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Esophageal Cancer

Archives for July 2012

In urgent need of prayer for my mother!
Hi All, I am new here, I posted my first post yesterday asking about the leak in thoracic duct, and I did get informative info from William! And he asked me to give more information regarding my mother surgery. So I am writing this post. My mother had a transthoracic esophagectomy on 7/19, everything went well initially…
Complication with the surgery
My mother just had the surgery on7/19. She was in the CVICU for 8 days, then she was transfer to regular floor. But on the 9 th day, we found out her thoracic duck is leaking fatty acid and drain out from the chest tube. She may need to stay in the hospital for weeks or months for that to heal. Does anyone else have this…
Information across the communication boards and the web
Hi All, My husband,50,was Adenocar. Stage IV, diag. 12/6/10, Chemo treatments, died 9/28/11. I'm on sabatial for a year and will be working on connecting EC information together across the web so its easier for people to find communication boards like this one. If you have an interest, I would appreciate some advice. Thanks
Help with Xeloda
Hi Gang, Coming from another message board, looking for help for FLA. Family having a hard time finding a way to pay for Xeloda. Started the appeal process with Genetech. Anyone using Xeloda ? How is it going, how did you pay for it ? Thanks
Mrs. Botch - have question
Ucsf_smile posted this under another thread - so pushing it to the top for you Barb. Thx - JR Mrs botch, In researching pasts posts I saw your husband had constant drainage of chest fluid. Sid he have a tap? What was prognosis at that point? I am so heartbroken to find my mom is at the same stage now and I'm trying to…
how is Don doing
Where are you Judy? I miss seeing you post Barb
husband could eat and now can't
My husband with Stage III EC finished with six weeks of radiation and chemo on June 15 of this year. He does have the feeding tube, but was able to eat, and now again, can't eat by mouth. He has pain and lots of stomach acid. What would cause him to be able to eat, and then not? He had a PET scan today, and has the doc on…
feeding tube questions
Hi. My husband was diagnosed last August with stage IV. He is HER2 postitive and really sensitive to chemo. He is currently doing well on Herceptin and Taxotere. Tumors and lymph nodes are responding and beginning to shrink. He had a J tube placed several months ago before he started chemo because with his first round of…
Giving away Jevity
Hi All, We are moving and have a few left over cases of Jevity from my mom. Does anyone need any? There is a $14.95 flat rate box that will fit about a dozen cans, so you would just need to pay for shipping. Email me if interested. groffalicious at gmail dot com thanks!
Why isn't surgery offered to Stage4 patients
I've been reading a lot of the older posts and it seems that I should request surgery to have the tumor removed from my esophagus. This is considered pallative care. I was wondering if anyone with stage 4 had the tumor removed and what the ramifications were. I think it would be better if I was able to eat a full meal.…
Sharp Stomach Pain
Hello again, I have a question that maybe some of you can help with. Dave is about a week and a half into his treatment ~ continuous 5FU, oxaliplatin every other week, and radiation. He continues to tolerate it well, I am so pleased at how he is doing, but he does have one troublesome symptom, sharp stomach pain that comes…
Foods for early post surgery. I know it's been discussed before
I am struggling with what I can be eating at this point. My esphogetomy was 7 weeks ago. My withdrawal from the feeding tube was delayed first because my stomach was in rough shape from the chem and radiation, then I developed the neck fistula. I Was just given permission to stop the feeding tube altogether. I have a list…
New Kid on the Block and Question about Driving
I stumbled on the discussion board from googling different things I didn't understand about EC. I am T3N1M0 Stage 3. Supposed to start Combined Chemo/Radiation Aug 6th and I've been so anxious about it all. So glad to have found this to see that others have already been where I am headed. Drs were going to use Proton Based…
Numbness in feet
I'm a 48yo man with Stage4 EC. I'm doing Doxetaxel, 5FU ans Cisplatin every other week since February. Also I see a lot of mention of lower back pain, what's the cause of this? I have recently notice numbness in my feet and hands. Anyone know what this means? Is this a side effect of the chemo or the cancer? Also, a bad…
Post esophagectomy was a success but cancer found in lymph nodes.
Hello everybody, I'm new to these discussion boards, I've been looking around the internet for a while now with people who have or know's someone whith this terrible disease. I'm glad to have found this community and I look forward to supporting each other through these tough times. My name is Jeffrey sipin and my Father…
