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5 lbs gained and holding
Current me at 153....the best I can Do Folks..lol, Dennis, No trache, with some minor breathing, Could be worst,
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Radiation To Epiglottis
My husband just underwent a harsh treatment protocol of chemo and radiation for Stage IV Base of Tongue cancer T-3 N-2 M-0. He's been through the mill with neutropenia, hospitalization, extreme oral mucositis, painful radiation "burns", PEG tube infections, thrush...every single extreme side effect, Seth has gotten in…
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dorisEcknight
Would the people in charge remove this persons post from ALL categories, thankyou
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swollen cheeks & lower lip
Hi everyone,so mike was doing really good, & then started having headaches & a pain in the side of his neck he said felt like a spasm..all of a sudden he's got swollen cheeks & his lower lip is huge! the dr put him on steroids for the swelling and a couple of days ago, a small hole opened up where his neck was hurting &…
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Sore throat after treatments
Dave finished up all treatments 1 week ago. He has a really sore throat still. Any suggestions on what he can do to soothe his throat? I thought maybe some honey or something like that to coat his throat. He is still on feeding tube and taking only ice water orally. Any help is much appreciated> Hope all are having a good…
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ct/petscan
hi all I hope everyone is well I went for my ct/pet scan and was told no sign of cancer from my head to my toes thank God! now I have to work on healthy foods what kind of health shakes do some of you reccomend ? God bless
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A BIG concern
I am very concerned about Osteo radio necrosis. Doctors and dentist warned me and prescribed flossing/brushing after every meal as well as fluoride trays/treatment daily and believe me I am anal about complying (I guess after 25 years in the Army following orders is in my DNA). I started the routine 2 weeks before my first…
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Another new mbr
Hello all! I've been an "outsider" reading your posts since I was diagnosed with Stage IV tongue cancer. I've had my surgery and going into my last week of radiation and chemo. I finally decided to join to thank you all for your posts. I felt I wasn't alone and decided to join because there might be other "outsiders" like…
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An "outsider" coming in
Hello all! I've been an "outsider" reading your posts since I was diagnosed with Stage IV tongue cancer. I've had my surgery and going into my last week of radiation and chemo. I finally decided to join to thank you all for your posts. I felt I wasn't alone and decided to join because there might be other "outsiders" like…
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Another new mbr
Hello all! I've been an "outsider" reading your posts since I was diagnosed with Stage IV tongue cancer. I've had my surgery and going into my last week of radiation and chemo. I finally decided to join to thank you all for your posts. I felt I wasn't alone and decided to join because there might be other "outsiders" like…
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Therabite versus OraStretch
I was under the impression that I was getting the Therabite to help with my jaw stretching. However, the package just arrived and is an OraStretch. I know the Therabite is good....does anyone know anything about the Orastretch???? I haven't opened it yet so can exchange it if necessary. Thanks.
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New here
Looks like I finally found a good place. My husband Doug was diagnosed with T1 N2 Stage4 HPV Type Squamish Cell Carcinoma of the left tonsil, with large left side tumor mass and invading lymph nodes We have already done the biopsies, have opted out of neck dissection and should be starting radiation-chemotherapy within the…
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hearing loss from radiation
Hi -Looking for people that have had rads to the head that have suffered hearing loss. I am 5 mths post cancer treatments. I had Ewings sarcoma base skull which reqired chemo and ended with 35 radiation treatments. I was told I could have problems with my ear but permenent hearing loss was not mentioned. I hear a little…
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Hot and Cold
I have a question for those of you finished treatment. Do you still have discomfort from liquids and foods that are really hot or really cold. My dad said that really cold stuff and really hot stuff cause his tongue and throat some mild discomfort. Is this normal at a couple months post treatment. Thanks!!! Kathy
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very dry throat
My husband, Jim, is now almost two months post-treatment, radiation and chemo, for hypopharyngeal and base of tongue cancer. PET scan showed only residual activity at the site of the treatment, which was great to hear. This was a couple of weeks ago. An increasingly troublesome ear pain has caused him to move back onto…
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Discontinuing TPF for BOT cancer
Buzz has had 2 rounds of TPF chemotherapy and has had severe side effects. He is in the hospital for the second time with low white cell counts, a respiratory infection, and severe electrolyte imbalances. The doctor has hinted we may need to stop chemo and not do round three. Has anyone had only two rounds of TPF chemo and…
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JAW REPLACEMENT SURGERY
MY SON IS TO HAVE JAW REPLACEMENT SURGERY RELATED TO THE CHEMO AND RADIATION HAS HARDENED HIS MOUTH IN WHICH HE IS UNABLE TO OPEN, BY READING SOME OF YOUR INFO SOME OF YOUR PATIENTS HAVE HAD TO HAVE THIS SURGERY WHICH WAS POSITIVE, MY SON IS WONDERING WHAT SURGEON DID THEIR SURGERY AND WHERE ARE THEY LOCATED, IT DOSN'T…
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My story
I had a "rough" spot on the inside of my cheek which didn't go away. I showed it to my dentist who said it probably wasn't anything other than "cheek-biters" cheek but suggested a biopsy. The oral surgeon saw no urgency...oral cancer is rarely in the cheek and this looked like "cheek-biters" cheek. I delayed the biopsy for…
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Good Heavens - How Much Water Does the Man Need?
