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Kidney Cancer

Archives for July 2016

I'm stunned
During a routine CT scan to evaluate my progress with Medullary Sponge Kidney a small suspicious nodule was found. An ultra sound was ordered and it was confirmed to be a solid mass 5.8 X 4.4 X 4 cm protruding from the inferior lower pole of my right kidney. I met with my kidney doctor yesterday and he told me about the…
Fitting back into clothes
Hey everyone! Im now 4 weeks +1 day from my surgery. I'm still pretty swollen from my surgery and can't fit into any of my clothes yet. I'm wondering how long it took for you to be able to wear pre surgery clothes comfortably? I had a radical nephectomy of my left kidney if that helps. Kerry
Almost 1 year since radical and???
New to the board and think its great that it is available. August will be 1 year since I had my radical due to cancer. Still clear to date which is great but not have kidney function issues with the remaining kidney that the nephrologist cant quite figure out but here is my real question. Since I have had the surgery I…
how can i help? emotionally... homeopathically... finding the right intervention
My dad was just diagnosed with stage 4 papillary non clear cell carcinoma after having a nephrectomy several years ago and now it has returned in the other kidney and in other places as well. my dad is my idol, my hero, and someone who has inspired my values and beliefs my whole life! i would welcome any guidance, hope,…
Diarrhea-When does it start?
Nine years ago, I was in a clinical trial for sutent and had horrible diarrhea. At times, I didn't want to leave home because it would hit with little or no warning. My cancer has now returned and I have been put on votrient. So far, no diarrhea. My question is: At what point after starting votrient did you begin to have…
Update
Where to begin? I had an MRI and a Ct scan last week. Tha thing in the brain has some small progression. The last MRI was in 2013 so there we are. My vision is still blurry. The thing shares space with my optic nerve. All the little things in the lungs and right kidney remain stable. Every so often I get a three to five…
Going go my doctor soon but questions
I have had flank pain for over a year, it's always been bilateral and never hurt at the same time. It can be dull and sometimes sharp. I also will get low back pain that comes and goes on both sides of the low back. Sometimes it also goes to upper back, also the joints in my arms,hands legs. I had an ultrasound done to see…
SBRT
I have conslulted with a local radiation oncologist regarding a 5.9cm x 3.5cm lesion on my right adrenal. He assured me that he could treat the area with a 60-70% local control rate. If there is a reccurance in the same lesion can it be followed up with more sbrt, rfa or cryo? Also, my oncologist at the U of C stated that…
6 Month Post-op scan tomorrow
Hi all, The last 6 months since my partial nephrectomy have flown by and it is time for my CT scan and check up with my surgeon at Moffitt Cancer Center. I am a little anxious even though my stage 1 diagnosis makes it highly unlikely to show any trouble. Praying for an all clear and an uneventful trip to Tampa! UPDATE: And…
IT'S BEEN AWHILE
Hello eveyone, Its been awhile since I've posted on here. I pop in every once in awhile. But today I'm looking for a little information. If you know my story. I have had partial neph been one year NED. My son too had RCC this past year. He had total neph. Both of us stage 3. But he was clear cell, me chromophobe (in the…
3 weeks post op partial
good morning friends! I am 3 weeks out of my partial robotic neph. I'm still a llittle swollen on that side and find at times I hurt on my front and back on my left side. Is this normal? I healed up great, but was t sure that I'm still suppose to be swollen or hurting. It doesn't help that I have a bulging disc in my right…
Sutent 2 weeks on 1 week off
Hi, I haven't been on this site since I started my chemo in April. Was on 50 mg Sutent and had problems with my thyroid. Put me down to 25 mgs of Sutent and still have problems with my thyroid. I am of thyroids meds but they can't seem to get it adjusted My nubers go back and forth from 1 to 25. It was suggested that I do…
small 3mm Nodule in right lung
Hi Everyone, I have a question. I was stage 1a, 1.2 com, grade 2 rcc and i was told that my chances of recurrence were less than 5%. Yesterday I had my annual scans and I recieved the CT portion back thus far. All blood looks good. CT scan reveals two small 3mm solid nodules in right lung, lower and upper part. I have read…
Back to doc tomorrow
I am just venting. My incision is still open and I now have fish looking line sticking out of it. I have a doc appt tomorrow. I am frustrated because it hurts right now to stand, sit, lay down, walk. I also have new bruising showing as the swelling has gone down. Yup I know I sound like s whino right now. My skin is super…
Feet Swelling 9 Months Post Radical Nephrectomy
