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Colorectal Cancer

Archives for February 2019

Colostomy vs Ileostomy
Surgery last summer left me with a colostomy. With Lynch, I’m strongly looking at the possibility of an ileostomy later this year. Can someone help me understand the practical realities between the two, from supplies needed to lifestyle changes, etc? I already understand the surgical and anatomical differences, but I’m…
The "fun" is set to begin
Well I've had every test they can give you, talked to every doctor on earth and played phone tag with a million nurses at this point. There is nothing left to do but begin the treatment. They gave me an MRI and officially staged the cancer as stage three. Today I went to be "fitted" for their radiation machine and now have…
Hi hopefully your all doing OK Smile
I recently had a major Pancreatitis attack,, They were dumbfounded of the cause and assume its the cancer that is all throughout my abdomen.,, Now Im on a no fat diet between that and the 35mg of pain meds I take.. I was told before the cancer feeds off your food intake,, so Im getting much worse as for energy.. Do any of…
Mojo Moving Slooow,,,
Just signed on for a quick update. Go settled in yesterday at my daughters after leaving MUSC. Taking it slow and resting mostly. I had a drain tube on the colon incision side that was taken out the day that I left which keeps soaking thru but otherwise, doing well. Concentratng on building my energy and strength back up.…
Why does WBC count too low for chemo make me cry?
So much has happened since my diagnosis. And it is so strange what makes me cry and what does not. Today, my WBC count was 1300, which is too low for chemo. For some reason, this caused tears, and not just a little, it isn't boohooing, but I can't stop my eyes from welling up. Granted, because I am allergic to oxaliplatin,…
Luteolin
Luteolin (not to be confused with Lutein) seems to me to be one of the lesser known flavonoids and dietary supplements (available from Swansons). I have been taking it for a couple of months. The results summarized in this study are preliminary but intruiging. link (then click download PDF) Many food-derived phytochemicals…
Chemo breaks
For those of you who are chemo for life or do Maintance chemo, for how long you were allowed chemo breaks? How often you were getting infusions and I talking about people with infusion and not Xeloda takers. Butt.
Choices about treatment
Hi, I'm new here. My mom was diagnosed with stage 3b rectal cancer about a week ago. She's been in the hospital for three weeks now as they did tests and a colostomy. They're recommending aggressive chemo and radiation (chemo continuously by pump and radiaion 5 days/week for 6 weeks) to shrink the tumor. After that they…
Waiting
I’m sitting here, with my IV and REDI CAT drink, waiting for CT Scan. Blood draw is done. This is is my 12 month scan. How fast a year goes by. If all is good my next scan might be my last.
Probiotics
I have always been skeptical of probiotics, but recently have decided to give them a try--at least for a month. This recent article raises interesting issues about surgery, chemo, and the gut biome: http://engine.scichina.com/publisher/scp/journal/SCLS/doi/10.1007/s11427-018-9456-x?slug=fulltext An intricate relationship…
Possible surgery?
Hi all, my dad was diagnosed two years ago with cancer with mets in liver and lungs. He also had a lesion removed from his brain with gama knife (it is not known if it was cancerous or not). After Folfox and Folfiri stopped working and liver mets grew a bit, he will start Lonsurf or Stivarga. However, i found a specialsit…
Some good news
I figured I would share some good news. Today is the start of my last chemo round! It’s been a long 8 months for sure. Next up is new scans and blood work in mid March for a new baseline. If they’re clear, we’ll meet with surgery a few weeks later to start planning my total colectomy and my hysterectomy. My oncologist is…
Mojo and the Knife..
Houston we have a problem
For my husband to complain about anything, we have a problem! The last few nights, he has hardly slept at all. His pain post the procedure is worsening. Funny when he eats, it seems to get slightly better. We are trying to reach his doctor to no avail the nurse promised she would get word to him...but we are on standby.…
finger neuropathy-post chemo
Completed Capeox version of chemo January 10 after 24 weeks. Neuro in first three fingers of right hand began with Infusion #2 and has persisted after cessation of chemo: numbness (exacerbated with pressure from writing, typing, piano, etc.) + sense of swelling + low-level tingling. Cancer survivor friend strongly…
My daughter asked my surgeon if I needed a Cone of Shame...
He thought I did... Me and my comfort animal - Effie the Octopus, ready for the ride home.
