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good news for me [i guess]
well,just got #8 down and will be unhooked tomarrow.i had posted a thread not too long ago about 10 treatments vs 12.i talked to my onc yesterday and wanted to know what the word sufficient ment when she said 10 would be sufficient.she said the drug company that makes the oxy and 5fu which i am on did a study and they…
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How do you know when your last treatment will be?
My onc doctor won't give me a time line for how long I'll have to go through chemo. He told my husband, without me being in the room, that he's counting on this going on for two or three more years. I don't know if I can go through that. How many of you were given a specific number of treatments you would go through?…
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Dentist
Anybody else have their onc doctor tell them not to go to the dentist? It has been a year since my teeth were cleaned and I really feel I should keep on with my dental hygiene. I still floss even though it makes my gums bleed sometimes. Thanks, Debbie
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Scan tomorrow - trying 2B calm and positive!
I have a checkup PET scan tomorrow. I am trying to stay calm and positive but gee it ain't easy. Aside from the discomfort of the scan itself (I know I know -- all you have to do is lie there! But you know what I mean -- the needle, the hospital, the arms-above-head-till-they-cramp....),it is hard to be positive about…
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expectations
Ive been helping take care of my dad who has stage 4 colon cancer(spread into his liver and lungs) and he had colon surgery which resulted in having a colostomy done....he decided not to have any chemotherapy treatment and wants just to have enough pain meds to keep him comfortable for as long as he has...i've been told by…
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Onc Visit and Hernia Surgery
Hi All... I had a good visit with the oncologist who said "I have nothing bad at all to tell you!!" CEA low as ever, CT Scan of liver clear, Chest x-ray good. Everything looking good! This is 2 years post liver recurrence/RFA/Chemo. Yeah!! So tomorrow it is off to the hospital for an "incisional hernia" repair. I've had a…
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very scared
Hi, I was told today that my colon was going to have to be removed, The Dr's told me that because last year I had a resection for 2 tumers and the cancer is already back in 2 more places that I should have this done. They told me that they were going to make me a new colon with my small intestine and I would have to have a…
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Good news test results
Hi everybody. Just thought I'd pass along, got my MRI test results today, all good, the spot on liver has not changed, and is believed to be benign or blood cell cluster, and thickening in colon has resolved, was believed to be spasm or parastalysis. No change in the liver lesion in four months, sounds great to me. 5 years…
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Got Port today..... start chemo tomorrow
wow.... finally. I had my surgery over 8 weeks ago and I finally am getting my first shot of chemo tomorrow. Waiting has created more nodules but it was my choice to wait for this second opinion. I got the port put in today and I just told them what a big wus sissy I am and they loaded me up with pain killer stuff in my…
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PET scan results
My surgeon has a terrible habit of calling me the day of my PET scan if something ugly has popped up. I had it yesterday morning and he didn't call, my appointment is tomorrow. So maybe things are looking up. I'll know tomorrow afternoon.
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What is the norm on scans
My husband has had 7 treatments of FOLFOX + Avastin. His Onc. does an exam before every treatment and can tell that the liver has gone down in size. He has Mets to the lungs and a spot on one of his adrenial glands. The doc says they will wait a month after his 12th treatment and do a scan. Do others have scans more often?…
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caregiver question
Does anyone know of a "Caregiver" site? I would like to get everything in place for my wife as my time for departing seems to be nearing. I'm still up and about but MD says it's tme for hospice intervention and I have a few of the tell tale signs. "Good News" is,I know where I'm going...have a place bought and paid for on…
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i am scared
i found out on Christmas eve 2008 I have stage 4 colon cancer. I was 47. it was found because I had low blood. part of my colon was removed but i had a small spot on my liver that th dr could not get to. i did 5 rounds of chemo and then was sent to a liver speacalist and he removed the small part of my liver where the spot…
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VIT D
ANy thoughts on taking Vit D, I have heard that it really helps with your immune system, energy and moods. I watched an infomercial about it and heard a doc talking about it on a radio show, how so many people are have low Vit D levels. My Partner also said that Fish oil was good for me too. WEll I decided to go ahead and…
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Cost of follow up texts update
I posted the other day about my frustration regarding the cost of follow up tests (ct, colonoscopy) given I have a $7500 deductible on my insurance. I was surprised to find how much the same procedure can very in cost from place to place. My most recent CT in my town in Oregon cost $4700 (after insurance adjustments) but I…
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Round 2 tomorrow...wish me luck!
