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Grace 14
Was it really necessaray for you to post on the Colon Club about our CSN board? You stated "there are nasty people on there and not very encouraging". Perhaps you should be more specific. Most people on CSN are very encouraging, respectful, well informed and compasionate. Yes, there are some bullies that seem to fade in…
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Hipec should be stopped
hipec results were horrible, with an ostomy that leaked contantly. death within less than three months made worse because of hipec results
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Astralagus
I've taken Astralagus supplements in capsule form bought at health food store. Now, I was at a chinese health store which sold ginseng, etc. They had bags of astralagus root slices they sold by the pound. Anyone have any experience how much you can use to make tea etc?? How many of these cups a tea would be beneficial??…
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Christmas Songs
For those of us that celebrate the holidays or just like Christmas songs and could use some cheer right now, what is your favorite Christmas song? Mine is "O Holy NIght". Happy Holidays to everyone, Luv, Wolfen
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CEA 165 the highest ever
Stage IV Rectal cancer mets in 3 of 4 lobes in lungs Unresponsive to all protocol chemo-therapies. What is next? Research Studies? anyone having success with experimental drugs? TCM? essiac and cottage cheese/flax oil are on my daily list Newbie on this board but well on into the journey. Not really symptomatic yet but to…
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Any one know what has happened to Da Beach Bum?
Hi all: Any information on Da Beach Bum? He hasn't posted in awhile. Cheryl
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Post-surgery and the shock of hearing the word "cure". And a philosophical question.
Two weeks ago, I had my fifth surgery in two years. I have a super-funky tumor type that normally never shows up in the colon (it's extremely rare under any circumstances but is usually in the uterus), and the chemos I've tried haven't worked for me at all, so surgery has been my best shot at survival. Surgeons took out…
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Hi mates it is FRDAY here any interesting plan for the weekend?
Here just trying to recovery from the anemia caused by the hemorrhage , still tired and a little depressed despite labs are quite good ,and recovering very fast. Enjoy your weekend, enjoy your Christmas shopping!. Hugs!
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PET results are back
I can't even describe the relief and thankfulness that I'm experiencing! Pet scan was clear. We are waiting on a radiologists interpretation of an area in the small intestines, not concerning cancer, just an area from previous surgery. Hoping it does not play into not have iliostomy reversal tomorrow or my hubbys going to…
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found an interesting article
Hello All . . . . Read this article yesterday and have been thinking about it a lot since then. It doesn't talk about stages, but as a stage IV with 32 chemos so far and no chance (yet) for surgery it gave me some much needed hope with survivorship. Thought it was worth sharing.…
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Venting
stage IV colon cancer, it is back in my bowel, lung and as odd as this is in the muscle near my spine causing great pain. Radiation is what is perscribed and a cocktail of chemo after the biospy of the "genetic make up" is of the reaccurance. The thought process is that they need to know what the genetic code is to…
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consultation with specialist after Lynch diagnosis
I thought this might be the best place to start for feedback from others with Lynch syndrome - after your Lynch diagnosis, did you seek a consult with a specialist beyond your primary oncologist? I had endometrial cancer and recently received my Lynch diagnosis through genetic testing, etc. What I'm wondering is if it's…
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26 diagnosed with stage 4 cancer.
I'm 26 years old. I have gardners syndrome. Which causes colorectal cancer. I was diagnosed with it and it has spread to my lungs. I'm going through the 5FU chemo treatment. I'm on round two right now, and going into #3 next week. I'm stage 4 and scared. I feel very alone. I have wonderful support with family and friends.…
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Juicing recipe's
Please share juicer recipe's with me? Or if you don't juice, maybe you have an idea for something? I am going to buy a juicer after Christmas and really don't know what tastes best, what I should not want to use, just any advice or ideas would be much appreciated :) plh4gail
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seriously?!? . . . . . please have a read and think this over
Okay . . . . . here it goes . . . . I have not waded into any of the controversial posts to date - and I have seen a few. I am trying to keep my world peaceful and full of positive energies - this is the best kind of environment for our bodies to fight and heal. What has been happening lately has become ridiculous folks!!!…
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Arms are leaking
Hi everyone! After unsuccessful surgery to reinstall a port in hubby's chest, the dr put a port in his upper arm 2 weeks ago.(and also drained 12 pounds from his abdomen again). Anyway, he developed a clot in his neck last week. They put him on shots in his abdoman as well as cumundin (sp?) pills. Took him off both 2 days…
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illeostomy
My husband got an illeostomy put on Oct 13th 2011 when he had colon resection. He is telling me now that he feels like he has the urge to go and there is something passing through. Is this normal? I can't remember if anyone told us about this or not. I will call his doc but I was just hoping to get some input here. I was…
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air travel - my experience . . . . . . any tips from others?