Hubby went and saw his Medical Oncologist (chemo doc) today for first time since surgery 5 weeks ago. Doc thoroughly reviewed surgical report with him, says there are no signs of cancer, none of lymph nodes removed showed cancer so he is recommending no chemo. Kind of scary, but ok, we'll go with that since he already had…
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Are we Infecting our Love ones with Radiation?
Very Interesting story I found about Cancer Patients and Radioactive iodine WASHINGTON (AP) — Cancer patients sent home after treatment with radioactive iodine have contaminated hotel rooms and set off alarms on public transportation, a congressional investigation has found.…
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Egg Drop Soup
I mentioned to my nurse about the typical problem we all have with mucus. She suggested eating a bowl of egg drop soup. You get protein, fluids, etc.. and it helps to thin out the mucus. Long story short, I tried it and it works! It kept my mucus thin enough to be tolerable for a few hours, which was a nice respite from…
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Wednesday was SUPPOSED to be my last day. :'(
So, at the beginning of all this they gave me a calendar that had all my aptmnts on it. Started in the beginning of September and went thru Oct 20. My finish line. So yesterday I went in all excited and the rad tech says"you're in a good mood today!" and I say "Well of course! It's my last day!" she looks at me a little…
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Upper oesophical stricture
Hi I had squama cell cancer on my tonsil and received chemotherapy and radiotherapy. I am a year and 3 months on peg tube. I have upper oesophical stenosis and am only able to swallow a trickle of water. My oesophagus was unable to be dilated because it has gone so narrow after treatment and I was unable to swallow barium…
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Edema - Chin & Neck
I've been told that the swelling under my chin (wattle) and rings around my neck are normal reactions to radiation. My concern is that they keep getting bigger and they are extremely firm to the touch. I'm 7 months post and I was wondering if anyone else has experienced this continued growth? Thanks Gang
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Some advice: EEEEEEEE-pics!
Reading some of the threads got me to thinking... How many of you have actually SEEN the inside of your throat/larynx through the scope? Does your doctor let you look? Does your doctor have a scope that projects on a monitor or screen? Does your doctor have equipment that allows him/her to capture a digital image like a…
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Back to Chattanooga for Brother's Services
Hi all: Basketcase here! First let say a big thank you to y'all once again. It's so comforting to read and feel your love, concern and sympathy. I'm headed back to Chatt. in about an hour for my brother's visitation and funeral tomorrow. He was an Air Force veteran and will be buried in National Cemetary. The brother that…
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Mucoepidermoid Carcinoma
Hi there! I am new to this site and beginning my battle with Mucoepidermoid Carcinoma (of the minor salivary glands in my throat). It is very rare and I am hoping to find others who are in the same situation, either past or present. I started chemo last week and seeing where that takes me! I am a 31 year old female and…
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question for people who is working and getting disability from social security?
Hi Guys I just wanted to know who is working and getting disability from social security my question is if your able to return to work do the disability cont or they stop it? Because I am still dealing with major dry mouth and numbness in my fingers and still having pain in my right side shoulder. Because I post to get…
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Throat Cancer Victory - Round One
On April 30, 2010 I was diagnosed with a stage 3, non-metastasizing tumor (about 4cm) at the base of my tongue. A PET scan revealed the rest of my body to be cancer-free and no lymph nodes were affected. In May I underwent surgery for relocation of my opposite-side salivary gland (to under my chin), insertion of a PEG and…
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My EEEEEE must have been off key
Saw my ENT today but didn't get any real news except he wants to see me back in 3 weeks instead of 2 months. I've been having head aches and ear aches for the last two weeks which I hadn't had since my treatment ended. He didn't say much, which has me more concerned. The tip of my tongue hurts because he was holding my…