Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Colorectal Cancer

Archives for May 2010

Pet Scan- Change in Plan
I met with my Onc yesterday to talk about my new plan. The PA had given me the results of my petscan last Thursday. It showed increase in size and number of lung nodules and everything else was stable. My Onc was out last week. He talked to the PA and she said that I would be starting Folfori . My Onc wanted to see me on…
Off Xeloda for 2 wks..maybe forever - UPDATE
Just an update: I was dx'd in Oct. stage II.Surgery & resection. I have finished 9 tx chemo in all...5 Folfox and 4 Xeloda. I have had just about every side effect from both regimens EXCEPT the common diarrhea & nausea. My eyes are dim, my ears are deaf, I have chemobrain, red *spots* on various areas of my body, peripheal…
I CANNOT quit crying, this is stupid, i don't know what to do. I just can't friggin stop!!!! Help m
There is nothing physically wrong with me now. I can even fart with no problems. My back feels fine.... I just cry about everything...and NOTHING. This is the stupidist thing I have ever been thru. My God.... this is so dumb. The onlu time I ain't crying I am either sleeping...which I do a lot...or just stare out the…
Newbie, but been around the block a time or two
For starters, Hello to everyone stricken with CRC, Im from northeast missouri, i was diagnosed with stage 1 colorectal cancer on April 13th2009 after a routine scope for low hemoglobin levels, I went to Barnes Jewis Hospital which has excellant doctors and staff, I started Chemo Xeloda and radiation right away, after 18…
Trials
Hi, I am having mixed emotions tonight. I was called today by a clinical researcher from UCSF about joining in a clinical trial. I have basically been told by my onc and onc at UCSF that there isn't really much for me to do except trials. I am stage 4 with nodules to the lungs. I have already tried oxy, irronotecan with…
Up date on Louann
My apointment at MD Andeson will be june 14,15,16 not confirmed as of yet but they said it won't be any sooner. I am still raising the money to go. God has been very good to us and I won't give up no matter how bad I am feeling and I can't get into a pain mgt doctor until the 26th of this month. it is very sad that we have…
oxaliplatin-leucovorin-fluorouracil--6 months having jaw pains and first bite pain BAD!! my Onc. sai
anyone else have this pain?? need help!!! first bite of any food (room temp or above) feels like I stuck my tounge in a light socket for 20- 30 seconds....ANY IDEAS??
My youngest at his prom look on my expressions page
Just thought I would share this milestone with everyone. This is my 17 year old. My youngest boy. 12 years ago they told me to get my things in order. I only had a couple times where I thought this beast had me, it was when I let fear take over. Now 12 years later and mostly fearless, I still have check ups every three…
Had surgery again
Hi I have not been here much do to computer problems but I am so glad to be back. I was in the hospital 3 times in 2 months and I had a blockage.On the third time on April 26TH I had to have major surgery do to radiations treatments it had damaged my small intestine the DR took 20" out and a lot of adhesion's I went in the…
Knockout by Suzanne Sommers
Have you read it? What do you think? I read that cancer patients usually have a lower than normal body temperature. I thought that was interesting since my husband's last reading was 96 or 97 degrees. There were other interesting, and inspiring stories as well. Erin
Bathroom question??
So is it normal to have blood in your stool after reattachment surgery?? It has been since March 23rd when chris got reattached, and april 29th he had clear scans. Now all the sudden he is having blood in his stool.. If its not one thing its another...lol loves, Mel
Just because I look good
Just because I look good, doesn't mean I am back to 100%. Just because my last chemo was in August doesn't mean I am not tired. Just because my ileostomy reversal was in September doesn't mean I don't still have issues. I may look like I am fine, but I am still tired. People need to understand that my body was cut up,…
who was talking about juicing?
I'm sorry but I don't remember in which post I read recently of juicing with carrots, spinach, apple juice etc.. She recommended a book too and was diagnosed a long time ago. Anybody know who or which post I'm thinking of? Do you all think this would be good for Jim? Thanks April aka NANA
Glutamine for chemo neuropathy?
Has anyone used Glutamine for post-chemo neuropathy (Folfox)? I was just advised to take 10 g twice a day, and was wondering if anyone has experience with this. I currently take Alpha Lipoic Acid and Vit. B6, but the neuropathy has flared again, such that walking is again painful. Thanks!
hernia following liver resection anyone?
Hi, Have any of you out there had an abdominal hernia or hernia of any type following surgery? The only surgery I've had was a liver resection two years ago. It's just been in the past two months, however, that I feel a weird twinge in my abdomen right under my liver surgery scar. The only time I feel this twinge is when…
