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well that was exciting
I finally was scheduled for my scans last thursday to find out how my nivo and radiation have been working out. But during the week I had had a couple of hypotensive episodes with SOB. I tried to ignore it as these scans were important. Aren't they all? Anyway, next thing I know I am in the cardiac recusitation unit in the…
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Cyst around impacted wisdom teeth
Tooth pain drove me to see the dentist. Both remaining wisdom teeth on lower jaw have medium size cysts surrounding them. Referred to oral surgeon and gave a copy of the xray at my oncologists office Friday, waiting to hear from her regarding next steps. Assume I will stop Afinitor in order to have oral surgery with a…
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Not sure if I belong here
hi, all. I'm not sure if I belong here, but I am wanting advice on a second opinion. Imaging done for kidney stones 2 years ago revealed a very small 8mm indeterminate lesion. kidney stones and related issues were addressed and I did not follow up on the lesion until recently, as my husband was diagnosed with and…
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Drinking and Driving-choosing to take a bus home
I would like to share an experience with you about drinking and driving.As you well know, some of us have been known to have had brushes with the Authorities on our way home from the odd social session over the years.A couple of nights ago, I was out for a few drinks with some friends at the Bonefish Grill and had a few…
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NED at the 3 year mark!
I had a CT scan yesterday, 7/7. Just received a phone call from my surgeon. Results are NED!! This is the first time he's phoned me himself. He emphasized how the 3 year mark is a milestone. I am very, very blessed and appreciative of the support of fellow club members. God Bless all of you! Izzy
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MRI Results
Hi Everyone, It seems that I cannot catch a break right now! I had MRI of brain on Saturday, July 2 and Dr. called me on Wednesday July 6 saying I have 4 (3 very small) tumors in my brain! We will be doing Cyberknife Radiation on the biggest one and then discussing treatments. Not sure what they are going to offer, I have…
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Been a while...
Hi, all. Sorry I *poofed* for so long. Nothing on the sRCC front for a while; scans in March came back looking good, and since then we have been utterly deluged with work, so I haven't had much time to do anything, especially sit and think about what ol' cansah's doing. Anyway, John went for scans last week and we went…
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Pathology report...
I believe I have reason to be happy, but of course still a little nervous. My pathology came back and it is considered T1A clear cell renal cell carcinoma, 2.0 x 1.5 x 1.4 cm, grade 3. Tumor confined to kidney, margins negative, no lymphovascular invasion. Only thing that worries me is the grade 3, but both doctors said…
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Constipation after surgery help
I am ready to jump out of my skin. First off I can't have prunes or prune juice due to allergies. I have tried stool softener, milk of magnesia, whi grape juice Apple juice, water lots of it. I have talked to my doc and he wants me to use an enema. I'm 8 days out of surgery.Any suggestions please?? Thank you for any imput…
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Help!! Please
hi reading my last ct scan report also mentioned that I have more than one . Besides the mass on my upper mid pole left kidney. There is also a faint lesion in the lower pole left renal cortex. There is an additional small hypo dense cortical cyst in the anterior lip mid pole left kidney and a smaller round enhancing mass…
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Drain wound
For anyone that had a drain...how long did it take for the hole to close after they took it out? Thanks for any info :) angie
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A relief to see the same familiar faces after so many months
Hi everyone It has been one year and one week since my surgery and about 8 months since I last visited the Forum. I am so happy to see many of the "old timers" still active on the board - you give me hope. I am also sad to see so many new names and faces. This time last year, I was a wreck and could not see my way to a…
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RCC vs Oncocytoma
hi everyone! After 20 days (feels like 20 years) still unclear about everything. I already had two MRI , sonogram and Ct scan with and without contrast. On the last report says the differential diagnosis between RCC and Oncocytoma . I believe that I will need to have a nephrectory either way. Also says the my liver…
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Feeling anxious
Today I finally have my appointment with my new kidney cancer doc. I had my CT scan in May, but it has taken me a while to actually get my appt scheduled. I did get my results the day after my CT, and very happy to say Uncle NED had visited me. Thank God. My surgeon left the practice and moved to Colorado (from Illinois),…
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Surgery yesterday, discharged today :)
I can't begin to thank you all for you sweet comments and support. Reading all of your stories was so inspiring to me. I had surgery yesterday at 12 and they were able to save 95% of the kidney. I was originally suppose to stay 2 nights, but was pleasantly surprised I just got released. They removed drain and catheter and…
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On the other side
Hi all if this does make to much sense.p I'm still on morphine.i ended up having a radical of my left kidney and utter. When the doc started the operation he somehow sliced my utterer so,back,it couldnot be saved. So he took both. Preliminary reports it was cancer but not sure on anything else. im in a lot of pain. They…
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Vietnam Vets
I was diagnosed almost 5 years ago with RCC and lucky for me it was stage 1. It was small enough that a partial nephrectomy was all that needed to be done and so far I am fine aside from the residual medical anxiety, insomnia etc that many of us have. As I look at many of the posts regarding kidney cancer, an alarming…
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Surgery!
Good evening my sweet friends. I just finished my first and hopefully last lyproscoptic renal nephrectomy. the waiting was far worse than the surgery. Since they had to go inside my kidney, I have to stay at the hospital 2 days. Thank you for being my support team.
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Update
So after a new CT scan, and two stress tests this week my oncology team has decided to go ahead with the IL2 starting Tuesday. That was the good news but we had bad news dropped on us too. The CT scan did reveal that the radiation did shrink the big tumor that has been causing so much problems, I know that sounds like good…
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Recovery Quesion
I'm a week out now from my surgery and things seem to be going fine. I do have a couple of questions, however, related to two things that I have observed. Just want to see if it's normal or if I should be pulling out the hair I no longer have. 1. Over the course of the week, on three separate occasions, I had a tiny, tiny…