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Caregivers

Archives for November 2010

It has started to grow & spread again
Last Monday we received the news that my husbands Lung cancer has started to grow again. (nsclc with metz to bone & lympth, dx in 4/2010.) We were only told 12 weeks ago he was in partial remission and doing so well. But pain was getting worse, and really started to bother his neck. We find the cancer has popped up in…
20 year old caregivers
Im 20 years old and am a caregiver for my grandfather. He has COPD, emphazema, CHF, and dementia. As a caregiver, how do you deal with the stress that comes with taking care of a loved one? What do you do when it feels overwhelming? Im still really young and I dont know how to deal with all of it.
Off the Sauce
My husband is near the end of treatment for head and neck cancer - it's been a lot worse than we imagined (just about everything that could go wrong, did). About 2 weeks ago, I quit drinking - I have never been a heavy drinker, but the stress was really getting to me. As things got worse, I realized that I couldn't drink…
i'm going to lose my mind....
this is a long story..... in November 2008 my hubby and i both lost our jobs in the same week! in oct 09 we lost our house and had to move in with my dad. we have a 9 yr old son...he was uprooted from everything he had ever known! in april of this year, dad was dx with NSCLC w/ mets to the brain and given a year to live.…
TSA ports and bags
My mother's doctor advised her to take her medical bracelet and card with her to the airport to avid secueiry hassles.
Doctors told us to decide, Quality or Quanity
We have been put into shock by my wifes doctors, told make a choice between quality and quantity of life. Short history, My wife age 51 diagnosed wiht nsclc. Main tumor behind broncia and two secondary tumors in brain, Had brain surgery left front as pressure on brain stem was at critical point. 38 radiation treatments,…
bad news today
We met the oncologist this am for my mom & gave her 3-6 months to live. Lung cancer is now spread to her liver and bones. Mom is taking the news better than I am. She will be 80 years old next week. She has gone through so much in the last 4 years. Never had any chemo. They mentioned that palliative care is best for her…
giving thanks
I am thankful for 4 days of no work, no doctor's appointments, no treatments, nothing but rest and relaxation. I am also thankful for this support community--I hope you all have a wonderful Thanksgiving, however you spend it. Karen
How do I get Caregiver benefits
I live in Indiana and had to move out of my house to take care of my dad. I rented out my house so I still own it. I moved in with my dad when he was diagonosed with colon cancer. I have missed work to take care of him when he is not feeling well. So how do you go about getting caregiver benefits. Thanks Barb
Passing On The Goodwill
Thanksgiving is almost here and like every year I am trying very hard to have a grateful heart. OK... I am trying VERY HARD to fill my heart with GRATEFULNESS. MY list really is long with the things I "should" be grateful for, healthy grandchildren, healthy children, healthy pets, a job, a home, food on the table. BUT my…
my wife hates the pep scan
my wife has mmmt and she gets a pep scan every 3 months and she does not like small areas any suggestions
now what
Now what my husband has SCLC and since Aug we have had surgery, radiation, and chemo. The doc said he wanted him to have 6 treatments no less than 4 we are going for our 4th treatment and doc says that is it because he is too sick to handle anymore, so i said now what he said well we will watch him? And i said and then…
A question about my dad
I have posted here a time or two and thought I would get your opinion. My dad finished his treatment for oral cancer 5 monthes ago. He did really great through the treatment. Like I have posted before he seems to need someone to do everything with him, but that is really not the issue. He will not talk with us. He hardly…
raising our granddaughter who has ostresarcoma(NBED HELP ASAP)
We really need some advise, ASAP We Picked up our granddaughter Sept 2008 before cps got involved. Kayla was 2 at the time. We had lots of emotional times with our daughter at the time. In April 2009 Kayla was diagnosed with Ostresarcoma in her left leg. She went through 34 weeks of chemo, and lost her left leg above the…
can't talk about it
My 60 year old husband is a prostate cancer survivor. He had surgery about 4 years ago and then radiation about 6 months ago. It seems to be eradicated. For that we are very, very happy and thankful. However, as he is retiring from teaching now, we are looking into health insurance policies to replace the one he had as a…
Surgery Cancelled - Need Prayers More Than Ever
