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Head and Neck Cancer

Archives for February 2014

1st pet scan after treatment this week. Prayers for my father please!
I am so nervous its crazy! I pray that it was all worth it! Thank you all for the amazing support!
Checking In, Clear Scans
Hi Everyone Haven't been on in a while, just thought I would check in and say hello. I live near Liverpool in the UK and had mucoepidermoid carcinoma back in 2011, my doctor said it was a strange presentation with a neck lump that was mostly fluid with a few cancer cells, but no primary has ever been found, low grade.…
can a low grade mucoepidermoid carcinoma recur as high grade?
Hi, I was treated (maxiollectory only) for a low grade mucoepidermoid carcinoma on the hard palate, I had clear margins but reading the pathalogy report it seems that the bone was eroded (i am assuming this is the bone of the hard palate), I have been clear for a long time now and was woundering, 1) can a low grade…
comfort from group 4:23am
Just a stop in to feel the comfort of my group's presence while awake at 4:30A.M.
Feeling selfish and guilty
I was so excited when I first found this forum. Now I come here feeling selfish, guilty, and scared to continue reading. I have always been a person who likes to research and be prepared for all possibilities. Coming here and asking questions made me feel better, like I was preparing in some way for what was to come.…
unknown hardest part right now
Still waiting to be hospitalized on Tuesday for tests. Bone scan, lung biopsy, and arrange with new rad DR for rad to 2 brain lesions.( My previous rad has retired.) Shock is wearing off. Anxious for action plan. Fearful of any more bad news possibly to come. Thank goodness I have this group! Vicki
More prayers please.
I am in need of more prayers, and need I say, pray for Jim. FRiday Jim started to cough up small specs of blood. Saturday it was about a teaspoon of blood. The on call nurse came by to check. She said it was from the cancer. His heart rate has also been in the 100s but they don't seem to be worried. She said she could hear…
Thank you from Rachel
To all my H/N friends, My hearing for SSD on April 7,2014 @11:00am, has been canceled!!???..... INSTEAD THE ASL JUDGE DECLARED FAVORABLE DESICION IN ADVANCE! No more waiting!(well now waiting to hear from SSD, and all about how much and insurance". My lawyers Case Manager Julia called to tell me she said she cried when she…
Advice on phlegm
The weekend has been up and down, started the Fentanyl pain patch which has helped tremendously but now we are dealing with thick mucous in throat which constantly starts the dry heaves and he can't keep anything down. We were told half flat ginger ale does wonders but he won't consider anything to his lips! I have a…
Newbie of tongue cancer
I was diagnosed with T2 tongue cancer right before Christmas. For the first month all the doctors I saw were saying radiation and possible chemo, which the next Dr I saw said I didn't need. Then after a series of events, mainly me getting the flu and having to postpone all the appts I had made. I had to see yet another new…
tounge flap
Hi guys as posted evrything is positive so far but have a question that I noticed.When they add the a tounge flap do they graf it to the lower gum? One of surgens told they were going remove the bottom teeth because during radiation they would be destoyed anyway.But noticed today that my tounhe is on the gums and wondering…
Had a wonderful lunch
yesterday with PJ47....she's up here from S. Carolina, visiting her daughter and grand-babies.....we both had soup! Had some great conversation, and laughs. I love this group....and it's such fun to meet folks in person.
Great and Not So Great News
Saw the ENT today for PET results. The great news...the original tumor is gone and affected lymph nodes all look good. The not so great news is that he has a new growth "neoplasm" on or in his thyroid that was not there before. So he has an ultrasound scheduled in the morning and a needle biopsy scheduled Wednesday…
REAL FOOD!
On Wednesday, I got the go-ahead to eat ANYTHING I WANT! This is after the total laryngectomy and rebuilt esophagus. I was on PEG tube feedings before going in the hospital, and on continuous feed since then. So, I went from continuous feed right to REAL FOOD! Food is so delicous. It has been a long time. I have to watch…
Nerve continuity test
after all the treatments etc, I have "winging of the scapula" on my right side. The oncologist said it was probably due the some damage to the Long Thorasic Nerve due to the cancer itself, or the radiation treatments to the right side of the neck. I only had a tonsillectomy ( no neck dissection) so it's not due to surgery.…
Swallowing
