Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Colorectal Cancer

Archives for June 2009

Shayenne
Just checking in with you, havent heard from you in a while, how ya doing hon? How are the kids doing? I almost called you the other day, it was a really bad crying day for me and I knew you had just gotten off your chemo and didnt want to be so negative. This waiting feels like its killing me, and here I will find I…
PHiLLieg
How long you been playing the guitar? I used to play around with them but never got the hang of it. My dad plays the bass, I tended to lean toward the Sax. But havent played in a while. I can see where it brings you alot of joy and relaxation. Beth
Juicing recipes??
I need some help from fellow juicers. I want to start juicing more, but especially during my chemo weeks, the thought of fresh juice nauseates me and speeds up the diarreah (sp?). Does anyone have any good recipes that they use that are mild for starters? My goal is during the rest of chemo to juice 2 times a day, then…
lost my dad to cancer
I've always turned to this board for support. Today is no different. Just buried my dad 2 days ago - cancer. Not sure if it truly was lung cancer or prostate cancer that spread. doesn't quite matter now. He fought so hard but between doctor screw ups and weakened system he just oculdn't win the battle. I just had my 1 year…
Sleep
Does anyone have trouble sleeping? I try to go to bed around 10:00 p.m., but sometimes I don't fall asleep until 2:00 a.m. then wake up at 6:15 when my husband gets up for work. I've tried Ambien, Ambien CR and Lunesta. Nothing seems to work. Now this only happens the week I'm off chemo. The week I have chemo (I have it on…
I did it...I am done with chemo!!!
Today was my last chemo bolus and infusion. Yippee! I just hope it all takes. The nurses and techs sang and danced, presented me with a special cup and hugs all around. I couldn't drink, so they gave me champagne stickers! I gave them all special fused glass earrings. No dry eyes in the place. Even the other patients…
im 43, new and scared
I got diagnosed 2 weeks before this past Christmas. I was called an stage III "High risk". In Jan I was given a cloststomy and then went through 6 weeks of oral Chemo and radiation. the mass was what they called a low hanger, it didn't show up anywhere else but down there. After my 6 weeks i went into the hosp for tumor…
Friday Riddle
NO GOOGLING ON THE INTERNET FOR THE ANSWERS RIDDLE: A man walks into a bar and asks for a glass of water. The bartender pulls out a shotgun and points it at him. The man says, thank you and leaves.
Peristent nausea after surgery
Hi, Has anyone suffered with persistent nausea after colon resection? The doctor said my husband's surgery went well (removed approx 8" of sigmoid colon). He was very well after surgery for a few days. Then they removed the epidural and cath and he started vomiting everything. He would have a good day and would take in…
Good Morning ALL
Its about 3am here in AZ, slept pretty much all day so I am now up and about. Had a rough day today. Only a few days until my PET scan and I was feeling sorry for myself, wondering what in the heck I am going to do it the scan lites up something. I don't get to see my ONC until the 30th so I have to wait for 8 days, I…
2" met tumor in lungs...... need suggestions
I cannot find a doctor who will administer any type of radiation to the spot in my lung. I have several tumors spread across both lungs but I HAVE to get this one taken care of. I have the 4 in my liver too and the biggest one is right on a vessel. I did just start chemo for the 1st time ever on wednesday so maybe that…
Want to say Hi to everyone and share little of my story
After two years and four months, i finally decided to join a network where i can talk to people im related to, to share my story and to learn from them. I can tell you that i wish i had done it long before because by reading some of the posts i got good insight and they really encouraged me to fight, specially when i read…
Post surgery
When did you start to feel normal after surgery. No discomfort, doing everyday normal activities. etc...
post surgery pain.
Hi, I had a resection and temp ileostomy 2 weeks ago. When I move a certain way I get a sharp pain that is so painful, but only lasts until I change position, I am thinking it may be the abdominal muscle healing, anyone else have this? thanks.
scan results not good darnnit - hello california??
Hi All, I posted a few days ago regarding my upcoming PET scan. Got the results today. Not the news I was hoping for, unfortunately. I have another tiny met in my lung. This is my fourth recurrence -- I seem to be in this odd pattern where I get a solitary lung met every 2 years or so. Unfortunately, the time window is…
First Chemo today!