The Reading Room: Link to CNN Article Describing a Condition Called "Anesthesia Awareness"
Here is a link to this CNN article on a topic called "Anesthesia Awareness." It describes one woman's experience with waking up during surgery but being paralyzed by the anesthesia to do anything about it. On my very 1st colonoscopy, I too, woke up during the procedure. I lifted my head up, and saw this big red looking…
drained emotionally
I haven't posted much in a while since my surgery. Surgery was April 6th nad today is my first day back to work. I am really confused because they told me I am "cancer free" now, but they want me to do 6 months of chemo still as an insurance policy. Is this the standard protocol?
colonoscopy
hi everyone. I know this post is insignificant compared to what all of you have been through. I will be having a colonoscopy today. At the time of my sister's dx in 3/09, my PCP advised me to have a cololoscopy. I did (at aGE 40) and a cnerous polyp was removed. We had genetic testing and it was determined that the caNCER…
Relay for Life
Did my first Friday night at Carson Park Fairgrounds. My 5 year old was graduating from pre school and it was at 7 so I missed the survivors lap, thats OK, I made the luminary walk and my kids and I walked about 5 laps..Then we sat around with our booth that we had there from our church. We did for our first time ever…
Update and hospital stays
Hi All, We are at day 4 in the hospital. **** is doing well. Today he walked for 30 minutes, doing laps around and around the floor. They said he should go home (to my parent's house) on Tuesday morning. A few things I wanted to share about ****'s experience at USC. We have been very pleased with his care here. A few…
What stage are you and when were you dx?
Stage 3, dx April 14th 2009 Life is funny sometimes Brooks
15 months
Just got results from my 15 month scan last Monday. Bloodwork getting better (liver enzymes) and my scan was clear. My oncologist said that 2 years was a good marker so I look forward to that (hopefully clean scan) but that 14 months was the median for those that recur in the first 2 years. So, I keep taking one day at a…
Hello again....scanaxiety here!
Hi everyone! I just wnated to check in and let you know that even though I have not posted much, I read about what is going on with everyone. It has saddened me quite a bit of the amount of people that have lost this battle to cancer on here. Therefore, because of that, I have been putting extra energy into living life day…
Jim is home from Loyola, thank you, thank you
Jim came home from having his liver surgery yesterday after several minor set-backs and is recovering at home. Before he left his surgeon looked him in the eye and said, "you are cancer free." We will do mop up chemo after he recovers fully from surgery, but cancer free? Really? Can they say that? I am cautiously overjoyed…
2 years ago today
My grandson, Andy was born. He has been the center of my recovery and faith in life. I knew something was up with me that day. I was already scheduled for a colonoscopy on the 20th. But for 4 blessed days I was a grandma (for the first time) and I could just hold him and breath in his glorious smell and kiss those rosey…
Please pray for Pat Kapper and Carrie
Carrie shared this middle of the night Saturday.Everything is quite different here at the Kapper house since my last post on Monday, 5/10. As of the very next day, the fluids were taken away and since that took place, there will be no possibiity of the laparoscopic procedure I spoke of. Tuesday morning, I woke up to Pat…
Xeliri vs Folfori ?
Can anyone give me any information about Xeliri vs Folfori. My onc wants to start me on Folfori. I have an appointment with him tomorrow to discuss this due to my pet scan showing increase in lungs. I have been on Xeloda alone since 9/09 and Xeolda with Avastin since 10/09. I have had very minimal side effects with Xeloda.…
Relay Report!
Last night was wonderful! There were so many people at the Relay for Life here. I was very proud to be able to help carry the survivor banner when we did our lap. That lap always makes me cry so much, because there are people lining the track clapping for us. There was a huge storm that came through after the luminaria…
Relay For Life
What a wonderful day. Our daughter works for Delta and they had their own booth at the event. I was signed up as a walker from 11:00 to 12:00 but my stamina was so good I walked until 1:30. I have never been so energized and felt like I was really helping out for such a good cause until today. I bought several colon cancer…
Three is a charm? Going to start 3rd clinical trial
After a good 4 month run on my 2nd clinical trial, the recent CT scan shows a mixed result. Most of the lung mets and lymph nodes are stable. Some of the liver mets did grow a little, some shrink a little. But my CEA shoot up a lot. So my onc think it is about time that I quit this trial and try something else. She has a…

Colorectal Cancer

Discussion List