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Good news and bad (frustrating) news
Let me give a little background. 13 years ago I was treated for tonsil cancer, standard chemo and radiation. I suffered all the symptoms that I see here and after time I got used to the dry mouth and the constant need for water. About two 1/2 years ago my chin became totally numb. I went to a neurologist and he said I'd…
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Is it common to have numbing fingers and legs and feet after post treatments?
Hi Guys I am just wondering if its common to have numbing fingers,legs,feet after post treatments? I had cisplatin 5fu for chemo and about 35 treatments of radiation. I am only 8 weeks post treatments.
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Recovery from Surgery
We are now 4 weeks and 1 day since my husband's radical neck dissection, free flap throat surgery. I have to say I am very surprised at how slow the recovery is. Docs say he is doing great and right in line with where he should be so that is good news. He had appt Tuesday and the trache was removed (thank you Lord), and…
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recurrent basal cell adenocarcinoma in parotid or didn't get it all the first ime
Hello, I am new here. Just got my PET back to look at other cancer issues and pcp found that I have BCAC remaining where I just had surgery 4 months ago. Has this happened to anybody? I have a thyroidectomy on Monday.
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Feeling decent today
18 rads & 2 Cisplatin under the belt as of today. I finally gave in and used my PEG for the first time today and what a difference it makes! I'm not giving up the ghost on swallowing, so no worries on that aspect. Docs also switched my pain meds from oxy to the Fentynol patch - no more ups and downs with dosing schedules…
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News - Good, Better, Best
Hi All, GOOD News - After being back at work for 5 months I finally built up some vacation so I took a long weekend and went fishing at my favorite lake. Caught a bunch of crappie, largemouth and whites. Awesome weather, beautiful scenery, good friends! BETTER News - After 7 months I was de-PEG'd today. YeHaa!! BEST News -…
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Hello to all from a new member
Hi All, I have been following this board for some time and finally decided to take the plunge and join. My husband was diagnosed with Stage II SCC of the supraglottis in May 2008. Treated with chemo/radiation which ended in August 2008. Got all clear in December. In February, there was a lump on his neck which FNA revealed…
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Hello Again
Hello to all, I was diagnosis with cancer on the rt tonsil on 9-24-10. On 10-05-10 I had both my tonsil removed. The doctor was able to get good margins. I had just got the pathology report which show the left tonsil had a small cancer tumor. This did not show up on any of the ct and pet scans. The Ent says this is a good…
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Good morning and have a wonderful day!
For those of you who have survived the treatment, as many of us have; get out there and enjoy the gift of another beautiful day! For those of you still struggling through the process; don't lose sight of the end goal. Someday soon, you are going to be finished, and you will be waking up to a great many more beautiful…
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vaccine
Had my 16yr old son vacinated for HPV virus this week. They have been giving to girls betweeen 12 & 24 now for awhile. They just approved for boys. Doctor recommended this. He has 3 daughters and absoulutley is having them vacinnated. They want them to have it before they have sexual contact. I know this is a fairly new…
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PET Scan Results
Jim's PET scan results were great! The doctor said the cancer is gone and that there is only residual activity from the treatment. We are offering praise to God for His mercy and thanks to you all for your prayers. Thanks, again.
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Trach came out today
My oncologist took my trach out today. Yeah. It was uncomfortable since the last change anyway. I don't think it was put in right. But who cares now. I see progress. No cancer on PET now totally confirmed. Sorry but I don't always believe the first report. Don't have to go back to oncology for 3 months. Will have labs and…
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Sore throat - what to expect
I am on treatment # 8 of 30 and my throat and ear canal are very sore tonight. They are radiating from the middle of my ear down below my clavicle. I was hoping to not have this raw a sore throat so early in the treatments and was wondering what to expect based on everyone's experiences. When did your sore throat start and…
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side effects from radiatiaon after being a survivor 10 year
i am a cancer survivor of neck and throat cancer. I had a tumor removed from my neck in 2000. I had 37 radiation treatments. I had a feeding tube for three months til I could swallow again. I went back to work as a nurse with this feeding tube. I lost and regained taste. I have permanent dry mouth. Now after 10 years i…
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Greetings from a new guy
Hello all, I am a 44-year old guy in for a nice S.C. Carcinoma that filled up a couple of lymph nodes in my neck. A partial neck dissection was first since the PET/CT showed it to be very localized. As of 10-10-10 I have completed 8 of 35 Rads, and 2 of 6 Erbitux infusions. I have gained a lot of great and useful…
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Frequent urination!
