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Trying to find Hope
I know there is not much people can do or say. But compassion, understanding, support is all Im looking for at this point. I know what I am facing and I have no idea what will become of me. There is just this pause button on my life. I wait to see what they will recommended. Most of it I cant afford. Maybe I wont be able…
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I'm back and still fighting
Okay, I stopped coming on here because things had become so bad for me that I felt I wasn't able to offer any positive support or help. My cancer had spread to my other lung, my liver, and it's also in my bowel again. They'd removed some from my bowel in September during the surgery for the 3 fistulas I had. I was sick…
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Help for nausea
I've had quite a bit of trouble with nausea. My friend's daughter had cancer years ago and her onc said to give her Slurpees. There's something about the combination of pop and ice that helps. I couldn't get my head around it and didn't try it. But at the next chemo treatment a week later the nurse suggested the same…
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oh well
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the cancer has humbled me
When I was in my early twenties I went through a deep depression. I stopped working and I slept all day and did nothing. My family and eventually the therapists I got sent to all told me I was lazy and needed to get a job. I got some minimum wage jobs that paid next to nothing. I ended up living in motel rooms and sleeping…
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Mojo and "Hope"
As I have gotten older, things I thouht were written in stone crumbled to dust. I say that in a good way. I am spiritual, but not religous even tho' I was raised in a holy rolling Nazarene church with a preacher who stomped his feet and scared God into you. By the time I was a teenager, I was convinced I was doomed to hell…
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What do you do with those people?
Who are your friends and I mean most of them are very close friends. Those people who call you or text when it is convenient for them because they are concerned that I believe and need updates on your health? They expected to be filled in promptly and if you do not return their contact in a timely manner launch a further…
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The Problem with Statistics
An accepted philosophy on this board, and one that I endorse, is, “I am not a statistic.” I came across this study (link) a few months ago, and it stuck with me, but I was really not sure why. But with some further thought, it demonstrates that simple statistics can be misleading. As a preliminary matter, let me say that I…
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I spoke with the chemo doctor
I spoke with the chemo doctor yesterday and they came up with a treatment plan. I still have to meet the sugreon today and the radiologist next week but the plan is pretty much set up. Either the last week of February or the first week of March I will start a low dose chemo treatment in pill form. They say the purpose of…
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Zinc Sulfate for loss of taste
I am taking Xeloda as chemotherapy. Prior to diagnosis I started losing my sense of taste. For a while after surgery I got my sense of taste back and then when I started chemo I lost it again. The dietician I spoke with thought that Zinc Sulflate would help solve the problem, but it might take up to a month. Cancer can…
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Update & 3 Dr visits and questions about Stivarga...need info
This is all boring and routine stuff I guess but I did see my Oncologist and it went fairly well. He had a medical student with him, maybe that's why he was more informative and friendly. Who knows. He had spoken with the Interventional radiologist that just did my second Y90. So they chatted but he really didn't tell me…
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More articles
Does Green Tea help 5FU work better? (abstract only) https://www.ncbi.nlm.nih.gov/pubmed/30741544 Here, we report that EGCG [a chemical in green tea] reinforces the sensitivity of colon cancer cells to 5-FU, and the IC50 values of 5-FU is decreased from 40±4.2 μM to 5±0.36 μM in one human colon carcinoma cell line-HCT-116,…
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Any News About Mojo?
I've been thinking about her so much and thought her surgery was set for either Feb 6th or the 10th - I just saw she had signed Harley's guestbook, so I must have my dates wrong, because that would be impossible. Then again considering Mojo and her tenacity, maybe not so much! Any news would be appreciated, I would love to…
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PET scans are boring
forty-five minutes watching TV in a room trying not to think about the radioactive gunk they injected me with followed by thirty minutes laying inside a machine. I damn near fell asleep in that thing Oh well that's enough complaining. Christy
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Surgery #5 tomorrow
Clear liquids and the joy of bowel prep today, in anticipation of my surgery at Memorial Sloan Kettering tomorrow. Hopefully, all will be straightforward, and I'll be home in a week. Doing my best to keep busy today! Hoping that this recurrence is the last one, and he can close me up for good! (I begged for a zipper, but…
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Introduction and help
Hi all, I have been lurking on the forum for the last two years, when my dad (57) was diagnosed with colorectal cancer, stage four. He´s been Folfox and Avastin and then Folfiri and Avastin, but the last scan showed it is not working anymore. He has lung meets, which are stable, and liver mets - around 12, the biggest…
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Colon cancer stage IV
Hi all, I am the caregiver to my wife who is dignoased as stage IV colon cancer in June 2018. Joined this group and couple of days later, this site crashed...lol. Anyway, she will be taking her last Xeloda pills tomorrow. Can we claim this as the last day of chemo? Her last CEA reading before the start of this last cycle…
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neck pain
I've been diagnosed with rectal cancer recently. I've also had neck pain for about three weeks. It's in the right side of my neck and it's a dull ache. When I was still working I thought it was from having to have my head in one position a lot but now I've been out of work for a week and it's still there. I'm going to tell…
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A reason to skip the Valentine's Day candy?
