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I HAVE PED FORMULA FOR SOMEONE TO USE
All, I have several cases of "2 Cal" nutrition and another simillar product, just not as many calories per serving, if someone can use it. unopened cans so it is safe and still good. PM me with a ship to address and I will send it. Mike
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How Long have you had your feeding tube for?
My father is going through surgery in a couple of weeks. His lips are going to be partially sealed on one side. As it is he cant open the mouth much, and after the surgery he will not be able to open much either. Also his left upper and lower gums will be removed with the jaw. I know he is worried about his appearance post…
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Good and Bad News
Hi, The good news is that the insurance company approved the transoral robotic surgery for my supraglottic tumor to take place a week from today March 18th. The case manager said the package of information (journal articles, Utube video citations, etc.) I put together and sent them was the deciding factor more so than the…
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feeding tube
Should there be an strong odor from the tube? had it for about 6 months now, and just noticed a foul odor around my husband?
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Lymphadema
Where can I buy a compression garment for under the chin and neck? David started therapy and they are recommending a garment to sleep in. Wanting to check around for different prices as insurance doesn't cover it. Any suggestions or sites to check out? Thanks in advance for your time and trouble. Love to all and have a…
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Parotid tumor, pain always means malignancy?
Hello First of all, please forgive my poor english, this is not my native language (I am from Poland) but I will try to describe my problem as good as I can. Many (at least five) years ago I discovered a strange structure in my salivary gland. I did nothing with it, it was painless, I thought it was a kind of bone or…
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TAKE GOOD WOUND CARE STEPS WITH YOUR PEG
I was supposed to have my PEG removed on the 21st of this month. I ended up having it removed this past Tuesday morning. Monday night I was made a direct admit into the hospital for a very serious and aggressive staph infection. I had always changed the dressing daily and thought I took good care of it. The docs say staph…
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paranasal cancer
Please someone answer me on this. When a surgeon does a surgical biopsy, is he/she able to kind of tell whether it is a cancerous growth or not? very nervous. Also, how long does it take to receive the biopsy results?
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Soft food ideas
Well I am home recovering from neck disection one week out and bracheytherpy radiation 3 weeks out, having a hard time getting enough calories and protein down. Last year when I went though chemo, surgery and radiation I had a peg tube, this time I don't have one. I have been releying mostly on dairy for my calorie and…
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Question on Nasopharygenal cancer patient follow-up checkup
My husband finished Chemo/radiation treatment for nasopharygeal cancer on last June. I have a question on what is the standard follow-up check up. Generally we see ENT and Oncologist every 3 months. But should I do CT or Petscan or both? how often? Thank you
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Chewing Tobacco
Hello head and neck discussion board, I am usually on the EC discussion board, my dad passed away a year ago from EC. I have been meeting some new patients there, who have been dx with ec, who have been tobacco chewers. I just wanted to let you know that there is a company in Oregon who makes non tobacco snuff. The company…
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Who's had a good (better?) experience with Radiation/Chemo?
Talked to the oncologist last week about the possible treatment after surgery (weekly chemo (cisplatin) and daily radiation for 6 to 7 weeks)for my supraglottic tumor. I have 2 lymph hot spots seen on my pre-op PET/CT so I need to prepare myself for this scenario). He told me about side effects both short term and long…
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A part of my soul
This is something I wrote a long time ago in my expression area here. In fact, I wrote it while still in the hospital and still high on some powerful drugs but, of course, didn't post it until a little bit later. My wife, in fact, and this is true, is a nurse and so was able to sleep on a cot next to my bed and actually…
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So tired
So tire but cannot sleep. Surgery in the morning and im letting my mind wonder...All the what if's are sneaking up and I cannot shake them.
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Tongue Cancer just Diagnosed
Hi there I came across this site as i was just recently (feb 14, 2011) diagnosed with cancer at the back of my tongue. I had developed an off and on ear ache a few months ago, but i thought it was related to an small explosion working in our shop, as thats when it started. ever since then my ear ache has been off and on,…
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Any info would be appreciated
I have just been diagnosed with Adenoid Cystic Carcinoma in the roof of my mouth. I can find so little about this cancer and am terrified. Can anyone tell me more about what I am facing. Surgery will be by the end of March followed by 4 to 6 weeks of radiology treatments.
