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There is some light ahead
Had my one month follow up on June 14th. I had been off work for 3 going on 4 weeks. All my follow ups have been with the radiation oncologist and my oncologist. I have not seen my ENT since he referred me to oncology. I was told that eventually I'll see the ENT again. I know that for many here ENT is the coordinator. My…
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Emotional Issues
Do you feel like you are "wasting" your second chance at life?
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HNC Superthread. A collection of links with answers to frequently asked questions. EXCELLENT INFORMA
HNC Superthread. A COLLECTION OF HELPFUL LINKS ONLY. (please post only informative links here) Help for some FAQ. Head and Neck Superthread. ***PLEASE ADD ONLY INFORMATION IN THE FORM OF LINKS ON THIS THREAD**** There is a separate thread for any commentary about this one. I would like this one to be just a place for…
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A post from Chefdaddy.
Chefdaddy posted to me on the superthread, so I thought I would place it here. Please pray for him and his son and daughter. He has really had a hard time. June 17, 2011 - 5:15am Hi Kiddo, A lot going on, Hi Kiddo, A lot going on, unfortunately, some is very bad. I got a call from my son's oncologist this morning regarding…
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Question about teeth
I had to have all my teeth pulled before I started radiation. I'm wondering if anyone is/was in same shape, When were you okayed to get dentures? I'm not sure if its a dental question or radiation question.
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one month check up
What was your first one month check up like after chemo and rads?
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Has anyone experienced Head Sores
Has anyone ever gotten head sores after the first round of treatment? A week ago yesterday my husband had his first treatment Cisplatin and Docetaxel and then he had 5 days of Flurouracil. Tuesday he had the Neulasta injection. He started getting sores in his mouth last Saturday and now he has sores in the lower back of…
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How long were you out of work
I have been out of work since July 2010. I get ssi short term dissability. It pays all my bills with my wife working. She pays half the bills and i pay half. My problem is i am sitting home getting more and more depressed. I went from working 60 to 80 hours a week to nothing. I dont feel like i am able to go to work yet. I…
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CANCER-FREE But New Problem
CT-Scan, Brain MRI, Vocal Cord Biopsy all came out clean. I had radiation last July/August for vocal cord cancer. Voice is a challenge; but I can swallow. All in all, the throat portion of my treatment is coming along fine. HOWEVER: I have a new neurological problem. My visual fields "jump" in both eyes; and this is linked…
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hangin in after neck dissection
Updating on Neil..about 3 weeks ago he had a modified radical neck dissection. Chemo was not affecting his lymphnode at all, so this seemed like the next thing to do. They took out 77 lymphnodes and had to take out quite a bit of muscle. Pathology report showed Thyroid cancer, so now we are on the path to find out more…
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Throat infection
Hi All, As I have posted, I finished rad treatment on May 11. Cancer of left tonsil. This past Monday I went to my ENT doc (had a sore throat) and have a throat infection. Does anyone know how common that is? Is it an 'afterthought' of the radiation? I have follow-up with my oncology doc next week. Guess I'll find out…
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This is my first post, been lurking for about 2 weeks
Hi everyone. I have stage 4 left tonsil CA diagnosed 4-1-11.You can read my story if interested as I just signed up to board and posted it. I am T2 n2a M0. Just started radiation today and currently hospitalized for PEG site infection. I wish all the best and will chime in form time to time. I have HPV related tonsil…
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HPV Research
I came across this article regarding HPV, the vaccine and a summary of the latest research. I think there is some good info here. http://www.slate.com/id/2296748/pagenum/all/#p2 Cheers, Jimbo
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Adenoid Cystic Carcinoma
Hello everyone. I was diagnosed with AdCC in January of this year after having a tumor removed from my soft pallet. After surgery came 7 weeks of radiation to "mop up" any left over cells. 35 treatments later I lost all of my facial hair leaving me with only a partial neck beard that actually looked rather amusing but I…
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Cancer and Dreams
Last night I had a dream about cancer. In my dream I had cancer, but later in my dream it was gone. I also dreamed that my husbands cancer came back in his neck and he needed surgery and wanted a hospital bed for the living room and I told him that was silly getting a hospital bed for just 3 months. We always question our…
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OFF TOPIC: some pictures i posted, and the pastel i finished
i posted some pictures of radom things that i photographed with my new Nikon camera. i sold my old subaru, and i bought a new camera, as the button on my old camera was broken. i was without a camera for like two years, so i am happy to be taking photos again, as i enjoy it. I love to take close up photos. one of my…
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Anyone Heard From RMKBrad Lately?
