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Head and Neck Cancer

Archives for January 2012

60 days post treatment
Hi everyone. I entered this journey with Tonsil cancer, having spread to lymph nodes (StageIV) in Aug. '11 I had Chemo and radiation together. 3X Chemo and 40x Radiation I am now 60 days POST treatment.My last Radiation was 11/11/11 My last Chemo was 10/31/11 I feel good. I really do Strength is returning.I work full time…
ROLL CALL 2012 - Updated as of January 16, 2012 (CLOSED 10/12/2013)
In year 2011, we had 89 folks who registered or checked back in. You only need to enroll and check in once a year. If you have not enrolled and checked back in this year (2012), please do so. Thank you. How to Enroll We started this list a few years ago. It is a voluntary enrollment for Head and Neck Cancer folks and you…
depression or just a temporary state of mind?
Sometimes in the middle of the night I wake up and am already in racing thought mode. I lay there and wait for it to pass... Sometimes during the day I become overwhelmed by the thoughts of whats the use? I take a lorazepam. I am going to die eventually and came so close to it while I was on treatment that I think I…
new. 6 months out.
hello everyone- Is there anyone out there treated w/ radiation and chemo for hypopharngeal stage 4? I had 38 rounds of rads and three chemo treatments ending June 20,2011. I'm 6 mos. neg last month.
Atrophy of the neck area
Looking to see if anyone else is experiencing issues with Low Blood Pressures (Orthostatic Hypotension - Low Blood Pressure dropping when changing positions from Sitting to standing within 3 minutes of more than 20mmHG). I am starting to associate this issues with the Atrophy of my neck due from the complications from…
newbe
Hi, im writing on behalf of my dad, he was dianosed with sinus cancer in November. He has recently returned home from hospital after surgery where he needed reconstruction to his jaw. Although he has a lot of support at home, I think this site would really help him as you have all been there. As you all know , this is a…
Back from G'Burg and Prayer Requests
Hi all: Got back from G'burg yesterday afternoon. We had a blast even with the rain and we did have a little snow. One of the friends I went with wanted to go to visit where they scattered her brother's ashes last year at his request when he passed away due to cancer; so we did that of course and the rain stayed away for…
register for Roll Call
I'm interested in registering to "ROLL CALL" Can anyone get me pointed into the right direction. My handle is RJC-still-Vertical, I was originally diagnosed with Head & Neck Cancer (squamous cell carcinoma) at the base of the tongue in June of 1991, finally cleared treatments in August of 92 and have been vertical ever…
I'm exhausted!
I'm so sorry for posting this because I know it has probably been posted several times - I just can't find anything about it. So I was diagnosed with Adnoid Cystic Carcinoma July 2011. I went through 33 radiation treatments, was done on September 19th. I felt good for a few weeks and then started getting sluggish and by…
New to CSN - long term surivivor
I'm new to CSN, but am an old acquaintance of squamous cell of the head and neck, mine was actually found at the base of the tongue over twenty years ago (June 1991). I've lived longer than was expected from my treatments at the time and have found that the complications from my chemotherapy and radiation treatments have…
NPC with bone mets
my mom is 62 and was diagnosed with NPC with bone mets. i am seeking for survivors to share their views on this. the doctor explained that they will start chemo first, then radiation. i would deeply appreciate any information you can share. and also i have heard that papaya supplements and tea is a good anti-oxidant, have…
My son
Hi guys, I apologize for not checking in once in a while but my son has gotten worse. We're in the hospital now, he was ambulanced in Tuesday evening after 7 hours of chemo up here. The infusion department of the hospital closes at 7:30pm and everyone but one nurse had left and then my son became dizzy, nauseous and…
Partial Glossectomy with primary closure
Hi friends! How are you? I´m here to ask / share experiences in people who had partial glossectomy with primary closure. It´s been 37 days from my surgery and I´m still talking like a 5 y.o. child with speaking problems. Some works really strange, even more in my main language (portuguese). English is a bit better... I´d…
Cyberknife?
So, went to the doctor who never seems to give me good news--my ENT. Latest surgery appears to be successful. Clean margins everywhere. The bad news is that there appears to have been more than one area of cancer in the area they removed. This is after a surgery 8 months ago that took out the primary tumor. He's talked to…
Scope and cat scan results
