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Any long time forum members here have estimates--see below...
...on how many members here have survived 3 or more years after early stage IV diagnosis?
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Heeran.. thinking about your mom
Hi Heeran, your mom has been in my thoughts and prayers.. her surgery... I hope all is going well. Sal
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sham81(incase you missed my mail ..posting a new one) and see latest in my reply to William
December 16, 2011 - 8:57am Hi Shammi, William, Paul My Hi Shammi, William, Paul My Dad's getting his first chemo tomorrow and I wont be there ...will be going there on the 27th Dec.., William, I know what you told me but as I am here(China) its really difficult for them to listen to me.Since they said its advance stage…
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The end of our journey
This past evening, this beast of a cancer took my 37 year old husband away from me, my 8 year old and 12 year old and all of his family and friends. I am heart broken beyonds words, but want to thank all of you for being here and posting. I read these boards countless times everyday in order to gain knowledge and support.…
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Curious to know if anyone has heard from Jimbo? Hope he is ok
Thinking about you Jimbo Cora
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Mom diagnosed in June passed in September
I visited this site in July of this year. In everything I read on here I realised all the fancy words and descriptions would not help me. What did help me was the honesty. I appreciate those of you who were honest when I asked what should I expect with a Stage IV diagnosis. I tried so hard to have hope and faith that she…
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Dad diagnosed Dec.1, with Stage 2 EC. Surgery didn't get it all. Doc says 1 year. HELP!
one month ago, my dad was starting to experience trouble swallowing his food. Immediately he passed it off as a possible dysfunction with a valve, or even reflux and thought nothing of it. After a week, he decided to get it checked out. 1 week later he was told by a throat specialist that he has stage 2 EC, and that he…
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Christopher Hitchens dies from EC
http://www.vanityfair.com/online/daily/2011/12/In-Memoriam-Christopher-Hitchens-19492011
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Finally in treatment
Well, Monday I met with the surgeon who would install the portacath, and a very sweet young lady she is. Dr. Catherine Straub. She was going to do the surgery next week, but I pushed, and so she found she could do it on Tuesday. We headed back to the Hospital (an 80 mile drive) to be there by noon, of course no food after…
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What a week
Monday we went to a different hospital (MDA has a 4 week wait to get an EUS done)for what we thought was going to be just a preop visit before the EUS and ended up being whisked off to the ER as the EKG indicated a heart attack. Spent 8 hours in the ER before being admitted. Spent 2 nights there. The cardiologist says Bill…
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Acid Reflux Treatment
While speaking with my oncologist I mentioned that I was concerned that nobody has discussed a change in treatment that I receive to deal with my acid reflux. I have been using previcid for about six years and obviously it did not work or I would not have cancer. I was never advised that acid reflux could cause cancer and…
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More positive news...
Hi Everyone, Dad had his endoscopy yesterday and they found that the pyloric valve needed another shot of Botox, but the blockage was gone. He is now able to begin soft foods for a couple of days then whatever. (Although he is goign to be very cautious.) There apparently are no signs to watch for to see if the valve is not…
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New here hello everyone ..need advice
Hi We just found out that my Dad age 70 has esophageal cancer but not sure about the stage yet ..we think it might be stage 3.. for now they have not told us about the stage yet but my cousin's husband who is a doctor(from sydney) thinks its T3N2M0...its a nightmare for me and as an only child it's really hard. I've beeen…
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Facebook
Hey guys-- I feel awful for neglecting my friends and updates here lately (between a new job and a new nephew, holidays, dad, etc-- doesnt seem enough hours in the day!). Anyway, I think getting connected with you guys on Facebook might help me stay a bit more connected when I'm not at home. The mobile version of the…
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More about ECAN
I was looking for an organization to donate to on behalf of EC research and awareness. Well, tonight I talked with Mindy Mordecai who is the President and CEO of ECAN. Her husband Monte died from EC. We talked for a long time and I am very impressed with her dedication and the goals set for the org. She has many irons in…
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Need help with spreading word about EC
I'm going to be working on a Christmas letter this weekend. It will be going to some that have not heard about Larry's EC. I want to include a "public service message" about the increase in EC, correlation with gastric reflux, symptoms, etc. Is there a nice concise statement I can use? Angie
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Don's Failing
Don is failing very fast. They tell me it will probably be before the weekend. We are keeping him as pain free as we can. Hospice people are awesome. Lots of family are with me. Even his 97 year old mother. This is really hard for her. Keep us in your prayers. Reba
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Heeran's mother's surgery tomorrow, Dec 15.
