Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Head and Neck Cancer

Archives for January 2012

when to remove peg tube
Andy has had his peg tube for 10 months. It doesn't cause any problems for us and most days he uses it to get 2 additional cans of food for a calorie/protein/vitamin/mineral boost. He is still in chemo so we are hesitant to remove it since there are days he doesn't have such a great appetitie. It gives us comport to know…
Good news
Hello everyone, Just wanted to say that Carmen received her results after her partial glossectomy. She is cancer free. No need of radiation. what a relief. Pathology said displasia (not sure of spelling) pre-cancerous cells in what they removed on the 10th of jan 2012. They are almost sure they got all the precancerous…
First post treatment CT scan
I have been reading posts in this forum since my diagnosis of HPV positive left tonsil (primary) and left lymph node cancer in Oct. Of 2011. This forum has been very helpful post diagnosis, during, and after treatment. I have not posted, but am grateful to know that there are others who share this journey with me. The…
Numbness in hands and left foot
Hi all, I have been experiencing random numbnees in my hands and left foot. I have been through four rounds of Chemo and 22 of 35 Rad sessions. Has anyone else out there had this side effect?
What do you think??? Should I be worried???
My husband is 8 months out from chemo and radiation. I have brought this subject up once before, but I am a little more worried. Last night my husband tripped over his ugg boots in the dark and fell while getting up tp let the dogs out. This morning, while I was at work he turned around and tripped over the dog and fell…
T1N0M0 Tongue Survivor, is there any?
Hi, I´ve been looking around this forum to someone T1N0M0 tongue cancer survivor. Didn´t find anything on the archives... Is there any? Since I´m 46 days of my surgery I´d like to head some stories by someone with similar situation. Thanks a lot again!
radiation
Those of you who have had radiation-how long does the radiation continue to work after completion? How long to shrink a tumor? How long did it take to get your strength and appetite back?
Not Head and Neck cancer releated but its part of cancer but Joe Paterno Dies from lung cancer
I just wanted to pass long if nobody as heard but Joe Paterno Dies form lung cancer last night. Joe my good friend you will be truly missed.
From Sweet Dreams To Wet Dreams.....
Get'yer mind outta the gutter. From Sweet Dreams To Wet Dreams, One Woman's Struggle To Just Get Some D@mn Sleep. Like, that? It may be the title of my memoir. Gah! Just have to tell you what happened to me last night. I, of course, share this with, you, my friends, the only ones that will truly understand. So last night,…
Carbo/taxol
will be starting carbo/taxol next week. i have read a lot about this drugs and found out about its effects as well as its side effects. anybody got this cocktail before? what to expect...
EBV iga positive (NPC)
Hi I just went to a health screening and my result show that my EBV iga is 139 >120 positive Does that means that I have contacted NPC , cause this is what the doc told me I will be going to a hospital for check up next week Thanks alot for reading
Phlegm management
If the updside down picture didn't tip you off already, I'm new to the site. I'm HPV+ SCCHN IVA, t1,n2,m0 and started concurrent chemo (cis-platin) and radiation (IMRT, twice daily) on 1/3/12, so I'm a day short of 3 weeks of treament in a 6 week regimine, and crossing off the days one at a time! I've gotten meds to the…
Soft tissue Fullness of left PNS??
Let me take this opportunity to welcome myself back to forum 2012.registering.......logged in. ok my question is i took a C.T scan after 5 month post rad treatment for PNS and the only thing that show up was soft tissue fullness of left PNS..is this something to worry about..the tumor is now gone though.
Looking for Hypopharyngeal (Esophageal/Laryngeal) Survivors, Please
Hey - I think Charles54's earlier post got lost in the shuffle - he came in a few days ago to introduce himself and check for folks with a diagnosis similar to his. He has hypopharyngeal, and was wondering if there were others in the same boat.
Right Neck Dissection, Panendoscopy, Tonsillectomy, Nasopharynx Biopsy
Monday the 23rd I'm scheduled for surgery. Right lymph node biopsy showed Squamous Cell Carcinoba.PET scan identified right tonsil as the likely primary with 2 lymph nodes also highlighted on the scan. Met with the Radologists this morning and came away totally depressed. Initial plan is for 35 visits. Jeez this is making…
