Kidney Cancer
Discussion List
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Real good news, and even better news
So, the Oncology visit and scan results were on Thursday. Sutent is working, the tumors are smaller. that is my really good news. The even better news is I am moving on to Opvido infusions next week. I finally made my ultimatium that since the Sutent is obviously working, I wanted the medical marijuana card, because I have…
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Complex Renal Cyst - New Member
Where to begin?? The last few months I've been experiencing bouts of nausea and itchy hands and feet. On December 8th, I started experiencing a lot of pressure in my upper right quadrant. I felt like I had a pillow jammed up under my rib cage. It wasn't painful but it was certainly uncomfortable. The following day, my…
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Same old couple
After leaving the doctors office, the old couple go to Mcdonalds. A biker is sitting down with his lunch and watches as the husband orders their food. The old gent sits across from his wife. Opens the bag, removes a napkin, tears it down the middle, puts half in front of his wife and half in front of himself. He then cuts…
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Retired and living in Florida
As most of you are aware Icewoman, myself and Piper have moved to Florida. One thing we can not escape is the monkey business going around in our retirement communities. Here is what I am talking about. A couple, both age 78, went to a sex therapist's office. The doctor asked, "What can I do for you?" The man said, "Will…
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Have a date!
I finally got a call for the date of the surgery 2/16.. I am scared but cant wait to get the buggar out!! Still worried about the prognosis because of the location and difficulty of removal, but one step at a time. KIM
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Confused
Hello all, I am brand new to this group as I am brand new to the idea of having a very large tumor on each kidney as well. Just last week after seeing a urologist for blood in my urine he prescribed medicine to stop the bleeding and ordered an ultra-sound. This revealed the growths that are 60x60x60 cm and the other…
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New member
Hi Everyone, About 4 months ago I was diagnosed with stage IV kidney cancer. Unfortunately for me it has spread to lung and lymph nodes thus it being catorgorized stage IV. I had my left kidney/tumor removed on November 19th, 2015 and just finished my first round of HDIL2 treatment. I will now wait two months then have…
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Officially a member now
Hi All, I just got back from urologist appt and was informed that the mass will come out. When I asked what the chance was that it was cancer he said 75% or more. Its still small 2.5 cm. So, out it comes. I want it gone!! I did not want to go with the wait and see. I couldn't live with wondering all the time. Really liked…
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RCC metastasized to opposite adrenal
Eight years after having my left kidney and adrenal gland removed due to rcc, I now have a tumor on my right adrenal gland. The doctors are recommending that I have the adrenal gland removed which will leave me without any adrenal glands. Has anyone else had this happen?
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Lung cancer in right hilar
Just had PEt scan and showed a mass in the right hilar of my lung. Having biopsy Thursday. Has anyone had this tpe of cancer spread from renal cancer and did any kind of treatment work
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Friday Birthday Party Special Guest
Had not realized that the day I was scheduled to get my 1.5 year scan results was my wife's birthday. We made a day of it, taking the ferry into NYC and I took her to lunch and we did a little shopping. The day was capped off with a special guest--NED! I was a little concerned since I have had a very dull, non-steady pain…
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"Surgical Material" noted in findings of a recent CT Scan 2 1/2 years after partial nephrectomy
I had robotic partial nephrectomy of the right kidney in 7/2013.. So I had an unrelated abdominal CT scan a couple of weeks ago (gastro ordered) that showed surgical material at the nephrectomy site. I was just wondering if anybody else has had this on a scan? It has been 2 and a half years since my surgery. I have had on…
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My 1.5 year free of cancer news
Hi all, I had my 18 month abdomen,pelvic,lung C.T scan and recieved the report today. Uncle Ned did me a favoure and came to a cosy cofee shop where my hubby and I were celebrating my 1.5 year free of cancer. Uncle ordered a big slice of chocolate creamy cake but did not have enough time to stay and have it so I had to…
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Any Updates on Chromophobe rcc treatment?
My wife is having Chromophobe rcc... And need to know if opdivo has effect on it? ... And what are the possible drugs that might work out with it Does anybody has a clue on how to join clinical trial for Chromophobe Rcc Hisham
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Hi!
