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January Atlanta EC Support Group Lunch
The January lunch for the Atlanta EC support group will be held on Saturday, January 21, 2012. We'll gather at La Madeleine's at Perimeter Center West at 11 AM. I know 11 is a bit early for lunch, but it might help avoid the beginning of the lunch crowd. The restaurant is located at 1165 Perimeter Center West. The La…
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Recurrence Rate
Let's say that a ec patient went through chemo/radiation and then surgery, does anyone know what the recurrence rate is? Plus, if it does recur, what does that mean? Chemo again? Is radiation done again?
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thoughts by caretakers for cancer patients
I went to a counseling session for my mom today at the cancer center and my mom told him that she feels guilty that she is being a burden on the rest of the family especially me because I'm spending all my days and nights being with her. I told her that being with her all day is not a burden. So here are some thoughts from…
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How was your (or yours) CT scan ordered?
I didn't get any response to my other question on this, so I'll put it another way: How were your or your loved ones CT scans ordered/or what did the report say it was--a chest CT or a chest and abdomen CT? Thanks! Angie
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Too much Chemo?? Advice / experiences.
Hello and best wishes to all of you on this board. My father in law with esophageal adenoCa stage 4 is trying to decide how much chemo to continue to take and for how long. I know this is typically a highly personal decision, but I'm sure he needs to have a better sense of what chemo side effects COULD be around the…
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How fast does this spread??
Ok guys. Tim has been hospice care since November and although takes no food by mouth we have rcvd nourishment via j tube. Yesterday tube clogged myself and nurse tried many attempts to unclog including coke, nothing has worked. Nurse called last night to check and says it is probably because cancer has spread? I don't…
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Carbo/taxol
Taxol and carboplatin, an effective preoperative regimen for carcinoma of the esophagus: results of a phase II trial. Paclitaxel (Taxol) has one of the highest response rates when used as a single agent in patients with esophageal cancer. The doublet Taxol-Carboplatin has been shown to be a well-tolerated and safe regimen…
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File ?
Is there a way to create file folders on this board for everyone to access? Thinking it would be great to have handouts on diet progression after surgery. Files on all sorts of topics- pain management, types of surgeries, pre-op workup... stuff like that. If so, I'd be happy to get it going if there is a way that I have…
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F/U CT Scan: Chest or Chest/Abdomen?
Hi, Everyone, I need some help on this, please. My husband (Stage IV: supraclavicular node involvement) started his 7th round of chemo (Oxaliplatin and Xeloda) on Tuesday. As we were leaving, they gave us his new calendar and instructions for a PET and CT on 12/27. I was just reading the instructions tonight and see there…
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UPDATE Home from Hospital 12/18/11
Had my MEI surgery Dec 12 and came home on Dec 18. Had a 2nd surgery on Dec 13 to remove a pesky spleen, according to Doctors! Doing pretty good but have lots of questions about the intake of food by mouth and how much stays down and if the amounts I am taking are normal.Some things stay down for a good while others not…
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tests result -male menopause
Hi all Slowly obtaining some results Blood test shows testosterone level low, FSH high = male menopause. Does anyone have knowledge or experience of this, is it disease or treatment related? Specialist claims he not sure why this would happen. Any thoughts? Kit
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The roller coaster continues...
Hello friends, So sorry I haven’t been around for a while. I do read this board daily on my phone but it is often difficult to post effectively on it. You may recall that Brian had an aspiration of fluid which had built up in the capsule surrounding the liver. They removed 2.3 litres of green coloured fluid. He had also…
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Happy Anniversary Donna
Just a quick note to wish Donna (Donna70) a happy second anniversary as a Cancer Survivor. Two years ago today; Donna had Ivor Lewis surgery to remove her cancer. Happy Anniversary Donna!!! I know it was a battle with post surgery complications, post surgery chemotherapy, and breathing, eating, and vocal cord issues. But…
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TxN0M0 PET Scan Report
Don received a copy of the PET scan report today and it said the stage appears to be TxN0M0. Having EUS on Friday - we are thinking the 'x' will be filled in at that time. Pretty sure the N0M0 is good. Am I correct in thinking that the 'x' number will be determined by the EUS? Thank you all so much, Judy P.S. Liquid and…
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A silver lining?
