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Someone had recently asked about Regorafenib? Check this out from FightCRC site
http://fightcolorectalcancer.org/research_news/2012/04/regorafenib_now_available_via_expanded_access I believe it is being made available for those who need it......
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HIPEC
Hi, I have been in touch with Basingstoke about Hipec surgery, but they say my husband is not eligible for this because he has spot on lung and liver, so his cancer is not curable.
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"LIFE SURVIVOR". Thanks Craig..
I really like the very descriptive term "life survivor"!! I am at MD Anderson at this moment in time having scans, scopes etc. Always a bit of a scary time for most of us! Anyway, I decided cancer is only one chapter in the book titled "MY LIFE" and I HAVE survived life! At least 61 years of it. (working on more). Thanks…
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alkaline phosphatase trending up....significance??
haven't got a straight answer on this from Onc... My wife, who is stage IV with significant liver mets, has been on FOLFOX w/avastin since December, having just completed her 10th treatment. two to go, then possible colon surgery. I noticed her alkaline phosphatase has been steadily trending up for last 2 months. came down…
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counterfiet avastin warning in latest lef magazine, excess vit D warning as well
just got home from the vegan retreat, well lots of things to do, feeling realy good but sad as my wifes father is dieing peacefully at his house , he wants no medical intervention. well just read the current life extension magazine may 2012. it mentions fda warning of counterfeit anti-cancer drug avastin. just google it…
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any help???
hey guys.....back on the heavy chemo....no more maint, for 6 rounds....its been 3 years since ive had to come home with the pump. my qustion is, what if anything can i do or eat or drink to feel somewhat better seems like it was easier last time!!! if anyone can help i know its you guys!!!! thank you for any help!!!!
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I hate the term "cancer survivor!"
Hi - I'm new here; dxed with Stage 2 BC 2 1/2 years ago. Pretty easy ride. I hate the term "cancer survivor" and would like to start using another term. Cancer fighter; Cancer soldier; Cancer winner; Cancer victor; Cancer winner; Cancer standout - something - anything but survivor. What do you all think?
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Maybe someone has some advice?
I am having a problem with the contrast agent used in the CT scans and am hoping someone may have some answers/ideas. The first time it happened I had something called "Delayed Biphasic Anaphylaxis" happen, which put me in the ER via ambulance. For my second scan last Wed., I was prepped with 150mgs of prednisone, then…
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Small bowel obstruction advice
Hi everyone. Wondering if anyone could share experiences or offer any advice to me. Six weeks ago I had emergent surgery for an intestinal volulus.(no adhesions were present) I was really sick ....finally after a heart rate of 176 and BP of 50/20 they took me to the OR...but that is a whole nother story. I was recovering…
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lesions in peritoneum from colon cancer
Had our ct scan results on Thursday, and news was not good, while my husband has had a chemo break since Jan 2nd, the cancer has progressed, so starting chemo again 8th may, this will be his 3rd line treatment, his first chemo was Sept 10. He has been feeling well, so we were hoping for the cancer to have remained stable,…
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After treatment side effects
I am new to this website and a fairly new rectal cancer, permanent ostomy,just finished treatment person! I am very frustrated by all the side effects and wonder how long it will take to get better or even go away at all!!! I had pre surgical simultaneous chemo/radiation---UG! and then major surgery and then did 8 of the…
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2.0 CEA
Hi Everyone! With all of the stress and sad news that the Big C can bring. I received good news today. My blood tests all came back to normal. My CEA was 2.0! 24 months ago my CEA was 1125. 2 Surgeries, 30 days in the hospital and 6 months of FolFox and 12 more months of recovery. I am starting to feel normal again! Sold a…
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Good news, bad news
Got the results of my first CT scan since dx (stage 4, mets-liver-lymph) in February. My CEA has dropped from 44 to 1.4, so that's certainly great news and I was hopeful that I may be a candidate for surgery. The scans showed significant reduction of all tumors -- colon, liver and lymph nodes. But I'm just not a candidate…
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What's on your Bucket List?
hello everyone... what's on your Bucket List? let's all plan to be NED sometime soon... and as you think about the things you want to do now or in the future, what are they? JoeMetz
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Salads, Veggies and the Colostomy Bag - need some help here!