Hello to everyone On Wednesday January 4, my dad had his first scope since tmt ended and it looked good. On Friday we had a cats can. On Wednesday January 11, (my sons 4th birthday) the dr. Called and said there was NED. The tonsil mass was gone and the lymph nodes were all normal measuring less than 1 cm. I am still numb…
GlioBlastoma Tumor or Brain cancer
What are the signs of a patient with brain cancer is near the end a
Nose blocking NPC
Hi I've my radiation treatment finished a month ago and still my nose is always blocking. I will have to clear it by time to time. Any of you have the same experience as I do? Any comments and suggestion, appreciated! cheers, Neo
Hyperbaric
Hi Everybody, Just went to the dentist and it looks like I am going to need some teeth pulled. Maybe as many as 5. Anyone been through this? Your input would be appreciated. Best, Steve
Update on my diagnosis.... maybe
Hello All, My last post was explaining that I have Stage IV SCC with Occult Primary(3 large lymph nodes involved right side of neck). My doc's had decided my treatment plan was 7 weeks of daily rads and 2 Cisplatin treatments. I was ok with this, I had a plan and was ready to go. In fact, treatments are to start next week.…
Having a Laryngoscopy done tomorrow morning
Well I went and seen the new or newer ENT doc and he has scheduled me for a scope to be done tomorrow. From his initial look he said it did not look like cancer but bad radiation burns, I said it has been almost a year since I went through radiation and he said he has seen it come up 2,3 and even up to 5 years after.…
pain meds
Can someone tell me what they think of this? I have started to get off my fentanyl patches and just got down to 25 a few days ago...and am feeling achy all over, nauseous, my skin on my upper body seems to be on fire, and i wake up at night with immediate thoughts of anxiety and dispair even though I was just NED'ed by the…
Got scoped yesterday...no sign of nothing. NPC
Well this is my second check up since treatment and my Onco is still pretty proud of herself and how she nailed my tumor. She said its all gone, I am good to go.It was a pretty big one,lol It was tough and it is still tough. Everyday I wake up and think about this thing in one form or another.I wake up in the middle of the…
Starting Radiation, what to expect.
My husband is starting radiation tomorrow, 5 days a week for 6 and a half weeks with chemo still once a week. He has stage 4 tonsil cancer. He has been doing chemo Cisplatin, Taxotere and the (FU pump 24-7) for the past 2 months. He also has Parkinsons Disease and is 52 years old. The chemo was just horrible on him making…
December PET Shows METS
Blessings all, Just thought I'd make a rare post and share my current status. Back in early December I shared that I had a small intestine blockage that resulted in a tumor removal that was positive for SCC. Just before Christmas I had a PET done which they compared to the last one done in Sept 2011. I elected not get the…
My feet are killing me
I've now been on erbitux for about 10 weeks. It has been a struggle for me. My face finally settled down, but that required lots of TLC, steroids, and time. Now my finger tips and heels are fissuring badly. The finger tips I can handle by wearing occlusive gloves at night and slathering them with vaseline, but the feet are…
29 y.o. girl tongue cancer
Hello to all. I was really in doubt before joining - and also afraid. Last october i had a surprise with the possibility for having cancer. None of my family had this. Cancer ghost was not over my family. But now it is. I had a tongue (right side) biopsy on Oct 28, 2011. Result came as low displasia. The doctor said it…
what happens after chemo and radiation?
My mom completed chemo 2 weeks ago ( taxol/carboplatin) and did her last radiation session on Jan 5th for throat cancer. She refused the feeding peg from the start but I had to have her admitted right after her radiation because she was malnourished. She refuses to eat or drink anything, not even the supplements like boost…
Altitude
I am going to Colorado in March. I am doing well physically and will be 7 months out from treatment when this trip occurs. I was wondering if anyone has taken a trip after treatment to a higher altitude and did it cause any problems? Thanks just want to know what to look out for.
Post-surgery, radiation Lymphedema
Has anyone had success with "draining" the lymphedema in your neck after dissection and radiation? Trying to get an appointment with a PT who specializes in lymphedema therapy, but I'm curious whether anyone has had success getting rid of that neck "waddle" after lymph removal and radiation. As my face becomes thinner due…
Neck and shoulder problems 9 month after surgery
Hi everyone I have posted on this sight a few times.I can say that there is a lot of good supporting peaple on this sight.I have read many of your post and they have been real helpful. In March 2011 when I was Dianose,a general surgeon removed a lump from the left side of my neck and sent it out for a biospy.The first…

Head and Neck Cancer

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