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Post CT Scan~
I saw my PCP today and wished I had more specific info but did find out that nothing too significant was seen on sinus CT scan except swollen turbinate. Doc wants me to see ENT which is sceduled May 8th. I know this is good news to some extent but will be more relieved to see ENT next week for more specifics! Doc also…
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5 yr check in
hello one and all. Wife here.... been a while, think you many of you often. We (my husband) has reached his five year mark. He is doing well, has been a grandpa for 5 months!... actually talking about retirement :) hope you are all well ... and for new members...if you are just beginning I won't sugar coat it... it is…
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2 years - UPDATE - NED!
This just in... May 19th 2015 - Follow up at Johns Hopkins... NED! Next appointment in 6 months. Hard to believe.... April 24th 2013 I returned home from Baltimore 65lbs lighter with a PEG tube hanging out of my stomach. I'm two years out, gained back around 30lbs and still NED. The "New Normal" certainly has it's ups and…
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Katie
Have just read a post by Katie on facebook, she needs our encouragement badly, things are too much for her at this point.
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Checking in
going to see my ENT TOMORROW - good to see the regulars still being regular- glad John is feeling better - seems he had a " bump in the road" glad all seems well now. It's hard to believe it has almost been 2 1/2 years since my last treatment. I have just been feeling some discomfort in the area where the lymph nodes were…
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CT Scan & Dental
My latest CT scan while all clean , made a reference for the 3rd time that the amalgam I have around any crown work distorts the beam or makes it bounce ,since I first saw this it always bothered me that the scan could miss something in all my oral nooks and crannies, so when I saw my dentist today we discussed the process…
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Positive SCC biopsy unknown primary looking for reassurance
Hi my name is Jenni Im from the Gold Coast Australia, this month I have had a positive biopsy for SCC in a lymph node in my neck, they suspected the tonsils to be the primary, so i had them removed 2 weeks ago but they have come back clear, whilst in surgery they tool multiple samples from back of mouth/throat area and…
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Chemo Radiation? Nerve? Injury Burning Tongue
I"m 7.5 months post treatment and am suffering from a burning painful tongue. It almost feels like its scalded. The doctors tell me this is a complication from treatment. Possibly nerve injury. Possibly a complication from chemo and radiation. Med Onc said it could take a year, maybe even longer to recover from treatment.…
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tongue and throat cancer
Hello........My husband finished 35 radiation treatments Feb 23 for base of tongue cancer that spread to throat and lymphs on both sides of neck.........today he still can't swallow. I feed him by a G-tube and I would love to get some info on anyone who has had this, how long does it take to be able to swallow again?????…
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Having neck dissection next Wed very nervous don't know what to expect
Hi, I'm Karen from Australia, I was recently diagnosed with a stage 2 tumour but no lymph node involvement and no Mets scan results (T2 N0 M0) but it won't be until they open me up that they will really know. I'm very nervous about the operation, the surgeon says it will take most of the day, they will probably also take…
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Look What I found.... Crappie
Found one; So I invited him home..., he brought friends..; Hope everyone has a great week-end, think positive and great things will happen.. Thoughts and prayers, john
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Drinking Aloe Vera
has anybody tried Aloe Vera as a remedy for burns from the Rads internally,I'm just preping for the burn to come all info appreciated! Thanks to all you guys and my HEROS! Ed , .
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Raw mouth years after Rads?
Hey all! I don't post much here anymore but do try to check in every once in a while. I am 3 years out from diagnosis of ACC, I finished radiation in June of 2012. Overall I am doing well, I now have 3 kids (2 born after cancer treatment) & my scans so far have been clean although I am a bit overdo on those due to my last…
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I feel guilty
So my name is Kylee, I am 21, and I am a survivor of laryngeal cancer. No one in my life seems to understand who I am now, hell (pardon the language), I don't even know who I am anymore. However I grew up fast because of it all. I feel guilty because I feel like my cancer was so minimal compared to others, I only needed…
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Another Check-Up
While I don't post here often anymore , I do check in and read the posts ..I saw my oncologist today and am now officially 40 months cancer free, the only thing is she said she wants me to loose 20lbs by the time she sees me again in October, she won't let me out of the 6 month routine until I hit the 5 year mark, my ENT…
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Lots of Questions about Chemo
Just heard from MD Anderson yesterday. They want to start chemo next week. My husband will have 4 courses of treatment lasting 3 days each with 21 days in between the courses. He will be hospitalized for 3-5 days during his first course because of side effects and for monitoring. Not sure if they will hospitalize for the…
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May have more
Went to my dental appt today expecting not a lot but instead of just a good to start treatment I have to have a bone smoothed out ,and then she finds white patches on the gum on side of the cancer is on. To her credit she got on the phone with my ENT. and Rad Onc. Who ordered another Ct tomorrow man talking about a kick…
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My Husband's Journey, "The good, the bad and the ugly."
