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You know those dinner rolls or biscuits you buy at a bakery and they still have that "powdery white residue" on them you can blow or brush off? Well that's what on the back of my tongue, very back. My…
Well, yesterday marked four weeks after the end of treatment. For some reason, I've been having trouble staying positive, even though I think things are going well. The mucus is pretty much gone, and …
We are selling our house and will be moving home to Daytona Beach next week. I know we should not make major decisions during times of stress but we are. I grew up in the Daytona Beach area and Jim ha…
Hi all: Thought I'd check in. Thurs. the 28th was/would have been our 37th anniversary. It was a bittersweet day as June, July, and August are tough for me. Tomorrow is 2 years since we found out it w…
Hey everyone ! Was wondering if first anyone having issues with this. Granted Dentures are very new in my world (3 months) But some days the teeth fit mint...but when my lyphedema is worse, they eithe…
I'm having a PEG Tube fitted on Monday, and am absolutely scared to death. They have told me it's a simple procedure performed under sedation, and yet they insist I stay for 2 nights in Hospital! I un…
I was just diagnosed with Squamous Cell Carcinoma with unknown primary on June 27, 2012. I noticed that I had a swollen lymph node in the upper right portion of my neck on May 29, 2012 while deployed …
Today I finished with my last radiation treatments i finished My chemo a couple weeks ago. Over all I feel pretty good I am still dealing with mucous that sometimes make me vomit im using the baking s…
Time flies when you have so many doc's appointments. Last year this week, I was told about the bad news - NPC Stage 4 and was told I had roughly 40% survival rate. After the biopsy came back which sho…
The great majority of the time I'm fine, but I get these "spells"...I feel my ear plug up, the ringing in it muffles, and I get totally off balance....yesterday I literally had to plop on the couch to…
Hello to all my brave warriors today! I am finally home from the hospital after my first round of surgeries and wanted to share. :) First things first - The pathology on the tumor removed from my tong…
G'day everyone. New here :) My husband is at 8 weeks post radiation/chemo. Had surgery in Late Jan 2012 to remove one tonsil (tumor) sml margin of base tongue and part of wall at back of tonsil plus s…
Just had my two year post treatment exam and got an all clear report. Two years ago this past April I was diagnosed with SCC unknown primary after I discovered a swollen lymph node in my left neck. I …
Can anybody help here? I've been done with treatments since 10 Feb, and currently can only swallow liquids. My speech therapist has cleared me to go beyond liquids to anything I can get down, I just c…
Some of you know, my husband, Andy is fighting a metastasis to bone and liver. As you know, his cancer is no longer considered curable, but treatable. He has been on various treatments and in one clin…
I have not been on the board as regularly these last few months but noticed there are no responses or post from Sweet. Anyone know what is going on with her? Debbie
Hey, Just an update...saw opthamologist this afternoon. Real nice lady, very knowledgable. Being sent for cta and spine tap asap. Sounds like I'm having issues with blood flow somewhere in brain. Won'…
I've just started posting on this site today. This site is just what the doctor ordered (pun intended). There are some really wonderful people here who we can all relate to given the situation we have…
Last tues day I had a small , well small is a relative word, section of the left side of my tounge removed as a result of a biopbsy I had earlier in June that showed some SCC cells. Besides the pain, …
Hey Everybody, This is my first time writing. First off, congrats to all of you who have beaten the beast. And the best of luck to those of you who are still engaged in the battle. I was diagnosed wit…
I'm now 4 weeks out of radiation... and this has been happening since about half way through the treatments. I NEVER feel hungry at all... and on the other hand, I can eat a HUGE amount and feel no di…
Hubby is 90% peg feeding 4 weeks into treatment. I cannot get enough calories in him. He is using FiberSource which is 300 calories per 8 oz. serving. Full strength gives him diarrhea. So we dilute 50…
ring the bell. Yes my friends I had my 1st RAD treatment today. It went well considering it was about 30 minutes vs 15 on the future visits. But again thanks to this site I was a little more mentally …
For the next three cycles I'll be getting Cisplatin at 80% of my past doses...and I will have a 5FU pump for the 4 days following the Cispatin infusion...then off for 3 weeks. I've lost a total of 5 l…
hi everybody I'm starting my fourth week of radiation and my second chemo cycle my taste is pretty much gone nothing really taste that good anymore my neck a little burned throat a little sore and I'm…
I am almost done, my last rad is tommrow. I have been having tough time last couple of days. I had no mucus till last week so only had to deal with dry throat. I was hoping for little mucus as i thoug…
We leave in a few minutes to head to the hospital for Jason's last radiation treatment! So glad it's over, hopefully he'll start feeling better soon. He's really struggling with all the mucous.
Oral thrush is adding insult to injury for my husband. He finished chemoradiation in February and has suffered with some degree or another of it ever since. He has been on increasing doses of Diflucan…
