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getting ready to start treatment
Hi everyone as I'm nearing the start of my radition treatment am curious if they leave trach in or remove it.Also as I have read here my mouth will become pretty dry will I be able to sip anything with the trach in.During speach she has had me swallow and that's not a problem.The only problem I have is that I move tounge…
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Is it safe to drink sodas?
With post treatment for NPC, would it be safe to drink sodas and eating fast food like McDonald? PM
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Dental issues post tx
Hi Jude, I did not realize I was replying to post in the roll call thread. Repy to this post of yours. ORN? ORN.... sounds like an acronym for oral radiation necrosis, or possibly oseos radiation necrosis??? He had a level 7 radiation. Ruben had two lower molars extracted, one on each side, prior to radiation. The right…
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Floor of the mouth with lung metastasis
Good Evening All, I am new to this site. I've read through many of the discussion threads. But I don't see answers to my question. My husband was diagnosed with floor of the mouth SCC in 2011. He had surgery followed by radiation/chemo x 6 weeks. Shortly thereafter they found and followed several nodules in both lungs.…
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Missed you guys
Hi, I am sorry I have not been around a lot. Just trying to adjust to losing both dad and mom this past year. Me and my kitties have been getting alon pretty good. Spot Cat is dealing with some UTI problems. I have had some changes in my life and may have more. I am seeing a new guy that is sweet and kind. He have known…
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A bit apprehensive
I have an appt for day surgery on my throat blockage on Monday, I was told they will look to see why it's blocked and think it's probably rad tissue. I,m told if they can they will stretch my throat. I,m quite excited that I may be able to swallow next week but apprehensive that it may not work. can you swallow straight…
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in hospital now
Aalthough the nursing staff and room are very nice, this has been a total nightmare. Just horrible yesterday. I'm still recovering from it. Short story. Basically put off my biopsy, food and meds to make me less dizzy missed first two meals. Only had button to push for pain which made me dizzier Was told more than once…
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An interesting read (article) regarding submandibular gland transfer for the prevention of dry mouth
Can be found at: http://7thspace.com/headlines/453155/clinical_observation_of_submandibular_gland_transfer_for_the_prevention_of_xerostomia_after_radiotherapy_for_nasopharyngeal_carcinoma_a_prospective_randomized_controlled_study_of_32_cases.html The essence of the article: The aim of this study was to evaluate the…
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Anyone out there that has lost their nose/sinus due to cancer surgery?
Hi all! Just joined and thanks so much for your warm welcome. Wanted to know if their is anyone out there that has lost their nose/sinus area to cancer surgery and has had to be left unreconstructed due to previous recurrences. Have to wait 2 yrs. now after last surg. Dec. 19 and area has to be cleaned/packed with surg.…
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NPC hearing loss side effect & does IMRT really helps to reduce and prevent side effects?
Hello all NPC survivors. I was recently diagnosed with T2N2Mo and I am glad to have found this forum. I have yet to get any radiation or chemo treatment, but schedule to have it done soon. My concern is about side effects, especially hearing loss during treatment and post - treatment. Therefore, would greatly appreciate if…
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Insurance crap....
It's beginning to look like I've been thrust into what may be common nowadays. I had my scan in January under the new insurance....remember I had to cancel my appointment, and make a new one in a different town, because the local imaging center wasn't in my network....ok...did that. Also it was pre-authorized by the Drs.'…
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Done with radiation - major meltdown plus questions
My husband is 1 week post radiation. He is still on a liquid diet (but after reading so many posts, we expected this). I had to laugh at him last night becuase he tried to eat a Gold Fish and about threw up at the taste (I'm not being mean, he's a little melodramatic, so his reaction was funny!) But prior to that, he had a…
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Low Grade MEC, long term survival rate
Hi, Is there any evidence about long term survival of low grade MEC? I have looked online and most reports are about 5 or 10 years, but is there documented eveidence that people survive say 20 or 30 years without recurrence. Thanks,
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THANK YOU ALL!
