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Last ct & oral exam--clean
Just got my last ct and exam by two different doctors ,I think they share me for the money. I came out clean. I had a white spot on my left tonsil that I was worried about, but they both told me it was something not to be worried about, I just want to thank everyone who answered all of my concerns. I still have alot of…
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Am I delusional?
Starting off in Sept with parotid gland primary stage 4 metastasized to lymph nodes and lungs. Began 3rd round of carboplatin/Navelbine and my oncologist said the parotid glan tumor is not palpable. How effective could this treatment be for my other tumors? I have a PET scan in December. Am I delusional to think the tumors…
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How a bad day turned into a very good day
Where do I even begin? My husband had a partial glossectomy and selective neck dissection on Nov. 4th. Recovery was going very well until last night when out of the blue, he bit his tongue pretty hard. After applying pressure with gauze and not getting the bleeding to stop, his doctor advised us to go to the ER. To make a…
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Long time reader...first time posting...just completed 33 radiation sessions
Hello all! I've been reading this forum since I was diagnosed with adenoid cystic carcinoma in January. After surgery for what was initially diagnosed as a benign tumor, it ended up being Stage II ACC of my submandibular gland. Since we thought it was benign, I ended up with positive margins and also had perinueral…
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Possible Reoccurence of Throat Cancer
I've had a sore throat, cough, transference ear pain, etc. since August. When I went to see my ENT in August, she said I had scar tissue problems and see her back in a year. Fortunately, I didn't wait a year and scheduled a new appointment which was yesterday. My ENT is on Adminstrative Leave (?), so I had a new doctor who…
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Appetite after rad treatments
I finished my rad treatments after tumor removal at base of tongue and partial dissection of one lymph node level 1 just under right jaw. Last rad treatment was on Sept. 21st. I have a feeding tube but I can eat most anything now. I have a little bit of a hard time with any tough meats because I only have my front teeth…
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15 years post and now on a feeding tube
Hello all, I am new here and don't know where to start. In 2000 I did the 7wks radiation with 3 chemo treatments and then neck disection to remove lymphnodes at age 39. Recovery was slow but I made progress and life was somewhat back to normal. Well in Sept. 2013 I had to be put on a feeding tube from asperation and now I…
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Starting treatments this week!
Hopefully it's OK if I post about my lung cancer treatments here even though they aren't H&N. :-) The final decision is that the lung mass and nodes are inoperable, so I'm having 6.5 weeks of concurrent radiation and chemo (carboplatin+taxol). After that, I'll have two separate full-dose chemo treatments, three weeks…
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Ok...about this neck dissection.....
I've been half nervous to even look it up on the internet, but since my ENT seems to have trouble spelling things out, I did.... So....those of you have had one. Did you have physical therapy? How long before you were pretty much back to normal? I know there is going to be a limitation of movement, but how much of you…
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Trach OUT!!!
My FIL had his trach removed today (so excited)! Any idea on how long it will take for the hole in his neck to heal?
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Returning to work after treatment
i know that every situation is different,as are the types of job you all have/had, but I was wondering how long before you returned to work after your treatments ended. My husband's last treatment was early September and he is going to attempt to return to work tomorrow and I am worried that he's not physically ready for…
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Encouragement
dear all, i saw this today and it made me feel so proud of my husbands scars and thankful for them. It also reminded me of all we went through since the day he was diagnosed. Time has passed. The scars have healed. We are doing well. Back during treatment it was hard to imagine we would get to this point. If you are just…
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This is for all the "New" members, and the others that need it as well
This is for the "New" Members and the old as well. Listen to the words and you will understand the true meaning. https://www.youtube.com/watch?v=WrcwRt6J32o Then remember you are not ever alone in this, you have the greatest support group I have ever known. This just might give this song a new meaning to you. It did for…
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Just getting started and need info...HELP!!
Hey Everyone... I've struggled with hoarseness for six years. Over time, I've seen four ENT's without a solid diagnosis. I've been told by most it's acidreflux and prescribed meds...no help. I've had two endoscopoy's that showed no Barrett's or esophogus damage. However, my ENT (2013) found, and removed, two polyps. The…
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Something Wrong With Tongue
Ok, so a couple of days ago, my throat began to hurt and I just thought that I was becoming ill and had tonsillitis or something. Today, it is still hurting but I don't feel ill. So I went to the mirror and touched the back of my throat with my finger and I felt a couple of lumps (which I then thought were the reason it…
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Sweetblood
I was wondering how she was doing and if she still post. She helped me a lot when i was going through my cancer.
