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Kidney Cancer

Archives for February 2013

Bi-lateral kidney cancer
May 2, 2012 to be exact.... I was diagnosed with bi-lateral kidney cancer. It is very uncommon first because of my age(42 on August 23)and then both kidney's to have it. On June 4 I under went a partial nephrectomy on my right kidney, removing one tumor with two forms of cancer - the larger type called Papillary Type 2 and…
R.I.P Debi Austin
To one of the braveist cancer survivors who had the courage to stand in front of a camera even with her disfigurement and speak out about the dangers of smoking,you are a true heroe.
I feel good today, I will feel good tomorrow...gonna have fun
I am 49 and have an agressive form of RCC: a Clear cell with sarcotimoid features; at my first post nephrectomy scan, they found a solitary met on my lung; same pathology. Next scans are in april. If I believe the statistics I am screwed. But I feel good today, I should feel good tomorrow. In six months, I do not know. So,…
Planned CSN outage
Hello everyone, Between 3:00 and 4:00 Eastern Time this morning, CSN will be taken offline for about 2 hours. Exhaustive efforts were made to find a way to restore all private messaages. I'm not qualified to provide technical details but the bottom line is that all private messages that you sent from September 2009 forward…
OK, this is why we do this.
This post is primarily for newer members and lurkers. Those in despair and scared to death. Desparate for hope. I'll humor veteran members and will even use "L,s". I had been running, weight training, golfing and motorcycle riding for years. My joke was that I was going to be in the best shape of my life when I died. I was…
Follow Up Tomorrow!!
Hi all, I had a radical nephrectomy 6 weeks ago now and tomorrow is my follow up appointment. I know I need to know the staging of the tumor but I suppose I'm just a little frightened about what May hear. Initially they were only going to do a partial but the roots were longer than they thought so they took the whole…
Hope - trouble finding it.
Hi. My Dad was recently diagnosed with stage 4 RCC with mets to liver. Within a couple weeks he has suffered a stroke. I live across the country from him and so am relying on what closer family members are telling me. Unfortunately I can't see him with my own eyes. They seem to think he is doing great and will live many…
My first post
I'm somewhat new here joined in December but this is my first post. My husband had a partial neph February 6, 2013 his tumor was at stage 1 size was 3.3. The mass was located on the upper part of his right kidney on the outer layer. They had to go behind his liver to remove it. My question is should we be worried because…
Clear Cell Tumor with unknown primary.
Hi, my wife had surgery one year ago to remove a tumor in her spine that turned out to be a clear cell tumor. It was completely removed and she went thru radiotherapy treatment. All the doctors thought that the tumor had metastasized from the kidney but all the test show a healthy kidney, so no primary was found. Now, one…
Update after MRI - Any comments or experience with kidney biopsy still welcome
Update after MRI To summarize what has gone on previous - CT found 3.4cm mass on lft kidney. 1st doc had never seen a tumor like mine before and recommended open kidney surgery, biopsy during surgery to identify, then take 1/2 or all of the kidney. 2nd doc had never seen one like my tumor either. He was highly acclaimed as…
Adjuvant therapy or not?
When is it generally recommended to do an adjuvant therapy? I'm trying to prepare myself for my doctor leaving it up to me. If he recommends I do it, then I will, but I'm not sure what I should do if he says it's up to me. I'm still waiting for my biopsy results to come back, but from what I know: 8cm, clean removal from…
Dr. Terry Wahls Diet
Based on suggestions here, I've ordered Keith Block's book "Life Over Cance"r, which I believe also has diet/nutritional information (I'm hoping it does). I was wondering if anyone has read Dr. Terry Wahls' books? She has a couple of books out about a nutritional program she followed that helped her dramatically with her…
Juicer/recipe recommendations?
I've been looking at juicers for the last week - mainly because my sister had really gotten into it and she was encouraging me and got my interest going. I considered the Vitamix, Blendtec, and Nutribullet. Because I live in a motorhome and counter space is a premium I went with the Nutribullet. I like it so far. Seems…
what is bone agent?
I have seen mentioned using a bone agent, what is it and for what reason is it used I have checked the ACOR site and havent found it explained. does anyone have an answer. thanks in advance
Haveing kidney surgery dome in March 2013
hello little about me 49 male good health last Oct 2012 my GP tols me since i am almost 50 that i should have a colonoscopy all well there then Dr. did a us and found a 17 mm mass on right kidney, stated their was a 10 to 30 % chance it was cancer so he order a ct with cantrast showed soild mass, so was referred to a…
Donate your unused computer time for cancer research!