Esophageal Cancer Action Network
Hello everyone, I just received a phone call from ECAN (esophogeal cancer action network)this morning, to disucss how I can help their organization. Coincidentally they are located here in the Baltimore area like I am. I had gone on their website and offerd to help in any way I can. I hope to get fully involved in this…
stage IV post surgery/chemo mouth sores/sore throat help
Hello everyone. First, I have looked on this site off and on for a while. There are so many brave and inspirational people on here and I truly appreciate you all sharing your good and bad news in a public forum that helps so many people better understand this terrible disease. Background: My Dad was diagnosed in January…
Question about chemo/hydration
Hi everyone. I have a question about chemo and hydration. My dad had his last chemo treatment on June 18. During the 6 weeks of chemo he would often get very tired as a result of dehydration and end up at the cancer center to be hydrated. He has been doing ok lately but he has also been working very hard in the 90 degree…
New Here
Hi everyone. I've been looking at these boards for a few days now and decided to stop lurking, and actually post something. Our story- my dad was diagnosed with EC on April 11 of this year after having an endoscopy. He had 6 treatments of taxol/carboplatin and 6 weeks of radiation. At first he seemed to tolerate the…
update from Kathy
Pray for ray,,cancer doc came in his blood is too thin to put feeding tube in..they gave him a vitamin k injection so that hopefully by we'd. Am he can have the tube put in. They say he will not come home til at least Friday..they are getting him an air mattress for his hospital bed at home, and a pillow that allows…
Could PET Scan show False Positives?
Hello, I wanted to ask for help again. My mother is 87 years old and has stage 4 esophageal cancer (the cancer has spread near her lungs and tranchea). She received chemotherapy for over a year. Over the past year and a half, she was given a few PET Scans. Each of the PET Scans showed that the cancer was not spreading, and…
Stent or Radiation?
Hello, I wanted to ask for your kind help. My mother has stage 4 esophageal cancer, and her cancer has spread to multiple lymph nodes near her lungs and tranchea. Since she was not a candidate for surgery, she was given chemotherapy for about a year. Unfortunately, however, her swallowing problems became worse and an…
Laryngectomee
I had a total Larynx removal in December 2001 and i was never told about the Voice Box prothesis. I will be 80 years old on January 20, 2013. I am a Korean vet and i would like to know something about this product. Can anyone help me?
back pain
Has aneone had back pain during eating after surgery. I think it may be related to the vagus nerve. thanks phil -Dianne
Jr. is back in hospital, not good!
This is from Kathy: Pray for ray, today is not a good day, we learned that his tumor has completely blocked his esophagus...he can't even swallow his own salava they are going to do test tomorrow, to best give him palliative care ...they say that is all that can be done for him.... I went to see my brother today and he…
Update on Dave
Hello everyone, Dave started treatment on Thursday (and yes, I did drive up from the beach to be with him, I couldn't not!) He tolerated the oxaciplatin (sp?) well, and is on a continuous infusion of the 5FU. So far so good. He's a little tired, but still has a good appetite. In reading the list of side effects I noticed…
saw surgeon
We met with dr orringer 7/19,our 43 anniversery. He gave us areat present. He said I am now tomono,ned. He even said the cured word.Had a chest exray and it looked great. I feel good still tring to learn how to eat. Im almost embadessed to say such good news ,when so many are fighting so hard.I feel so blessed I pray for…
Question about Surgery
My dad was recently diagnosed with Stage 3 Esophageal cancer. He has been through Chemo and Radiation and his PET scan shows "reduced activity" (not really sure what that means). We met with a surgeon at Mayo Rochester (Dr. Shen) and he recommends surgery in 2-3 weeks. My dad is hesitant to do the surgery and the surgeon…
Can milk cause phlegm??
Right now JR is having trouble again swallowing. It seems to be phlegm, mucous. Kathy could never reach the Dr but did get the nurse who said for Jr to stop drinking milk with ovaltine. She said the Ovaltine is fine but not the milk. No milk products of any kind. Can milk cause this???? Please not only read this but pray…
Good News - NED
I wanted to update you all on Rocky. We are at the 9 month marker in this battle (full story in the about me section). Rocky is on a "lighter" version of Chemo and has beed NED since late January. We went for a repeat PET scan this week and today the doctor told us it was again NED. We are thrilled and so blessed! It is…

Esophageal Cancer

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