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Question about NED
Hi everyone, I hope everyone's enjoying their summer...here in Michigan, we haven't had too much of one so far, but It has to get better...right??? :) I have a question about NED...When do you consider yourself NED? After your first radiation/chemo treatment? After surgery? or after chemo is finished after surgery? I know…
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HAI Pump Therapy
When I was first diagnosed with Stage IV colon cancer with 5 mets to the liver I was told by an oncologist at our local cancer center that I was inoperable. That oncologist recommended 6 rounds (12 treatments) of FOLFOX/Avastin and said we would scan in 6 months. I sought a second opinion from Memorial-Sloan Kettering in…
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What next?
It looks like my dh's surgery is going to be pushed back ANOTHER week - what the heck? Does anyone out there understand he has cancer? He needs to have that surgery done to remove the darn tumor??? I guess the Lynch Syndrome Test might not be back in time and they need it to decide how the surgery will be...jeez put a rush…
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Last Schedule Chemo!
Well, today was the day of my last scheduled cycle of chemo! I made it all the way to 12 and I can't believe it! I wanted to quit so many times, but thanks to all of the support and prayers from my biological family and my cc board family I made it! I get scanned on Friday and the results and next steps at clinic on…
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I am confused
I have been having chemotherapy for five months now. The seven tumors left over from my surgery have only changed a tenth of a cm. Four have gotten larger, three have gotten smaller, but in such a small degree and a new tumor above the umbilicus has popped up. Why am I doing chemo? I thought it was to shrink the tumors or…
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What to expect?
I was diagnosed with stage IV colon cancer in April/May 2009 and I have no idea what to expect. It has been a tough ride so far, but getting better. I am only 30 years old with two children under the age of 6. I have had two major surgeries (removal of part of right colon and ovaries-due to MET), port inserted, and chemo-I…
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Coumadin and Emend
Hey everyone, been a while since I posted. I will be starting round 4 of chemo tomorrow and I'm not looking forward to it. I'm so sick of feeling sick, muscle twitching, can't walk because of the pins and needles on the bottom of my feet, can't drink or touch cold things. Whine, whine, whine....ok I'm done....sorry. One…
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Waiting
I hate the waiting game!!!!!!!!!!!! I just had a CEA blood test done yesterday..I am 3 months NED..So now I wait and wait and worry...I need a CAT scan but I need surgery for gallbladder and a hernia so I will wait for the surgon to do that CAT scan and the onco doc will read that one..So its more waiting UGH UGH.. I know…
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Nail or No Nails??? Dye or No Dye???
I am feeling pretty **** with bitten off finger nails and gray roots hanging out. All I can say is my husband must really love me. Anyway, I have heard fake nails are not wise but I don't know why. Also, I know I cannot use a heavy duty hair dye but what about a temp. rinse? I would appreciate your input. Thank you Jennie
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New, , What is NED
Just new to this group and This cancer ( my second cencer i had HL 10 years ago). Lot of you all talking about NED what is this? thanks, Winney
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Port Removal
Hi Everyone. Just had my port removed this morning. I know that their were questions posted about this at one time and just thought I would share my experience. My surgical oncologist said he lets his patients decide if the want their port removal under general or local. He said about 75% chose general mainly because of…
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Dry Heal Solution
On Oprah today, there was information on preventing and eliminating--- “Dry Heels”. They recommended using Stridex Pads which contain - 2 % Salisylic Acid to exfoliate and then generously use eucerin cream (not lotion). They said within 1 week you will notice a difference. Go to Oprah.com for the info. Dry lips – apply…
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biopsy results back
Ohhh...I dont know board protocol. Was I supposed to start a new post for this or just put it on the end of the other one??? A lot of it was good news Two small polyps were pre-cancerous large polyp was non-cancerous Now the results for the "unknown mass" that was an inch from my previous cancer. The one that he thought…
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Scan Results/Lung Nodule Questions
Hey everyone! First, a quick recap. Oct 07 dx stage iv cc; two surgeries; six months of FOLFOX w/Avastin; follow-up surgery in Dec. 08. Scans have shown NED since Feb 07. Just had my last set of PET scans on Friday and received my results today. My scans show still NERD (No Evidence of Recurrent Disease - Colon Cancer).…
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Nervous abot follow-up colonoscopy- Update
I have my post-op colonoscopy tomorrow. I was supposed to have it in early June, but the chemo was kicking my butt then, so it was postponed. I am NED, and my last scan was clear, but I am still nervous about this. Wish me luck...Vicki Colonoscopy report…they found 2 new polyps, but he thinks they are benign. I sure hope…
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Now I am really, really mad!