Ok folks no prostate jokes here; because i am way too young for prostate problems. But ever since I had treatment I seem to be having increased urination during the night. Has anyone else experienced the same problem?? Charles
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Great Advice for people with No Insurance
My wife just got results from her biopsy today. She has stage IV tongue cancer. My question is we no longer have insurance and I was wondering if anyone might know if their is anyway she can get help for this condition. Her doctor told us to try to get her on medicaid but I am afraid this could take too long because her…
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still cancer free
I hope everyone is well I went to the doc today aand still ned the only thing he said was one of my vocal cords was not as strong as the other he schdule a pet scan im nervous about that and the blood and ear pain was just side effets from treatment.
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How long before I can eat?
I literally can barely swallow anything, this is so depressing. I only have 2 weeks to go until I'm done with radiation. How long did it take everyone to swallow and be able to taste again? My throat is in so much pain :(
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Well I got my results back from PET scan and chemo doctor today.
Hi Guys I just got back from the apt with chemo doctor and he told me that PET scan came back clean and he doesnt see any tumors or cancer anymore from he sees only thing he can see is scar issue which I told him I was warned about it from people from this great support message board. Doctor said that he wasn't really…
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New Member
Hello , my name is Michael and I have had head and neck Cancer since the summer of 2009. I initially had severe reactions to chemo and was in the Hospital for 16 days. After losing weight from over 200 lbs. to 138 lbs., I could not have survived without a peg tube. I am back up to 164 lbs. now. After I was home for a…
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Back from trip to his folks
Hey everybody! Basketcase checking in! I got back from NC this afternoon. I did fine going in until I got to Spartanburg and got off on 221 the last 40 miles into Marion, NC and cried the rest of the way in! When I walked into Charlie's parents' house for the first time without him I just lost it and we all cried! But…
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What Cancer Cannot Do!
I saw this on another thread and thought it would nice to post here. Hope you enjoy! What Cancer Cannot Do! I hate cancer. But remember what cancer can't do. Cancer is limited... It cannot cripple love, cannot shatter hope, cannot corrode faith, cannot eat away faith, cannot eat away peace. It cannot destroy confidence.…
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post-treatment question
My husband finished treatment last March for BOT with lymph node involvement. He doesn't have any saliva and sometimes some neck discomfort but other than that, he's done well and we are very thankful. The biggest concern he has is that he still is very tired and needs daily naps. How 'normal' is it for him to still feel…
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Swallowing pain
I am 5 months post treatment and one month post biopsy, I can eat fine with the use of some water, but I still have some pain while eating and swallowing. Does anyone else still have pain or discomfort while eating? Brad
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Feeling normal
Last night my daughter had a small mishap at a friends house and needed stiches in her forehead. My husband has a horrible cold and I really didn't think an ER needed that so I picked her up and took her. She got two stiches and is fine. I am in a ER at midnight and I felt normal. I was estatic. My daughter told me to quit…
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Talking hurts
When I go out and talk more than normal my jaw hurts the next day and everything feels really tight and stiff from my jaw down to my shoulders. I had three beers and one red wine and my glands seem to swell. It was a bit scary but swelling seem to go down during the day. Has anyone experienced these side effects.
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Gaining gaining gaining, okay that's enough now
When I started on this right tonsil c involving 1 lymph node thing the rads dr and med onc said I would lose 15 - 20 kgs, I thought this not possible at all, I was 82kgs (180 pounds) I ended up 57kgs (125 pounds) I am now coming up 6 months PT and am 67kg (147 pounds) and that has been in the last 4 weeks, if I keep going…
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Tony Gwynn has cancer
http://mlb.mlb.com/news/article.jsp?ymd=20101009&content_id=15536476&vkey=news_mlb&c_id=mlb From mlb.com: "Hall-of-Famer Tony Gwynn is fighting a case of parotid cancer, according to a story in his hometown newspaper, the San Diego Union-Tribune. Gwynn has had three surgeries since 1997 to remove tumors on the parotid…