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ENT Visit
Hello everyone. I wanted to share with you what my ENT Doctor told me today and see if anyone else was told something similar. He saw a mass, but told me it looked flakey and puffy not like the scary cancer he saw before. Which in my mind seems like good news. He said he wanted to keep an eye on it and has me coming back…
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How to know when to take PEG out?
Hi All I have had a PEG for about 7 months and still use it every day. I eat soft things, soups, yogurts, some chicken and fish, but only a small amount. My question is how do you know or when did you decide to take out your PEG????? I can probably eat and drink my 2200 calories needed, but I'm sure I'll get tired of…
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BACK PAIN
I have only posted a few times. I am stage 3, tonsil cancer with lymp nodes. I have partial neck dissection & Tonsillectomy, 3 teeth pulled and now in radiation. Today I completed Treatment# 23/33. Have 10 left. Things went pretty well until last week. Mouth is a wreck, thrush and more mouth sores, can still sallow some,…
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Acinic Cell Carcinoma
Has anyone had acinic cell carcinoma go to the lung? I had a parotid tumor removed in August 2009. My biopsy and frozen path were both benign, but my final pathology came back malignant. Acinic cell carcinoma was the diagnosis. I had clean margins so I was sent to an ENT at The Emory Clinic in Atlanta. First saw him every…
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Jaw Opening Device
After 5 years of not being able to open my Jaw more then ½ inch the Dentist at MD Anderson wants me to try and use a device called Dyna-Splint to get motion back into the Jaw. I have use other Devices before that did not work, has any one every heard or used a Dyna-Splint.
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Vocal Cords Problems
I am just wondering how may of us survivor suffer with lost of our Vocal Cords. I am just starting to have problems and my ENT said he does not know why, but from what I read here on CSN there are a lot of survivors who have lost one side or even both due to radiation. If you have problems speaking due to lost of Vocal…
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Peeling skin
Hi all, I'm probably bugging y'all because I ask so many questions! I was wondering, my neck is peeling a lot now and is there some kind of scrub I should use to exfoliate it, or should I just leave it alone? Maybe it's not safe to peel it though? I'm not sure, what did y'all do?
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Quick Question
My dad is almost 4 monthes post treatment and is doing really great. The only issues that he seems to have (other then dry mouth) is he gets chocked some when eating certain things. The main things being beans and corn. I tell him to make sure he drinks water when he eats. Does this still happens to any of you at this…
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Funny Happens
So I saw my Oncologist this morning for one of my six week follow up exams. I am 6 months out of a left neck dissection and tonsillectomy. I have SCC Unknown Primary and have had surgery only. I was in for a scoping today and all that other fun stuff. He felt something concerning down my throat and was putting the scope…
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Anyone heard of
Hi In my despearte search for info regarding F.A. treatment i came across Tomotherapy Radiation treatment. Does anyone have any personal knowlege re this? Clear
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Newly diagnosed with tonsil cancer radiation treatments and chemo to start in a few weeks asking for
My name is Vicki and this is my first post. I'm asking for advice for my husband John, 57, who was diagnosed with Stage IVa tonsil cancer in July. He found a lump on right side of neck in June, was sent to ENT who ordered a CT that confirmed mass in one node. In July had surgery to scope throat area and tonsil was removed.…
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Radiant heat vs forced air
We're moving from Texas where it is very hot and humid to the Pacific Northwest where it is cooler and rains alot. I have found that since I have lost some of my saliva glands due to cancer surgery, blowing air, like ceiling fans and forced air/heat vents really bother my throat making it dryer than it already is. Does…
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No hearing aids for me
Well I tried the hearing aids and it felt like someone was ringing little bells behind my ears. Have decided after only one day I kinda like my ever so slightly muffled world. Oh yeah didn't mention the $7500 they wanted for the two little things that are smaller than my earrings. No thank you. I'm not that deaf xxxx. Love…
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Hi from Chefdaddy
Hi guys and gals. I'm sorry for not posting for such a very long time, like everyone else here, my health has made several changes and reversals but I am now finally stabilizing and doing much better. My son, daughter, brother and myself were sent to Disneyland by the Make-A-Wish Foundation and we all had a wonderful time.…
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any advice for Erbitux pro's or con's
I've done some research on the net, but would like to hears what members have to say. Thanks Mike
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Violet Ray Machine
Has anyone heard of or used one of these Violet Ray Machine before. I was told it was good for people with nerve damage and can help the Body restore normal function. I have ordered one and plan to try it on my damage and painful nerves ending where radiation has all but killed me. I would like a little advice before…
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Fentanyl patch- life saver!!
