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is tonsillectomy beneficial for Stage III tonsil cancer
Hello my husband is recently diagnosed with stage III SCC right tonisil. the neck lymphnode was the first sign and core biopsy was positive for HPV + SCC. The right tonsil lights up on PET. There is some debate on taking out the tonsil prior to radiation therapy. Most surgeons we have talked to say its of no benefit and…
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Next step
Jury still out but now I know, a worst case scenario would be doable :-) This suspect lymph node (and Don, sorry don't see SUV anywhere), is now going to get fine needle biopsy. It is too small (less than 1 cm) to meet criteria for cancer and doctor can't feel it even though knows it is there. Just behind collar bone. If…
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Not Sure
Not sure if I should go back to my ent .......I still have a raw burning sensation on the left side of my throat I feel when I have a coffee its worse he sent me for one of those acid reflux test I have not gone yet ...when he scoped me he didn't see anything out of the ordinary....Hmmm…
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Had 5 cavities filled yesterday
All went well. I chose to try it without novacaine as my dentist said the cavities were not deep and were near the bottom of my 4 front teeth and top of one lower tooth. I cranked up tunes on my I-phone so I would not have to listen to the drill and distracted myself. I could still hear my dentist huming and tapping (he…
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One year check
Can you believe I finished treatment a YEAR ago? I had my one year check yesterday, which consisted of an intense physical exam of my mouth, throat and jaw areas. Mostly using his hands and tongue depressers. They did bloodwork and two chest xrays (basically from my chin to my hip bones) I haven't heard anything yet and I…
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tx's done on Friday (brother)
Hello everyone, Well he's finished as of Friday morning and doing very well. We had one major set back last week. His blood panels had been off (chemo and hydration issues). The magnesium level was at danger level (way too low) so through the IV they gave him a supp. But it was as with other meds suppose to take time and…
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Lotions and Potions
Folks, the dreadded rash from Eributux has showed up. What lotions did you all find sucessful. I know to us mild soap and not scrub them. Thanks, Joe
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Chemo Question...
Please excuse my naivety but I am new to this cancer game and it's a game I really hate playing. I am scheduled to begin my full course of 35 rads and 3 chemos (cisplatin, which I've heard called "the raging bull") in two weeks to the day on Wednesday, July 2. I'm very well aware that everyone is different to how they…
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Wondering if it has happen
Hi guys just wondering if this happened .When they operated they took part of the tounge then graphed mucle from my thigh to rebuild tounge.As they did they tied it to bottom of jaw.Now for the question.When I seen my doctor last friday and he finally pulledthe trach tube we started to talk about getting teeth.He said lets…
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Just checking in
Well today is the two month mark. I would like to say things are getting easier but it seems like often they are worse. It is funny how friends and family almost sufficate you with care the first few weeks, then almost forget you. Life moves on for them but seems to stand still for me. I am not criticizing them, I did the…
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Mets to Bone
Anyone here dealing with mets to bones? Was on avastin at end of the year for mets to lungs from renal cell. Had bad cough and short story I blew a hole in my lung due to the cough and a badly placed lung nodule. They patched me up and took 2 nodules out and found that they were squamous cell and not renal cell (I had…
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FROM NED LAST WEEK TO A NERVOUS WRECK TODAY
Went to see ENT today thinking it was just going to be routine visit since I had just got a NED from my cat scan last week from the radiation oncologist. ENT doesn't like the looks of the right side of the thyroid on the cat scan, says it is larger than the left side. Had an ultrasound today.He discussed all the kinds of…
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Excercise
Hi All, I am almost two weeks post treatment . Have ran a couple of miles and cycled 15 miles. I am going to attempt a 50 mile charity cycle ride this weekend (very slowly). Ive lost a lot if fitness and conditioning. Had some great advice already from Rick (Ratface) but am really interested in stories from you all and…
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Side Effects from radiation
Hi all, I'm excited to say that I just became a member of CSN today. I have read some of your stories and know I will learn alot from all your experiences because I do have questions that only you guys can answer. First, briefly about me. I was diagnosed with Squamous cell cancer on the floor of my mouth in Sept of 2013…
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CT Results 18 month scan
To those of you that comforted me over the week-end, thank you. Your encouraging words and information (Don) helped me make it through the waiting period without having a melt down. Got the results back today and all is stable. Can't ask for more than that. I was greatly relieved when I received the email from my doctor.…
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PET result
Interval resolution of previous areas :-) However...always that damn however...slight uptake in right supraclavicular lymph node. (Collar bone area) What that means...another CT scan this Wednesday. Really, is the insurance going to buy into a CT last Thursday, a PET Friday and another CT Wednesday?Doc claims CT last week…
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USA
FRIENDS, I know this is not on topic but I should just like to wish USA the very best if luck tonight, G.
