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Still doing good
I have had such a time lately trying to get here to post. It's not for lack of trying , but well things are a bit hectic right now with my work and I've had a multitude of computer issues. Bob, my hubbyk is still doing very well, (thanks to God) Had "emergency" surgery 2 weeks ago to remove the port and dislodge the piece…
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Will Be Out Of Touch
I will be out of touch and on vacation from 14 - 21 June, but will think of my family here every day as I do now. It is hard to explain, but sometimes I still find it hard to believe that I am NED. It still goes through my mind everyday, I still think every medical appt is going to be bad news, but I do enjoy life and take…
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Chemo almost intolerable!
I've been laxing on my internet participation these last few weeks since my chemo experience has been worsening. I know it's probably expected, but my side effects are almost unbearable. The treatments were going okay, i had the typical uncomfortable neuropathy and fatigue, but after my fifth full dose, i was at the point…
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Appt. went well!
Hi, I wrote earlier in the week about the results of my husband's CT scan and wondered why things were mentioned this time and never in the previous 2 CT scans. Well anyway the doc said each radiologist reads them different and this one did a great job! He told us he has actually had ones come back with findings of "no…
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Sleeping pills
I've been taking Ambien CR for a long time and have tried to stop. The withdrawal is terrible and I'm not sure I can do it. I'm awake and having night sweats and muscle aches. Has anyone else experienced this and lived to tell about it? Jo Ann
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another treatment held
Well I went today for chemo and for the second time they held it for another week. I am still having terrible time with diarrhea and they said I am losing too much weight. I have a CT scan scheduled for tomorrow. My Gastroenterologist thinks I may have an ulcer. My stool has been black for the last week so she thinks I may…
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Xeloda (or just chemo in general)
Is it possible to shrink the tumor on ONE organ while the chmo does nothing for another?! Just wondering because: Normaly a CT scan is done after a couple of treatments - but because my father had his hemoroids removed a months ago the surgeon had a look at the state of the colon tumor. (There is only a residual growth…
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Couple of ?s before 1st chemo
I start chemo on Thursday and keep thinking of things I didn't ask my Dr on the phone. It can take days to get a return call from them and I seem to find better information here, so hoping someone can help me. 1. My appt is at 1:00pm. Is it ok to eat that day? He didn't say anything about fasting or clear liquids, but are…
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tumor on liver
Hi everyone, My husband was diagnosed with stage 3 rectal cancer 2 years ago, had rectum removed and chemo and radiation which ended 1 year ago. Now, after a PET scan, he has a 4 cm tumor on his liver that "surrounds and appears to encase and compress the middle and left hepatic veins near the IVC." Anyone know what IVC…
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Fluorouracil & long term sensitivity to sun?
I stopped 5FU chemo over 3 years ago and noticed I am much more sensitive to the sun than before chemo and cancer. I know there is short term sensitivity during chemo and for a few months thereafter, but I couldn't find any information about long term sun sensitivity resulting from flurouracil. Has anyone noticed the same?
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all right - so far so good
As some of you might know: my father was diagnosed with stage 4 colon in August. By November he found himself in ICU due to "study drug" and blood poisening that resulted ... At this point he is doing much better ... BUT we are struggeling to get him to put on the 40 lbs he lost while in hospital. ... not that he is an…
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Question about CT scan results
Hi all, Have a question about my husbands latest CT scan. It's been a 1 year since his last scan which resulted in surgery to see about a spot that lit up on the PET scan. It was nothing. Anyways, this scan says: there is a small 11mm enhancing lesion within the posterior segment of the right lobe of the liver. This is…
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New clinical trial
I know this is a long way off but I keep hoping that researchers will work to find new ways to attck this disease: A biotech company, founded by researchers from the University of Munich, has developed a fascinating way to make the immune system fight cancer. On Thursday, Micromet Inc. announced that its experimental drug,…
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Friday Riddle / Teaser - ANSWER
RIDDLE: Hello there! I am a living animal. You may not see me with your eyes, But though I'm very, very small, I'm a tough nut for my size. I do not fear the arid desert, Nor the frigid cold and snow. I can rest comfortably in the mountains high Or in the ocean far below. You may find me in the cold of space Or by a…
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miserable
Ok everyone (esp Stacy and Ron)...I responded to their(your) posts and when I re-read..they sounded really harsh and were not meant to be...it has been a long road since Peter died on November 25 and I am facing my daughter's graduation and son finshing University,,,and it just makes me realize how alone I am...my son is…
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It's been awhile
Hello everyone, It's been awhile since I have posted, but I read your posts every day and keep you all in my prayers. There are so many newbies on here!!! Just want to introduce myself to those of you who don't know me. My name is Lee. My dad was diagnosed with colon cancer 2 1/2 years ago. He was first stage III, then a…
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Treatment starts on June 16th...Clinical Trial
Hello everyone. It's been a rough two weeks since I've been diagnosed...the roller coaster of emotions and all the trips to the hospital for tests and appointments have been really draining, both physically and emotionally. But my husband and I are plodding through. The doctors have not given me a stage for my cancer, but…
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small bowel kink
Help! I've been hospitalized several times since my November resection for Stage 1 colon cancer. It was originally thought that my pain and distress was coming from "backing up" quite a bit. I've been on a heavy regimen of Miralax and Benefiber. The problem persists. I just spent another couple of days in the hospital with…
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Successful lung resection.