So! Wednesday is my LAST treatment (PRAISE JESUS!) On Thursday my mom went with me to my rad aptmnt b/c I was suffering so bad and had already lost 15 pounds. She told the Doc that she is certain they wouldn't even let an animal suffer the way I was suffering and that there had to be some sort of relief they could offer…
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Brother Gone
Hi all: Basketcase checking in. First, let me say a big thanks to all of your comments, prayers, etc. My brother Richard did pass away at about 3:30 this afternoon. I talked with my sister-in-law last night and she told me this was very hard, a lot harder than she expected. I well know what she means and how she feels.…
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Brother Gone
Hi all: Basketcase checking in. First, let me say a big thanks to all of your comments, prayers, etc. My brother Richard did pass away at about 3:30 this afternoon. I talked with my sister-in-law last night and she told me this was very hard, a lot harder than she expected. I well know what she means and how she feels.…
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Brother Gone
Hi all: Basketcase checking in. First, let me say a big thanks to all of your comments, prayers, etc. My brother Richard did pass away at about 3:30 this afternoon. I talked with my sister-in-law last night and she told me this was very hard, a lot harder than she expected. I well know what she means and how she feels.…
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Night Cough/Desperate/Help anyone?
I am 7 weeks post rad tx. and I have this nightly cough that keeps me up most of the night. I am absolutely desperate as I can't sleep and I am so exhausted. I have this very salty phlegm that starts in the early evening hours every single night and then I cough of and on most of the night. Doctor's have no idea and keep…
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Two ENT's missed stage IV base of tongue cancer
Has anyone had the experience of being examined by an ENT who completely missed a Stage IV tumor? ENT #1 did not see a thing, using mirrors, but asked for a second opinion. ENT #2 used a scope but did not see a thing, stating "It looks like you are cured." (Buzz had tonsil cancer 9 years ago). Then he felt Buzz's tongue…
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Electrolyte imbalances and Cisplatin
Hubby has just received round 2 of chemo for base of tongue cancer. With round 1, his sodium dropped so low that he was hospitalized for a week. Subsequently, his potassium, phosphorus, magnesium, and calcium dropped and he received replacments via IV while hospitalized and then daily for a week after being discharged…
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JUST DONT KNOW what to do.- Rads - Be here for us, please.
Friends, For the last few months i have followed your posts with awe and have had the priviledge to communicate personaly with some of you through csn email. It looks as though my wife (who has Fanconi Amemia) is heading towards Radiation (med recommendtion despite FA disposition.{last medical resort to stop recent neck…
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EEEEE-XCELLENT!!!
Hi all! I have not been on the forum much lately, but my thoughts and prayers are always with you all for strength and healing. I went for my scope today and it was Excellent! My one year anniversary of my last TX is 10/16/2010. I go for my PET/CT Scan in November, and if - no - WHEN it comes back clean, I can get this…
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Eeeeeee Good first post-treatment scoping!
I went to see my ENT yesterday. Luckily, like turning on a light switch, right at exactly the 2-week mark (2 weeks ago Thursday was my last rad treatment), I woke up feeling a bit better and bale to talk. The doc said that two weeks post treatment might feel worse than it was during and man was he right! By yesterday…
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HAVE YOU LOST YOUR VOICE DURING TREATMENT
All, I am experiencing all of the normal side effects such as burt skin, open sores on skin by neck and clavicle, huge mucous problems, tongue and throat pain ETC. I also lost my voice about 3 weeks ago, and it came back for 2 days while I was having my feeding tube inserted. The voice actually came back during insertion…
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Prayers Needed
Hi all: Basketcase here. Just wanted to ask for your prayers. Here it is almost 8 weeks since Charlie passed away and now my brother Richard who lives in Chattanooga had a massive hemorrhage of the brain late Tues. night. He's the one who came down here and did what I needed done around my house two weeks ago and had had a…
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removal of feeding tube
hi everyone me again I had a ?? when the feeding tube is removed what is the process and will it be painfull?
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Anybody Else With a Sore Throat Post Treatment?
OK - most of you are saying "Duh". It's just past a year since I discovered my huge lymph node. The only "symptom" I had was a slight sore throat - I attributed it to irritation from sinus drainage - I also had decreased appetite, so I guess that's two. Anyway, I noticed a couple of weeks ago that I had a mild sore throat.…