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Head and Neck Cancer

Archives for June 2012

Okay ..have to ask
You know those dinner rolls or biscuits you buy at a bakery and they still have that "powdery white residue" on them you can blow or brush off? Well that's what on the back of my tongue, very back. My tongue, throat or mouth in general does not hurt...but I can feel / see a couple of very small bumps on the back of my…
Four weeks after treatment
Well, yesterday marked four weeks after the end of treatment. For some reason, I've been having trouble staying positive, even though I think things are going well. The mucus is pretty much gone, and I haven't had any problem with nausea since reducing the narcotics. I'm consuming around 1100 calories a day (via PEG),…
Going Home
We are selling our house and will be moving home to Daytona Beach next week. I know we should not make major decisions during times of stress but we are. I grew up in the Daytona Beach area and Jim has been there since he was discharged from the Air Force. We also have two children in the area, my mother and two sisters.…
Truly a Basketcase again
Hi all: Thought I'd check in. Thurs. the 28th was/would have been our 37th anniversary. It was a bittersweet day as June, July, and August are tough for me. Tomorrow is 2 years since we found out it was back and the 8th is two years when we found out how bad it was and of course the 27th is both of our birthdays! Anyway…
Denture fit and swelling....
Hey everyone ! Was wondering if first anyone having issues with this. Granted Dentures are very new in my world (3 months) But some days the teeth fit mint...but when my lyphedema is worse, they either make me gag...and hurt...and on days that swelling is down they slide around and have to use the gookie stuff to keep them…
PEG TUBE FITTING
I'm having a PEG Tube fitted on Monday, and am absolutely scared to death. They have told me it's a simple procedure performed under sedation, and yet they insist I stay for 2 nights in Hospital! I understand the rationale about having one fitted at this stage ( 2 weeks into treatment)as an Insurance against not being able…
Just diagnosed with SCC
I was just diagnosed with Squamous Cell Carcinoma with unknown primary on June 27, 2012. I noticed that I had a swollen lymph node in the upper right portion of my neck on May 29, 2012 while deployed to Afghanistan. They conducted a CT scan with contrast on the June 7 and the reading came back as "suspicious for cancer". I…
Finished my last rad treatments today and rang the bell
Today I finished with my last radiation treatments i finished My chemo a couple weeks ago. Over all I feel pretty good I am still dealing with mucous that sometimes make me vomit im using the baking soda mix my docrecommmended ans tussin to keep itu under control the suction machine doesn't seem to help out much at all. I…
been a year since diagnosed with npc
Time flies when you have so many doc's appointments. Last year this week, I was told about the bad news - NPC Stage 4 and was told I had roughly 40% survival rate. After the biopsy came back which shows EBV, doc told me my prognosis is better, survival rate increased to 50%. I went through some emotional roller coaster but…
Anyone else with balance problems?
The great majority of the time I'm fine, but I get these "spells"...I feel my ear plug up, the ringing in it muffles, and I get totally off balance....yesterday I literally had to plop on the couch to keep from falling. Then it passes like in 30 to 45 seconds. I don't feel dizzy, just completely off balance. It always on…
Round 1 Complete...
Hello to all my brave warriors today! I am finally home from the hospital after my first round of surgeries and wanted to share. :) First things first - The pathology on the tumor removed from my tongue last Thursday came back with clear margins yesterday, very relieved and grateful. Anyway, so I had the tongue removal and…
Tingling sensations and leg weakness post treatment
G'day everyone. New here :) My husband is at 8 weeks post radiation/chemo. Had surgery in Late Jan 2012 to remove one tonsil (tumor) sml margin of base tongue and part of wall at back of tonsil plus several lymph nodes in neck. Has a G peg feeding tube. Is trying to eat and can get soft meals down but still has no saliva…
Two Year Appointment....NED.
Just had my two year post treatment exam and got an all clear report. Two years ago this past April I was diagnosed with SCC unknown primary after I discovered a swollen lymph node in my left neck. I had a left neck dissection with over 30 lymph nodes removed and the tonsils were removed for good measure. Following…
Has anyone tried this? I'm desperate over here.
http://www.delightwater.com/
How do I get passed swallowing just liquids?
