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Finished treatment yesterday.
Hi all. I've made myself scarce here the past few weeks. Had a pretty rough time of it. I got a week long break because of my burns and nausea and doc said it was either that or the hospital. That break really saved me. I was lucky that it was during the long Easter weekend and it only put me past my original finish date…
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3 wks pst treatment :dizziness
Hello i am 3 weeks post treatment and I doing relatively well. However I am experiencing lots of dizziness when changing position. I had IV fluids 3 times during the treatment. I had one iv fluids last Monday and it did not help the dizziness. I am not dehydrated. I also have nausea and headaches which I believe are caused…
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Strata xrt
a couple of weeks ago I talk about a new ointment my r. oncologist suggest that a pharmacy rep had recently left him. It is a wound dressing for radiation dermatitis. when I had first mentioned it, it was I was gearing up for the really bad time. The biggest help I found was it reduced the pain when pee hit the open sores.…
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Started tx 8 years ago today.
Hello all. I just wanted to drop in to let those newly diagnosed, or those going through tx or those whom have recently completed tx know there is life after anal cancer. I started chemo (mitomyicin and 5FU) and 28 radiation txs 8 years ago today. I was Stage II (T2N0M0) with a 4 cm tumor on my sphincter muscle. Treatment…
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Should I be happy?
Hi again! So, I got my pet scan results, and both doctors said everything looks "great"! They both talked about expected hot spots due to inflammation from radiation, but that I have responded very well to treatment. My colorectal surgeon did a DRE and said he didn't feel a mass at all. With that and nothing "suspicious"…
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Hi, my wife has CEA of 104
Just found out my wife has colon cancer. The doctor said her CEA is 104, and he said that is of grave concern. I'm simply chocked from all this sudden news. What to make of it?
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Newly Diagnosed
Hi Everyone, I am sad (and glad) to be posting here. I received a positive test result from a biopsy 2 weeks ago and was told by the doctor that it was early stage. The visable tumor is only a few mm in size but I think it may be further along because of the pain, pressure and burning I feel in the biopsy site, around my…
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Malabsorption syndrome
I wondered if my body could be getting any benefit from food at all, or the supplements I take (vitamins/CQ10/Krill oil/calcium) since i have 4-6 bowel movements a day. I am 6 1/2 yrs post treatment and this is the only side effect I have. I am able to make it to the bathroom, but cant dilly dally about it. And my stools…
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Waiting....
Hello all, I hope this message finds you well. I'm just checking in. I had my first post tx PET scan on Saturday and I am waiting for the results. I'm so scared and nervous! I just keep praying it is it clear. How do I keep my mind off of the waiting....?! I feel like I am going crazy. Thanks all! -Amy
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Throat Lesion
I get on here to read posts every few days but dont post often. I am 6 1/2 years NED. Just had mammo/pap/visit with anal cancer doctor & all is well in these areas. but started having the feeling of something stuck in my throat a week ago then saw a white spot on my tonsil. I went to my GP day before yesterday & he is…
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Constantly tired
Hi everyone im 4 years post treatment . I had 2nd stage anal cancer its been awhile since I've been on here and this place has always been encouraging for me as the years have gone by I'm getting increasingly fatigued to the point where it is debilitating . i have central sleep apnea and the drs say it has to do with the…
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Surgery
My moms colostomy surgery was booked for next Tuesday but her diabetes has been out of wack a1c of 10 and running blood sugars of 250. Her dr said she would never heal preperly with her sugars like that he wants postpone for 3/4 weeks. Her pet scan came back clear for any lymph node or matastis is waiting that long could…
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Paranoia
Hey everyone, I hope this message finds you all well. It's been a week or so since I've posted, although I have been reading posts from others. I am about 4 weeks out from radiation and feeling pretty good. I have a PET/CT scheduled for this coming Saturday, so I'm a bit anxious about that. Every little thing is spinning…
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CEA count rising, getting results of CT Scan & thinking of declining treatments
Thanks for adding me to the group. I'm a 48yrs old male and have managed to keep working during this nightmare. I did radiation and chemotherapy prior to surgery where they removed part of my rectum and a tumor. We had a short time of no stress. I have rectal cancer and was told by two cancer centers that I was stage 3. I…
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HPV vaccine
The specialist I went to for the IUD ( see previous post) helped to create the HPV vaccine. I asked him about his opinion about what to do if your child already has gotten the gardisil series of shots that protects against 4 strains of HPV since now there is one that protects against 9 strains. There are no official…
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IUD update
I went to get another opinion on what to do about my IUD which is scarred in due to vaginal stenosis. I was so nervous at the appt my pulse was 114 and blood pressure was up too! I did like the gyn doctor, he examined me (which wasn't as bad as I thought it would be, he used a speculum about a third the size of normal) and…
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PET scan
I had my follow-up PET/CT on Wednesday and got mixed results. My anal cancer is gone, but it showed some uptake in the pulmonary lymph nodes. I saw a pulmonologist on Friday and he said its probably sarcoidosis and he's not worried about cancer. I will be having a bronchoscopy with lymph node samples taken next Friday to…
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Hi everybody
Hey, Long, long time since I wrote on here! I'm actually now 29, not 26 - wow, that time has flown, it seems like a different universe now when my mum had just been diagnosed with cancer. She had her most recent scan in September 2016 which was all clear, so she was NED by about 13 months. She had 4 scans that year…