I go tomorrow for chemo round 2...and I am scared! I made through round 1 okay...I was queasy, TIRED and I had bad stomach cramps. Couldn't eat for 2 days. The issue is I have actually felt good since last Thursday. It has been a long time since I could say that!!! I have been eating and actually driving myself places and…
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So much pain!!
Hi everyone, I had my resection on the 14th of May after having emergency surgery. I went into the ER for stabbing pain in my ribcage. After many test and hours later I was told I had nodules on my liver, and after cononoscopy reavealed colon cancer. I will be having my first chemo on the 18th of June (Thurs) But my issues…
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how long does neuropathy last after last treatment?
Hello folks I currently amd 5 weeks out form my last chemo (5FU, oxali, leukovorin) and have neuropathy on the soles of my feet (pins and needles sensation-no pain or numbness though there are strange sensations). It interferes a bit with balance and flexibility though yoga and foor strengthening and stretching helps the…
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Biopsy Reports just in
GREAT NEWS! The biopsy reports just showed small scarring from the radiation. I am definately NED! Feels great. We expected that this would be the report as did my doctors, but this morning was still a little edgy just waiting to hear for sure. Don't need another colonoscopy for three years so long as I stay symptom free!!…
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Started my LAST Round today
I drove myself today and had a nice chat with the Dr, then the first of my 5 treatments this week. Drove home and now I can feel the tiredness settling in. But I took my Emend and so far, no nausea. I have been in tears for two days now, and couldn't figure it out. The Dr said it's natural...big changes are coming. It's…
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Friday Riddle Answer
Between PGLGreg and phillieg they got the correct answer together. RIDDLE: What has 5(sometimes 4) hands but is normal ANSWER: A person wearing a non-digital watch - an average person has 2 hands + a minute hand on the watch + an hour hand and sometimes a second hand.
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scared, friend has colon stage 4
One of my best friends was just told she has Stage 4 Colon Cancer. Surgery removed most, but not what has spread to other organs...liver, etc. 2 weeks ago she was a healthy, 38 year old mommy! How does this happen? Internet says it is only an 8% five year survival rate. How do you actually grasp that in your head?? How do…
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Avastin in Ontario, Canada
I saw this on another message board I frequent. If you are in Ontario this is really important! Time to be an advocate! LN posted: Ontario Ombudsman Andre Marin has launched an investigation into the provincial Ministry of Health and Long-Term Care's funding of Avastin, a drug for colon cancer patients. The province's…
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Rectal Cancer
Hello Everyone I'm very new here. I would just like to get in touch with people who have had a permanent Colostomy. I'm a married 49 year old woman. I was told that I must have one now. To be performed in early July. I am so terrifed about this whole operation. I have no idea what to expect or what to do. Although I will…
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feeling premenstral
I was told that I would most likely not have my period ever again due to the radiation I received for stage 3 colon cancer. It has been 2 years and I'm having cramps and feeling like my period could start up again. I'm also feeling like I have PMS again. Has this happened to any of you ladies?
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liver regrowth after resection
I had a liver resection just over a year ago. I had read so many articles about how the liver grows back after having a liver resection & have heard people on this board talk about how theirs was growing back too. Interestly, when I asked my liver surgeon if he could see any liver regrowth on my CT scan, he said "not much,…
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Good Morning All
Just wanted to say Good Morning and I hope all are well and that everyone is going to have a GREAT DAY! The birds are singing and the sun is shining (here in AZ anyway). I hope that each one of us gets a chance to smile or laugh today! That is my wish for all today!! God Bless Beth
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Surgery Weds me: "The Unique One"
Greetings, this is Amy aka Slammer, so the news is kind of sudden but I am having surgery this Weds after something found on routine CT & confirmed on PET scan, Man have they been rushing me thru this so I am alittle scared but the surgeon is awesome and has got a team of extra to be there. Still have no specific idea…
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Chemo Pump
My hubbie will be getting hooked up to his chemo pump soon and we were wondering what the guys out there use to carry it around. The nurse told us to use a "fanny pack" which I just can't see him using! I looked on some medical supply websites but didn't see anything. What do you all use? Our clinic went from a 1 lb pump…
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Tylonel or ibuprofin??
Question....I pulled a muscle lifting groceries today right where my liver resection starts. I can't remember if there is any restrictions on pain relief when you are on chemo? I take Folfox plus Avastin every other week. When in doubt I usually take Tylonel but I think ibuprofin is better for pulled muscles. Just…