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where are these NED ???
Back in Oct. 2005, Kangatoo asked the NED to post a message..It helped me a lot to see so many stage IV survivors....so much that I printed the pages so I could read them again when I was down...some of these names I haven't seen in a while...Have any of you heard from them ? GLV49,Rthorton,Mikew42,joanneire... God bless
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Stage IV, 18 tumors gone..now NED
Dear Friends: I just wanted to send a quick update, hopefully to encourage anyone out there who has been recently diagnosed with Stage IV colorectal cancer. After 18 evil tumors - I'm NED. My CEA is the lowest ever. (less than 1.0) I was diagnosed in May 05. Took chemo and a miracle happened: my rectal tumor completely…
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numb legs/steroids question
Is neuropathy includes having numb legs/feet ? Mine are numb up to the knee. The other day I went to have a pedicure and it was the worst experience of my life...( well, not the worst)My feet are sooooooo sensitive....Also, are any of you getting steroids for nausea...I have gain 50 pounds,but I don't know if is because I…
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treating neuropathy......
Hi all, Just wanted to share some interesting info with all you suffering from neuropathy. I am on my 4th of 8 chemo treatments (folfox and avastin). Have been having neuropathy and major cold sensitivity in my hands since first treatment. Has been getting worse and lasting longer with each treatment. Talked to onc and he…
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Port removal
I have never posted before but visit every day. I was diagnosed as stage 4 in Dec.05....It seems like such a long time ago. HOWEVER....I had my port removed last Thursday and just removed the bandages....I am now beginning my new life....with my new wings I will fly....a bit scared though!!!!!
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I'm a star, round 3.5...hehehe
The reporter came to interview me for the Rancho Cucamonga Relay....went away and wrote this very grand article.... http://www.dailybulletin.com/search/ci_5770694 Talked about the BEST color of ribbon....blue....MY personal favorite... Hugs, Kathi PS...can you say "SPF 30"?????? It's 90 degrees here....even at 9am we tough…
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SURGERY DONE, NED
Hello everyone. Sorry I have not been on the computer. To update you I had my surgery done March 20th to remove the rest of the colon and rectum. In August 2003 I was Dx. with colon cancer ST.4 8/20 lymph nodes positive. I had an illeostomy and the remaining part of the colon still since Aug.2003. I discussed with my DR.…
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Great Article in Paper
This was posted in the Rocky Mountain News today. Fight against cancer turns doctor into patient Diagnosis boosts empathy, idea of quality of life By Bill Scanlon, Rocky Mountain News April 28, 2007 When you treat cancer for a living, and suddenly you get a rare, deadly cancer yourself, well . . . it can change a person.…
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Pet scan results: great news
My onc's office called this afternoon; my PET scan yesterday came in, and the results were "unremarkable." Never thought I'd be happy to be called that. Thank you all for your prayers and support during the past 2 weeks. At nearly 3 years post treatment, to hear my onc say "there were some findings on your CT scan that we…
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Wes Update
I want to thank all the wonderful people in this group. Your warm words of encouragement and advice have really made this situation easier on me and my family. As as update...the 17 polyps that were removed in the second colonoscopy all came back benign but adenomous. The second Gastro also recommended the entire colon…
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newly dx'd
Greetings, have been reading posts and figured it was time to introduce myself. My name is Hank ,live in Windsor Maine-work as a Rn in a psych hosp.- forensics unit.Went for my first colonoscopy and a 2.5 cm tumor was discovered in my ascending colon.Tumor was removed on 03/26/07 lucky for me had not got through the wall…
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Colon Cancer... Now spots on the Liver!!
Hi, I was hoping to get a little input from some of you. My dad (he is 76) was diagnosed with colon cancer Nov. 05 he had about a foot of his colon removed. While in surgery they found out that he was in stage 3 colon cancer so it was had already made it to his lymph nodes. After he finished with surgery he started his…
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How does one cope?
Hi All, My name is, Mary from WI, and although I haven't written to you (my online family) in awhile; I am on here almost everyday reading about how everybody is doing! And I truly hope each and everyone of you is doing well; as well as has a wonderful upcoming weekend, too! ; ) And I guess I've been feeling down lately. I…
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My beloved friend Margo (finner))
I am very sorry to have to let you know that Margo passed away very peacefully on Tuesday morning last in the loving care of the hospice. She was a tremendous inspiration to all who knew her - a firm friend, a loving mother and just a beautiful person. Throughout her battle with this horrible illness, she was courageous,…
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So Calif-NPR shows CRC survivor...
