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Peritoneal Cancer

Archives for August 2011

My cancer is back :(
I've been having bloating recently so I had my CA125 taken and went to see my oncologist. My numbers are up from 122 to 1,467. It is so strange because I don't actually feel unwell and where I usually get fluid around my lungs they are currently clear. Anyway I will be having Topotecan. It is a weekly cycle where you have…
Mum is better!
Hi all, Just want to share the news that the CT scan and CA125 was excellent this time after 5th run of caebol/taxol and we are celebraiting! Mums is up from bed, she is "happier" and had a new anit-depression medicin that seems to work. A lot of what I read here and tell her is really a comfort to her. We hope for some…
One day good, one day bad.. and anxiety
Hi again, Just want to check in on how you all are doing. I am happy to see that no drastic negativ changes has happened. Mum is now doing (much) better one day, baking cakes and seeing her friends and the next day lying in bed wishing to die. For true. And she has a lot of anxiety. It is hard for me as relative to follow…
Looking for advice please! :)
Hi Everyone. I'm new to the site. My partner was diagnosed with colon cancer in february he is 40, he had a bowel obstruction and was rushed in for emergency surgery where they found some tumors in his bowel along with this peritoneal studding which they didn't remove. He has now had chemo every fortnight for the last 14…
Scan results on my brother...
Well, my mom got the results from Mike's ct scan on Friday - and they were wonderful! Cancer has shrunk, no spread, and fluid in cavity is nonexistant. On a side note, he did have an allergic reaction during the 3 hour push of his treatment yesterday, so they stopped it and gave him benadryl. He was able to finish the…
IBS
Hi I was just wondering if anyone has experienced IBS (Irritable Bowel Syndrome) as an "extra" problem and unconnected to PPC? I have recently had an ultra-sound of my tummy and I have NO ascites yet I become bloated after every meal. I feel full and often get bloating in the evening. But during the day when I am moving…
Raised ca125!
To Catch you up....mom who's 62 had her debulking after three rounds chemo. Her ca125 was 86,000 when they found the cancer. It went from that to 10 after the chemo. Now, post surgery they did one chemo and did not give her the number.Than the following friday they gave her just the taxol instead of the carbo/taxol…
Just an update on my brother...
When my 30 year old brother was diagnosed with peritoneal cancer in May, this board had not been started yet, and I think I posted in either the stomach or colon section. He started the FOLFOX regimen in June and I just wanted to let all of you know that he doing well! (Especially given his was so advanced, his organs were…
Thinking of you all
Hi, it is very late here and I have chemo in the morning. MY second last before stopping. Keeping ok, just tired. Wanted to pop in to post a poem that I have liked for a long time. Will post it under Seniors and Spirituality ... Poems. Will be back soon. Love to all. AussieMaddie xxxx
Swelling...
I finished chemo in April this year. I have recently noticed that my knees are swollen, my knee joints really ache and I feel generally very "fluidy" but not in the tummy area. I'm thinking I'm in remission and feel well enough although I tire easily. Anyone else have or had similar episodes?
FYI
I found this on a reputable breast cancer site and thought I would pass it on. .Hot Chemotherapy Bath 8/13/2011 (9:36:09am)Tags: noneComments: (0) This is an article from the New York Times about a new chemotherapy technique being used for colorectal and ovarian cancers (blessedly, not for breast). I just heard about it…
Peritoneal carcinomatosis
Peritoneal carcinomatosis from ovarian cancer: chemosensitivity test and tissue markers as predictors of response to chemotherapy Chiara Arienti (1), Anna Tesei (1), Giorgio M Verdecchia (2), Massimo Framarini (2), Salvatore Virzì (3), Antonio Grassi (3), Emanuela Scarpi (1), Livia Turci (1), Rosella Silvestrini (1), Dino…
Modified citrus pectin
I have read with interest Laundry Queens post about MCP can anyone tell me if it has to be modified? One site I looked on said not to be fooled by over priced MCP and that CP was just as good....... Thanks X
Prognosis..?
Hello.. My name is Marisa and I live in London. I found this site by accident but it looks like the only REAL way to get any information regarding PPC; everything else being Ovarian based! I was diagnosed in September last year with 111C PPC. I had 4 chemo's (usual blend!), surgery, then 2 more chemo's finishing in April.…
update on chemo
Hi to all, my husband Ian had his 2nd round of iv chemo on thurs, and this time he is coping much better, no reaction! he has started to eat and has gained weight, the ascites has not returned, so all in all not too bad. He has 2 more rounds of chemo, ( he also takes tabs at home xeloda ) to do then a scan, we both wonder…
