Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Kidney Cancer

Archives for February 2015

stage4 prior to nephrectomy ??
HI everyone, I'm curious about any of you who were diagnosed stage 4 prior to your nephrectomy. My mom had her surger 8 days ago. She was doing great at the hospital. They held off on any solid food for her until she was able to pass gas. This was no easy task for her. They had to resort to a supository to help, then that…
New Blog "The C Word" first post
Hi, all, just a simple blog I'm starting that's helping me put some thoughts in order regarding my experiences. Read if you like :-) http://jayvelykis.blogspot.com/2015/02/the-c-word-moment-of-diagnosis.html
Pain question
hi everyone, It had now been a little over two months since I had my partial nephrectomy. The good news is that the pathology report was about as good as I could have hoped for...stage 1b, grade 3, no microscopic invasion of lymph system or blood vessels, and cleab edges were confirmed. I was thrilled with that result. My…
Private Message Spam
Hello everyone, Thank you to those who've alerted us to the spamming from earlier today, and we sincerely apologize for the inconvenience. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this. If you received a message, please do not respond or…
March is kidney Cancer Awaress Month
Hi guys. I am popping around the Internet reminding people that March is Kidney Cancer Awareness month. Some may have already seen my post in other places. But his year March 1- March 31 I am proposing that we kidney Cancer survivors, patients, and caregivera start an awareness campaign on Facebook. If you have Facebook…
needing prayers
My mom found out nearly a month ago she has stage 4 kidney cancer. Mom has been being treated for arthritis in her hip for months and months. At long last she finally went to er when her drs office couldnt give her referrals or appointments until 2 months out. Mom was hospitalized for a week and found that it has…
Rash and itch from Votrient
My diagnosis is sarcomatoid RCC with mets in lungs, spot on liver and probable bone involvement. Have had one infusion of Zometa. I am taking Votrient 800 mg and developed a rash over 60-70 of my body which is slowly clearing up but the itch is terrible and responds minimally to Sarna. Does anyone have any suggestions?…
How long after a CT scan
I'm not sure how to ask my question but I seem to have developed pain in my back a few weeks after a ct scan. I have been more active lately and dont want to run to my oncologist about every ache and pain (ecsp after a good Ct a few weeks earlier) but I also dont want to worry. Any advice?
Open Partial Nephrectomy or Radical Laproscopic?
Hi everyone, a 5 cm T1b tumor was found on the lower lobe of my left kidney last week while looking for a kidney stone. Surgery is scheduled in about a month, in the meantime I am scheduled for a variety of tests and imaging to ensure that it is localized and there are no further surprises. My question is the surgeon has…
large complex cyst
doctors found a large complex is on my left kidney. They just called and canceled my appointment on friday and said that they would reschedule with the surgeon because decisions need to be made. Now I'm getting worried. The MRI showed it was large enough that it was cutting my kidney in two. Guess I should be concerned?
Battling Negativism Among a Treatment Team
There's a particular PA that works with my oncologist that I've only dealt with once 2 years ago when I first started going where I go. She communicated a very pessimistic attitude to me about this disease that I took a really strong disliking to her right away because of that. Fortunately, the program I was on I only…
Confused about Pathology report
Hello everyone.....hope you are all well. Finally got a written version of my husband's pathology reports but I am having a hard time deciphering them. From what I can make out it says CK7 - positive ( I definitely have no idea that is) Cd10 - negative (no idea about that either) PAX 2 - negative The actual tumor was 3.5…
Nivolumab - Sutent Scan Results
I wanted to share good news about my scan on Feb. 12. Read my bio, but the quick version is this: Oct 2012 - Stage IV readical on right kidney Feb 2013 started Nivo-Sutent Trial for Adrenal tumor on remaining left adrenal and lung mets 3 in a row "no evidence of metastatic disease" scans, Aug 2014, Nov 2014, Feb 2015 I…
ct scan results
I saw my onc on 6th February and he said that my lung mets had grown slightly and there were a couple more I was upset and we discussed everolimus as next drug to take, I am going to stay on pazopanib until next scan to give it a chance to work again as my first scan showed shrinkage. I have stopped taking omeprazole as I…
Urologist recommendation LA and Orange Country area