Heeran, Thinking about you the past couple of days. Is your mother's surgery still on for tomorrow? I know she is so scared. We will pray for her, her doctors, and family for the long day ahead. Linda
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Doing pretty well......they even made a movie about me!
Greetings all. I am a 45 year old survivor of the dreaded EC. Two and a half years out from chemo/radiation/surgery. I was stage three at diagnosis, but was basically a zero when I went in for surgery. Six weeks of chemo and Radiation prior to surgery did me pretty well. I find myself frequenting these forums and am at…
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Phoenix Support Group
I was asked to post this for anyone who may live around Phoenix http://www.esophagealcancersupportphoenix.com/ Cora
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New here. Going for first visit in one hour
I've had difficulty swallowing white bread for 1 month now with no other symptoms until recent 2-3 days. Acid reflux and no appetite. I am so scared and hope that you will wish me luck with my first GI visit today. I hope to God it's nothing serious and I hope I won't be a steady reader/poster here. Thanks in advance to…
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Fluid hydration and blood tranfusion during chemo and radiation post surgery
My father is currently going through 5 weeks of 5fu .5 continous infusion and 5 day a week radiation post MIE. He is on week 2. For those of you who had the surgery and post chemo-radiation How did you manage to get enough fluids in with the decreased stomach size? This week he also saw a decrease in his red blood cells…
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Freida & Bill
Hope this finds you and Bill doing ok @ MD Anderson. You must be super busy with all of the tests. Just wanted to let you know we are thinking about you both and hoping some of your questions are getting answered. Hugs, Judy
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Doing much better!
Hi guys, One more update on Jeff. He came home from the hospital last Thursday with oral antibiotics. In true Jeff form he took it easy for about 10 minutes before he started puttering around the house. It was an indication to me that he was feeling better. We went out for a "yay, you're done chemo!!" dinner on Saturday,…
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Normal time frame
What is the normal time frame for follow up PET. Our ONC says that Dad will have a PET at week four after two rounds of chemo. My worry is that his staging has led him to do a PET sooner than later to see if he is responding to the Cisplatin, Taxotere, 5FU treatment. Anyone else have a follow up PET that quickly after…
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Dec 13,2010 my dad went to Jesus. What a year since....
Dear EC Friends, There are all new names, but a still a few of might remember me. My dad, Rich Anderson, was dx with ECIV July 13,10 and died Dec 13,10 after the 5 month roller coaster from Hell. William, Sally, Sherri, and so many others were of great support. Thank you. I've tried to check in on the boards, but knew I…
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Radiation recover
hello, I am new to this. My husband was diagnosed in June with UT3 N1 M1 esophageal cancer. He is 63 and had no symptoms; it was a chest xray showing enlarged lymph nodes that was the first clue that something was wrong. At this time, he's not a surgical candidate because of the lymph node involvement. He had three…
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Has anyone read the China Study?
A friend of mine sent me the China Study by T. Colin Campbell. Havent finished it yet, but was wondering if anyone with EC or any other cancer got results from a raw plant food diet. My husband is stage IV, he is able to eat almost anything now. He hasn't used his feeding tube in two months.His first CT-Scan after four…
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Not long now
Don is getting weaker every day. I now have to give him 60mg of morphine every 8 hrs and a pill for anxiety as needed. He has been in bed all day today and not eating anything. I am just praying that God will take him home and out of this suffering. I know that it is in HIS time, but it is very hard to see him suffer.…
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CHEMOSMOKER IS okay. Moved Waiting for internet,,, then were back! We're ok though!
Hi All. We Moved. Will have Internet on by the 14th. No posting til then but I am OKAY and feeling ok too. Love and miss you all. Eric