Recent article (abstract only) about dietary insulin load (high blood sugar/carbs) and recurrence in stage III: https://www.ncbi.nlm.nih.gov/pubmed/30726946 Evidence suggests that diets inducing postprandial hyperinsulinemia may be associated with increased cancer-related mortality. The goal of this study was to assess the…
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Newly diagnosed and unable to cope
I preface by say that I also have panic and anxiety disorder and PTSD, so its nearly impossible for me to control my thoughts and emotions. I have been in complete turmoil since the shocking diagnoses. My level of stress as caused my BP to be at stroke levels. I dont know how to calm down when my entire life has been…
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Hot beverage suggestions
Anyone have suggestions for hot/warm beverages? I can't tolerate coffee and I'm so sick of tea I'd rather not have any for the next couple decades. I'm just finding that each treatment I can't even have room temp beverages for 8-9 days. I'm just about at the point I'd rather not drink and just go to urgent care to get IV…
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Peter Peter Pumpkin Eater
I thought for a moment that Peter had been completely wiped off the forum, but alas, I see that he joined in October, so his initial posts have not been lost in cyber space. Obvioulsy, with his good news, we may see less and less of him. Its a hard forum at the best of times, and when you're doing well, its nice to put the…
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Julie Yip-Williams book is out
It got published. It is about a woman who had been fighting stage 4 cancer. Amazon has it. Mine arrived today. Butt.,
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I have rectal cancer
Hello my name is Christy. Because it may effect how my treatment goes forth and what advice people can give me I would like to disclose that I am male to female transgender. I'm also forty-two years old. I felt sick in early January as well as tired and having some rather gross bathroom problems. I went to my family doctor…
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Lynch, a hysterectomy, and ovaries
I was diagnosed with Lynch after being diagnosed with Stage iv colon cancer last summer. I’m finally about to be done with chemo, so attention will soon turn to managing the Lynch. I’ve decided on a total colectomy and a hysterectomy. I’m MLH1 and will turn 34 this summer. What I don’t yet know is whether to remove my…
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Losing my Avatar
After this update I'm not able to see my avatar on any posts if going back. I've tried to reload it but it seems to keep disappearing. Is anyone else having this problem? Kim
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Checking in
Hi all! I haven't been very active lately and for that I am truly sorry. Know there are days that I do just a quick scan to make sure everyone is okay. I have been in a bit of a funk, stress has been getting the better part of me I suppose. But today I woke feeling more like myself. I even went to the little hole in the…
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Butt is home sick............
I decided to create a separate thread because i didn’t want to hijack the previous thread and some people expressed the concern and I also received some private messages. As usual typing from my phone.... No paragraphs. Sorry for typos. I am very home sick. I miss my immediate family. I moved to the US years ago and my…
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Update on husband
Richard finished up the 6 weeks of radiation/chemo treatments about 6 weeks ago. Last week we flew to MD Anderson for all the scans and appointment. Turns out the tumor is the same size as before the last treatments. We thought that was a little strange. So it looks like another surgery to remove the tumor. This is a…
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Fear Keeps Tapping My Shoulder
OKay..I did not sleep much last night. Dreams and thoughts overwhelmed me. I grew up with three brothers..two older, one younger but meaner, lol. I learned quickly how to fight strong and not flinch to show fear. I climbed to the highest tree branch and jumped in the pond not knowing how to swim...I wasn't going to miss…