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im back from the abyss
Can you believe it? My original surgery date was 05/18 and here it is 07/19?????? I don't have the time nor the desire to check over all the postings I've missed, but Jess kept me up on her postings and your postings for me. I wanted to let you all know how much i appreciate your support, thoughts and prayers. Things went…
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Lysine and chemo
Does taking Lysine for canker sores affect chemo with Folfiri and Erbitux? I saw a mouth gel made with lysine for cold sores and wonder if i could use that. I always have to run everything i take through the pharmacist, but i forgot. And i just got disconnected Friday and the canker sores are coming back already...I hope…
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laugh, cry or........
I'm in the middle of my second set of scans since chemo ended in December. Just had a biphasic CT scan on Thursday and picked up a copy of the report. There is no evidence of recurrence in my liver or lungs altho they did note a nodule there. Happy news! But then they drop me out of the plane with no parachute with the…
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Question about Clinical Trials
Hi everyone, First, I'd like to thank everyone for the well-wishes before my scans. Unfortunately, after 10 rounds of FOLFIRI+Avastin, the tumors grew (albeit, marginally...but still). Anyway, I'm now erolled in a clinical trial for a MEK inhibitor drug called AZD6244. My question is - have any of you been involved in a…
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anyone have a hoarse voice right after chemo
My voice always gets hoarse when I have an infusion for about 2-3 days after chemo. Anyone else experience this afterwards? Thanks, Patti
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I'm about to panic!
Well, two years out from diagnosis and i haven't had a colonscopy since. My oncologist said i'd better get one immediately because this was the time people had their recurrences. I've been having so many bathroom related problems since the takedown in May, i figured it was due to being constipated, and a stricture. As a…
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Update on Donna's Surgery
The surgery worked and donna is feeling much better. They had to remove some scar tissue that was causing the blockage. Now they are just waiting for her to "poop" and then she can go home. She said she should be home with in the week. That that is great news. She said to say thank you for all the prayers and good energy…
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Any update on Donna?
Anyone know anything about Donna? I wrote her a letter, but from here it takes minimum of 7 days to reach her. I hope she is doing better and better day by day! I sooo want to hear from her, and it would be awesome to see her reappear on this forum and leave a note. Well, I hope everybody is hanging on the best they can!…
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c-dff colitis
Hi everyone, I posted a message to pamysue in the semi-colon update post. Sorry, I meant to send it to her and it wound up there.
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6 weeks straight chemo
Where's that guy that posted recently about getting chemo for 4-6 weeks nonstop of folfox (i don't remember the exact time frame). How are things going, did it work? how were your side effects?
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How Long..........
Can anyone one on Folfox 6,during their first round,tell me what is the average amount of time to go without being able to eat? My husband still after DC on Thuresday si not able to eat more than a bite or two of food a day.
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surgery update
Here I had my laptop with me at Mayo and so grateful they have a good and easy connection. And then the dang laptop went out on me the night before!! So much for good planning, eh? The surgery went really well. Hernia repair at the old colostomy site. Some very strange things though that ended up making me feel more normal…
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abdominal tenderness
HI EVERYONE, HOPE EVERYONE IS DOING OK.. I have a question. I had my resection and ileostomy 7 wks ago and my abdomen is still very tender. Has anyone else experience this. I thought I would be fully recovered by now.. Thanks.
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surprise finding
I saw my oncologist wednesday just for a checkup and he also went over the results of my Cat scan that was done on July 6th. Everything looked good and normal but he mentioned that my heart was enlarged. This surprised me because I've never ever had any problems or symptoms. He didn't mention that I needed any testing or…
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Avastin/booster shots
My dad has had three 46 hour rounds of chemo(5FU), then this last one was 54 hours. He had a platelet booster shot and a shot of neulasta. This was the first time he has had the platelet shot but he has had neulasta twice before. He has never been this ran down and it has been a week. He is not getting out of bed at all…
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Pain in abdomen after liver resection
I have an ultrasound scheduled this morning and wondering if I can have a cup of coffee, anyone know? Dr office is closed right now.