UPDATE - SKIPPER My husband had a CT scan the day before his surgery. The surgeon called us up the same day to tell us he would be doing a wedge resection on left lung (lobectomy was supposed to be for right lung). If the left lung showed cancer, surgery would no longer be an option. Well - you guessed it - the left lung…
I NEVER LEFT
KNOCK,KNOCK HELLO ANYONE HOME? MOM, YOU THERE? YOU STARE AT ME FOR A RESPONCE STOP!! I AM NOT HERE IT'S NOT ME YOU SEE IT'S JUST MY SHELL, JUST A BODY PROOF OF A PHYSICAL EXSISTENCE YOUR EYES ARE HUMAN,YOU CANT SEE MY SOUL I AM GONE FROM YOUR SIGHT YOUR EYES CAN ONLY SEE WHAT THEY CAN TOUCH AS YOU HOLD MY HAND AND CRY FOR…
Feeling Somewhat Helpless
First of all, for anyone who's new to the caretaker experience I just want to preface my post by saying it gets better. My wife is about half a year in to her treatment and we've come a long way and gotten through some pretty low lows to get where we are now. For a while things were relatively "normal" and at times "good".…
Sad and Scared Over Changes in Dad
Hi everyone, Well my dad's home from a 7 day stay in the hospital with sepsis. He seems to me that he no longer is the person I knew. Understandably, he sleep or dozes, eats little and seems to have little interest in talking or acknowledging most things around him. It takes so much effort for him to concentrate on a task,…
Strong on the outside, paniced on the inside...
I've found myself bargaining with God. I cry & I pray over & over. Telling him that I'm broken without this man. Begging him to please not let cancer take him away from me. Before him I spent my whole life feeling half empty. Even in my previous marriage of 10 yrs, I felt like I was constantly searching for something. Then…
More tests (again)
Mike is in the hospital again. Wednesday night was another late night 2 hour drive to the VA emergency room. (Made for an interesting work day on Thursday, since my boss had scheduled my yearly eval that day and I was functioning on 3 hours of sleep) 4 hospital stays since the beginning of October, sigh. Pure exhaustion.…
Surgery May Be Cancelled - Need Your Prayers
My husband's onc and surgeon had told him he was going to have surgery tomorrow. He had a CAT scan today and the surgeon called to say there is now a suspicious area in his left lung (he has definite cancer in the right lung which they thought was stage I or II and so he was supposed to get a lobectomy tomorrow). From the…
I read the internet about liver mets...shouldn't have ..... 8.7 months....for my mom
SH**T....8.7 months....Mom has ovarian cancer spread to the liver. 8.7 months....I wonder what the .7 is? HAHAHA I am having a moment of total anger at this disease..I absolutely HATE HATE HATE HATE it....HATE HATE HATE>>>>>>>CAN ANYONE RELATE? I think I'm going to lose it...I am so angry at this disease and her doctors…
emotionally tired
Okay someone slap me into reality again.
Feeling alone and scared
My husband of 37 yrs was diagnoised with a recurrance of metatasic liver cancer on Aug. 31st 2010 my birthday. He had colon cancer in 2003/2004 and thought he had a full recovery. As of today he is so weak and barely eating or drinking. He is barely able to be mobile and hasn't showered in a week. He can no longer help…
Need to let it out.
Hi folks, I have written here only once before. I have deluded myself into believing that if I stood guard over my father and his cancer, the inevitable could be avoided. He has poorly differentiated neuroendocrine carcinoma of the pancreas - similiar to small cell. As of his July 2010 scan, it has spread to some lymph…
Scared of ct scan
Someone on another board called it scanxiety.. So apt! Tuesday we go to Roswell Park for my hubby to get his presurgery ct scan and talk to the plastic surgeon.. I know we are going to have to deal with these scans every 3 months.. It's a little (ok a lot!) disheartening. I saw a rainbow today and I'm choosing to see it as…
Soooo sad
I don't often post here in the caregiver board, but really need some support today. My mother has ovarian cancer..she's been fighting 1y 4mos. Two days ago we found out it has spread to her liver...we all know what that means....Although I knew this day was coming and what the future holds, I am sooooo sad....I know I am…
Tomorrow will be better...
So most days I do ok, but today this post is for one thing and one thing only. To vent, to complain to say all the things I won't say to him as he needs my strength so here it goes... I am exhausted. I worry 24/7 and I am drained. My body aches and I find myself wanting to cry all day long. I dont want him to lose his…
My Mom's was gone in 6 days??????
There's no long story here. We took my Mom in on a Tuesday night and they founds Brain Mets and on Sat. she took her last breath right in front of my eyes. She was my best friend and I dont know how to live this life without her. I have 4 kids and a husband so believe me I know I have to, but it doesn't make it easy.…

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