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Post treatment question
Hi everyone, I try to log on most days and read to keep up with everyones progress. I think quite a few of you are recently post treatment, just had a first scan or getting ready to have a first scan. I say Prayers for all of you going through this ordeal. My Dad finished his radiation and chemo on February 8, 2011. He met…
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I have an appointment to remove my port!
Just got back from the Med. Onc. My scans from last week were clean. I am about 14 months from diagnosis (NPC) and 10 months from the end of radiation. During the first Chemo treatments (about a year ago), I developed bilateral pulmanary embolisms and after a brief hospital stay I have since been on Coumadin. The doc told…
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Dr. Steven Sobol in Decatur, IL
Does anyone know of a Dr. Steven Sobol in Decatur, IL? He is an otolaryngologist. This is the Dr. who my Dad is going to for Base of Tongue Cancer. Just wondered if anyone knows of him, if so opinions? Thanks!
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PET scan yesterday.........
Keeping my fingers crossed that it will come back clean......... On another note..........Had my swallowing test last week and that did not go well at all...Thin liquids are it right now.......I couldn't even get a small barium tablet to go down......The muscle in that area is Radiation affected along with the nerves and…
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Hypopharyngeal changed to Base of Tongue
Hi all, I posted last week after finding out my Dad had hypopharyngeal cancer. You all were so kind to give me such great information, advice, etc., some even taking time to email me and give me such great information! Thank you all so very much for that! My Dad saw his cancer doctor (oncologist?) on Tuesday. The cancer is…
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weight loss?
Geeze... seems like most people loose so much weight with radiation. Mom weighs 105 pounds now!!! She has never had a big appetite but all she ever eats are bagels and pasta and she's been 105lbs her whole life i guess i really dont have a question here.. ive skimmed through the diet posts on protien shakes and eating…
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Prayers are working so Far
Thank you everyone for the prayers. Today my dad saw the rad oncologist and he was very happy with everything. He checked his weight and did a pretty close exam of his neck, mouth, tongue and eveywhere elese. He sadi everything looks great. Now keep praying for us as we go through the CT and getting the results next week.…
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canker sores
i started to develop I think are large canker sores on my tongue,there good size, how strange?, I have reflux at night and only have half a larynx to shut off anything coming up, I take reflux medicine, but the cankers appeared on the fron side of my tongue, I started salt water to rinse as well..Anyone else ? Thanks Dennis
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Can doctors do anything for neck and shoulder problems after post cancer treatments?
Hi Guys I am just wondering if the doctors can do anything for my neck and shoulder problems after post cancer treatments? Because I been post since last august and I am dealing with major pain in the neck and shoulder everyday and it gets to a point that I cant take it anymore. I never had this problem intill I had…
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Doc says you're "cured" before scan or official "NED" finding?
Hey Kids. I'm all done my chemo and radiation, trying to get my throat all healed up, have a CT scan in a couple weeks in hopes of meeting good ol' NED. Here's the thing. Have had 2 follow-up, post-treatment doc meetings w/chemo doc, and BOTH times he has said that I'm "cured." He actually said the word "cured," both…
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So affraid
So as I am sitting here waiting to have a partial neck dissection Done I am so scared, I don't know why I have had so much done but this is really bothering me. Brad
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Once more unto the breach, dear friends, once more
7 months out and had a PET/CT scan this week which shows a hot spot at the site of the original tumor at the BOT. Not exactly the results I was looking for. After consultation with the ENT, he is recommending surgery to remove the 'Primary site residual tumor'. He doesn't see anything to lead him to believe the hot spot is…
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Not what I wanted to hear but better than I expected...
As some of you know I had a CT scan in February and they saw "subtle changes" in my left lung so the scan was being sent to the Cancer Review Board. I finally heard from my rad onc yesterday and he said there was a lesion in my lung but the nodule didn't look the same as the one I had which was NSCLC adenocarcinoma. I went…
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10 years post-radiation Pain??
Hi everyone. My 78 year old father is a 10+ year survivor of throat cancer with treatment consisting of chemo and 33+ radiation treatments. Within the past year or so he began complaining of pain in his throat, difficulty swallowing and episodes of coughing. No tumors were found during diagnostic tests although he has a…
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If they can't find the primary do we radiate?
I was reading Joel4's comments and they didn't radiate him because they couldn't find a primary. Loal had his neck dissection done last week, because "we want to survive this" but all the samples came back clean. Now what? He has lost his teeth, his feeling in his ear, and he has slurred speech and keeps biting his tongue.…
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Keep us in your thoughts and prayers
Hi everyone, My dad goes for his 6 month check up starting Thursday. He has an appointment with his Rad oncologist Thursday, a CT scan Monday and will get the results next Friday. His scan at 2 1/2 months still showed some activity on the tongue. His oncologist thought it was just activity from the rads but the ENT was…
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newly diagnostic Nasopharyngeal stage3 -Update
Hi everyone, Frist, I want to say thank all of you here for your encourgements, supports, prayers and helpful information. I want to stop by and give a update about my husband treatment at Johns Hopkins. The first chemo session started last wed feb 23 and ended Sunday. He was given both 5FU and Cisp. His body is getting a…
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"The Emperor of All Maladies - A Biography of Cancer"
I just finished reading "The Emperor of All Maladies - A Biography of Cancer" by Siddhartha Mukherjee. I highly recommend it. You can read the reviews on-line; it's sold on Amazon or at any book store.
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Hearing and vision issues
HAs anyone found that the chemo or radiation has effcted their sight or hearing. I am seeing zig zags. Not often but they feel weird. THey dont usually last long and go away leaving me a headache. I have never had headaches i might average one ever 3-4 years and latley I have been having about one a month. Not bad just…
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CBS News: Study: HPV linked to head, neck cancers in men
More regarding HPV and Head and Neck... http://www.cbsnews.com/video/watch/?id=7358037n
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I survived my 1st chemo sessions
Hi everybody, i have survived my 1st chemo sessions. . . . I went into hospital on the 22nd Feb 2011 and got out this morning the 1st Mar 2011. Thank you for all the encouragement i have reived from you and wish everybody a speedy recovery! God bless us all
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Don't tell my husband, but I went dancing with NED yesterday... eeeeeeeeeeeee!
I had my 9-month post treatment checkup at Stanford yesterday, and there was no evidence of disease. Yay! Granted, all they did was scope ('gack'), palpate the base of my tongue ('gag gag gag gag gag') and squeeze my throat till I got a little blue in the face ('wheeze') but it was still happy news. I finished cisplatin…
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Prayers for Judy today
Everyone Judy goes in today, let pray that everythings works out for her. Not only her but every one of us that have similar experiences. Dave
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NEW YORK - new Dx, please help
I've been scrolling through some posts, what a great website. My mother was just diagnosed with Metastatic Squamous Cell from a cancerous lymph node which was just resected.. we thought was a branchial cleft cyst. Similiar stories have been comforting. Anyone with a specific doctor in NY to recommend? This is so confusing.…
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how do you deal with depression and anxiety when...
how do you deal with depression and anxiety when your family and friends all tell you not to worry? tell you Not to stress? tell you not to cry when all you want to do is either cry or scream about your cancer? I have held it together these past 8 months of treatment and the 3 weeks I was back at work January 31 to Feb…