LIVING WITH CANCER What: Colon cancer survivor and NPR commentator Leroy Sievers talks to his good friend Ted Koppel about the unexpected highs and gut-wrenching lows of his ongoing battle with the disease. Where: The Discovery Channel. When: 8 p.m. May 6. In a nutshell: Sievers was diagnosed with colon cancer six years…
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Antioxidant supplementation generally safe during cancer therapy
I take USANA suppliments and just received this article via e-mail. I think someone was asking about suppliments recently. Limey. The January/February and March/April 2007 issues of the journal Alternative Therapies in Health and Medicine published a two-part article which concluded that, contrary to long-held beliefs,…
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For my daughter...I miss her....
I'm Free Don't grieve for me, for now I'm free I'm following the path God laid for me I took his hand when I heard His call I turned my back and left it all. I could not stay another day To laugh, to love, to work, or play Tasks left undone must stay that way I've found that peace at the close of the day. If my parting has…
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Intelligent Therapy
Hi - just wanted to let you all know that I will be travelling to South America to discuss the possiblity of intelligent therapy as an alternative treatment for me. Intelligent therapy works on the premise that each one's DNA profile is different therefore requires individualized treatment. The therapy is also reputed to…
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Sharing my Good News!
Wow, I just got off the phone with my onc nurse who told me the results of my latest scans/blood work! I am still NED and my CEA is LESS THAN 0.5. I am so relieved. I don't know if anyone else feels this way, but I always feel like I am going to have a nervous breakdown waiting for these darn results. Some of you might…
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Verdict is back - no liver mets!
My dear CSN family, For all of you who have provided me with prayers, healthy vibes, kind thoughts and gentle encouragments, I am so happy to tell you that all of your positive thinking worked its magic again. I just found out that suspecious spot on my liver is not a liver metastases, and in all likelihood just a cycst.…
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Whipple procedure?
Can anyone explain this to me i can not find out what it means anywhere? thank you please email me at ladybugg@csn.com
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ALIVE AND KICKIN'...AND RUNNING!
Just wanted to check in and let everyone know that long term survivors are still around and kicking! For those of you who are new...I was diagnosed at 36 years old with stage 3 rectal cancer. After a lot of treatment, surgery, then treatment...I am now more than 8 years into a wonderful new life and am considered cured. It…
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Supplements during Chemo
I wonder what people feel about taking supplements during chemo? Ever since I came out of hospital I have been taking an ever expanding range of supplements - some of them taken on the advice of an oncology nurse turned medical journalist, some I've read or heard about elsewhere. They include: Selenium, Vitamins A, C and…
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Neat Website
http://www.choosehope.com/
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Should Stage II Be Treated?
http://www.nccrt.org/News/NewsDetail.aspx?article_id=544
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New Symbol of Hope For Colon Cancer Cure
http://www.nccrt.org/News/NewsDetail.aspx?article_id=413#ordering This might be a good idea for the upcoming Nashville trip.
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Wine Question
Hi, Does anyone have any info on the negative effects of drinking wine while undergoing chemo? I'm not sure if it has any significant effect on the effectiveness of the chem. Any thoughts? Thanks
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Getting awareness out there
Hi everyone first thank you all for always being there when needed. I am planning on getting the "STAR" logo for colo-rectal cancer tatoo on my lower leg with hopes to make others more aware of this disease. As we know it doesn't yet receive the attention as other diseases which keeps the funding for research down. Not…
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Genetic receptor medicine
Hi - I remember seeing a while ago an article on treating people with cancer according to their genetic makeup and thus eliminating the need for chemo. Can anyone point me in the right direction of where to find that article? I have an opportunity to meet a doctor whose research is based on this premise but I'd like to…
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Had a Scare
Hi all, Over the weekend I had extreme abdominal pain. Went to Urgent Care yesterday morning where they stuck, poked, prodded, and CT scanned me. They were looking to distinguish between kindey stone and blockage of the colon primarily at the site of the enastomosis. Fortunately (I guess) it is a kindey stone. The…