Liver surgeon with HAI
For those who I interested... Dr. Mark Bloomston in Fort Myers. Internationally recognized. Wirked up North where he learnt it and trained in several different countries. If liver an issue strongly recommend. Remember it is a surgeon who makes a call on acresectionvsnd not your local oncologist. Grade stuff, great…
Good CEA News
CEA is a funny thing. For some people it's very indicative of what's going on with their cancer, for others not so much. My understanding is that normal is under about 6 but smokers can have it as high as 13 without having cancer. And things like inflammation or illness can factor it. Someone please correct me if I'm…
Any chemo for life people here?
Yep, I heard it from my local oncologist and an MD Anderson doctor. They think it will be either FU5 plus Avastin or Zeloda plus Avastion that is basically the same s&&&. Trying to comfort me that there may be breaks. If you’d some how long they usually last? Hard to smallow those news.........Butt.
Video Game and Emotions
I'm not sure if that's a good topic title but I wanted to share something that I found interesting. My daughter plays a game called Red Dead Redemption. It's set in the old west and is very realistic right down to things like taking care of your horse and training it and all kinds of things. The other day her character…
10 Years already...
Officially 10 years NED as of today. I wanted to post my story for those new to the board. When I was first diagnosed all I wanted to read were survival stories. I knew that it didn't necessarily mean I would survive long-term but the possibility and knowing that others had was so important to me. I would say that now I…
A high CEA of 28.5
Hi New on here. I just had my CEA checked and was just told it was 28.5, 1 month ago about it was 6.5 I am scared had ct and colonoscopy and tube down to stomach done all showing clear. I had colon cancer in 2016 and had surgery for that, they said they got it all. Im not sure what to think
Magnesium
I thought I should share this in case it helps someone. I've been getting magnesium with my chemo every treatment. I also take it orally by pill but apparently the body doesn't absorb it well that way. I'm told that this is not uncommon when on chemo or any treatment like that, mine's immunotherapy. I went from being weak…
Home again, home again, Jiggety Jig!
I'm finally home from the hospital (arrived home on Sunday.) I'm feeling well - this surgery was the easiest by far. However, I did end up with a 24-hr penalty/red flag (an extra day in the hospital) due to "bad behavior" (mine!) I probably shouldn't have joined the Dance Party in the Rec Lounge on Friday evening! Twisting…
Under the Knife Soon
I just wanted to say thank you to each and every one of you who has shared with me, encouraged me, and “ held my hand” thru all of this. Leaving soon for MUSC and ready to kick butt, lol. Send those prayers and good energy up and away today. I need and will take all I can get. Until I can post again, wishing you all love ,…
Colorectal Cancer
Hi there, I just discovered this site and noticed that there are a wealth of information pertaining to different type of cancer. I am a Stage 4 Colorectal patient and was diagnosed way back in November 2017 on my daughter’s birthday. I started with a CEA marker of 6410 and was given only 1 month to live. Instead I took a…
My husband just spent 6 days in the hospital
again from those stupid biliary stents. However it does seem that there are no tumors in his bile ducts and the big one did get zapped by the radiation. Not 100% sure on this yet. however further up in his bile ducts is a narrowing called primary sclerosing Cholangitis. it’s not a good thing and the hai pump he has is…
Butyric acid.
Multiple studies have shown butyric acid’s potential ability to fight cancer, especially cancer in the colon. It’s actually shown an ability to “modify nuclear architecture” and induce the death of colon cancer cells. This is likely a huge reason why increased fiber intake has been linked with less colon cancer since…
The Energizer Bunny
He will never cease to amaze me this Energizer Bunny I am married to! Thursday he had the second round on the Thermospheres and here today his is up and about and driving me batty. He won't stop! I keep reminding him don't bend, don't lift, don't climb the stairs! I finally have him sitting in the recliner and what is he…
Introduce myself
january 17th, during a routine colonoscopy, I found out the symptoms that I had were not my gallbladder but a 3cm mass in my transverse colon. I’m a week out from colon resection surgery and getting stronger everyday. The pathology came back as T3N0m0, so mostly all good news. i read thru a lot of your posts during thesr…

Colorectal Cancer

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