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Kidney Cancer

Archives for May 2016

Getting fond of Uncle Ned
Hello Friends, I had my 6 month check yesterday - and Uncle Ned came to visit! Very happy news. Unfortunately, my liver is twice its normal size, so another appointment with a hepatology doctor is in line for me. Not too happy about that, but it is certainly something I can work with. Hoping all is well with everyone! Been…
Radical nephrectomy and total hysterectomy with incision done together
My surgery date was 5/11/2016. Still having pain and itching/ burning around and under incisions. Kidney was worse than hysterectomy! This was my first surgery ever, at 53. I feel like I should be able to get around better than I do,but I get tired and start hurting even if I'm up moving around for just a little while.…
New Clinical trial to see of Cabo will trump Sutent. This is great.
Cabozanitinub is going to start studies to see if it will become a FIRST IN LINE drug for kidney cancer. This means that there could be a drug to come out ahead of the one already prescribed first, Sutent. I think the article says a Phase 3 trial is going to start of the drug.…
Pain in middle of shoulder blades
New to site. I and a 48 year old white female. At the beginning of this year started having symptoms of fatigue and right side pain. March 2nd 2016, my doctor ordered a CT scan and the results showed a renal Mass 12 by 16. After much testing, my urologist determine a right radical nephrectomy was necessary. The surgery was…
Newbie
hi everyone. I recently ended up in the er with belly pain and came out with unknown cause but now own a 2.5 complex lesion saying possible for rcc. Any advice would be good. The er suggested mri or ct scan with contrast to confirm. Positive for urine in blood. wbc indicating no infection. Weird thing on blood work red…
Creatinine levels with partials
Just wondering what your creatinine levels are like with partial nefs. Mine is up seven points since right after my partiaI which was this past February. Still not out of range but wondering if creeping up some is normal with partials. Going to surgeon on June 1 for follow up. I will ask him then. Also, wondering if the…
Moved but not gone.
Hey Folks, Just checking in from the land of sun and fun in Florida. I havent checked in a while as I have been moving and starting a new job, but I have been lurking and keeping tabs on folks. The missus and I just moved from Nuevo Mexico to Florida and are now settling in. Beautiful area, but i have not had much time for…
not diagnosed but undergoing testing
Hi everybody I am new to this forum and have a few questions.Since 2012 I have had some weird symptoms that no one can figure out(facial flushing,digestive problems,weight loss and gain,and generally feeling lousy)Have been checked for neuroendocrine tumors at Univ of Iowa,St Louis Univ and Barnes Jewish.In 2014 even went…
Radiation
I am now on sick leave for the rest of the school year as I have started radiation on Monday. I am living in the Portland area and my wife is still in Eastern Oregon (that sucks) but my team is hoping the radiation will shrink the big tumor and the rest as well. After three days the only problems so far is fatigue and a…
May 2016 Update
Hello, All, It occurs to me that my posting on the forum has quieted a bit over the past few months... a 6-month-old will do that to you! But I figured I would let you all know how we are doing and also let you know about one big life change that will happen in a few weeks... First, as some of you may remember, Jacob was…
Recently Diagnosed
I am a 35 year old female, recently diagnosed with a 4cm fluid filled malignant mass on my left kidney. I am so emotional at this point to where i don't how to think and feel about this. I feel as though this is a death sentence for me and I just don't want to deal with it at all. The urologist stated I will have to have…
Help Understanding a CT Report
After getting a chest xray I was told I needed at CT of my abdomen due to the radiologist seeing a mass in the upper left quadrant of my abdomen. Did the CT with contrast and IV and what was found is possible aneurysm. Here is the radiologist impression There is an oval 3 cmm mass in the hilum of the left kidney. It has…
Full Nephrectomy vs Partial Nephrectomy on a 1.3 cm tumor
Has anyone have any opinions on if having a full Nephrectomy vs a partial lessens the risk of recurrance of a non aggressive 1.3 cm tumor? Also, have been told that the smaller the size of tumor, the risk of recurrance is even lower.
My Mrs and research
