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Question...
Hi everyone. Just have a question. After my dad had his surgery two years ago,his bowel movements haven't been the same. He gets constipated more often than before. Over the past few months, it seemed as if his bowel movements were regulated again. Now, he told me that he has been constipated for a couple weeks. I am…
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5 years
It's been 5 years since I was diagnosed with rectal cancer (stage III). I wish I could say I am 5 years NED and "cured". That is not the case. I have had two recurrences (both solitary mets in the lung -- treated with surgery followed by chemo). However, I am NED TODAY -- and have been since my last surgery a year ago. I'm…
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genetics
Check this out! Fascinating. I wonder if I have this gene?? http://www.fightcolorectalcancer.org/news/2008/01/colon_cancer_gene_traced_a_sin.php Sorry, I don't know how to add a hyperlink to this site, so you'll have to cut and paste. -Susan
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I have a question
I have been Ned probably since surgery July 2006,and my last scans tests etc.were done in September 2007, I have my next follow up appt. next Tuesday,I think the Dr. told me that this time was going to be only bloodwork,I am stage 3a and 1 and a half year from surgery,my question is what is the the average protocol as far…
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2 Different opinons on CT scans
I am so confused. My last 2 ct scans are being read completely different by 2 different places. My local radiologist says I have one liver tumor. When we sent the scans to Mayo, they say there are multiple lesions on my liver. We know there were multiple tumors in the beginning. Anyone have this happen? I am stageIV, have…
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Prayer request for Young Survivor
I am requesting your prayers for an acquaintence from church. She is 38 years old and was diagnosed the end of August with stage 4 CC with liver mets when her baby was 3 months old. She began exhibiting symptoms while pregnant, but they wouldn't do anything until after the birth. Of course, because of her age they weren't…
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Help!!! Doctor is not
Hi there, My dad is stage iv with mets to the bones. He has not been able to get chemo for two months because he was having severe reactions to the premeds. Has anyone had this experience? I took him for a second opinion and the doctor seem to think there were things that could still be done. Unfortunately, the second…
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Exercise Question
I had my surgery November 14th, which included an ileostomy and am now going through chemo. My question is exercise related. I am 44, female and prior to surgery exercised at the YMCA 3-5 days a week. Nothing extreme, just water aerobics, stationary bike/elipctical and some basic weight lifting routines. Not all on the…
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me again thanks for prayers
Hi, Thanks so much for the prayers and hugs sent my way. The ultrasound showed two lumps in my breast that I will have biopsed on Jan. 25th. I really feel like this is going to be okay. You all are great. Robin
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GOOD NEWS
I went to the onc today and my CEA is down to 3.5 I asked if that made me NED. He said yes my PET and CT scan showed nothing so I'm NED. I'm very happy and I thanked the good Lord for my being NED today!
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Prayer request
Hi All, I went for a routine mammogram Friday and they called yesterday and told me that there was a change from my last mammogram. I tell you when you have had this disease something like that can really upset your world. I go today for an ultrasound. Please send positive thoughts and prayers to me. It would be greatly…
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Just whining
I had my yearly physical today heart, kidneys, liver, lungs, prostate, thyroid, blood pressure chorestrol, etc all good or better than good. Still NED from the colon cancer. Then the doc looks at my face and says that little red pin prick on your face is likely Basal cell carcinoma. So I get to see another doctor with a…
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3rd time around way to difficult
Started folfox again...waiting on insurance to approve Avastin..can u believe that ? They said that because is not proven to work/or not to work...insurance sometimes give us a hard time....anyways...I kind of forgot how tired I used to feel 3 years ago....my skin is sooooo dry that it's breaking out...but I am still…
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Downstaging liver mets
Is there anyone out there on chemo to shrink tumours in their liver to possibly have a resection? My husband (stage 4) has been told this may be a possibility for him and he is on CPT-11 and Avastin.
