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Eye Exam while ON Tamoxifen
I went to routine check up for new glasses..he asked about Tamoxifen..I TOLD HIM I had been taken off it for 3 mths prior to my hysterectomy 6mths ago but back on. HE seemed very interested in info...later to find out very rare but it can effect a certain muscle or something in eyes... Thankfully I DO NOT have that issue..…
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DIEP pre-ops and surgery
So, in December I'm going in for a DIEP. I had a right mastectomy in June, and they're going to do the left side with a tummy-tuck to rebuild the right side. (They'll save the skin from the left for reconstructing it.) Pre-ops are today with my surgeon, plastic surgeon and hospital, plus a diagnostic mammogram (whatever…
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Last Chemo Today
My last chemo session is this morning. I'm thankful for having that behind me. On to see the Radiation Oncologist the week after Thanksgiving.
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Chatroom
Does anyone go in there to chat? I'm having trouble accessing it. I sent an email and nothing.
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Trying to fly under the radar of scans...
Well, as of 3 weeks I've had some REALLY funky pains and discomfort from the affected reconstructed breast. They ruled out Lymphedema today. Some swelling over the affested breast under the armpit, now I feel a lump. It seemed to come on so quickly. I finished my 5 year Tamoxifen back in September. Prayers please. I know…
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First Worldwide Guidelines for Advanced Breast Cancer on the Horizon
Experts from around the world are meeting in Spain to set forth guidelines for the treatment of advanced breast cancer. This is so important because both physicians and patients will have access to recommendations for care. Guidelines have begun to multiply for many conditions (for example, google "guidelines for asthma…
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Update.. My Moms results
Its scar tissue, however the radiologist did see something on the upper part of her abdomen but the picture was not clear so now she gets to have another CT scan. The radiologist recommends a CT scan immediately. So very nice of her dr to wait 13 days to give her te results & order this " immediate" test. I still think…
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UPDATE - please help --- Triple Negative bc Questions for a Friend
Hi ladies! Another friend of ours was dx, 34. Her type is triple neg. I would like some feedback about what kind of chemo you got for this type and what the side effects were, and if you have any suggestions as to how to deal with them. I was estrogen + so they gave me AC/T, not sure if they do the same for all bc, or if…
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Got my Xeloda
Finally got my Xeloda script approved and picked up my pills today. My HR manager at work interceded on my behalf and made things happen after days of insurance delays. Now I have to worry about how I will tolerate the 2 weeks on and one week off Xeloda treatment in addition to my daily radiation treatment on my pelvis and…
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Does anyone here have stories of hope to share?
A lot of people right now are really sad, worrying for either their lives or a loved one. Does anyone on here have stories of hope and survival to share with those people? If you are the one feeling sad and alone right now, read these and feel better. I hope that you can all remember when it was you, and help these people.…
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Thanks to everyone on the bus this morning!!
Oh boy! this was really the easiest scan I ever had.thank you all for going with me,I really tried to go to sleep on the little bed but you guy's kept me awake lol,you know i couldn't wear my breast form inside to take the scan but i bet you i had her in the car i found me a parking space nobody could see in my mini van i…
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What Do You Think Of Offering Rad Tips For Those That Are Just Starting Treatment Now Or Soon?
I know when I started rads, this board was unbelievable in the tips and help that I got, so, I thought we might throw out a few tips for anyone just starting. First and foremost though, do only what your own rads oncologist suggests. These tips are just what we did, per our own rads oncologist's approval. For mine...Use…
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Welcome to Hogwarts!!! A Primer for Newbies~ especially those not finding emotional support at home
January 22, 2010 - 8:33am So many new ones have joined our family of Kindred Spirits lately~we sigh that you have had to find us, but of course welcome you with open ♥ You may have noticed, or even posted about the fact that many of our friends, family members, co-workers and neighbors just don't "get it" and make what…
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I just want to whine.
I just want to whine and get pissed off. When I'm around people I feel like I have to put on a happy face so I haven't been going around anyone. Mom says, "It looks like your hurt." I say, "Its because it does hurt." It is like I'm supposed to pretend everything is fine. It is a very lonely feeling. I sleep a lot. I hope…
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Mom has bc invasive,75 yrs bad health, need advice
hello, I am new. My mom has a 7 cm tumor, wanted to have mastectomy surgeon told her today they might need to do chemo first to see if it responds. she wants it out ASAP. she has lots of health issues, Coumadin, heart monitor, diabetic, etc. Anyone have similar,ar experience? I say do mast ASAP. any insight would help me!
