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Colorectal Cancer

Archives for February 2018

Life time Chemotherapy treatment and Work
Hi just want to ask if anybody here is on for permanent treatment as in Life time Chemo every other week or something similar.. I would like to know how they are coping. How did this changed their lifestyle. Are they still able to work while on the regimen. What changed, what remains. I would like to know anyone who is…
Lonsurf costs and is it worth it?
The doctor wants to put my mom on Lonsurf but it is apparently around $12,000 per month? Not sure if Medicare or the drug company will cover any of it, she is going to see about completing paperwork tomorrow. How much are most people paying for it? Second, is it even worth it? I saw studies only showed an extra 2 months of…
Husband ending chemo at 3 months
We found a study published online that's persuaded my husband that 3 months of chemo will be enough and 6 months will not be worth it. Has anyone seen this study? https://www.cancer.gov/news-events/cancer-currents-blog/2017/adjuvant-chemo-colorectal Almost 13,000 people in the study, several countries, no commercial…
Still unsure about ablation, Radiologist keeps changing plan
So I am still scheduled for the ablation of liver tumors on March 12th. Since my last post, I spoke with the Radiologist that I've been dealing with regarding this, he called after I cancelled my appointment with him for a 15 minute consultation. It was going to be between patients for him but I was sick that day and had…
Finally!!!!! (for now anyway)
Met with my oncologist this morning, to review the results of my recent CT Scan and blood work, which were the first since my treatments ended on November 8th. I am soooooooooooooooo happy and relieved to have heard the words "you're cancer free". I generally consider myself to be a strong individual, but I must say, this…
Devastated by husbands stage IV
My husband (46) has been diagnosed with stage IV colon cancer with mets to liver (one primary and two smaller “satellites“- I may not have that right). This started out a year ago as stage 3, had the colon resection, chemo and was cancer free for several months until wham! All three lesions, spots whatever you want to call…
I'm tired, I'm pissed
I am s tired and so pissed off. I am 2 and a half years into this lifetimetime of chemo. I am so sick of being sick and tired. I want my energy back! I want a life that doesn't revolve around chemo, blood tests, scans and doctors appointments! I want to live a life that has energry, that has a meaning! I want my life…
Lung metastasis - any suggestions or advice?
Hi all Greetings from Norway! I am researching options to what my oncologist has presented to me as treatment (which isn't the most promising). The only treatment I will be offered is more chemotherapy to hold the cancer back a long as possible. Not the best forecasts. Quick background on my cancer - Colorectal cancer with…
My dads first chemo treatment for Stage 4 colon cancer w/mets in liver and lung
My Dad finally started treatment after being diagnosed at the end of December 2017. He was told his heart was very weak but they went forward with Chemo anyway. I keep hearing negative things from different people like “Oh wow your Dad has stage 4 colon cancer and he decided to go through with chemo treatments?” Its almost…
extreme dry mouth wile sleeping
Hello all, I have stage 4 colorectal cancer and have been going thru chemo. I have only three sessions to go. I’ve been very lucky and the side effects have been minimal. With that said the treatment team has switched me to Folfox 6 from Folfox 5, I had bad dry mouth on the 5 but now on six it’s 10 times worse and has…
My mom
mom just diagnosed with colon cancer with spots on liver an lung. any helpful information would be much appreciated...
Phase III trial of Napabucasin-BBI-608-and FOLFIRI
info at: https://clinicaltrials.gov/ct2/show/study/NCT02753127
High Dose Vit C
Hi Carla! Thank you for sharing your story. My mom had uterine cancer. How many times per week does your grandfather gets HDVC?
Tomorrow is my husbands 11th treatment
only one more after this! He is only getting 5FU now with avastin so it’s been much easier for him. Supposedly the dr is going to come talk to him about what she and the surgeon have decided after he is done. I have a feeling she won’t and we will have to wait two weeks until his last appointment. hoping The last two…
Has anyone had a recurrence near the original site?
It seems like some of us get mets to the liver or lungs or even other areas but how often does anyone get another colon or rectal tumour? I had an MRI in September and they said there's nothing there. But for the past several weeks I've had a lot of rectal discomfort. It hurts to sit down and hurts even more if I stand for…
If you're in the Northeast, get outside and walk!
