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ready to go.... Added an update
So, Thorsten is in the hospital now and the countdown to takedown is ticking :-) The CT and all checks were clear (PHEW!!!!) and tomorrow at 10 a.m. the surgery starts. I will keep you informed... Keep all fingers crossed Petra
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Advice? Watching loved one self destruct!!
It has been awhile since I have been on here but really feel this is my soft place to land!! My husband was diagnosed with 3C colon cancer July 2009. After tumor removal( colostomy ) , bowl resection ( illeostomy) , blood clots to the lungs and 9 months of chemo he became NED...He was 39 at the time and had to stop…
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Adhesions
Hello Again, I am new here and I have a question. My boyfriend just had his colostomy reversal about two weeks ago. He is home but still experiencing quite a bit of stomach pain. The Dr. said his surgery was very difficult as there were so many adhesions in his intestines that she literally had to pull everything apart. I…
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dr visit update
hey semi's. well went to dr thursday and he was pleased with my weight loss and everything is looking good. i go back in 3 mohths for a stress test and than i can start to work out. for fyi i had congestive heart failure in march and i am doing well now so far. never,ever give up!! bruce
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One year anniversary
So one year ago today I was having surgery for what I thought initially was some benign mass at the base of the appendix (detected by my first colonoscopy). Coming out of surgery and anathesia (sp) I was told it was malignant and needed to see an oncologist. As everyone here knows, that discussion turns your world upside…
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Anyone else tried MMS ?
It was suggesed by a doctor i trust to try MMS, so i did. the standard regime. I did some research, went ahead after having it on my shelf for a month, getting the confidence to add another alternative remedy to my already overloaded routine. i starrted it when my cea was hovering around 16 back in january 2012 I stopped…
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New Here
Hi, My name is Debby and it is my boyfriend who has rectal cancer. I do not know what stage, as he is not too forthcoming with information. He lives with his widowed Mom about 20 minutes from me. He had a mass removed from his rectum along with his rectum,in Feb. There was no spread anywhere but they did radiation before…
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A Taste of Honey
Has anyone else had a change in their taste buds since starting chemo? I've found that I can no longer even tolerate the smallest amount of peppers. Even a little bit of black pepper makes food inedible anymore. I've had other people taste foods that I thought were too peppery and they couldn't taste any at all. Other…
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Does Minimal Ascites means metastasis?
Hi My mom, was diagonosed with stage 3c (10/26 lymph nodes +ve) rectal cancer May'11 and underwent durgey, radiation and chemo (folfox) which ended in dec'11. Onc has advised for ultrasound scan, CEA every 3 months. Her last scan in Mar23rd, said Mild hepatamegaly with fatty changes with liver measuring 158mm Doc said its…
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Rainy days and cancer always get me down.
Hi all, 3 something in the morning. We had a full on thunder storm and the lightning was hitting the park one block from my house so I woke up. Good thing because my teeth were clenched and serious acid reflux. I'm going to go the GI about the reflux. Colonoscopies did a number. I think I'm having it a lot more than I…
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Rec'd a lovely email from a CSN member...so here's an upate on my now 21yo son advanced colon cancer
Hello all, it's been some time since I posted here...almost 2 years actually. I was doing a google search on a natural supplement and was lead hear due to a post on the supplement (which was heated...it pains me when people knock others down who choose a NATURAL approach to cancer...at the end of the day, it's that…
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post holiday
Hi all, posted to ask advice on going away while my husband was receiving chemo, took your advice and we both had a fab time, hot and lots of swimming, so nice to be normal for a short time. Got home Wed and hubby had bloods done then on the Thurs he had his chemo. Would love to do it again. All take care Chin up.
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Of kids, cancer.....and turnips
Steved's post made me think about how hard our cancer can be on our children/loved ones---I felt like sharing this story with you all. My girls---identical twins---are now 7 and they were age 4 when I was dx with Stage 3 rectal cancer. It was a brutal road to get where I am today (currently NED) and I think all the…
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Port won't draw blood - has anyone had this happen?
Hello all: Yesterday was a chemo infusion no. 6 and they could not get this to work even after the altapaste sp? I have an order to get it checked at my local hospital where it was placed. When I had my second surgery in April this problem occurred and when I went for chemo infusion a month ago it did work. The nursing…
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Hi mates, it is FRIDAY, any interesting plan for the WEEKEND?
Going to the beach house ad usual , there dinner with siblings and wife or friends,.......oooops NO! No dinner, now I remember Saturday Spain plays quarterfinals !.Will remain at home watching the match !