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Dry mouth sore throat
Any body got a remedy for dry mouth and sore throat
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I'm back ... and so is my cancer
Some of you (well, one or two, maybe) may have wondered where I've been recently. In mid-February I went for what was supposed to be my final PET scan, two years and four months after treatment ended. My docs thought it would be clean. It wasn't. Now I have a tumor in my lung; it's spread to two lymph nodes in my chest.…
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Fentanyl lollypop
Some time ago someone on this site spoke about Fentanyl lolipop, used for breakthrough pain. I cant for the life of me remember who it was. Anyway id like to know if anyone has used this, but used this under conditions of mucositis (not just as a pain kiler) and if so did it burn. Clear
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Bizarre Hospital Experiences
There are lots of hospital stories lurking in the various threads and I thought it would be interesting to gather individual stories. Something out of the ordinary which happened to you during the course of treatment at a hospital or treatment facility. Here's mine; I went in for an overnight stay to get pegged and ported.…
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Needing advice prayers HEEEEEEElP
Hi everybody...I sure need you now. Brief recap of "C" history. The cancer du'jour squamous cell. Jan 2010 found in tumor on side of tongue and swollen lymph nodes. Radical radiation and chemo in March. Sept...found again in Paroid gland left side. Surgery to remove that..no lymph node activity. Healing for month.…
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thank you ALL.. 1st doctor appt tomorrow
Monday morning, this is the beginning of the reality. Mom has 1st appointment with radiation/oncologist tomorrow.. I just wanted to say THANK YOU ALLL so much for all the information, advice, kind words, support and stregnth. I feel so prepared for the appointment tomorrow and it makes me feel so much better that i can ask…
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taste
I have had 9 chemo and 35 radiation treatments I have been finished with my last treatment for 2 1/2 months but i still cain't eat or swallow food has no taste and it's hard to swallow hurts very bad my throat seen's swollen I am still useing a feeding tube but the ensure i use makes me sick and gives me heartburns I dont…
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Accepted for Tranoral Robotic Surgery
I saw Dr. Eric Genden at Mount Sinai last Thursday. I got escorted back to the ENT area and everyone I encountered was very nice. Dr. Genden showed me my tumor (ugly thing) hanging from the beginning of my larynx pretty far up from the vocal cords. He was very personable and explained the three different type of these…
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lost of taste cain't swallow
I have had 9 chemo and 35 radiation treatments I have been finished with my last treatment for 2 1/2 months but i still cain't eat or swallow food has no taste and it's hard to swallow hurts very bad my throat seen's swollen I am still useing a feeding tube but the ensure i use makes me sick and gives me heartburns I dont…
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Blood Work
Hi there My wife is 15 days in RT & weekly Erbitux. Her mouth is "on the burner" and she was given oxcycot today. 1.What are the issues here i should keep tabs on? 2.What should i be keeping my eyes on - re blood work etc. My knowledge on this matter leaves little to be desired. Clear
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No NED this time
Just finish my PET and MRI at MD Anderson yesterday the MRI came back OK but PET lit up an area of suspect again, o-well back to the old normal. Also on my Vision problem I had to see the Ophthalmologist there at MD Anderson and she found that I have a lot of pressure on my brain, not sure why. The PET and MRI does not…
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Back from trip
Hi all: Basketcase checking in here! I returned home yesterday from 10 days gone! I went to NC on the 22nd for my brother-in-law to do my taxes and came out pretty darn good. Will not have pay as much as we thought! Praise the Lord! I was there for my father-in-law's 87th birthday on Thursday the 24th and I left on the…
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I FINALLY met Mr. NED
I finally got a clean scan and got to do the NED dance. In my case I am doing the NED cha cha! I had some area of activity in one lymph node on my November PET-CT Scan (3 months post treatment) but this one is Clean, Clean, Clean! For those of you fighting the fight HANG IN THERE. You CAN DO IT. I give ALL the glory to God…
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mask for radiation...?
Ive read many people referring to a mask used for radiation. Is that used for all types of Cancers diagnoses or only specific ones? Certain types of radiation also? Mom has unknown primary, to my understanding they most likely are going to radiate " all over" in common head and neck locations. thanks, just wondering trying…