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Esophageal Cancer

Archives for July 2012

Lost husband June 28
20 months after being diagnosed with EC, my husband, Bernardo Hutton, Sr. lost the war. He had surgery on 11/15/10 to remove the tumor at the GE Junction. The doctors also removed 5 inches of his esophagus and 30% of his stomach. He had chemo and radiation following the McDonald Regimen beginning in January of 2011 and…
Dr. Daniela Molena at JH
Good morning~ This is more specifically for our "ace researcher", William. Dr. Moleana, at Hopkins, does the MIE. As a good reference librarian I should do this myself, but frankly I'm on vacation and a little sick of EC at the moment! After the 12 hour day I had going from the beach to Baltimore, and then back again, I'm…
Daughters EC
My daughter was diagnosed about 4 years ago. She did not have surgery but had chemo and radiation. All seemed well for a while and then she developed a tumor in her upper left arm. They did surgery on it but couldn't get it all because of the nerves. She also had a rod put into her arm so it wouldn't break because the…
lost dad june 22
Well, my dad lost his fight June 22nd. He went through treatments in spring/summer of 2010, but wasn't a candidate for surgery because he was very disabled from a stroke he had in 2004. The cancer came back in Fall of 2011 and by March of 2012, he could no longer eat. Around May, he could no longer drink, but he kept going…
July good news
Well, had my second dose of Irinotecan, and lo! Seeing shrinkage of tumors! Getting radiation on the gum tumor, and that seems to be working as well. Happy happy joy joy... --Jerry
July good news
Well, had my second dose of Irinotecan, and lo! Seeing shrinkage of tumors! Getting radiation on the gum tumor, and that seems to be working as well. Happy happy joy joy... --Jerry
St. Joseph's video
Hi all: A few months ago someone posted a video of a young Indian-American Gastroenterologist at a hospital called St. Joseph’s Medical Center or something like that, in which he described EC, Barrets, etc. He specifically talked about a surgical procedure for removing the Barrets from one’s esophagus, which I’d never…
New here. Leak in the throat, a fistula
I received my EC diagnosis (stage 3 with lymph nodes involved) in March. I have been through chemo and radiation and had a full esoughgetomy June 5. The stomach was resected into a gastric tube. About day 10 after surgery I developed a fistula just above the collarbone in the neck incision. My surgeon says this happens in…
free tube feeding formula
my beloved husband has passed away after an 11 month fight with EC. We have a lot of cans of formula that someone can have for the price of the shipping. please contact me if you are interested.
Some pretty good news - a positive story
I havn't been on here for a while, I found that it scared me to death reading all the negative stories. Well mine is a very positive story. I had heart complications just after diagnosis, have had a stent inserted in my coronary artery and another heart procedure to replace a pacemaker/icd which ran out of battery at the…
bad news
Sorry to say bad news Went to duke for check up and cancer in throat, lung and liver. I have had a hard time breathing due to tumor in throat pressing on airway. My last day at work, My brother for those who know who also had same surgery, Not good with him either. Hole they make not fix, feeding tube when wrong and whole…
Looking for answers, hope and miracles
Hi everyone, This is my first post here. I'm learning as I go, so I may not have all of the lingo or information completely correct, so please bear with me. I have been reading the boards for the past few days as I sit by my father's bedside at a community hospital in NJ. He has been in intensive care here for 9 days,…
Heading to Mayo Sunday--surgery Wednesday...
It will be 3 weeks from last day of my radiation, but Dr. Deschamps wants to get it done. I have asked for MIE, so keeping my fingers crossed, and will know more after PET scan. I am feeling great, am eating well, exercising and praying. Jan T2N0M0
It is time for Hospice
I thought I would write an update on where we are with dad's treatment. Last I wrote back in May, he was having some difficulties while undergoing whole brain radiation for mets to the brain that had come back after his craniotomy in December. While we have had some good days since he came from from the hospital (he came…
Question about first round of chemo/radiation
Hello everyone, Dave had his port implanted last night, and aside from some pain this morning, it seems like the procedure went smoothly. He heads to Hopkins this afternoon for some "tweaking" prior to radiation and chemo starting on Thursday. We found that the tumor is non-metholating, so he'll be starting on the 96 hour…
Almost five years
Great news once again- my test results are once again NED. I am now on a once a year schedule for a scan. I was diagnosed 5 years ago this Nov. I am very blessed and want to tell the world! Hugs to all, Sandra
