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what over the counter pain med are ok
I been off line a little. I went back to work last week, and been getting caught back up to speed. It feels good to get back. But I am still get tired easily, and when i get home I dont feel like doing much. I picked up a bug my kids brought home from school. What can we take for pain or flu like symptoms. For those who…