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post 6 mth check up (Hysterectomy due to tamoxifen)
Saw my OB aka surgeon all is well...no need for Harmone replacement...dont' have to go back for 6 more months... Denise
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The PInk Bus Is Needed Again For JuJuBeez - Julie On Thursday!
Julie has her six month check up this Thursday, so, let's all get aboard. I am bringing the potato soup that she has a craving for, so, let's fill the bus up with great food and drinks as always. All Aboard The Pink Bus For Julie
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Hitchin' a Ride... (and Vit D question)
I had so much fun on the last bus ride, may I ask for another on Thursday? Yep, it's been six months already. I finally got off the sugar high from the last ride. Can anyone bring a crock pot of soup? I'm in the mood for potato soup in a bread bowl. Guess that would be tricky on a bus. Okay, pizza then? ha ha. I keep…
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how do you send a private message to someone?
thanks
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OT - Lady Antebellum and my grand daughter
Ok, my 7 year old grand daughter is only partially verbal. (She has autism) She has been humming this new tune for about a month. Now keep in mind that my music is limited to what ever she wants to listen to which lately has been Celine and Disney music. We have been trying to figure out what song she has been trying to…
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Count Me In Too...
I am new here also - just found this site a few days ago. I am nearly 52yo. I have always had fibrocystic breasts and was grateful when digital mammography became available. I previously had 5 other biopsies and/or lumpectomies, all benign, plus my mother had Stage 2 BC at age 45, estrogen-positive, mastecomy, node…
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Happy Sunday!
Hey ladies! Since some of you are so sweet and ask for an update....here it is! Been doing great since surgery....just HATE these annoying drains!! See my surgeon for the first time tomorrow, but don't think he'll pull them yet, but I'm hoping by the end of the week. Want to head over to Portland and spend a week with my…
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GI Chen!!!!! Or maybe Sinead....
On Friday night, while giving the grandbaby her bath, my scalp started ACHING~ having gone through chemo before, I knew what it meant! I pulled on my hair, and yup~it all came out in my hands! A friend of mine, who owns a salon opened her place just for me late yesterday PM to shave my head and style my wig. I am a hat,…
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radiation twice
Hi, has anyone had radiation for breast cancer on each breast? I know you cannot have radiation again on the same breast, but can each breast receive a dose of radiation?
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Update on my Mom"s CT scan
I haven't posted anything because my mom had not heard from her dr until this past Friday at 6:00. My Mom had been calling her Dr daily requesting her results & was told each time that Dr had them & would be calling her. Finally on Friday - 11 days after the test, Mom called & was not very nice & demanded her results. The…
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OT: Anybody watching Once Upon a Time?
Anyone else here watching the new show Once Upon a Time? It's on Sundays at 8:00, on ABC, and has become our family's new addiction. It's about a town in present-day Maine where all the residents are fairy-tale characters, but don't know it, because of a curse put on them by the Wicked Queen (who, naturally, is the town's…
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Today is chickad52's Birthday!
Best wishes for a wonderful day - filled with lots of nice surprises! -Jenny
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Did i do the right thing?
Sorry this isnt BC related...but im stressed out over a situation and need to vent and maybe have some input of reassurance that i did the right thing. So here it goes. My cousin Georg (Stacys brother) was diagnosed with a very rare terminal disease about 4-5 years ago called stiffmans disease...roughly only 130 people…
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Mayo Clinic patients
Hi. If you've ever been seen at a Mayo Clinic, would you please share your experience with me in regards to how your at home drs reacted to your decision? My home state drs haven't been too accepting!..my new dr has been down right RUDE and HATEFUL and that is the only reason I can come up with. Thank you for sharing!…
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Newbie to the group
Hello all, I had a lumpectomy and reconstruction surgery done about 3 weeks ago. I'm still in the recovery process. I had 2 tumors in my right breast. They are different types and the Oncologist is sending one to OncoDX to have it tested further. I am fortunate that my lymph nodes were clear. I just needed to connect with…