I think about him from time to time - haven't heard from him in a while.
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Question for myself- gallbladder attacks
Hi guys, This is a question about an issue I am having. For about 3 years I have been having these episodes of pain. It is located in the top part of my stomach area. They always happen at night and start off with a little gas like discomfort and then turn into horrible pain. It is so bad that I can not get comfortable. I…
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Nasopharyngeal carcinoma
Hi everyone. I have been reading your posts on this discussion board for the last couple of days. I find them to be very helpful and you are all so brave, strong and compassionate. I am looking to you all to help guide me through this incredibly scary time for me. Here is my story: I am a 39 year old mom of 2 and a step…
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taking anger out on caretaker
OK, I am confused, my husband seems to be angry and short with me over simple things which is bringing me to tears. I am so stressed with trying to read and fill out forms, schedule, and coordinate, add to that we had to move this weekend and I am surrounded by boxes and can't find things and my stress level is through the…
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stats
Hey Y'all, I'm not tryin to be too nosy here but I would like a few info. from everyone. This is helpful to me and my hubby as we're dealing with my recurrence from nasal cancer. it's in my orbital eye area now. I'm 50 years old... married 21 years and have an 18 year old daughter and a 16 year old son. My daughter just…
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Radiation treatment question
My mom is on Rad 18 Of 35. They told us today she needs a CT scan tomorrow to see if they need to narrow the radiation fields. I was wondering if this is standard practice? We are stressed as it is with moms cancer and dad passed away May 31st from cancer.
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NED
Hello and I hope all is well with the group. Yesterday I had a follow up chest CT to compare a CT that was taken last December when some type of mass that they assumed was either scar tissue from radiation or inflamed tissue. I am happy to report that it must have been inflamed tissue as there was nothing visible on the CT…
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Why am i so cold
Before surgery i was never cold now i am cold most of the time. Any ideas. Thanks David
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Fever Reporting
How long after your final chemo/rad treatments do you have to report any fever over 100.4 to your oncologist?
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I just read on line that; having a high level of pain after treatment is a possible sign for a reacu
I just read on line that; having a high of level pain after treatment is a possible sign for a reacurrence.I found the article interesting, being that my husband had a high level of pain before, during and afterwords. Kinda freaked me out.. I am always worried about the reacurrence thing. I guess I need to quit getting…
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arndog64 ~
Anyone heard any word since the PEG being scheduled for install last Wednesday June 8th.... JG
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Skin Breakdown, Peg Tube
Good Morning All, I am usually on the Colorectal Cancer Board, but I thought I could get some better information over here. We are having a issue with hubbys PEG Tube, where the bumper is stiched into his adbomen around the bumpber he is having quite a bit of skin breakdown, we do have some leakage in this area that I…
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Radiation question
I finished radiation treatment in October. Now i have been having really bad ear pain. The doctor finally did a ct scan and i have a cyst by my ear and jaw bone. Also the socket that holds the jaw in place radiation deteriated it. I am in more pain now than ever. Any body have anything like this happen to them. My doctor…
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rad mask question
My husband had a test run with his Rad Mask on Thursday. He said there was a piece that went in his mouth that pushed up on the roof of his mouth and was very painful. Is this normal or should he let the doctor know. He said that the he told the tech it hurt and he ignored him. Thanks, I Debbie