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Head and Neck Cancer

Archives for May 2014

My Introduction & Sharing About Squamous Cell Carcinoma
I officially became a member of this club two weeks ago when I was diagnosed with Level 1 Squamous. A few notable and relatable things are that I am a 60-year old man. Okay, TOMORROW I will be 60. I am a survivor of non-hodgkins lymphoma as of 2006. I quit smoking in 1991 and to say I drink alcohol lightly is putting it…
Robotic surgery at Wilmot
Just diagnosed on May 6 with right tonsil cancer - T1 N2/3 - Surgery is scheduled May 28 at Strong Memorial in Rochester, NY. We have strong faith and are praying without ceasing. Will be reading everything on this site. Have no idea what to expect.
Starting the Journey
My husband just received his tongue cancer stage IVA diagnosis three weeks ago and we still have until June 9 before treatment starts. Up until I found this site, we felt so helpless and alone...just reading through some of the contributions from other people going through this process at various stages, gives us strength.…
Mid May health Update.
Update to my health status: Because not all of my friends and family are on csn I may not always post here Solution: I do have an email that I sent out with updates. If you would like for me to email you as well, please PM me with your email address. your email will be private and not shared or shown to anyone else, not…
Introduction - Stage 1 Vocal cord cancer, total newbie
Hi all, I've been reading the board extensively and so far I've gained a ton of knowledge from you! I wanted to say thanks, and introduce myself because as crappy as it is to be a member of the 'club', here I am. I think I might need you guys for support, who knows, but I feel like I've already got so much from the…
Fluoride Trays & Toothpaste Help Request
I'm going to start chemo and radiation in a few weeks. I got a referral list of dentists in my area to go to for the fluoride trays From the hospital. What a mistake. The list is patient referrals. Not necessarily from the hospital. I picked a dentist from the list who is near my home, called and explained my situation and…
Chef Daddy Mike
I have not been able to contact Mike in 4 weeks now, the last time we talked he was not doing well and back in the hospital. Please keep him in pray this poor man has been through hell with his sons leukemia his cancer and fighting a crazy ex wife all at the same time. Thanks you all Tim Hondo
Verdict is in on the PET/CT results
A week or so ago the PET/CT scan was questionable. R/O thought it lit up due to muscle inflamation. Sent disk and written report to Vandy surgeon and he called while I was on vacation last week and said, "It is inflamation." Yippee I am going with that! Been out of touch as we went to Grand Tetons and Yellowstone and did…
Fatigue
I had stage II Primary Squamous Cell CA of the parotid Gland. I had 7 weeks of radiation/ no chemo after I had surgery to remove the parotid gland. I did very well through the treatments but now, almost 11 months later I am really dealing with fatigue. TOday I ran into the balery at Walmart, the bakery at BJ's and the…
CAN NOT BELIEVE THAT SOMEONE WOULD POST THIS IN MY PRIVATE MESSAGE
Dearest one, I do sincerely apologize for my intrusion of your privacy here in this wonderful site, I have a serious concern with which I believe you might be of help and for this reason, I cannot but reach out to someone. My name is, Mrs Sarah Duke. A Nationality of Finland I am married to late Mr. David Duke, who worked…
Starting radiation in three weeks.
I had TORS and a double dissection two weeks ago. I will be starting radiation in about 3 weeks. Does anyone have suggestions for what I can do lessen the side effects. I will be getting IMRT to only one side of my neck for 33 treatment. They said I will be receiving 65 grays in the area of the two lymph nodes that were…
Latest pathology report back...
Hi all, On April 14th I had a white patch of leukoplakia excised from my tongue and I've just recieved the results of the pathology. Pathology came back as hyperplasia, with no evidence of dysplasia or carcinoma. This is an improvement on the situation last year when I had a large white patch removed from my tongue and…
Goodnight
Hope everyone had a so so day or a great day tomorrow is always a new day...................keep positive
Thankyou Sooo Much
I am so thankful for all the people who responded to my posts in an upbeat fashion and wasnt rude and try to throw me off this site.....what ever my results are I have decided to stay on here anyway to help and support others......So Thanku Again to all of you who posted and gave me words of encouragement…
Bad day in the grief department