My husband was diagnosed with SC / BOT/one lymph node. He’s 55, never smoked, rarely drinks and it wasn’t HPV. He had chemo and 30 radiation treatments. First chemo was cisplatin but they had to switch to carboplatin because he had loss of hearing and tinnitus. Yesterday was his 6 week post treatment scope. NED!!!! I know…
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YaHoo
In the past week I have been poked, prodded, scoped, unltrasounded , blood drawn and CT scanned. the results are in and it seems I am good to go...all clear so far...YaHoo!!! not that I had any doubts (Said in my best brave voice) thought I would share a little good news
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Cleavers Herb
Hi all, I'm 3 years 5 months out from my robotic surgery to remove a cancerous mass on my epigoltis. I'm doing good, feeling good, except, for the " turkey neck". Recently, I read an article that said cleavers herb will reduce swelling, keep nodes clear , help with mucus . Have any of you tried this herb...? Hope this…
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frustrated ... sometimes i miss myself
Hello all, its been a while since i last posted. This week is one year from my first surgery before i knew i had cancer. And now i am 7 months post radio treatment. I always thought everything will be okay once i finish treatment ... well it is ofcourse u get rid of the cancer. But sometimes after treatmemt u get bit lost!…
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My TV appearance on a New Zealand Network TV show in support of HPV vaccination
Here is a link to the video of a TV show which aired on New Zealand network TV last night with my cancer story. tvnz.co.nz/sunday-news/going-viral-video-6281540 (Just copy and paste the text in bold into your browser).My hope was to increase the public awareness regarding the issue of the HPV link to head and neck cancer.…
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Checking In, Up and Check out mine and Chargee's Selfie
Hi all! So sorry to be so long posting. I have been keeping up and do check in from time to time believe it or not! I did a maternity leave long term sub for a kindergarten teacher from Jan. 5 to March 6 and have just started another one in kindergarten this past week that will go thru end of year. I am truly grateful for…
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Looking for people with the same type
Hi All, I am new here and I am looking for information and people with the same thing I have. I come from the UK and can find very little info about the type of cancer I have on the sites over here. Was told to have a look at the american ones, and this ones gives lots of good information. So far I have been told that I…
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To Peg tube or not
Hi guys am about to start my journey with Rad and Chemo to kill the beast,Onc.gave me the choice to have it or not, I told him I would decide this weekend. Guess I'm trying to get some input on this thing I plan on working as long as possible and sounds like this thing could get in my way alot,I do warehouse work so this…
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ENT visit
Finally, my first ENT visit! He scoped me and saw the blockage in my left nasal as well as reddened throat. He decided on a course of antibiotics for 10 days followed by a CT scan after! He did say he wanted to be sure of things in light of the blockage and especially the persistent headaches. He said they wanted to be…
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Non-Metastatic Ground Glass Nodules Lungs Help
Hi all. I wonder if someone could help me? I've been celebrating my 7 months post treatment NED. Then, I read the chest CT report..... Of course I'm happy there's no metastatic disease but the "ground glass" nodules seem very scary. The earlier scans don't characterize the nodules as ground glass. Is this something I…
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CSN MeetUp -Dos Equis
JOHN, SHELLEY and HONDO Tim HONDO Mc...., meetup in the other Bay Area from Don and Steve... Good times, old friends...
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Tumour
my blockage biopsy came back. I have a slow growing tumour,well I did have ,they think it's all out but haven't seen the specialist yet. It's not the same as the throat cancer it's a tumour that's not benign or malignant it's in between. Never heard of that one before. It could have been living in my small bowel for years…
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NED Sweet NED 7 Months Post Treatment
I'm 7 months post treatment and nearly a year (May) since anything showed up on a scan. Yesterday, I had my 7 month follow up scans. Reports came back NED! Many thinks to everyone who supported me and answered my endless questions. This is an excellent group of caring people. You are all very much appreciated.