Thank you for all of your prayers, I had my surgery on 6/4/08 and came home this morning, 6/7/08. The surgeon had good margins and things went well, now I have to recuperate. Thanks and hugs to all. Audrey
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Chat option
Hello I have seen posts from people about the chat on this site. I have a temporary solution while this site gets theirs up and running again. I have been looking for a way that would be user friendly but also secure. Google talk I think will allow for this. Group chats can happen through contact lists. You have to be…
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CEA level after resection
My mom had stage 3 rectal cancer and underwent a low anterior resection at the end of April after 6 weeks of chemo and radiation. At diagnosis her CEA level was 20. Her latest labs show the CEA level to be 3.0 - a bit above normal. She needs to wait another couple of weeks before she can start chemo (Folfox) since her…
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Friday Riddle / Teaser
I think I found one that will actually be hard :) RIDDLE: Hello there! I am a living animal. You may not see me with your eyes, But though I'm very, very small, I'm a tough nut for my size. I do not fear the arid desert, Nor the frigid cold and snow. I can rest comfortably in the mountains high Or in the ocean far below.…
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Should I be offended?
Ok, so I'm not sure if I should be offended or not, but here's the story..... I went for my usual 6 month check up (recap: stage 4 with liver mets, diagnosed Oct 2001, all clear since my surgery in Jan. 2002) with my oncologist. My original oncologist just retired, and this was my first appt with her replacement. She…
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Blindsided
Ive always known that cancer didn't get me. And I was right I've survived stage 3 cc for over ten yrs. I always wonderred what would get me. Now I know. My doc found some protein in a routine urine test last month. Thought he would do a twenty four hour protein urine test where they check how much protein your kidneys leak…
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Bowel movements with an ileostomy
OK, this may be a bit gross, but I'm pretty sure everyone on this board has been through some pretty gross stuff. I am 4 weeks post surgery - lower anterior bowel resection. Waiting to start chemo. Last Saturday, my lower (I thought disconnected) bowel started rumbling and I was passing air, gas or something. Nurse at the…
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upcoming surgery
Hi everyone, I've been pretty busy lately running around from doctor to doctor getting second opinions, it is so easy to start second guessing everything you do. I've finally decided that my first choice for surgeon is the best and I have my scope this monday and then surgery on tuesday. He is doing a LAR…
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CPT 11 Vs 5 fu
My wife was getting fluorouracil 4oomg plus a 1200mg bottle infusion over 2 days, bevacizumeb 5mg and leucovorin 400mg. The last two treatments she developed mouth sores. The last treatment they elemionated leucovorin and reduced flourouracil to the 1200 mg bottle over 2 days and still sores. Actually the last episode was…
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Oasis of Hope--great place!!
hello Semi-colons! I received this this morning and am passing it on per her request: Hi again! I have been trying over and over again to post a reply concerning Oasis, and I don't know if it's my computer, or the Mexican server, or a problem with CSN. I tried to even email it to the two people that asked about Oasis, and…
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Need Advice
My husband had a pet scan may 21st. He was scheduled the following week May 28th for the results. The doctors office called and cancelled the appointment on the 28th the doctor was out of town. So I finally called on Tuesday the secretary said he didn't like to give results over the phone so I had to make an appointment…
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having colon problems
Hi: It has been a couple of years, since I have posted on this site,was diagnosed with colon cancer 1st stage 2 years ago in may. Had an operation and they go it all, no chemo needed. had a hysterectomy in April of this past year, the anesteologist told me that I should have had some radiation on my colon. I have been…