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rounds of chemo????
Well we had our visit with the cancer center - had our first real talk about chemo...as you have all experienced it has freaking scared us out of our minds - the final say will come with the surgery after they do the tests but for now they think it might be at least one round - so I was thinking ok 6-8 weeks not bad - then…
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Friday Riddle
NO GOOGLING OR SEARCHING THE INTERNET ALLOWED :) RIDDLE:If a man can walk 2 miles per hour, and needs nine hours of sleep each day, what is the fastest he could travel the 3000 miles from New York to Los Angeles?
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CAPE-OX Chemo in my future
At today's visit to my Oncologist yht new plan is CAPE-OX for six months following my recent surgery to remove the lesion on my liver. This the Capecetibine taken orally for 14 days, seven days rest and Oxiliplatin every 21 days, resuming another 14 days of oral chemo. Anybody have experience with this one?
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Another stage IV survivor
Hi all: Diagnosed in May 2005, with 4 mets to the liver. Surgery July 2005, resected colon and liver. 10 months of folfox through a port, alternated every third week with hepatic pump infusions. Left with a few scars and neuropathty in the feet, but NED, and feeling stronger than ever. Doing everything I did before, and…
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Two types of cancer.
I was just diagnosed with two types of cancer. I've been told that it is very rare that one person would have two types of cancer. I'd rather not have any but, here we are. I was diagnosed through a colonoscopy and was sent to a colorectal surgeon. He in turn sent me to a Radiologist, but I'm getting ahead of myself. My…
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More info
Stage IIa T3N0M0. Meeting with radiation onc tomorrow and the med onc on Monday. Looks as if we will be doing radiation and chemo before surgery. Don't know alot just yet as far as how often and how long but will post again.
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What kind of food do you eat when you have anemia?
Hello everybody,we just came back from oncologist,from last blood test,it shows my hubby has anemia because it's the 4th week of 6 at 5-fu,I guess this is a normal reaction to the chemo.So I would like to know what kind of food you eat to help with boosting up your blood cell counts.Thank you very much.Any suggestions…
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Meeting New Onc
Yesterday I met my new Onc. He first began by telling me how both himself and his partner had been with the same group of Onc that I began with but left due to the fact they did not like the way patients were being treated, not that the treatment for cancer was not current and appropriate, but for patient management, the…
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Possible New Health Care Plan
Is anyone afraid of losing their health care because of this. That's all I dreamt of last night because they said that over 11 million people with employer paid health care could lose their health care within the next couple months and have to sign up for this government health care. I will be screwed. No government is…
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chemo day 2 and 3 need help
Well,I can say all started out really well on the first day of chemo. Sean was hungry and ate some,however day two and the start of day three aren't not going as well. We have been dripping 5FU since about 12:30 Tuesday and by the end of day one going into day two thing have went down hill. He can no longer eat and…
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How high can cea levels go?
Can anyone tell me how high the cea levels can go. I have seen where some posts say they are in the 6000 range is that possible? just trying to understand the ranges ant find it on the net. Thanks, Patti
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4 chemo sessions and then PET scan... what to expect???
I am not having my 4th treatment for 2 more weeks but I was just wondering in that short amount of time will I see any changes or is that too soon to hope for something??? Just wondering if ya'll had seen any progress in that amount of time. Jennie
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lip sores
Hi everyone Just when we thought he wouldn't get them he did. John has two large sores on the inside of his lip. The papers we have say to keep your mouth clean (duh) and salt mixed with soda in water. Does anyone have other suggestions? I will call the Doc in the morning. Damn Chemo!! Paula G.
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#10 coming up Monday, with changes
I am getting ready for #10 on Monday, I had the oxy cut back 25% on #9, but the side effects have not eased up. My hands and feet are still numb. The first 7 treatments it only lasted a few days, but since # 8 it has been constant. The Dr and i discussed it last time when he cut the dosage. If it didn't go away, we would…