Can anybody help here? I've been done with treatments since 10 Feb, and currently can only swallow liquids. My speech therapist has cleared me to go beyond liquids to anything I can get down, I just can't get anything down. I have thrush in my mouth that I'm taking Nystatin for. ( I can barely swish and swallow that).…
good news finally
Some of you know, my husband, Andy is fighting a metastasis to bone and liver. As you know, his cancer is no longer considered curable, but treatable. He has been on various treatments and in one clinical trial that worked for months but stopped and he showed disease progression. He has been on a new regimen and we got his…
Where is Sweet?
I have not been on the board as regularly these last few months but noticed there are no responses or post from Sweet. Anyone know what is going on with her? Debbie
Skiffin...
Lovin' the new pic!
optic pressure in both eyes
Hey, Just an update...saw opthamologist this afternoon. Real nice lady, very knowledgable. Being sent for cta and spine tap asap. Sounds like I'm having issues with blood flow somewhere in brain. Won't ponder on the what if's today. Katie
Squamous cell carcinoma and acid reflux
I've just started posting on this site today. This site is just what the doctor ordered (pun intended). There are some really wonderful people here who we can all relate to given the situation we have found ourselves in. I'm six months out from my last treatment for HPV positive squamous cell carcinoma of the toungue that…
Foolow-Up
Last tues day I had a small , well small is a relative word, section of the left side of my tounge removed as a result of a biopbsy I had earlier in June that showed some SCC cells. Besides the pain, the stitches , everything is going well...I saw my onco this morning , she had the pathology reports all margings…
Post -cancer blahs
Hey Everybody, This is my first time writing. First off, congrats to all of you who have beaten the beast. And the best of luck to those of you who are still engaged in the battle. I was diagnosed with HPV positive squamous cell carcinoma last July. The tumor was on the base of my tongue and metasisized (stage 4) to my…
Can't tell if hungry or full
I'm now 4 weeks out of radiation... and this has been happening since about half way through the treatments. I NEVER feel hungry at all... and on the other hand, I can eat a HUGE amount and feel no different, as if I haven't eaten at all. Now that my mouth is healing a bit and I am able to eat certain foods again... I can…
PEG Tube Feeding Question
Hubby is 90% peg feeding 4 weeks into treatment. I cannot get enough calories in him. He is using FiberSource which is 300 calories per 8 oz. serving. Full strength gives him diarrhea. So we dilute 50/50. But I can't get more than 8 oz. diluted food and 4 oz. of water in him at a time. He claims he's full and can't hold…
Only 32 more and I can
ring the bell. Yes my friends I had my 1st RAD treatment today. It went well considering it was about 30 minutes vs 15 on the future visits. But again thanks to this site I was a little more mentally ready. I remember some post commenting about the mask being tighter than they recall from the fitting. I felt that as well,…
Got my new chemo plan, today....
For the next three cycles I'll be getting Cisplatin at 80% of my past doses...and I will have a 5FU pump for the 4 days following the Cispatin infusion...then off for 3 weeks. I've lost a total of 5 lbs during the first part of treatment, my Onc says that is great...even tho that puts me at 88 lbs, it's almost unheard of…
starting fourth week of radiation and second cycle of chemo
hi everybody I'm starting my fourth week of radiation and my second chemo cycle my taste is pretty much gone nothing really taste that good anymore my neck a little burned throat a little sore and I'm taking muccinex for the mucous but I'm hanging in there tomorrow is chemo so we will see how that goes thank you for all…
Is this swallowing problem?
I am almost done, my last rad is tommrow. I have been having tough time last couple of days. I had no mucus till last week so only had to deal with dry throat. I was hoping for little mucus as i thought will provide some lubricatjon, man! was sooo wrong! they both stay and decide when to appear without giving any warning…
Last radiation today!
We leave in a few minutes to head to the hospital for Jason's last radiation treatment! So glad it's over, hopefully he'll start feeling better soon. He's really struggling with all the mucous.
Thrush
Oral thrush is adding insult to injury for my husband. He finished chemoradiation in February and has suffered with some degree or another of it ever since. He has been on increasing doses of Diflucan combined with Nystatin swish and swallow and we do not seem to be making any headway. He refused a PEG tube and has been…

Head and Neck Cancer

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