Hey folks, New here...just introducing myself. My husband (well almost...) was diagnosed with kidney cancer on January 15.He'd had blood in his urine just before Christmas...i forced him to go to emerge, did a ct scan while there, was told it sounded like kidney stones, but they hadnt found any, we figured he must've…
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UPDATE: Open Partial Nepherectomy
Just wanted to do an update. Surgery was on 1/18/2016 and it was a partial only!! Confirmed that is CC Renal Carcinoma, stage 1. Thankful it was caught so early! Still waiting to see the surgical and pathology reports. They stated I had to go through medical records to obtain the copies. I just was released yesterday from…
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Hi all
let me say hi, just starting this journey on Christmas Day 2015. Scheduled for lap partial on right kidney on Feb 3. 2.5cm Bosinak 4 cyst on top of right kidney. Also having gallbladder out so a 2fer. On my CT the cyst looks like a jelly fish so I'm swimming with the jellies.
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got mri report any help would be appreciated
I had US last week said everything was fine. I had urq pain. Then dr had me do ct this is what it said... CT----heterogeneous enhanced lesion on right kidney 2.0x1.8 in midpole right kidney Impression 1. Indeterminate 2.0x1.8 cm lesion in the right kidney,. This could represent renal cell carinonma. Further evaluation is…
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location of tumor?
Just curious since this is new to me and you guys all seem to be very educated on the subject :) Does prognosis/stage change if the tumor is located in upper, middle or lower pole of the kidney? Or is stage just size of the mass? Also, anyone just opt to have the whole thing taken out even with a small tumor to avoid…
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Cancer found at Bingo
Did you hear about the old lady that found out about having cancer when playing Bingo? The good news is it was B-9.
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Any one have much success with radiation
My pulmonary doctor wants to start radiation on the mets butting up against my trachea. I talked to my ONC about it and he said he would like to wait a couple of months to see if the Opdivo works for me first. He also said radiation does not always work with RCC and so I was wondering if anyone else has tried radation and…
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Test Day
Today, starting this afternoon, will be my three month testing. Blood work, lung CT scan, brain MRI, chest/abdomen MRI and pelvis MRI. Not looking forward to being in the MRI machine for so long. I wanted to address the questions I have seen arise regarding MRI vs CT scan. Each patient has to be managed according to their…
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Scan Day
Hi All, I can't believe it has been six months since my partial. I have done my best to live normally and try not to think of cancer too much. Some days are fine and other days it is still a mental struggle. I go in today at 11 am for my MRI. I get the results on the 25th. in the doc office. I had a question for you all. I…
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Axitinib side effects
Hello everyone sorry I haven't been on here in a while but I have been having issues with the site. Anyway I received my latest ct results which showed progression in 2 sites and oncologist said that the tumours looked like they were filling out again (looked more solid in the middle) which indicates that the cancer has…
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New with alot of questions!
Hi I am new here , I was having some gallbladder problems back in december so I went to the emergency room . I was given a ultra scan and was told possible stones. Well I followed up with a specialist who read the test and he said I had stones to schedule an outpatient surgey on jan6th so I did , well on jan 2, 2016 I had…
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CT game changer
Hi everyone, thank you so much for your initial comments and great advice in my initial intro to the "group. Unfortunately things have become more complex for me. The CT revealed , besides the mass on my kidney we knew about, a small (19mm) lesion on the tail of my pancreas, as well as multiple nodules up to 1cm on my lung…
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Who says, "You can't always get what you want."
...but if you try sometime, you just might find, you get what you need!!!! Saw my onc today. I will begin nivo next week and get my stereotactic radiation as soon as I get it scheduled. I am thrilled beyond words. No more votrient side effects! No more white hair in the drain. No more nausea or diarrhea. Despite having new…
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New to this
Had pain in right upper stomach and goes straight through to back. Went to gp and had ultrasound with showed only fatty liver. Still had pain so gp had ct with contrast and now it says 2.0x 1.7 cm heterogeneous enhanced lesion. Probable renal cell carcinoma. I am so scared and worried. I am a 56 year old female. Had no…
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Still Cancer Free!!!
Had a really long day at MD Anderson. But, I'm happy to say I am 20 months cancer free! My CT Scan and Chest X-Ray were all clear. I go back in July for my last 6 month check up and scans then I go to yearly scans. YAY!!!
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RIP David Bowie
If inappropriate thread the mods can remove it. Just woke up to the shocking news that he’s dead after an 18 month battle with cancer. Kept it secret amazingly enough. He was my youth and my idol and I saw every one of his concerts. I’m incredibly sad. RIP, Aladin Sane