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why so long off work
I am a psychotherapist and I spend my time talking to patients about anxiety and depression, phobias, ocd,etc., ironic really ha but I don't want to talk about it. I have recently been diagnosed with a 4cm tumour, small compared with many on this site, reading your blogs all will be well. My question is why my consultant…
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Another New Doctor :-(
Received a call from my Family Doctor that my kidney function numbers have been going bad the last two tests so he wants me to see a nephrologist (sp). (Why aren't words like that in the spell checker? ) I said a "What?'. Then he explained. I guess it is to be expected when you loose one kidney the other one has to work…
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How to honor kidney cancer awareness month in March
I was pondering positive ways to recognize the upcoming awareness month and pulled out on old tablet to jot down some ideas. In that tablet I came across a page I had used 10 years ago when my husband was diagnosed with diffuse, systemic Scleroderma (a rare and often deadly auto-immune disease.) Then, too, I was struggling…
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New member -1 year scan approaches
This is my first posting on any message board for RCC. I've read discussions on this board off and on since my radical nephrectomy last Feb. but finally just got the courage to signup and join in the discussion. My tumor (5.5 cm, clear cell, grade2) was also found incidentally during an ultrasound ordered by my doc after a…
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Wow,What a Week but Things are good!!
My internet has been up and down so I haven't been able to get online..arrgghh...Had my partial nephrectomy on my right kidney last Friday..Surgery went well...Amazingly I started producing "perfectly beautiful" Urine immediately...I did so well that I was released on Saturday afternoon..can you believe it!! Of course I am…
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Wow,What a Week but Things are good!!
My internet has been up and down so I haven't been able to get online..arrgghh...Had my partial nephrectomy on my right kidney last Friday..Surgery went well...Amazingly I started producing "perfectly beautiful" Urine immediately...I did so well that I was released on Saturday afternoon..can you believe it!! Of course I am…
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New here, RCC, Surgery scheduled 3.6.13
Hello, My name is Brandy and I am new to the boards here. I was diagnosed on February 7th and have a tumor removal and partial nephrectomy scheduled for 3.6.13. I have come here for support and just to gain more understanding of RCC and its symptoms, treatment and recovery stories. Luckily they caught my tumor by accident…
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New Drug ==> CMet (?) for Papillary RCC
Good news kids! I had my second scan since I began Votrient in August 2012 and the lung mets and lymph node are stable. My November scans showed shrinkage and stability, this February scan showed stability. I will post the details in a thread from one of our previous discussions. Okay, all of that is good and fine, but my…
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One year ago today I heard those dreaded words
One year ago today I heard those words you never want to hear. I'm sorry you have cancer. That was a horrible day and it's been a horrible year for me. Just got home from getting my chest xray and labs done. I go tomorrow for my one year MRI. I'm a little nervous but not too much. I'm just feeling allot of different…
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Possible surgery - Very scared, worried, questions about others experience
Hi all - So glad I found this site. Doing lots of research on my situation. First I would like to say good luck to all out there. Apparently I am not alone, someone out there has had to have been through some of the things I am going through now. On 1/1/13 I went to the ER with a sudden onset acute intenstinal illness.…
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One last thing...
This will be as good for some of you as it is for me to express. Take what you want, disgard what you don't want. It's my take on what is happening to those of us that are bonded by a common experience. You are going through a lot of emotions. Let it out. It's ok to cry. I thought I was the most manly 45 year old guy I've…
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Hospice in or life
Mom has been having this horrible pain (grade 10) since 1/29/13 on her right lower back. On Friday 2/1/13 we took her to the ER. Morphine no longer cntrolled the pain. She was admitted for a really bad kidney infection. X-rays were done. Others tests were done , conclusion, Cancer spreading. Thursday 2/7/13 we were told by…
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and so it returns...
Seen the doc friday. It has returned to my liver. Scheduling lobectomy. :( wzith possible liver pump.t
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Solitary Lung Met
First a quick recap: May 1 2012, mass found on kidney via CT Scan. June 19, 2012 Radical Nephrectomay; tumer rated T1B, Furman grade 4 (15% Saratomoid diiferentiation). Dec 19, 2012 While at NIH for Familial RCC study, 1.5 cm mass on my lung ID's. Pet Scan and biopsy showed it to be cancerous. Feb 5, 2012 Lung Mass…
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Quick Update - Progress Continues
Hi, all. Again, sorry for my absence. Quick recap: 43yo male, father of 2, diagnosed stage 4 grade 4 rcc back in April 2012. Removed left kidney, adrenal, and some more parts and slices in May 2012. Started Sutent June 2012 or so and have been using Gerald White's MAARS program since then. Had good results. On to the…
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Adrenal nodule and CT without contrast...
