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the last 4 months....
As regulars here know, I've had my share of issues. I may never win the war but I win alot of battles. Delaying the inevitable is not a bad game plan. We can only benefit from the latest treatments if we are still alive as they become available. Since my diagnosis, I've had my nephrectomy, nivolumab trial, Il-2, radiation,…
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Headache
okay ,have been having headaches .my question is what to take ! having one kidney ,I guess your not suppose to take certain ones .does anyone have any suggestion?
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flank pains
hi! First off I have not been diagnosed with kidney cancer, it does not run in my family and as far as I know it never has. I am a 24 year old male, healthy, eat healthy, workout regularly ECT and a week around Jan I had small amount of pain around my left rib, I wrote it off as I usually do because having sickle cell…
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Checking in and update
Hello all. I am sorry I have not posted much, however, I am reading posts as much as possible out here. Work is hectic and I find myself exhausted by end of day with no reserves for catching up on social media. I am well, and, aside from work exhaustion, my strength is returning. I am now about 6 months out of surgery and…
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Headaches on Votrient
Just wondering, has anyone had really bad headaches while on Votrient? I just started my third month on Votrient and I have had bad headaches for like a day and a half. I take tylenol but that does not seem to do much. I am just curious if someone else has had them and has come up with anything good to combat them. Thanks.
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FB Communication?
Was wondering what the thought was out there of starting a FB page for our group? I find that I do not log in here as much as I would like as it is a bit cumbersome and I get lost following the threads sometimes. I think a good percentage of people are on FB every day. Your feedback is appreciated!
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Pathology review - can it change?
Hi sorry for being MIA. After I finally got my good report I gave myself a break from all things RCC related to focus strictly on my kids. I hope everyone is doing well. I got a call today from Dr. Molina's office that she would like a copy of my pathology slides so they can run their own report. Has anyone had their…
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Bulge at incision
I have a bulge at incision 6 weeks after surgery. Has anyone experienced this and will it go away?
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Big NEDs
This has been the month for Dr. appointments and tests. #1-last Oct. I had a questionable mammogram and had to return in Nov. for a mammo and US. They think it was a cyst, but had to go back early this month. No change, so return for a bi-lateral test in the fall. Breathe a sigh of relief, as I've had 2 biopsies in…
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Recovery time?
I was wondering what I should expect from recovery time for a laparoscopic partial renal nephrectomy? My husband will be with me the first day or two. Or should he plan on taking more time? I really want him to take more vacation time in summer when our whole family will be here for summer break. He has the time but he's…
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Ok input please
So exerpt of CT scan report is shared below. The Cleveland Clinic doctor said it's too small to warrant "surgical intervention" but that's all I was told. He said if I wanted more information or was concerned to come in for an appointment - no suggestion for a follow up appointment or MRI or anything. Geez. Maybe someone…
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Inlyta
It's been 2 weeks now since I was switch to Inlyta from Sutent. I was given a single fraction of radiation for my bone mets and they increase my morphine from 15mg SR to 60mg SR twice a day....It feels great. The difference is like night and day....Before I was feeling a lot of pain but now all the pain is gone, no…
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Residual tumor left in vena cava
I had surgery for Stage 3 RCC to remove my right kidney and tumor extending into my vena cava about 8 months ago. Post surgery they immediately did a CT scan and then another in January. In April I had an MRI and it showed something that is 2cm still in my vena cava. It appears that it is residual that was left behind. I'm…
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Please wish us some luck
Today my partner has started Hepatitis C treatment. As I've mentioned, hep C investigations led to kidney cancer discovery, so to certain extent we are thankful to this virus. As my partner jokes, it feels like a divorce. Many years lived together with virus, some good memories (life-saving cancer discovery), but it is…
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Back home from a partial nephrectomy
Just need a place to vent...I'm a lucky one, because they took out the kidney cancer yesterday through a partial nephrectomy, and I don't need chemo. I look at my 15 month old daughter so happy and playing in the hospital room, making us laugh, and it's all so surreal. 7 weeks ago I was a typical guy with a typical…
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Benefits of being followed by a nephrologist vs. a urologist?