Hi Everyone, During a routine ultrasound, the doctor discovered 1cm mass on my left kidney. Now I am looking for a competent urologist in Los Angeles or Orange County area. I would really appreciate you recommendation. Finding a good doctor is not an easy task. Thank you for your help, Maria
SCREW the Powerball...!
Hi, all, I was just feeling philosophical... I would be lying if I said that I didn't care about the Powerball... When it's THIS high, you gotta throw $20 bucks at it... But on the other hand, we shouldn't get "luck" twisted around... the fact that we are all alive and some of us had the "luck" to have our cancer caught…
Dad Battled Stage 4 Cancer
My father recently lost a nine-month battle with Stage 4 Kidney Cancer. I am posting on this board to offer any advice to anyone battling this disease (patient or care-givers). I started a blog halfway through my fathers journey, and I'd like to share it. I hope that anyone who is going through this battle may find comfort…
First scans out of the way
Well my 1st scans are done and I am NED. My urologist said that my creatatine and gfr levels are perfect for having only one kidney. Next set of scans will be in July. This time he wants a chest x-ray and ct scan with contrast. Thank you everyone for you support and encouragement.
privacy
I have been reading on this forum but learned very early that things we post can end up on Google and can be researched on the internet. Is there any way to guard against this? I would like the interact more but for this reason I don't.
New here
Hello to everyone!I am 39 years old and a mother of two wonderfull boys. I am watching your forum since last September when I found out that I had a small tumor (1,8 cm) in my right kidney. So I had a laparoscopic partial nephrectomy at 1 November . My doctor said everything went perfect. The pathology report said it was a…
Wobbler
I went to see my surgeon today for my followup and to get my pathology result from my adrenal gland. 2 hours late I get ushered into a room and a damn PA that doesn't know sh.. (you know what i mean) hands me the printout of the pathology report. I read it. I can at least understand there was RCC in my adrenal gland. Start…
Follow up care
Hi guys, I was diagnosed with rcc back in October 2012. 7.5cm Stage 2a, grade 3, no lymphovascular invasion, no necrosis, no intrararenal invasion, so apart from the grade 3 not so bad. 37 years old so on the younger side of the rcc demographic! Had a quick question regarding follow up scans. I am due for my next follow up…
Wonderful News!
Hi everyone, In all this madness of fighting kidney cancer, I became a grandmother again to Jade Elizabeth, weighing 7 lbs and 21 inches long on February 4 at 9:55 am! She is beautiful and healthy and has reminded me that life can be good! Prayers for good health to us all! Brenda
Votrient failing, what next?
Hello, I don't think I've posted here before. Have been at stage 4 at least a year and a half. mets and lesions are mostly in my spleen, spine, pelvis, and lungs. Votrient was great for 6 month, now its effectiveness is waning. Last scan showed worse spleen and lung activity. My doctor thinks it's time to switch meds, as I…
Sniffing programmed microchips to pick up cancer!
It looks like the sniffing devices to pick up certain cancers are expected to be in use by 2020. They are hoping the devices will be available at all hospitals and doctor surgeries throughout the UK by then at least. You may have heard of Billy Boyle who worked at the Ministry of Defence in UK, he was developing sniffer…
Awaiting answers
I went to the ER a few nights ago because I was having back spasms and pain in my abdomen that came on suddenly. They did a CT scan without contrast and found a lesion on my kidney. They also noted there was some thickening of the tissue in my kidney. They also found blood in my urine. The ER doctors sent me home with the…
Checkpoint inhibitors
http://wypr.org/post/harnessing-immune-system-fight-cancer Any thoughts? Info?
wrong events....
Well,...Spent this past week in the finast institution in America. Yale New-Haven Smilow cancer hospital. Short story. Near total loss of right arm. 70% loss of left. Clots in arm and lungs. Tumor growth from base of brain to about T-2 down spinal canal. Around some nerve roots. And rt. brachial plexus. Did not expect to…
Your thoughts - creatinine levels, gfs
Hello I am from the uterine board, but have developed some kidney issues and wanted to see if you had any advice. I am required to have a stent due to moderate left-sided hydronehrosis and my left kidney has shrunk. My right kidney is 10.8 and my left kidney is now 8.3. I do have a soft tissue mass wherein the ureter…
cyst in pancreas at first scan
hi all - had my first 6 month scan after full nephrectomy in June and everything looks good but there is a really small (4 mm) hypodensity in the panceeas assumed to be a cyst. additional imaging was recommended and is being scheduled anyone encounter anything similar? postive vibes to all

Kidney Cancer

Discussion List