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Scar Tissue??
Stage 4 Tonsil cancer. Lymph node involvement both sides. No surgery. 7 weeks of cisplatin and radiation. Discovered with lump on right side just underneath jaw. Now a year out of treatment. After treatment the "lump" was gone. Then "grew back." Oncologist says it is just "scar tissue." From the radiation? Never had…
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Peg insertion tomorrow :-(
Hi there, I am very very nervous. It is now 11.50 pm and I am going to be at the hospital tomorrow morning at 7.30 for peg insertion, think I am the first of the day. I am extremely nervous. Then 1 more week and treatment starts. Its now becoming real. Robyn
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Thyroid?/Update 6-18-2014
First off how is everyone doing this Fathers Day?Hope everyone is fine and having a good time,I was going to post a new thread about the thyroid gland,Went in Friday to have an ultra sound done on my thyroid and during my check up the Lady running the ultra sound was stopping frequently and marking small dark spots here…
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Olfactory neuroblastoma... Plz help
I checked my husband MRI last night and this what i found Heterogeneous tumor along both sides of cribriform plate with solid and cystic component as described above. The appearances favor an olfactory neuroblastoma/esthesioneuroblastoma. Neurosurgical consultation and further evaluation with MIBG scan is recommended.…
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Fingers crossed
Just finished 35 radiations over seven weeks and three chemo treatments over the same period of time with infusion of cisplatin. all the tumors appear to be gone this includes one or two lymph nodes and one at the base of my tongue. My radiologist believes that the cancer is now gone but we won't know until the pet scan in…
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Bad Day
DX: stage IV HPV 16+ HNSCC of the trachea/thyroid/lymph/lung. Primary unknown. We met with the local oncologist today for the first time. The 1st PET results from yesterday weren't great. They found 3-4 nodules in his lungs the size of "small grapes" that were not on the CR 3 weeks ago. The oncologist said this meant that…
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CT Scan...
I have myself completely freaked out. I did my 18 month CT scan Tuesday night after work. Dr says she does not have the results back yet. All prior scans were back within 24 hours. I have myself convinced that something showed up thus creating a delay. Ugggg. Wish I could do something to calm myself down. Now I will have…
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Updating my Update
Quick recap of my past posts - saw the ENT oncologist because of pain in my tongue and ear. First, because of past history of chemo, radiation and 3 surgeries on the tongue, doc felt I needed most of my tongue removed and rebuilt with tissue from my arm or neck. He did a biopsy and a CT and both came back negative. Next…
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Thought this was interesting...
It seems HNC is starting to get on the cancer radar.....new things are being approved every other month or so (or at least I've seen more in the last 6 months). http://www.fda.gov/NewsEvents/Newsroom/PressAnnouncements/ucm401085.htm?source=govdelivery&utm_medium=email&utm_source=govdelivery
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Took another step
Hey gang Took another step in my recovering.Seen my Dr and he finally removed the trach tube.What a break that was.He said to keep it covered for about a week and to press my finger over as I speak,cough,or sneeze.Seems like my swollowing is a little better also.Maybe someone has gone though this or knows something about…
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Pumakitty is going to jail (to work)
Hi guys, I am so sorry I have not posted for awhile. I have been reading all of your posts and sending prayers all the time. I wanted to give you a little update. In the year since I lost dad and mom my life has changed in major ways. I posted some time about my job search and my sick kitty. Spot is doing good for a 17…
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Skiffin ~ 13JUN2014
Well friends and neighbors..... Following in my true abi-normal self, Friday the 13th and a full moon, LOL I think I might have finally reached the corner on this long azz block I've been walking. I haven't thrown up for a few days, which is wonderful... Eating still isn't going so well, mainly Ensure, but I am managing a…
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Tooth Extraction Protocol
I have read many posts here and elsewhere regarding the fact that many people have had to have teeth removed before radiation treatment. Some people not losing any, and some losing all, and others varying numbers, "before" rads. Is this the norm in American oncology treatment pre-rad? The protocol here in Canada, as I…