New to this, looking for information.
I was diagnosed Stage 4 esophageal cancer in Jan 2012. I was going to the gym 5 days a week, ran every day and haven't had a drink or a cigarette in 24 years. I'm $8 and was the picture of health when the symptoms first started in November. After not being able to eat any solid food since December had endoscopy early…
Any Squamous cell survivors here that didn't have surgery?
Are there any squamous cell EC survivors on this board who have not had surgery? When were you diagnosed, what was your staging and are you NED? I'm hoping for answers to help ease my mind (if that's possible when you have EC!). ptom
Don's mysterious pain
Hi Everyone: Well, don had the EGD this morning and gatro doc says all looks good - no ulcers and no cancer. He is thinking it is possible scar tissue and something from the nerves being cut. He wants to follow up with Don in his office soon. He told Don to take 1 tablespoon of miralax daily and 1 tablespoon three times a…
Judy and Don
Judy, I think of both of you so much and wonder what you have heard recently on Don. I have started to write you several times from my IPAD but that crazy pad does not do e-mails well for me and I just started back on my regular computer. Vince and I were avid motorcyclists so Identify with you guys on that. Is Don's pain…
Fluid in Lungs came back positive for cancer...What does this mean?!?
My mom had some chest pain and a cough in the middle of the night, so she went to the 24 hr center at city of hope. They drained her lungs and sent her home after she seemed to be ok. She's been home with no new issues. Then I get an email from the doctor that the fluid came back positive for cancer. He didn't really…
Unbearable stomachache all reports normal
Hi guys, As most of you know that my dad had gastric pull up in dec last year ... He was diagnosed t3n1 squamous cell carcinoma His entire esophagous was removed along with a few cm of stomach ....He had unbearable pain in his stomache after a few days while still hospital all test came normal so the doctor thought it was…
Update on Dave
Hello everyone, Dave and I were at Hopkins today for blood work, and to talk to the clinical trial nurse and get some more information about treatment next week. Well Dr. Kelly, the medical oncologist who is running the trial, says that his nurse can not get the hospital that did the initial endoscopy to send back the…
Stage IV hope...
First, please know that though the cancer may be the same, all patients are different. Treatment plans are different. Results are different. What works for one doesn't necessarily work for another. But we are all in this together. The fear. The hope. We all have it. I want to share some hope with Stage IV patients. My…
Let's lighten things up a bit for a moment, shall we?
EC is truly a beast, as many of you are wont to say on this forum. I am so grateful for all that I have learned from you all in just the short time that I have had the privilege to be here. My guy, Dave, who starts treatment next week, is an excellent lead guitarist in a band. He just plays for fun, has a real "day job",…
5002dblane - help with gaining weight after Ivor Lewis
Below is the post which was tucked away under another thread - requesting help with ideas to gain weight: July 10, 2012 - 2:59pm Ivor Lewis Feb 23, 2012 new Helloe there! My husband has Ivor Lewis in Fef 23, 2012. This week is his 5th month from surgery. He was diagnosed Stage 2, of the 13 lympnodes removed 1 was affected.…
FOR EC CAREGIVER
Hi I read your post and just wanted you to know how happy I am that your husband is still cancer free. That is wonderful. I am sorry to report that the VA has done NOTHING to help any of us with regards to EC. I have other friends on this site and other sites trying to get EC listed as a presumptive cancer for agent orange…
Goty2001
Welcome to the family. We have several here who are Stage IV and they will have a lot of information to offer you. Please do not hesitate to ask any questions - there are so many wonderful pioneers here - and they have been through just about everything you can think of. Like someone told me when I posted the first time…
DX 4-12 going to Mayo on 7-23 for surgery.
I'm 55 Stage II no lymph involvement per pet scan. Going to Mayo in Rochester MN. for surgery. Chemo and rad were pretty tough on me, but I'm hopeful. I don't have any support here in NW Ia, as I moved here from Ann Arbor a few years back. Is it possible to be on my own after surgery? My insurance company is trying to deny…
Question about Scans
Hello All I am scheduled to see my Thorasic Surgeon this week and the only scan he has scheduled is a chest scan. What type of scans are typical to check for reoccurance, or hopefully NED? A chest scan doesn't really seem very thorough to me. I appreciate all and any input. It has been almost one year since my surgery.

Esophageal Cancer

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