Today I got a hospital letter to say they were going to take me into hospital to examine my blocked throat. They could see from the swallow video test that the liquid wasn,t entering the food tube. They think it's radiation damage and will try to open my throat. I feel more nervous about this than all the other treatment…
postive first doctor visit
Just got back from my first doctor appointmentHe told everything they and the results.Took alomost 1/2 of tounge 80 lymph nodes and everything show they got the cancer.Will need radiation but no cemo.Will need to set up a portable sucking machine for home and he left the teach in but did cap it.Not sure when that will come…
how do you calm the fear?
I'm afraid of my thoughts and feelings. Afraid when I lay down to sleep, the feeling I'm living in a nightmare will overwhelm me. Vicki
Frustrated!
The 24th of this month will make 2 months since I finished the treatments. Honestly, this "recovery" period is worse than anything I endured during the treatment. It seems like I can't eat anything (never had a PEG) except grits with fried eggs mixed in. Anything sweet taste like motor oil (especially Boost/Ensure drinks)…
Advice on Nausea/appetite
My husband Tim just finished up his fourth week of IMRT treatment at MD Anderson and its kicking his butt. He has ten more to go, Feb. 28th will be his last. He is just now starting to struggle with extreme nausea and sore throat. Seems he has the nose of a bloodhound now and can sniff out smells we can't smell, some are…
bad news today
2014-02-13 just got bad news today. Have to be admitted next week to hospital for tests. Scans show shadows on my brain and lung and bones. Dr. said there was more than a fair amount of disease showing on the scans. , I have been home in bed for 20 days with severe pain to my leg and weakness. We are in shock and so scared…
Planned CSN Outage Tonight
Dear Users, CSN will be down for routine maintenance tonight from around midnight to 3:00 AM Eastern Time. We apologize for any inconvenience. The site will be up and running as quickly as possible. Thank you for all you do for CSN! CSN_Nick
Hospice update
Jim and I called Hopice in. They brought in the oxygen and took over sending the meds via Fedex. The pain meds being delivered is a blessing in itself. That was the most stressful part and I am already less stressed. We got the oxygen last evening and it was a blessing this morning when Jim had uncontolable coughing and…
Hyperbaric treatment and dental extractions looming on the horizon
Hello everyone, long time no see! I have a question for you all regarding hyperbaric treatments relating to dental extractions - given the time involved, loss of hours at work, cost, potential for short-term and long-term visual adverse effects, especially in my own case... (It will "ripen" my radiation-induced cataracts,…
Introducing myself
I am a caregiver to my mother whom has larnix cancer. She has already gotten her port and her feeding tube. She has one round of chemo. She starts her radiation on Monday. I am also caregiver to my mother in law whom has diabeties. My husband also has prostrate cancer. He goes the end of this month to have his prostrate…
Just when i thought it was safe to walk on the ice...
Just got back from the MedOnc and the results of my 1 yr post treatment CT was less than stellar. It seems that a ground glass nodule, that has been present in all of my scans, has increased in size by a millimeter since the last scan three months ago. Now he could not have been more reassuring that it is probably due to…
Scar tissue surgery :(
Hello! For months I've wanted my trache removed. I HATE IT! so much! I got it this past June when cancer on my larynx was restricting my breathing. Went through chemo/rad and by November 2013 got a clean pet scan. Thank goodness, time to focus on healing. But here it is February and still having a difficult time talking…
trach tube
well head to the doctor for my first vist at 2 weeks post surgery.Still have the trach in and wondering if it's ok to have a family member take me or by medical vechile.Found out it will cost over 1100 for the trip by medical.Here at the rehab they said family can take you just wanting to see if that would be the safe…
WEEK 4 Need Help
Hello everyone; Well Monday was my 4th chemo treatment and the 1st time I actually got sick, What a night it was sweats and throwing up, Thank you for all your support and may god bless you all, Do any of you live in or around the southside of Chicago, Would like to start a support freindship any ideas would be helpful. I…
Fruit sensitivity
Back in 2007, I started having issues with orange juice and other citrus. I didn't think anything of it because I had just changed allergy meds. Later that year, I was diagnosed with tonsil cancer. After surgery and treatment, I could have citrus again. I read online somewhere (although I can't find it now) that citrus…

Head and Neck Cancer

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