Hello all, I went in to see Onc. at 9:00 and then to the hospital for treatment. Boy was it a long day, the computers were down, they had to wait on orders to be faxed instead of being sent via computer. I just happen to ask the nurse about Avastan, don't know why I did and she said oh the Dr. marked that out, We said…
Help- Advice
Hi Everyone, Unfortunately, I am back to ask a question for my dad. He is a colorectal and bladder cancer survivor, but the beast seems to have reared its ugly head again. He just had a PET/CT and the findings were this: Mural thickening in the hepatic flexure ( ascending colon area ). The ascending colon is collapsed.…
Mouth and Throat Sores
I'm new to this forum. Was diagnosed with rectal cancer in 2008. I had the whole removal operation and started chemo in February 2009. I had my 8th chemo treatment last week and developed sores. Has anyone else had this problem and if so what was prescribed, if anything? I see my doctor tomorrow. I was also curious if…
FYI: Embedding images in posts
I don't know if anyone noticed this other than KatUSA and myself, but we are no longer able to embed images in our posts. I asked the powers that be about it and they gave their reasons for this which made sense to me. Actually, we were never allowed to post them but a glitch made it possible for a short period of time. We…
The gears are turning
Met with the oncologist today. I will have 3 rounds of folfox with avastin. 3-4 weeks later I will have VATS on my lungs and probable microwave ablation on my liver, I will then resume folfox with avastin for 3 rounds and then alternate folfiri and folfox for an additional 4-6 rounds, I will take 5 weeks off and have liver…
Made it to Holland...3 month's rest is on the calendar!
We arrived in Holland yesterday afternoon. Before we left, we set up Skype (internet conference calling with video) on all the kid's computers. We 'talked' with both Hans' son and my daughter after we arrived home in Zwolle. The flight was quite interesting. We reached LAX, and asked for any upgrades. The gal at the desk…
New start
I guess I'm about the same place I was when I started last year. I first thought I was in a worse place, but in retrospect, I do have some advantages over last year. Last years prognosis was that I just had a few months. I had little hope for surgery and I didn't know if chemo would work. This time around, I know Folfox…
Half way through 2nd round of Chemo
This 2nd round has been a nightmare. I went in Tuesday for my 2 hour infusion of Oxi and right after it ended I had a bad reaction. They gave me more anti-nausea meds, steroid, benedril, nothing worked. I went back Wednesday and got more fluids, anti-nausea and hooked up to my pump for 5FU. THIS SUCKS!!! I said it before,…
Here I am again doing late night searches on the web
Deja vu! I think I was doing a bunch of this late night searching last year about this time. Once again I've been both encouraged and discouraged by what I find. Results of failed clinical trials, promising new treatments, stories of renewed life and death are abound. Oh what fun. I did stumble upon on promising little…
First Chemo day was Crappie !!!!! Messed up port!!
Hey amigos! I spent all night last night with an ice pack on my port because I was in such pain. They had told me before I had left the hospital that I wouldn't be needing anything for pain..... NOT! M.D.Anderson did not have an available doctor to do the procedure so they had to send me across the street to St. Luke's to…
Farah facett??
Anyone heard how she is doing I try to look online but don't find anything
Husband just dx with Stage IV with liver mestases
Hi, On May 22 my husband had a CT for what his doc thought was diverticulitis. Long story short - perforated colon with spots on liver. He was admitted to hospital, biopsied and was told he has Stage IV colon cancer with over 11 spots on his liver scattered throughout. We are devastated. He hadn't even missed more than a…
Pet scan results pt 2
Well. I'm still smiling but it's bad news. I have 10 new tumors. 4 in my left lung, one in my right. Plus 5 in my liver. The results seemed puzzling since my last CT scan in April showed only one possibly tiny spot in each lung. I start chemo on monday. I would have had my Thyroid and lung tumors taken out at the end of…
Chemo Party
I am having a chemo party today. I love the smell of chemo in the morning! Head swimming from benadryl. Drowsy from anti naseau medication. Woke up early to get blood sucked from me and poison pumped through my veins. I get to go home with Jr. attached to me like a toxic parasite. A few days after the party I will have a…
calling all stage 4 with mets to liver, start chemo tomorrow need positive feedback
Start first chemo treatment tomorrow, so scared....stage 4 mets to liver, colon resection on the 14 of May. Need some positive feedback that I can fight this and become NED Please!!!

Colorectal Cancer

Discussion List