Hello everyone. This is my first day on the Forum and it has already helped me enormously. I learned about my 3.4' ish cm mass about two weeks ago, urologist pronounced it 99% likely to be cancer last week. I am now scheduled for surgery on June 25 (had to to get my life in order first). My urologist says he'll follow me…
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Is it common to have kidney stones
Is it common to have kidney stones once you have had a nephrectomy? I have been having a lot of flank pain today and sharp pain either in the centre of my tummy and also towards the groin area. I tried to call the doctor today, but it was a futile attempt. It has worsened, and then it subsides. I really don't want to spend…
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Chest X-Ray ?
Is it standard practice for surgeon to request for you to have chest X-rays before getting surgery? My husband seems to think its standard practice before any surgery as a way to check for pneumonia. I'm nervous that it's for Mets in lungs check. thanks
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Report from my last scan MPDL3280a + Avastin trial
I was scanned Wednesday and had a meeting with the trial doctor on Thursday. Scan showed some minor shrinkage and mostly stability. There was no progression or new mets observed. I am experiencing some pretty bad pain in my left shoulder that I am scheduling for an MRI. Whatever is going on in my shoulder has caused…
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How you feel after?
Kidney Angels, Im just wondering, did anyone feel better after cancer removed? I Know I am extra sensitive to what's happening in my body. But part of me haas been feeling really off for about 6 months before RCC diagnosis. It's hard to put into exact symptoms but just off and something not right. So I was wondering if…
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New to Forum
I have been looking at these forums for a while now and finally decided to join. A little background on how I got here. Back in June of 2014 while at work I started to feel pain in my right flank area like I was having a kidney stone. I have had kidney stones in the past so I did not think much about it until I started…
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Update: All clear!! Well, now I get my very own scanxiety. Sigh :(
Well, I've got to go for a second mammogram. Nice. Just needed to vent where I knew I could get support. You guys get it and know how it feels. I guess they want better angles due to some assymetry. Evidently I'm very "dense" which happens in younger women. Yep, lol! I'm not going to freak out yet. Quite frankly, kidney…
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SIZE AND STAGE
Does anyone know is there a relationshp bertween size and stages? Can a 3cm be a stage 3 or 4? In a prior post I was told 3cm is very curable, but doesnt it matter what stage it is?
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Surgery booked, now what?
Hello All, Just got my surgery date for the partial nephrectomy.Monday June 8. I am happy that I'm going to get this thing out of me. I am confident with the surgeon from what I have been researching he is quite good. I have read some of my medical records from my biospy and it says I have RCC. It's kind of hard to…
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Bosniak 3 cyst
5 yrs ago a CT scan showed a Bosniak 3 cyst , an undertimined cyst with enhancement. The Urolgist after doing an MRI decided that it was a simple cyst. Last month a CT scan was done for a stomach problem and of that cyst showed again as complex cyst. Pretty much the same except it grew from 2.2 cm to 3 cm still enhancing…
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What's next after Inlyta fails
I stop responding to Sutent now my oncologist is prescribing Inlyta. So what's next after Inlyta fails or stop working or If I didn't respond to it? Thanks....
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Chromophobe and others: Study clarifies best treatments for uncommon kidney cancers
A head-to-head comparison of two biologic therapies used to treat a subset of patients with advanced kidney cancers provides much-needed clarity on the preferred treatment for the first line of attack. "We have had very little evidence to guide clinical decision-making and drug choice for patients with non-clear cell renal…
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Good news to share, nine months passed, I'm NED
I'm nine months post surgery and just received my last CT report which I had yesterday. I'm NED. That's a relief. May all who have CT in the coming days\weeks have the same NED report too. The pain in my chest isn't going away, actually it got worse and made me go to ER in the morning. I'm going to talk with a Cardiologist…
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renal scan to check kidney function.
Has anyone ever had a renal scan to check kidney function status? I have to have one about 2 weeks before my procedure. What should I expect? Thank you ps....does anyone ever part pics of their ct or mri scans? I can't find anything on wen that is simular. In worried about spreading. Shows it might be.
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Going in for partial Neph next month - scared as heck
Hello all, I just turned 43 yrs old, male, been healthy my entire life, very fit, workout regularly, eat well, never smoked, etc. I was having some on/off acid reflux issues as I started getting anxiety issues about two yrs ago shortly before my father passed away as my life was stressful. I was also having insomnia issues…