Hi all and thanks in advance for any insight you can provide, I am twelve years post RCC and right radical nephrectomy. My doctor stopped ordering contrast for my annual follow-ups some years ago but in the meantime a 2.0 cm growth appeared on my left adrenal gland. This didn't really worry me until I read some recent…
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I'm back, but I have to clear up a few other health issues
Those of you familiar with my story know that following surgery my wife scheduled a Southern Caribbean Survivor Cruise. I just came back from number 11. Anyway the last 4 dats I have been pertty sick with upper resperatory ailments. Possibly pnemonea but the fever is either low or not there. Ships Dr. gave me some…
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My Husband was diagnosed with Stage 4 Kidney Cancer
Hi all I have been reading this sight sporadically for a few months.. and it has been very helpful.. My Husband (Chuck) was diagnosed with Kidney Cancer July 2012.. he had his right Kidney removed shortly after.. the Biopsy showed Clear Cell mixed with something else..at that point the belief was they had gotten it all..…
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New to Group
Just found this site and list. I was diagnosed with RCC on 12/24/2012 though I felt I knew what all the tests were for a couple week before that. I had NO symptoms except for being cronicly dead tired. My pulmonologist asked for a chest XRay along with other work on my sleep apnea when they spotted a something on my left…
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Informtion on kidney cancer spreading to the skin??
Well my hubs had an appointment at Duke yesterday. First he had an x-ray to see how the fluid looks with his malignant pleural effusion, well there was fluid still there so they could not take the pleurax out. He was so hoping they would take it out since he had no drainage for a week but that was a no go. He was very…
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Scans and treatments
Hi All..! Me again... OK, I know we are not doctors, we are just the pin cushions... right... So, already I see a lot of different methods out there.. and I wonder why..?? This is basically for those of us with late stage RCC... Follow ups.. I WAS getting 90 day follow ups - which included CT Scan, MRI, and blood work.…
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Diet - Foods
HI All..! I may of missed it.. but I did not see any discussion on Cancer diets... So, we all learned eons ago to reduce red meat to reduce Cancer risk.. I have reduced my red meat by about 99%..! But what about other foods... anyone hear of the Essiac Report and the tea it suggests..?? And we all know that a salt…
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22 months cancer free
Hi all good to be back on the board. I've missed posting and reading all the post of the bueatiful people on this site. For all who don't know me I had a readical nephrectomy in April 2011 . Shortly after my other kidney failed and i was placed on dialysis. So life has been a roller coaster ride for the last two years Wow.…
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Kidney Cancer Patient Conference - NC
Hi, I'm new to this forum but not new to kidney cancer. Had nephrectomy (15cm tumor) in 2008 and mets to lung with thoracotomy in 2010. I'm treated at Mayo Jacksonville, FL. Is anyone attending the Kidney Cancer Association Patient Conference in Chapel Hill, NC February 23rd? I'm going and would love to meet other kc…
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Options Post Surgery
Hi Everyone I am 57 years old and had been diagnosed with a herniated disk many years ago. This past summer it really started to hurt and the orthopedist sent me for an MRI. Several days later he called at 8.00PM on my cell and told me I had a large mass on my left kidney. I had surgery three weeks later. The tumor was…
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One Kidney Over-the-counter Drugs?
Since I had my kidney removed, I've been concerned about not only what to eat, but what's safe for me to take. My doc said avoid aspirin/ibuprofen, for example, and take tylenol instead. I'm getting a cold or some kind of sinus condition (which I often do). I've been wondering if my frequent usages of antihistamines and…
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Aging
This is not about cancer as such, but I found this article about aging really interesting and entertaining: http://www.commentarymagazine.com/article/old-age-and-other-laughs/
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Faced with surgery...and a bunch of questions
The first week of January, I had blood in my urine. I went to a local urologist hoping that it was just kidney stones...but since I'm here...well you know what they found. 7.5cm x 7.5cm mass in my left kidney on the lower side. The urologist wanted to do a non robotic laproscopic full nephrectomy the following week. When…
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Pain in my scar!
So it's been a long time since I've posted. For any who do not remember me, I had a 22 cm tumor on my Right Kidney. It's been almost a year since my surgery and for the past couple days, the top end of my scar (part that starts on my right Latissimus Dorsi) has been burning. Today, it freaking hurts bad...I can barely move…
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Pain in my scar!
So it's been a long time since I've posted. For any who do not remember me, I had a 22 cm tumor on my Right Kidney. It's been almost a year since my surgery and for the past couple days, the top end of my scar (part that starts on my right Latissimus Dorsi) has been burning. Today, it freaking hurts bad...I can barely move…