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I'm back from long break
Hi Everyone! Sorry that I was away for such a long time for those I know. Hello to all the new people. I have missed everyone that I have met on this board but I was trying to get myself together. For those that are new, I'm a stage 3 colon cancer survivor as of Dec. 19th 2007. Yeah me! 9 out of 12 rounds of chemo. Still a…
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Newbie from the Northwest
I've recently been diagnosed with stage 3 colo-rectal cancer. The cancer was through the colon wall (right where the colon/rectum meet) and had infected around 20 lymph nodes. All tests show that the cancer hasn't spread, but then they also said the lymph nodes weren't affected. Yeah right. Had surgery November 14th. My…
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End of Life symptoms
Can anyone tell me what are some of the "end of life" symptoms? Not sure what I should be looking out for in my husband, who's been battling this for 2.5 years, and seems to be deteriorating.
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New Update on mom
well mom has been home from hospital since a few days before Xmas, she mainly just lies in her bed, and gets up for washroom only, she is drinking water with electrolytes in it and they gave her antibiotics to take twice a day and potassium pills twice a day, she also has a patch on for pain and takes pain break through…
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Insurance Help
Hi All, Through my job I have become aware of a resource for cancer survivors. The Cancer Legal Resource Center is a non profit organization that helps people with legal issues related to cancer such as trouble with insurance companies. The toll free hotline number is 1-866-THE-CLRC or 1-866-843-2572. Their website is…
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Xeloda and Humana
Hi all and Happy New Year. I am beside myself as I just found out that Humana has changed the classification of Xeloda from a Class 2 to Class 4. This means that my co-pay for one cycle has gone from $35 to $450!!! What I don't get is that they did not notify me or my onc when I began treatment about 3 weeks ago. The…
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anal fissure
anyone with experience? I am waiting to see the surgeon and am in tremendous pain. Finished up chemo. in oct after rectal resection and reversal last may. any input would be great, as I am stressed!!!
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gendicine
does anyone know anything about this stuff in china.? chrisdee
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Oxaliplatin meltdown
Ok, I'm really struggling with the chemo drug Oxaliplatin. It didn't seem to bother me much the first time around but I guess it has a cumualitive effect and now I have so many awful symptoms I can barely tolerate it. I'm seriously thinking of telling my oncologist no more! I s there anyone else out there that has made the…
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Not good news
Hi all, First off I would like to Wish everyone the best in 2008. My hubby was dx in Jan 2006 stage 4 colon cancer, 2 surgeries later, and an illostomy, 9 rounds of chemo, we thought we had it beat. But alas the beast has returned. It is now on his bladder, now I do not recall anyone having it show up there. We have…
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Update
History: DX in July 06 with Stage II (NO/MO) colon cancer. Finished chemo in 11/06. Latest CT Scan was done on 27 Dec 07 and I am still NED!!!! :) . Bloodwork is good also. I also had a biospy of my cervic because of mother nature hanging around for more than 7 - 10 days and that also came back clear. That procedure was…
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Grace of a New Year
Happy, Healthy New Year to you all! I wished my husband a happy new year, and being the pessimist that he is, he just said, "So what? We'll just be doing the same things we did last year." Well, I just had to say something there. I told him, "I'm here to be doing the same things I did last year, and if that's not a…
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colostomy...yes or no
On Oct.24 I had Lower Anterior Resection surgery. I had done little research and had no background on the subject matter.I was told by my surgeon that I may have enough of my rectum left to avoid having a colostomy. Hearing this my mind was made up that if this was possible that this would be the obvious choice.Now however…
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Still Recovering in 2008
Happy New Year to all of you! May your new year be filled with all good things! My husband was diagnosed with stage IIIb in September 06, had rads, chemo, surgery, followed by another surgery to reverses his ileostomy in June 07.He has done well, but is still having some problems after having his reversal. He still passes…
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High ALP on blood test?
Hi, I am stage III colorectal-had radiation, chemo, surgery, now am halfway through a six month FolFox round. I received a copy of my blood tests, and saw an ALP of 239, the normal range being 50-136. The doctor did not mention it to me. Of course, like a dork I looked up what a high level means on the net, and just got…