Hi All, I had my surgery Oct. 1st of last year. Rencently I've noticed some swelling in my feet and sometimes puffier than usual eyes in the mornings. It seems like after my cancer everything worries me. Is this something I should be overly concerned about? Thanks for the help.
Survivor looking for some positive outside outlooks
Hi, I was diagnosed with stage IV RCC 29 months ago. I had a kidney stone and went to the doctor. He suggested a CT and we discovered a mass the size of a grapefruit on my kidney and both adrenal glands were enlarged. at 46 years old a diagnosis of RCC was a bit of a shock. I had a radical nephrectomy on one side and…
Heart palpitations
I just started on 800 mg of votrient 3 days ago, and about 1-2 hours after taking it, I have heart palpitations that go away after a couple more hours. I am contacting my doctor about this, but I was wondering if any one else has experienced this. I hope it doesn't mean that I can't take it.
Post-Op Appointment
I had my post-op appointment today, three and a half weeks after my surgery. The nurse practitioner took a look at what is left of the incisions, which isn't much, and said I was making a "remarkable recovery", and released me to do pretty much whatever I want. Don't know what it is about me, but for some reason, I seem to…
Driving
Just wondering opinions here. My doctor basically said I can start driving when I am ready. I'm still sore and incision is still open. How long did you wait to start driving again? To refresh I had an open nephectmy and complete kidney and uterer removal 6/29. Hey ker
I'm new with questions
Good Day to all, I am trying not to google but I just have so many questions. I am just looking for your thoughts on a few things. On 6/23/16 I have a total rt open radical nephrectomy. I'm from a smaller town and everything all happened so fast I'm just now putting things together. The surgeon did not remove the adrenal…
Dancnbear-Update
Dancnbear-Update: It has been a very long time since I have written anything but I do read everyone’s thoughts and suggestions on a daily basis. Much of what you have to say is encouraging and keeps me going through some hard times and so I must thank you all for your support and prayers. It is amazing the things that you…
cabo, the update.
Well, I've completed 6 months of nivo infusions with some radiation. Unfortunately the results are less desirable than anticipated. So within a couple weeks it is back to the TKI approach to my care. Maybe I'll learn to like diarrhea and nausea this time. I've had growth in strange areas. Including in my left brachial…
Should this cyst hurt?
I feel like someone just sucker punched me in the Kidney. It hurts to breath or move or lay still. What the hell is it? Do these things hurt?
It has been about a year in the passing of our friends
I don't know the exact dates, but I know just about this time a year ago we lost two very special CSN members - and friends. Djinnie and Nanosecond were two of some of the strongest, gracious and generous people I got to know. Missing you both very much....along with other dear friends we have lost in the last couple of…
Still Here
Sorry it has been a while since I have posted, I hope I did not create any un-needed worry. I am a week out of the first cycle of IL2 and FootStomper you are right the staff handling me are incredible. I am still very ill from the IL2 even though I have been home for nearly a week. This has to be the worst thing I have…
What does the future hold?
The good: In 6 days I will be a 73 years young going on 74. Nine days later I will be 14 years NED going on 15. The uncertain: I am going Thursday for a PSA and other bloodwork follow up from my visit 3 weeks ago. According to the Prostate CSN discussion board I am probably looking at a Prostate Biopsy The good: I already…
I should have never googled.....help? I'm new.
In April I was seen in the ER for left side flank pain. I was worried as I often get infections or stones and never know until somethings gone really wrong. I can't feel them for some reason. Well the doctor did a CT scan to check for stones and I did not have any. Not any passing that is. But I did have a large cyst.…
pathology report back and incision update
Evening all, Well right now I am cancer free! YES!! I will need every 3 months ct,chest xray, and blood work for the next year. Pathology report Left kidney: Clear cell renal cell carcinoma furnman grade 2 (what does this mean?) 3.1 cm in greatest dimension tumor focally involves the peri-renal fat neg for lymphovascular…
Hard day
Have you ever been surrounded by people you love and they are here for you but you still just feel alone? Today is just one of those days
Incision question
Hey all They used surgery glue when doing my incision which is about 9 inches. It started as a laporscopic but ended up being a radical nephrectomy. Anyway, the surgical glue is finally starting to come off, surgery was 6/29, and I now have oozing where under the glue is breaking up. It's cleat to pinkish but Im wondering…

Kidney Cancer

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