Ive posted here before that Mrs Stomper Phd is a researcher in Viral oncology. At a meeting at the National Institute of health today they were dicussing my cancer. A fellow researcher asked her if she had read his paper in Science (a VERY well respected, peer reviewed publication. The study discovered that cancerous mice…
72 hours until partial nephrectomy
Hello everyone - Seventy two hours and counting! For those of you who've had the partial neph, please let me know if you have any suggestions for preparing or recovering. I'd love to lose about 30 pounds and get in shape prior to the surgery, but that's not likely to happen. They'll do the surgery robotically, which should…
Partial Nephrectomy
while taking blood thinners, has anyone ever had to have this type of surgery? What are the do's and dont's? How did you prepare?
1.3 cm non aggressive tumor
Hello, I have been told there is a 1.3 cm tumor on my right kidney 70% cancer or 30% benign. I am opting for partial neph for piece of mind and to get on with my life. Does anyone know the chances of reccurance? my doctor told me around 4%. Those seem like pretty good odds.
what to expect now
My surgery was 6 weeks ago, complete nephrectomy, right kidney, RCC. The tumor was 7cm located in the middle of the kidney just clear of the main artery. Stage 1, slow growing, contained within the kidney, good pathology, did not seem to have spread. I read where someone ran a low temp for awhile. I'm doing the same, and…
4 cm grade 1 clear cell
Hello, first sorry for my english , I .m not a native speaker, I live in Japan but Im from Europe.…I m 36 years old, I discover incidental my cancer.…here , I have annualy screening.…last year I was pregnant and I skip the abdominal ultrasound my bad! .…I have 4,5-3,5 clear cell, grade 1 , was a shock for me because I…
Surgery Findings
Hi everyone, This last surgery was very rough. I had to have left upper portion of my lung removed and also had my heart opened up to remove RCC from those body parts (which I am running low on). Doc also removed 5 lymph nodes around the area and 2 tested positive for RCC. Oncologist said we will continue to remove with…
NED
Monday the 9th i had my CT scan and chest x-ray today i saw my doc all test came back clean..... I wish the same to every one
New
Thank you to everyone for your responses to my post. I will be here often with many questions. I have a 1.8 cm tumor on my right kidney. It will be removed with open surgery. I am 67 years old and just don't know what to expec? Thanks again!!
New
I just have been told that my MRI has shown a tumor on lower lobe of right kidney. Urologist want take the tumor out in one month. What is involved? What should I expect?
Hi everyone
It has been awhile since I have been on here to let you know how I am doing. In Nov last year I fell and tore ACL complete tear in my knee, well a lot of therapy never helped, and doc injected Synvisc one in knee 3 months ago and it helped with pain some but not a lot. He said he would have to do surgery at some time and I…
A quick update before the real update
Morning all, I am off for my first 6 week PET-CT scans tomorrow since taking Votrient. Anxiety levels are actually pretty low - the results will be what they will be without me worrying about them. This casual attitude could well change over the next 48 hours waiting for the results, but if I have to change treatment…
I don't mean to put pressure on you guys
Hi! I know very well we need no pressure and should do as we please or feel comfortable with, but... we are here to give support and to learn from our disease. Looking for info in the web is frustrating, scary at times and "paint by numbers" by wich I mean stastistics, numbers, studies, old stuff and just very clinical. It…
New here and awaiting biopsy
Greetings - Looking for a little support/positive stories on which to focus . . . Had CT scan on Tuesday, which identified a 3.5cm "cyst" on left kidney. Ultrasound today suggests its a mass, and not filled with fluid, which is - apparently - highly suggestive of kidney cancer. Recommendation is that I follow up with…
Update & Clarification
Went to my urologist/surgeon/oncologist (jack of all trades) for first blood tests 4 months following my partial open nephrectomy and got clarification on my TNM score: T1a N0 M0 Grade 3. When he told me this in the hospital, my befuddled mind thought he said stage 3. Boring I know, but shoot, I'll take 1 and be thankful!…
Scan Results
I got the scan results form Monday the chemo I have been getting for the past five months OPDIVO is still not working. The tumors all continued to grow, one in particular that has been causing the bleeding in my lungs and me to cough up blood grew the most. I met with a radiation specialist this week and our goals was to…
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Kidney Cancer

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