So, when my GP first scheduled a GI appointment for me, I mentioned that the doctor's name seemed familiar. When I went in for my first appointment, I realized he was the doctor that misdiagnosed me a little over a decade ago. I called my GP's office and told them I was uncomfortable having this doctor treat me (and why)…
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Another JULY Cancer B'Day Today
Good morning Everybody - How's the World Treating You? I have made it to another birthday today as of 8:27am CST the 21st of July. I join Eric and Sheri this month as the other July Cancer's with Cancer parade. My wife surprised me this past Friday and wanted to go out and celebrate that day - and so we did. Went to…
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So many ?s while we wait for surgery to happen...
Hello again, well we are in waiting now for the surgery and the results from the Lynch Syndrome Test...so it gives my mind time to think and worry...What are any problems that could crop up in the colon surgery that we might have to be prepared for (not sure if it is half or whole yet)? What happens immediately after the…
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Really Rough Skin
I just noticed that my upper chest has really rough skin. I even took the wash cloth and rubbed it harder than a normal wash in the shower and it's still so rough. It feels like it is peeling or rough like a sunburn would but doesn't look red or anything. My nurse told me to wear sunscreen (which I don't) because I'm not…
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scans clean im a ned!!!!!!!!
saw the doctor today all is good!! no evidence of disease I'm now on my last chemo treatment and I'm done!!!!!!!! i have to thank all of the wonderful people on here that helped my whimpy but get through this, you peeps are the best!!!!!!!!!! my thoughts are with all on here you all helped more than i can ever state!!!!!!…
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Hey, this is Donna's daughter
This is Shan, my mom Donna is doing better and should be home in a few days.She wants to thank you all for your prayers and to Beth for posting on how she is. She is looking forward to coming home and chatting with you all soon, maybe in 2 days. Thanks for keeping my mom in your thought, Hugs to you. Shana
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Glass of wine okay on off chemo week?
Okay - today is my anniversary and my hubby is bringing home wine. Has anyone had wine on off chemo weeks? I have not had any alcohol since my DX. My liver surgeon said after 3 months I could drink sparingly. 3 months was July 9. Should I go for it and have that glass of red wine???
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home from vacation and having CT/PET this Thursday
Hi Everyone, I jusst returned home from vacation. We had a busy, but very good time! Now for the unpacking and laundry... This is such an active board that I missed so much in the week and a half I've not been checking in- wow! I've skimmed over a few of your posts, but haven't commented on any yet. I felt pretty good on…
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my brother
I just got a email from my brothers wife he had a siezure and fell and broke his hip they did a scan he has a brain tumor it is cancer he 46 they are transfering him to uci med orange to do the hip surgery i am so scared for him i just lost my husband and now Maybe my brother. my mom died at 49 from brain cancer and now my…
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Lynch Syndrome update stuff
Hi! I have not been back to this site in several months. I share my computer with my family, so my time is limited, but I miss all of the love and support. I always feel "changed" after reading the posts on here. So, just to update- female, dnx colon cancer age 36 stage IV. Hit my 5 year NED last August except ohh, yeah,…
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New clinical trial for those who've exhausted conventional chemo
There is a new trial CNTO 328. It has had small trials in europe on a few different cancers. It seems to be following the same pattern as many of the new protein inhibitors. If it works, it works well.
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New Rankings of the Best U.S. Hospitals
Useful information http://www.webmd.com/news/20090717/new-rankings-of-the-best-us-hospitals
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Kombucha Tea - Emily are you out there?
I was at a pickling class yesterday and the subject of Kombucha tea came up. I Googled it but the info was kind of generic. No real studies appear to have been done on it, though it seems to have been around for hundreds of years and used in numerous countries. Has anyone used this and had any personal experiences? Anyone…
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The stress is really starting to hit
Before the whining, I have to say how very happy and grateful I am to have found this board. I just signed up and have read several posts and everyone seems so wonderful. Now the whine... I first got diagnosed with colon cancer on my 16th birthday. I feel like I somehow kind of cheated with that one. It was found during my…
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Friday Riddle Answer
This week goes to KarenS49. Taking a plane was correct, but the flight was 3 hours. RIDDLE:If a man can walk 2 miles per hour, and needs nine hours of sleep each day, what is the fastest he could travel the 3000 miles from New York to Los Angeles? ANSWER: Just about three hours in a plane. (or 100 days walking, but the…