Thanks everyone for responding and giving me support over the past week. This has been by far one of the scariest moments in this cancer trek, only the surgery would top this week. It has been confirmed that Jeff was septic when we arrived at the major hospital, he is lucky to have responded so well to antibiotics and…
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Nausea
For the last two day's I've had nausea, I can't keep anything down! I'm not receiving any treatment...chemo or radiation. Nor am I taking any different meds, I taking Oxycodone and Hydrocodone and the Fentanlypatch 75 Mcmg for pain. I've been taking the meds for about two months, therefore I don't think the vomiting is…
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1000 cheers for caregivers!! Lets take a moment and thank them and say a a simply WHY...
I don't know abut any of you but if it weren't for Michelle, between missed diagnostics and wrong medication dosages and all that, I would be DEAD by now if it weren't for her. So THANK YOU Michelle. I love you and you have made the fact that I am still here possible. That's me. How about you? Eric
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Updates: Scans and Esophageal Stricture
Hello Everyone, Sorry for being absent for so long. Dad's condition and work didn't given me much time to come back here. I see we have some new faces and Eric (chemosmoker) has updated his picture. Eric, if that's really you... Oh boy, what a handsome man! You remind me of a very famous actor, whose name escaped from my…
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Probably not a surgery candidate
We had our first appointment at M D Anderson today. Have a whole bunch more tests scheduled to determine exact staging. Dr thinks 3 or 2. Because of Bill's many other health problems the oncologist thinks he is probably not a candidate for such a major surgery as they don't think he would survive the surgery. Something I…
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New Stage 3 Caregiver..Correction Stage IVb
I recently joined this site looking for others who have been effected by EC. I have read alot of the blogs and it is a comfort to finally be able to find answers to some of the things I have wondered about. My bf was diagnosed July 2011 just after his 51st birthday. No one in my family ever had cancer so I have to admit I…
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FUP ?
Question for post-op people. Do your doctors recommend post op CT scans or post op PET scans? Also, at what intervals, i.e. every 3-4 months? Our onc. recommended a 3 month CT and I think other people here have had PET. Cora
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Physical Capability 5 Weeks After Treatment
What are the physical capabilities 5 weeks after chemo/radiaton? My mom is still really weak. Her arms feel heavy, she's cold all the time, really fatigued. I thought by now she would be back to pre-treatment capabilities but she can barely take a shower before being exhausted. She's crying because she's scared she will be…
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Back in the hospital
Hi again friends, So we made it 9 hours before having to go back to the hospital. If anyone ever questions if they should go to a major cancer center over a community hospital, always go to the big guys! Jeff was originally at a community hospital near our home as it was the closest ER. As you know Jeff was neutropenic and…
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Adube - Where are you? How are things?
It's been quite a while since I've seen Adube post. Just wondering how things are going for her dad? If you're still out there, please give us an update! We care, kiddo. Hope things are good for you and the family during this holiday season. Love & Hugs, Terry
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Unsteady, poor balance!
Is poor balance a symptom a side effect of end stage cancer? I've been on steady on my feet today!
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Jim's thread prompted this ? The "What If ?"
It is really sad to me when someone so bright and young and like Jim has to face a diagnosis again that involves intense treatment, so soon. I know JIm was so happy to put cancer behind him a bit and get back to life which for him, much of it means work and meaningful work. I bring this up too to ask others what they or…
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blog on EC
Thought I'd share http://cancervivor.blogspot.com/
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We are back!
We arrived home on Nov. 30, we spent 9 days in Colorado with our sons and their families. Gerald, our youngest son, 37 years old, cooked the bird, his wife and our other daughter-in-law made the other dishes. Everything was very good. A few days before Thanksgiving, I had to be taken to ER, I couldn't breathe well. It was…
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We're off to Vegas tomorrow morning
This is our usual time to go right around our anniversary which was Friday. We're both packed and ready to fly away. Our youngest son lives with us and will take care of our shelties. They are not happy to see the suitcases. We're both looking forward to a relaxing break. We'll be sitting in front of our favorite penny…
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Hopper52: Dad's home
Hello friends, So happy to read about pain free days, post-op weight gain, and promotions! Just wanted to post an update about Mike/Hopper52/Dad: he's home! He was finally released from the LTAC facility to hospice this week, and came home last night (Friday). (Sorry, too, for the radio silence. We've been busy traveling…