Abnormal ovary ?????
I've been having some discomfort in my tummy, kind of bloating after meals. I also feel uncomfortable underneath my lungs (I have a little bit of fluid around my lungs) So my GP (Primary Care Doctor) sent me along for a chest x-ray and an ultra sound of my abdomen. 1. My chest x-ray showed a small amount of fluid in the…
encouraging news
My 65 year young mom has been fighting stage IV PPC for over 2 years, in nearly non-stop chemo(she had one 3 month break). She was stable on various chemos over the past year or so. Once her cancer started to show progression, her chemo was changed to gemzar, cisplatin, and avastin. She has had 3 rounds, or 9 weeks of this…
Microscopic disease
I went to see my consultant today to see about my serous papillary primary peritoneal for the three month scan results. She said that I had microscopic cells which were spread throughout the abdomen. I already knew that from the laparoscopy I had in May. Unfortunately, nothing can be seen on the CT scan so the medical team…
Follow-up on the CA125?
Hi all, Mum had CA125 of 500 and after her first chemo it was down to 55. But she never heard anything again after round 2-5 about CA125. Is that not "standard procedure" to measure after each chemo? Should I talk to her doctor about it? Thank you, Sophie
Colostomy?
Have any of of you on the board had colostomy and trouble with obstruction/adhensions due to the "caking" of the "seeds" from PPC? Has it gone worse (i.e more caking, more surgery) or being better with time? Anyone being off the colostomy later in life? /Sophie
ascites or the CA125 test?
Nancy's surgeon at MSK told her she suspected peritoneal cancer after looking at the CT scan. The increase in the CA125 number from 35 to 51 gave her concern but it was the scan that I think convinced her. I suppose that means she saw ascites. But every thing I've read describe the symptoms of ascites as bloated belly from…
Stomach pain and obstuction
Hi, Any of you suffer from severe ovstuctions and/or adhensions in your stomach? Mum have a lot of trouble with "caking" causing her doing surgery for the second time now to bypass the "stop" so she can eat by herself.. Anyone else live with "a bag on your tummy" because of the ppc? A huge problem to mum besides the…
Chemo started AGAIN!
Well we are on the home stretch i hope. Mom thought she was getting just the taxol this past Friday. They did carbo/taxol. She than will get the taxol every friday for 9 weeks than he's gonna do imaging. I just know she's very tired, depressed, and nauseous. Tonite I made salmon and she ate that half a baked potato and two…
The anxiety of being off chemo
Its been just over 4 months since I finished my 2nd round of chemo for my PPC. I have enjoyed my hair growing back and the general feeling of being normal again as I am free from the treatment. However, like most people I do feel a little anxious whilst being free from chemo - I mean, the cancer has the freedom now to rise…
my girlfriend
My girlfriend just was diagnosed with Peritoneal Cancer through a CT scan done at Memorial Sloan Kettering. Her CA 125 was 35 a month ago and 51 yesterday. I am hoping that this is considered stage 1 but really don't know if the stages correspond to the CA numbers. She's scheduled for surgery Wednesday. Being that her CA…
2nd round
Hi again, just keeping you posted, my husband was very poorly after his first round of chemo, has lost a lot of weigh very down and generally unwell. He has his next chemo thurs 11th. I still feel in the dark about whats happening, the ongologist said that the lymph nodes secondary mets in peritoneal ( from cc in cecum )…
About to stop chemo - how long do others go without treatment
Hi to all, Because Pet/CT scans showed nothing at all, my oncologist has said that I'm to have two more sessions of chemo - my last one next month - before stopping chemo and simply having my CA125 checked by him each 4 weeks after that. I believe that it is is common for those with peritoneal cancer not to stay off…
My mother was just diagnosed...
Greetings, all! What a relief it is to find this discussion board. I'm a college professor in Cincinnati, Ohio, and my mother was diagnosed with Stage IIIC PPC a few weeks ago. My mother's not one to ask a tremendous number of questions of her doctors, so I was hoping I could repeat here what the doctor said to her, and…
Hi, new and scared
Hi, new to this board. Mum the one being diagnosed with ppc stage 4 no spread in lymph nodes. On caarbo/taxol 4 rounds. Scheduled for 6 rounds. Stomach problem and surgery (not debulking as tumors pread is "seed". No primary tumour found (yet?). Mum is not eating much, 61 yrs and a lot of anxiety and panic. Me in 40´s,…

Peritoneal Cancer

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