when i got my colostomy bag in December 2011, i hated it. but honestly, with all the diarea it makes life VERY easy. I am able to fly and travel as well as attend all my kids events. the problem and questions that i have, relate to the foods that i was told to avoid. obviously nuts, corn were told to remove from my diet,…
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Blake RIP
I'm sure his family will let us know. But Marie saw a message on his facebook page written by his sister, 'RIP my dear brother, may your journey be a peaceful one. I will miss you with all my heart... With all my love... Your little sis' He put up such a fight, will miss you. Hugs and prayers go out to his wife and family.…
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Carl_Renee
Renee, I don't know if you check the boards anymore but want you to know that you are not forgotten. I am sure these are difficult days adjusting to Carl's death and dealing with your grief as well as the children's. You are often in my thoughts and prayers. Cathleen Mary
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Doctor Appointment yesterday
Yesterday was my annual checkup and pap smear. My doctor told me that as of next year I'll no longer be able to get that but only once every three years. That really stunned me and when I'd commented did this have something to do with Obamacare both the nurse and him in unison said "yup Obamacare". He also told me that…
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Blake
Praying for you.
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Hi mates it is FRIDAY, any interesting plan for the weekend?
will Try to go to the house of my sister on the beach with wife brother and mum! What about you?
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Finally the ACS steps up, anyone want to pat Pete on the back?
Cancer survivors urged to eat better, exercise Published - Apr 26 2012 12:34PM EST MIKE STOBBE, AP Medical Writer ATLANTA (AP) — A cancer diagnosis often inspires people to exercise and eat healthier. Now the experts say there's strong evidence that both habits may help prevent the disease from coming back. New guidelines…
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Month to month
I now live month to month, but I pushed this month out a couple weeks. Labs and brain MRI this week, and I see the oncologist tomorrow. No anxiety - I just don't get it anymore and haven't for a long time. I kind of look forward to labs and scans to give me the information I need to make decisions going forward. But I kind…
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Ever hear of "occult tumors"?
You've read of the Salem witch trials......Well, this has nothing to do with the supernatural. In fact,"About 25 percent of colon cancer patients who are deemed node-negative or pN0,(meaning the cancer has not spread to the lymph nodes) after treatment end up recurring with metastatic disease. Known as occult tumors, these…
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Hi, haven't been on for awhile
Hi everyone, i haven't been on for awhile, but my husband is doing well. Recently, he found out that his CEA number has been going up. Mind you it is only at 2, but he has been at -5 for over a year. The onc decided to send him for a PET scan to see what is going on. We had to change our health insurance to Cigna this year…
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Lung surgery
Well just returned from MD Anderson yesterday from follow up scan & showed lung mets have shrunk alot (2 almost gone) but other 5 are visible. Onc said was going to meet with a surgeon there to discuss removing whats left. Wierd becuase before I was told inoperable, anyway mentioned since they are so small in size I would…
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Joemetz...want to know how your scans came out today
Hey Joemetz, Sending you prayers and well wishes for positive results on your scans today. I went to your caring bridge site and read your story. You seem like a great guy with alot of positive family and friends beside you! Blessings to you from Minnesota~ "Minnie"
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Any Golfers?
I just found out that I have colon cancer on Monday, 4/23. I'm talking to a surgeon/specialist tomorrow and my understanding is I will likely need resection surgery soon. I'm not sure about additional treatments at this point either (e.g. chemo). My Golf league starts next Monday (4/30). Should I drop out of the league? My…
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appreciate the good days
Had a rough week and half but yesterday was a good day have to love the good ones. Little pain...lunch out of the house with my 80 year old mom...phone calls from great friends in Pennsylvania ...decision to go see new grandbaby this weekend...see the kids also. I pray that it stays good until next treatment scheduled…
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teeth dentists.....don't hesitate
okay....sorry a bit off topic here but I know lots of people have have dental issues after chemo cancer surgery. So I go to my dentist and he comes near me and his hands are shakin like mad.....long story short.....his wife has left him and he is taking drugs and I get weeks of hell and a crown that looks like a walrus…
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colonoscopy thru ostomy
I am having a colonoscopy thru my stoma. Has anyone had this done. Just would like to know what to expect. Just started the prep, i dont know what to expect from that either. Any suggestions.