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Breast Cancer

Archives for July 2011

Frustration and starfish
Hi everyone, we had so much bad news lately on this board and I can see how that may get a little frustrating at times. And some feel overwhelmed and feel they need to stay away. Here are two things that help me get things back into perspective. 1) The way I was welcomed and guided through my journey when I first stumbled…
signing off for awhile....
ITs been almost 2 years since i was diagnosed with cancer and by the grace of God and you ladies on here i got thru it. Within the past year ive also dealt with my grandpa passing away and also my best friend Stacy (who was my sister/cusion...i was raised by my aunt making her my sister) and a friend of mine was murdered…
stupid stupid pain
I have been talking about my severe PMPS/neuropathy I have had since I woke up from my BMX with SNB and AND in jan 2011. Finally, I have been seeing the pain clinic and I have been doing wonderful up until last friday. the doc likes me to have light occupational therapy on days i have my shots. well, i forgot to remind the…
AnoThEr hair/health update...
Hi, can't believe I haven't been on here since February. I guess no one needs my advice or experience expertise...anyhow, as for my hair...It's just growing. I had my last chemo May 2010, so it's been over a year. I got a perm this past April. My hair was fine before and now it is more fine with a better texture. I get a…
Good Things Happen When You Travel On The Pink Bus~ Thank You, Kindreds!
Home at last~ I was a very good patient! The IV didn't want to drip very quickly, so it took a long time for the Nuclear meds to infuse~ but the person who did the actual PET scan was so nice to me! He wrapped me up in a warm blanket, and actually told me I was soooo cute! HA~ that made me laugh out loud~I was so relaxed…
OT Don't Worry
"It makes no sense to worry about things you have no control over because there's nothing you can do about them, and why worry about things you do control? The activity of worrying keeps you immobilized." Dr. Wayne Dyer
Army of Women
For anyone interested, yesterday Dr. Susan Love had a Webinar called Breast Cancer 101 and it had a lot of great information to share. It is available on Facebook or at ArmyofWomen.org If you haven't joined yet, please consider signing up to help find the "CAUSE"! ♥ Always, Cat
7 years, but...
Hello! Last Saturday was my seven year "cancer-versary!" and I'm greatful and happy to be here - BUT I have also been sort of depressed ever since. I was feeling normal right up until the actual day, when I recieved tons of congratulations and well wishes from my friends (I'm still getting those! I love my friends!) but…
I have my dancing shoes on cause I am DANCING WITH NED!
Omg, I am so glad this day is over, well, the tests are. And, the results were good, the best they can be! I am Dancing with NED and I am going to hang on tight to him and keep on dancing! I cannot thank you all enough for your kind words, prayers and support. I read all of your messages before we left for the cancer…
A little history on the pink bus for a newbie :)
Hey Ladies First of all, I think you are all INCREDIBLE!!! Thank you for being such a refreshing site~~~ Just curious who started this great little idea of the Pink Bus? What a wonderful idea one of you had :) !!
First Fill
Boy, I am full of questions today! I had my expander put in two weeks ago (see Reconstruction Nightmare for details!) I am scheduled to have my 1st fill tomorrow. What can I expect. I am still very sensitive and sore from the surgery. Thanks!
When to have mammo after BC diagnosis
I was diagnosed right before Thanksgiving 2010, had a mastectomy in Dec and 4 rounds of chemo. My doc says I will have my 1st mammogram this Dec 2011, a year post last mammo, MRI, Mastectomy, chemo. I thought I would be on a six month schedule.
Wish me luck
Wish me luck please. Tomorrow morning is another mammo. Cynthia (CC) I can't be on the bus for you but you'll be in my thoughts. Hope everything goes better than you could anticipate. marge
Mama did not warn me about days like these.....
If she did I would have stayed in the womb!!! WOW, so not a great start to treatment. First, my port wouldn't work. Had to go to the hospital yesterday for a dye check only to find out I had to have a new one put in. Saturday after chemo on Friday, i actually felt normal......then BAM it hit me hard on Sunday. I never even…
Thank you all for thoughts and prayers, now venting on insurance problems.
Thank you all so much for your thoughts and prayers after my surgery last week. I am feeling very good, and am really trying hard to keep off my bike for a week or so at least. I do have a little swelling and tenderness in my right arm pit, but other than that I feel pretty normal. On to worse things - it sucks having to…
Reconstruction Nightmare