Help find a cure! I've been a member of World Community Grid for about 8 years. I've never had a problem with the software and don't even notice when it's running and it's free. The World Community Grid is a public computing grid that is run by IBM with agent software from The University of California Berkeley. There are…
Lurker with questions
I have been lurking for many months, want to introduce and ask questions. I was diagnosed with Sarcoidosis (autoimmune) in 2002 in lungs, lymph nodes, skin and suspected in heart and kidney. Sarcoidosis causes granulomas (nodules). This has complicated every single aspect of my health. When I do not feel good it is blamed…
Recurrence
I had a partial nephrectomy on my right kidney to remove a 5cm rcc back in apr 2012, i went in oct to have my 6 month follow-up and they saw a cyst 1.9 cm and did a ct scan and it did not light up so doctor wanted to watch it. i went this past tuesday for a us and it said that the cyst was mildly complex and grew to 2.5…
DIET -- brilliant 18 minute TED talk, free on YouTube
Neil (Nano Second) drew attention to this talk yesterday on ACOR and it's so good that it would be a shame if our CSN community didn't also get the heads up. It's well-reasoned, well-justified and oh, so dramatically illustrated by the personal history of the lecturer! http://www.youtube.com/watch?v=KLjgBLwH3Wc
RCC STAGE 4 UPDATE
RCC STAGE 4, Sorry I have not posted for awhile, I and my wife have been enjoying every day together,I just finished my second round of sutant and pet scan showed hot spots on my #2 rib and my two spots in my rt upper loab of my lung have grown 3.5more mm's to 10 mm's each,it has also for some strange reason moved into the…
So glad I found this site
I was just diagnosed with RCC, clear cell in December. Had a total nephrectomy via open approach on 1/25/13. I found the site yesterday and it was so comforting reading the stories of others. I found out this week that I do not need to do IL-2 yet, but will re-scan in 8 weeks. What a relief for me and my family. I am a…
On CABO (not Cabo San Lucas) CABOZANTINIB, COMETRIQ
http://kidneycancerchronicles.com/some-background-on-cometriq-cabo-with-regard-to-kidney-cancer/#comment-895 Dena Battle has just posted the above on Cabo, Chris Battle's most recent weapon used to fight his cancer. Anyone who has been following Chris knows what he has been through. In fact, a couple of his more recent…
New with RCC.
Hi all, I am new here as the post says. I am a 41 year old married male in otherwise decent health. Found the tumor (1.2 cm) due to a kidney stone. The stone was taken out on the 12th and a biopsy for confirmation was done on the 19th. I guess I got lucky that I had a kidney stone and found it so early. My doctor said that…
Why we are here...
I pursposely baited you to read this... no apology here... this is a story...and not Cancer related per se... but... OK, many decades ago, I live outside of Detroit.. I worked in a motorcycle shop... which means in the winter time you had snowmobiles to financially survive.. One day a big black pick up truck comes up to…
New here, stage 3 RCC
Hi. I am 37 and just got my right kidney removed along with the 10cm tumor. my doctor said they have removed everything but i am still scheduled to do ct scan 2 months after my surgery to check if there will be any growth in my body, from lungs down. i have seen in the net that this type of cancer spreads to lungs,…
Husband about to start cycle 2 of IL-2 - Seeking caregiver support group
Hello everyone! I have been reading the boards and thrilled to find this resource. My husband was diagnosed with RCC 7 years ago. Had a nephrectomy at Hopkins and for 5 years, all clear. On the 5 year check in, they found a spot on his lung. Summer 2012, he had a wedge resection by Dr. Yang and again all clear ... until…
2nd opinion - path report??
I'm 7+ months post-surgery/ rad-Neph, 5.0cm, grade 1, stage 1 RCC. I've had 1 CT, chest X-Ray & bloodwork done at 4 months, another scheduled for March. I never got a 2nd opinion on the pathology. Was that a mistake?
Robotic partial nephrectomy, I'm new
Hi everyone, I am 50 and I was just diagnosed Friday and told I have a 1.8cm mass on the lower pole of my left kidney. They are scheduling me for a partial nephrectomy by the robotic procedure. I have all kinds of emotions happening right now, I do feel lucky they found it early from a CT scan I had for another reason. Has…
Six Month Scan - Next Week
Its been awhile since I have been on this board. I hope everyone is doing well. Holly had her surgery (radical neph, stage 1, 3.5cm) in August and has recovered 100% and is stronger than ever. Next week is her first scan so we are saying our prayers. You guys are always on our mind! Tom and Holly
Anyone had a kidney tumor biopsy?
3 cm mass on left kidney (See previous "freak out" post) - 1st opinion was open kidney surgery, identify the tumor, take 1/2 or all the kidney dependent on tumor type. 2nd opinion is drastically different, but from a highly regarded doctor that has a lot of experience with kidney tumors. He thinks it's benign, most similar…

Kidney Cancer

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