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Pain After I Am Ned
I had stage 4 squamas cell carcinoma on my tongue and inside my mouth along with my neck lymphnodes. I hade all of my tongue removed except about 1/4 in strip on my right side of my tongue. I also had a double neck dissection with cancer in my lympthnodes. I had chemo Cisplatin and radiation. I had 72 or 76 grey radiation…
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What a roller coaster....
After my PET scan, the ENT said "only in the two nodes"....I felt relieved hearing that. Then a week later I see the Oncologist and he says "well, not exactly....there's a spot in the pharnyx that lit up a little bit,,,2.7"....ok so I deal with that idea, thinking it's in the actual throat where I've never had cancer, talk…
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Gravity feed bags
At one point the home health agency sent us a supply of 1000 ml gravity feed bags, but we didn't need them with the tube feeding. They are unopened and sealed but the agency can't take them back because they have been "in the home". If anyone can use these I am happy to mail them - please private message me. Barbara
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Rhinectomy--any advice?
Hello all- This is my first time posting and attempting a new thread, so hopefully I am doing this correctly! I am writing on behalf of my dad (69 y/o), as we just learned he will undergo a full rhinectomy next week. Everything has happened very quickly - he was first diagnosed with a nasal tumor in late May, followed by…
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15 Months NED but still smoking..
Just Venting because im worried and no matter what I say to my hubby it doen't matter i watch him everyday first thing get up and out for a smoke.. smoking probably 20 -25 cigarettes a day.. high stress for certain which I guess is why ...working hard we have our own business.. He was doing pretty good but now on downswing…
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Husband had his surgery yesterday.
And it went well. It was such a long day though. I don't think I was fully prepared for how long of a day it would be. Surgery was at 7:30 am, and he was done by 11 am. I didn't see him until about 3 pm. The doctor removed all of the tongue cancer (including margins, it ended up being about 1/3 of the right side of the…
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Joe Cortney CT UPDATE
Well folks got the results of the CT today and, I must say both my Doc and I are really shocked. A brief history is probably in order. A little over a year ago I had a reoccurrence of my HPV+ SQ BOT. There were a bunch of METS in my lungs and a new tumor that was wrapped around the muscle under the tongue and SQ was…
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Scope today
Today we had the follow-up nasopharyngeal scope following treatment. About three weeks ago we had gotten the all clear NED from the PET scan. Today's visual scope confirmed that the tumor is gone. What a blessing! Followup CT/MRI in 3 months and then another scope. Looks like that will be our routine for the next year.…
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Worried about pain medication withdrawl
In order to manage the severe pain my husband experienced from the side effects of chemoradiation, and then a bout of "radiation recall" concurrent with adjuvant chemo in Spetember, the pain team doctors prescribed a high dose of methadone to replace fentanyl (150mcg) patches and oxycodone for breakthrough pain. Initially…
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Two year checkup....NED
Well Monday was a very long day. I had to drive to my two year checkup which is 213 miles and we had a large storm so the four hour drive took five hours to get their be cause we got stuck for one hour in standstill traffic because of a wreck. The good news was the checkup was good as expected and my doctor said he liked…
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bye, bye insurance....
Here we go again... My husband is self employed. My job (I have TWO) keeps us just under the hours eligible for benefits. We had NO insurance when I found out I had cancer. Now, two years later (lots of bills, assistance and blessings) we have a policy through the "Affordable" healthcare act. Affordable, not so much... It…
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Raw bleeding nose
Hello everyone, I am a two time nesopharngeal cancer survivor, pateient, sufferer, whatever it is called. Being a two timer (total of 14 weeks radiation to the head, not to mention all the fun chemo) basically everything above the shoulders is functioning at 20% except the brain, at least I think so. Anyway to make a long…
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Update on 2nd Go 'round w/SCC
We met with my FIL's surgeon on Tuesday and he said there was a 30-40% chance of the cancer coming back within the next 5 years without re-radiating. With radiation we would have a 20-25% percent chance that it would come back. Obviously percentages are only that, but at this point, the reward is not greater than the risk.…
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ROLLCALL 2015 - UPDATED NOV. 1, 2015
ROLL CALL 2015 Roll Call is dedicated to the memory of HAWVET (JOHNNY) who’s curiosity to know and to share a little bit about members of the Head and Neck Form inspired him to start and run this thread (2008 thru 2014). Thank You. First off, please feel free to Enroll (name, town, state, dx) or Check-In whenever you see…