NED!!!
I love NED! This was my second PET scan. Went for scan at 10 and was done at 11:30. Got to my fave doc's at 11:40 and by 11:50 he had looked at the scan and was pleased. I felt like I could breathe again. Went to see the 2nd doc at 2 and he said the scan looked fabulous or words such as that. My first doc, Dr. Siddiqui was…
"If you smile at me, I will understand"
(Crosby, Stills and Nash reference) Today was teeth day at the local torture shop, I mean dentist. My dentist is a truly wonderful man with an even better example of humanity in his primary hygenist, Pam. But it does not make the trip any more enjoyable, for all of their wonderful attributes as humans, as professional…
Basketcase again!
Hi all: I've been a real basketcase the past few days! Tuesday I left the house to run errands and walk. I stopped at the park about a mile from my house and not many people were there as it had been raining. I noticed when I pulled in a car with two people just sitting there; dumb me thought oh, they're waiting on…
What type of follow up after treatments have ended?
Hello, Husband PET is clear and the healing has begun. He had stage 4a throat cancer. Primary site on his tonsils and formed a tumor on his neck. He never got his tonsils out and he went through the chemo and radiation. I'm curious as to the kind of test your doctors have done after your first clean PET scan. The…
over 8 months
my hubby is still suffering fron severe throat pain 8 months out. tonight he is at an 8 and it seems to stay between 6 -8. I am curious what is it, that seems to cause all this pain over 8 months out.
over 8 months
my hubby is still suffering fron severe throat pain 8 months out. tonight he is at an 8 and it seems to stay between 6 -8. I am curious what is it, that seems to cause all this pain over 8 months out.
Mucoepidermoid carcinoma (left hard palate, intermediate grade)
Hey everybody I just found out that I have mucoepidermoid carcinoma intermediate grade in the left hard palate of my mouth. I found this out from my oral surgeon. Can any one tell me what I can expect as far as treatment goes?
prayers for Jim update
Thanks for all the prayers and offers for help with my Ambien. I have recieved some money to help with that. Jim's surgery was a success, Thank you Lord! He is home and only has a little pain in his stomach, although still sleeping alot. He has not needed pain meds since leaving the hospital. Doctor said he would regain…
A few questions
I have read every old post about teeth and flouride but still have a question. I use trays with flouracil 20,000ppm 5 mins a day. I asked my rad doc if it was for life and he said no, just until you get some saliva back, probably a few years. Is this true or does it just boil down to personal preference, insurance etc?…
Update on operation
Hello friends, I just wanted to give you an update on how Carmen's operation went. It went well considering what it is about. The opereration went on for a couple of hours. Oh my........we had no idea of the extend of this operation. We thought he was removing a little bit (2 cms by 4). Poor Carmen, she was in shock when…
Where in the World Are You ~
Thought I'd bump this as there have been many new members the last few months that have not been added or might like to go on the map; Where in the World Are You Best, John
Strange new happenings
Ok, so Ron was diagnosed with Stage 1V sinus cancer. The cancer had invaded both maxillary and enthomoid (sp) as well as the frontal left lobe of the brain, eye orbit and eye and all nerves etc that go with. He underwent a 26 hour operation to remove all included eyeball and 6 lymph nodes on the right side. Then 32…
Feeling better already
Hello All, Have been reading the board for the last 4 hours. Inspirational, thank you. Just registered and before I go to bed (It is 2.30am where I am) I wanted to introduce myself. Strange entry into the cancer-world for me. 43 years old. Smoker, heavy drinker, HPV-. Had swelling on the left side of my neck on and off…
SSI Disability
Do you have to claim your SSI Disability, if so, does SSI send out your year end statement?
No more talk, Treatment starts today
Well here I go. Radiation treatment starts today. OF course I couldn't sleep very well and have been up since 0345. Pretty nervous, but want to get it started. Yesterday was tough day, and busy. Had my finale radiation "planning" appt. Doctor freaked out when I told him I had teeth removed after my planning ct scan. He was…

Head and Neck Cancer

Discussion List