Yesterday was one month since Jim has been gone and I am really depressed today. The depression came on slowly since Friday evening when I heard that the condo my son and I were planning on buying had a contract on it. Then a festival I worked hard to produce quilts to sell at was a bust, I made a whole $8 which didn't…
Aggressive Tongue Cancer Surgery
Good Morning, I have been off and on this board since 2008 when I was first diagnosed with tongue cancer. I have had chemo and radiation and then 3 surgeries to get rid of 'small' cancers on the tongue. I had a biopsy last Friday and a CT scan. The surgeon is pretty certain the cancer is back and this time I will need…
Skiffin ~ 19MAY2014
Just a quick note... I didn't have an infection which is good... I still have two drains that are putting out about 1 - 2 Oz of gunky fluid that smells terrible, and they leak where the tubes are stitched and tied into my belly... Hopefully they will get these sealed off soon..., kinda demoralizing have crap leaking out of…
Chat
Anyone Know how come chat is working lol.................................
GoodMorning
Hope Everyone Has A Great Day ............And Always try to stay Positive ..............................
For those in treatment
suffering from mouth sores....a new product (I heard about it on the Oral Cancer site on Facebook).....a dental professional on that site sent free samples to anybody who wanted to try it....and from the sounds of it, this stuff works....(and now I'm wondering if it might have a bit of the same "deal" going as MuGard did…
About the "oil pulling"
that Laralyn was talking about. I've been doing it for the last month or maybe a little less. I seem to only manage to remember to do it 4 days a week or so....but....after about the first 4 days, I noticed my "taster" working so much better....and it still is. Now it could be a coincedence that my taster all of a sudden…
Curious
Was reading a few threads and has I am understanding chemo is not for tonsil cancer only radiation is this true
I am A Newbie
Seems Like A nice forum I havent gotten thrown off yet.......I am pretty worried that I mite have tonsil Cancer ....I havent been dx Yet have to go see my ent in 10 days...it started back In March I woke up with a severe Sore throat .....so instead of waiting 10 hrs at the clinic I decided to take some amoxil I had In the…
web site for Tube Feeding Foods
I saw this on FB and wanted to share for those who are on tubes. if you check it out, let us know what you think. http://real-food-blends.myshopify.com/ dj
coughing up the mucus
Hey guys..went to the doctor today and everything is healing nicely.He probed around tounge then down throat and send looks good nice and pink.Wants me to start to eat more and move towards alittle solid.He also wants me to try to keep my trach capped all the time and to beabe cough up the mucus and next month he finally…
update on brother...more good news to add ! 5-18
Hey everyone, I want to thank the entire board for the wonderful information I have been able to share with my older brother and his wife. He's 2 weeks into tx's. So far very minimal side effects. The worst so far has been hick-ups that lasted 12 hrs. after the first chemo tx. They did give him meds before hand and after…
John (Skiffin) Update of 5/16/14
Just a quick update on our bud, John. He coninues his recovery, but has developed some sort of infection that they are culturing so they can find the right antibiotic. in the meantime, he has been suffering with bad bouts of nausea and just generally feeling poorly. So, continued prayers and good mojo requested. We need…
Update - scan results
Hello all, hope you are all doing well :) Happy Mother’s day to all mums here, even if it’s a bit late. Good news: The PET scan, CT scans, MRIs all came clean no other tumor anywhere else :) Bad news: the bad news is that i still have 2 cm of tumor at the skull bottom, still didn’t memorize the exact medical name of the…
I am still here
I just celebrated two years without David and my second anniversary would have been on Monday. Each day without him is getting a bit easier. For those who haven't heard I moved to Lexington, KY. Wells Fargo did indeed foreclose on David's home; however, God provided for me. My new home is smaller, but it is perfect for me.…
Prayers for sister and checking in
Soon will be a month since Jim died. I think I am still numb most days, with little breaks in the numbness where I can feel. That was until Monday. On Monday I cried most of the day. I just had this profound sadness. It does help to come visit this Board and encourage all who are facing new diagnosis or after effects of…

Head and Neck Cancer

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