Hi all that responded. When I went to bed yesterday am(night owl) I was discouraged, as I hadn't had any responses. When I just checked now, I was blown away with all of the people that wrote to me with compassion/welcome and support. I now feel like I have a family and am not alone. Since I can only sleep in day; it…
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Secondary lactase deficiency
Hi all, I have a question: has anyone experience of this after Cisplatin? I have some symptoms that are perplexing my team. Basically I had about 15 rounds of Cisplatin ending in December 2013.(plus radiation) About six weeks ago I began to experience what felt like a sickness bug, lots of flatulence but no vomiting or…
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just got my game plan
Well once out of rehab sunday have a meeting on the 27th with radition doctor.As far as I know right now it will be 5 days a week for 7 weeks 10 minutes each day.What can I plan on happening just to prepare myself...
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Ned
I had my two year CT scan and it is NED....All is good! Ann
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Honey
2014-02-19 When I first came onto the site before I started radiotherapy I mentioned the healing powers of Manuka honey. Before I started treatment I had a spoonful of this honey every day and I didn,t get ulcers or too much soreness in my mouth. Today on the local news they are using honey in hospital on dressings for…
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Mr NED and Mr Not
Hi Folks, At 10 months out, my mouth and throat look as pink as Pepto Bismol. Things have totally healed and accounts for my swallow improving. It's still chew, chew, sip, swallow but improved. I'm even up to eating the one pepper dishes at the Thai restaurant :) Getting close to the 1 year post Tx mark and I'm still NED.…
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PEG Tube Diaper Rash
Lately I been having a lot of problems with the PEG tube becoming sore and red right by the Stoma. I have been trying a lot of different things to clean it up but was not working, the lady at the doctor’s office said try using a diaper rash cream. Well we just happen to have some in the house so I did and I could believe…
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Squamous cell sinus cavity/nose=NEW to site and need support and connection
Hi. I just joined and have been battling aggressive invasive squamous cell ca of the nose/sinus cavity for 2 yrs. Have had 6 surgeries and 33 radiation treatments. Am homebound since last surgery Dec. 2013. I'm having trouble connecting with people. Tried the chat room and couldn't get in. Am alone and scared and really…
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I'm here in hospital now!
I'm finally here. Got in about 8:00 pm. Oncology dept. Even a private room. Wow. Got my Kindle fire online. Finally some real care. I've been trying to nurse my disabled sick self for 24 days at home. With the constant help from husband John....when not working and keeping up our home, pets, elderly mom, etc. I've been so…
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portable sucktion machine
Ahhh finally heard when I can leave rehab.Have doing everything on my own but now I speach class using a vocal device on the trech.Anyway they are going to order me a portable suction machine to take home my question is can it be used in the car also.I thought I heard they can plug into the car and run on 110 at home.My…
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Unofficial scan results
Have had 2 sessions of ebitux and taxol (6 weeks) and had a CT scan this morning to see if it was working on my recurrence. The nurse told me I would not get results until Thursday but when I had the scan they told me the doctor would have in hand by lunch today. I waited til 2pm and called. The doctor had the written…
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still waiting
Still waiting for a call for available hospital bed. Doctor's Office left us hanging for hours with out a return call. Husband has been following up. Feels like they are not giving good service. Putting us off. I've been so very sick in bed for weeks. We do what they say and get the short end Not happy. Scared and nervous.…
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anyone need Boost/liquid supplements in the toronto area?
My mom is having her feeding tube taken out this month and won't need these anymore. There's still quite a bit left for anyone who needs it and lives in the Toronto area, let me know!
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Never thought I'd be here again
So once again we get some frantic news from our Radiologist. Sorry my terms are a bit fuzzy after 3 years. Said she saw something but won't say what it was. Consulted with another doctor and they recommended a pet scan and some other scan again. Needless to say the winds have been knocked out of our sails. She went to see…
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Asking For Opinions
Hello All, Just looking for opinions and/or our resident insurance guru, if we have one. As many others have done, my former company has decided to no longer be directly involved with supplemental health insurance for those of us on Medicare. I have received & tried to interpret(Ha, Ha!) all the new info. as well as…
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NPC - treatment done!
HI All, I posted on here around September last year hoping for advice on how to make my mom's NPC Stage 4 (only locally advanced) treatment better. I've used all the wonderful tips that people have given and she has completed treatment! She did 35 rads and was only able to do 1 session of adjuvent chemo as she developed a…
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its been awhile-2 years since last recurrance
Hello everyone, I dont post much but I read almost everyday. On march 1st it will be 2 years since my moms last surgery. I am so greatfull becauce she really went throuh a lot and I believe its Gods miracle that she is here and well. For those who know my moms story: since nov of 2010 she had tonsil surgery with left neck…