Two weekends ago my husband and I went to New York for an extra long weekend (arrived Friday and left late on Monday) - it was just fabulous!! It was a first for both of us and I am already planning a trip back in the spring, so much to do and see. We found everybody so friendly, the city so clean - and of course, being…
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back from VATS surgry
Thanks all, I am at home now after VATS surgery which was successful and I must say very easy compared to the open ones I've had. 3 days in hospital and not too much discomfort at home. A lttle tired but eager to eat well, njoy the holidays and say bless all of you out there. Chip
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New Hope for Managing Cancer
http://www.thehindu.com/health/medicine-and-research/article2712237.ece research done by university of georgia and mayoclinic arizona. Using immune system to kill cancel cells..
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Should I be concerned?
Sitting in physicians office waiting on surgical clearance papers for iliostomy reversal Friday. Tomorrow PET scan and other tests for surgery. Phils only had 2 CEA tests since diagnoses and both were very low ( .7 and .9) today his CEA is 1.1 which I know is still very low but it has changed. He finished chemo almost 4…
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Should I be concerned?
Sitting in physicians office waiting on surgical clearance papers for iliostomy reversal Friday. Tomorrow PET scan and other tests for surgery. Phils only had 2 CEA tests since diagnoses and both were very low ( .7 and .9) today his CEA is 1.1 which I know is still very low but it has changed. He finished chemo almost 4…
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Pepe
You okay? Haven't seen you for a few days. Missin' ya! Peace, Laurie
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If only local modes are involved, is chemo always recommended?
If inly local nodes are involved is chemo always recommended? I've tried to read through the posts before asking this but it seems when I read a post involving chemo people are mentioning mets to the liver, bone or lungs. Also what are the most recent chemo drugs being used for cc?
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After 8 years I'm gone too
My dear semi-colons, I actually decided to stop posting in the fall but after reading Emily’s farewell post I feel I need to clear up a few things up and explain a few more before I bid farewell. In my 8 years on this board I have never, I repeat NEVER, told anyone to stop or not to do chemo. When I decided to stop doing…
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Post surgery discomfort - 4 weeks out
Four weeks ago tomorrow, I had an anterior proctosigmoidectomy and coloanal anastomosis with a loop ileostomy. I also had a complete hysterectomy. I was in the hospital for 13 days because I developed an ileus but have been home now for about two weeks. On a happy note, my path report was amazing, no cancer cells left even…
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Thank You
Just a quick thank you to all who come to this site weekly and some daily. When you have cancer, the consistency and loyalty of people are a big, big help because so many people abandon you. You wouldn't have to come here to offer support... especially the ones who are in remission, but when you do, you are being SOOOOO…
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CEA after surgery
Hello everyone, I just registered mainly for my mom. I love the form right after I found it the day before yesterday. I have one question regarding CEA after surgery. My mom got resection for both rectum and left leaf of liver on 11/01/2011 and just finished two cycles of FOLFOX treatment. However, the CEA was 35.4 right…
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The End of my Tenure--10 years today
Hello you wonderful Semi-colons! Little did I know ten years ago, December 12, 2001, when I posted my very first post on this board that I would still be here posting away, answering questions, building friendships, mourning the loss of friends, and most recently meeting friends face to face, new and old, at my first…
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Computer Question(Not Cancer Related)
I'm looking for some help here from the computer gurus(Blake, John, etc.). Almost every time I am on the board, and I use the back button to get out of a topic, I get the response page "Internet explorer cannot display the webpage". This also happens when I am in my insurance providers website and transferring to the…