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Clinical trial for TRC105 Phase 1b
Robert is a candidate for a trial in Birmingham @ UAB. This new drug works like Avastin. We weren't too sure about doing this trial since we don't know if the increased tx with Erbitux and Camptosar is working, yet. But Robert's onc said he worked with this drug in a trial last year for prostate cancer and the results were…
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New member and new treatment
Just found out I had cancer 2 weeks ago. Started on the continuous pump with 5FU this week. Start radiation next week. Been a whirlwind so far! Hopfully they can shrink it enought before surgery so everything can be conected back ok since it's close to the rectum. Everything is going well so far but it's only been 3 days.
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One of Twelve
My first FulFox infusion is nearly done. Yay. The nurse told me that the 5-FU will make me sensitive to sunlight and prone to sunburn. That was the first I heard of this side-affect. Is this true? She said I should wear long sleve shirts, sweat pants, and 50+ power sun screen on my hands and feet, along with a wide-brim…
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No more colonoscopies?
My oncologist told me yesterday there is no need to put me through any more colonoscopies as it would not change his approach to my Stage IV disease. My cancer spread to my abdomen area and at this point our goal is to keep everything stable. I have built up a resistance to the chemo that I could take to possibly kill it…
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Good News
My doctor told me yesterday that chemotherapy saved my life. I am having a Petscan and an MRI on July 6th after that I find out if I am a candidate for a laser surgery to zap the spots on my liver. The Dr said that if I do qualify for the surgery and the surgery is successful I will be cancer free and will no longer have…
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Decision time- thoughts welcomed
I don't often post about myself but have been hanging out awaiting a surgical opinion that is finally in today and I now face decision I would welcome people's thoughts on. I am a 39 year old diagnosed with rectal cancer in 2004- treated traditionally with chemoradiotherapy and surgery. Was 7 years clear until November…
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My dad was diagnosed with Stage IV colon cancer 11 yrs ago; 4 recurrances since and now mets to sacr
Hi, I am new to posting but have read posts over the years. My dad was diagnosed with stage IV colon cancer in 2001. He has had 4 recurrances since, has a colostomy, left kidney was removed and has a ureter stent in remaining kidney because of scarring from radiation. He has had all the radiation he is allowed. Biopsy in…
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confused on diagnosis
I am a 29 year old female who found out I have a tumor in my rectum,well it turns out it is a squamous cell cancer and because it is low in my rectum they say it may be anal.I went to have a colonoscopy because of pain in my abdominal area,blood and mucus in my stools,change in my stools and a very bad pain when I would…
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Petscan results in - relatively good news
My petscan showed just the one nodule in the lung - yes! My oncologist has offered two options - surgery of the nodule (he doesn't think a biopsy is worth it and they are often false readings) or waiting 6-8 weeks, do another ctscan (non-contrasting since it's just looking at the lung) to see if the nodule is still there,…
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Dupuytren's contracture.....does anyone else have this?
I am just curious to know if anyone else suffers from Dupuytren's contracture of the palms. I have a large lump on my left hand under the ring finger and now it is starting around the base of the thumb....general thickening of the fascia there. I understand this disease can be heritary.....my brother suffers from it and…
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Reflection for Today
How do you keep enthusiasm going? Form a mental picture of the goal you wish to attain and another picture of that goal as being already achieved, and you have put wings under the hard toil of trying. Norman Vincent Peale
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My 19-year-old is getting a colonoscopy Friday - UPDATED
UPDATED*** All is well. After giving me a scare (fainted while sitting in the chair pre-procedure, which the nurse said is common) all went well. The GI took a few tissue samples to check under miscroscope for early IBD, just in case, but said all looked well and he is good to go until age 35. His labs came back normal.…
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Treatment Plans
I thought I'd share what two oncologists have told me and invite your feedback and thoughts and comments. Any insights you may offer are very welcomed! I met with the small-town oncologist first. My diagnosis was a single tumor in the lower colon (just above the rectum). And a metastisis of the colon cancer in a single…
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Microwave ablation
Robert had his 2nd opinion yesterday @ UAB. After waiting over 3 hours, we finally saw the doc. He has agreed that Roberts treaments and surgeries have been in line, so far. He said that there are several targeted therapies that may be of benefit. Microwave ablation is one of them. Anyone heard anything or have experience…
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Here's To My Team of Angels
Good morning... I was just reading through some post and I am not sure of what and when things were said but this is how I feel about about my team of doctors. I have the love and support of my family so this is only addressing those in the medical field. I am not in this fight alone. My team of surgeons and nurses are…