Okay, here is my story, my current dilemma. I started my breast reconstruction on July 7th. I had my expander surgery. The surgery is considered outpatient and was done in my doc’s surgical suite, in his office, his office is in a med building three steps from the admissions desk at one of our local hospitals. I went in…
Kindred Spirits Gathering, In a New York State of Mind: Saturday - June 12, 2011
For more info - see photo and description within my "Expressions" section. Kind regards, Susan
Marker test
We all have been talking about this.Just a couple months ago I wondered if I should get one and discussed it on the Board.Some doctors order them, some patients are told they have a non invasive cancer and don't need the marker test and some doctors don't order them because they are unreliable.Well I am getting one since 2…
Pink Bus request for Friday, 7-22
I really need you all on the bus with me this Friday......another PET Scan ....... last one was in February......but I am more anxious about this full body one. Its not a long drive......but I need you all!
Bus Trip scheduled for Wednesday 7/20, in support of Cypress Cynthia (C.C.)
I've gassed up our Bus, hosed down the entire interior of our bus, sooooo messy from our trip yesterday, in support of our ChenHeart -- You WARRIORS really know how to party! So rest up today, and let's prepare for another whimsical trip in support of our DEAR C.C. Coffee, water for hydration, and another batch of apple…
Breast Shrinking 10 years later.....please help
Hi there. My mom is a 10 year IDC breast cancer survivor. She was treated with lumpectomy/rads/hormone therapy. She recently noticed the treated breast has shrunk in size. Could this be a late side effect of radiation all those years ago? She had a normal mammogram last week. I am worried this could be a new problem. Any…
Today is Lighthouse_7's Birthday!
HAPPY BIRTHDAY TO YOU HAPPY BIRTHDAY TO YOU HAPPY BIRTHDAY DEAR LH HAPPY BIRTHDAY TO YOU!! AND MANY MORE...!!! Hope your day is filled with love, laughter, lots of cake & great gifts! ♥ Cat
Hello to all Sisters
Hello everyone. I have been out for like 2 years now. After the surgery and chemo, I went back out there and try to live the "normal Life". I went back to work and a lot of good things happenned. I'm on my 3rd year as a survivor, no changes on my MRI a few motnhs ago. So I just want to share this to everyone. Though my…
FOLLOW UP TESTS AFTER BREAST CANCER
Hi all What kind of follow up tests do you have after therapy and how often? My oncologist recommended to have for the first 2 years a PET CT and once mammo and wonder if any of you having PET CT as a follow up. I'm afraid of the incerased radiation exposure and from the other hand wondering if it is ok to skip it and just…
Surgery, Radiation, and Frustration
Up until today everything was 80% fine. I am in remission and I have started plans of eventually paying off our bills. I may need some sort of financial counseling in my future to have a concrete plan of attack but medically all everyone seems to be doing is adding not subtracting. I started getting a handle on what things…
PTSD from breast cancer and really horrible medical unprofessionals?
I have mentioned here and there the awful, and I do mean awful time I have had with drs since my cancer diagnoses. Some were cancer were related, one was a neurologist. When my oophrectomy was cancelled the afternoon before surgery, I went bullistic. The surgical technician had gotten paperwork I was supposed to sign 31…
A Gentleman and a Robot Project
I gave the scrub hat to my gynecologic oncologist today. He absolutely loved it. The nurse loved it. The medical student loved it. He laughed so hard and gave me a big hug (none of this has ever happened before). He says he's going to wear it in the OR and he just might - he modeled it in the exam room. He appreciated both…
Amazing fortune cookie after mastectomy !
Ok I am truly not making this up, it's a true story. I'm sitting in the hospital the evening of my mastectomy and my husband brings me Chinese food. At the end of the meal I open the fortune cookie and read it. It says "turn your scars into stars!" I've kept it to remind myself of the many amazing messages I keep receiving…
Had more blood work to rule out
blood clotting issues. Last Thursday a large bruise started to show on my mastectomy chest. I had not had any trauma since Memorial weekend when I fell. The bruising from that fall lasted a month but this new bruise just appeared after starting to take my aspirin again. I'm tired of having to worry about what could be…
More problems...this is getting old...already!
Long story short....took the second cycle of my trial chemo with the upped dosage..one day late..last Thursday...because my right arm and hand had been swelling with pain... and some funky looking veins appearing on the upper part of my arm.......had to have yet ANOTHER CAT scan...it shows that the tumor above my clavicle…

Breast Cancer

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