Especially if you're on Oxy. It's low 60s here in New England and I've taken two outside already. Taking two more this afternoon. Tomorrow - may take an hour off to go walk in the woods.
chemo port
I am way ahead of myself asking this since I have 8 infusions to go, but how long after the last infusion do they take the chemo port out? Do they do it right after, or do they wait a while to make sure no more chemo is needed? I really am looking forward to it out! I get so nervous about it.
New to this site and slightly worried
A little background. I just completed treatment for tosil cancer back in late Nov. which I'm still recovering from and had my first PET scan last week to find out if the treatments worked or not. Good news they did but the bad news a place lit up on my ascending colon with a maximum SUV of 3.3 that had my radiation doctor…
Sent to Tumor Board and Scared!
I'm so scared right now! Took my dh to the liver surgeon for the second time today to review the latest scans and also to talk about surgery. In my mind, I knew that there was a good chance they wouldn't schedule surgery today, but I didn't expect to be told what we were told. The surgeon wants to take my husband's case…
Time for CT Scan
Tomorrow 6:00 AM EST I will head out for a 1-1/2 hour ride to Ann Arbor MI for the quarterly CT Scan. And next Monday for the CEA test and doctors visit. Many of you know the feelings that come along with these checkups. Ugg.
Husband Age 47 Stage IV Colon Cancer
My husband who is 47 was diagnosed with Colorectal cancer (Adenocarcinoma) in 2016. After surgery and chemo he had his ileostomy reversed and was given a status of NED in July of 2017. In January of this year, he had abdominal pain which we thought was a blockage in his intestine. When the doctors went in to fix it they…
Rectal cancer measurement discrepancies
Hi, I’m about 6 weeks out from diagnosis with stage 3 rectal cancer. Mayo has classified my cancer as T3N1M0 (Per imaging done on 1/30). My tumor is about 7.5cm from the anal verge. I’ve gotten opinions from 4 institutions so far and one of the things that concerns me most is the variability in measurements from the anal…
Rectal cancer surgical reattachment guidance
Hi, I’m about 6 weeks out from diagnosis with stage 3 rectal cancer. Mayo has classified my cancer as T3N1M0 (Per imaging done on 1/30). My tumor is about 7.5cm from the anal verge. Regarding reattachment surgey per LAR/TME, I’ve had surgeons suggest everything from straight attachment to J-pouch to Side-end pouch. I’d…
Rectal cancer treatment guidance
Hi, I’m about 6 weeks out from diagnosis with stage 3 rectal cancer. Mayo has classified my cancer as T3N1M0 (Per imaging done on 1/30). My tumor is about 7.5cm from the anal verge. I’ve gotten opinions from 4 institutions so far and broadly, treatment seems to break down as below. I’d welcome experience (especially 2+…
Birthday
Turned 59 today, one more trip around the sun...hard to believe it was 11.5 years ago that I was dx with stage 4.. There is hope out there for anyone newly dx. I am certainly not a model for eating right, exercising and constant prayer but I do my best whenI can...All my best to all and the caregivers who nourish them. Chip
Memorial Sloan Kettering Cancer Center - My Experience
On December 29, 2017, a member of this forum posted their "honest review" of their experience at MSKCC. As someone who strongly believes I would not be here if I hadn't gone to MSKCC, I found the original post to be disturbing to say the least. While not everyone has good experiences at every hospital, I found that some of…
infusion pump/ N1 T3 Colon cancer Stage 3
I had a colon mass removed Jan 2018. Have been running tests for past two wks to determinine right chemo treatment and return back to Oncologist in 1 week. Doctor said to start tell her if I want infusion pump or pills of Oxaliplatin to start before chemo. I'm not understanding why need infusion pump or pills & what the…
Folfox vs Capox
Hi, I just found you guys, I’m newly diagnosed stage 3c colon cancer, it was in my sigmoid and they were able to remove and reconnect without a colostomy. There was a lot of lymph node involvement but that’s as far as it got. Thankfully! I had surgery 3 weeks ago and so far doing really well. I was presented with 2…
Scheduled for Microwave ablation, Need information
What a week! Waited a week for the Radiologist that I had a consult with to call. I did speak with him on Tuesday, after his office cancelled my appt to talk to him on Monday. He previously had talked about me having the Y90 treatment. Then on speaking with him Tues, he decided to go for the ablation, evidently had emailed…
Fostering a Dog!
I had to share this! Being unable to work due to unstable health issues, weakness, issues that crop up and make me miss work and now going back on the chemo that will make my face look like a pizza, means I'm at home most of the time and feeling useless. I feel like I contribute nothing and am just a drain. We have two…

Colorectal Cancer

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